Quality of life in coeliac patients: Italian validation of a coeliac questionnaire

European Journal of Internal Medicine

Volumn 24, Issue 1, 2013, Pages 87-91

  Marchese, Alessandra ^a   Klersy, Catherine ^b   Biagi, Federico ^a   Balduzzi, Davide ^a   Bianchi, Paola I ^a   Trotta, Lucia ^a   Vattiato, Claudia ^a   Zilli, Alessandra ^a   Rademacher, Johannes ^b   Andrealli, Alida ^c   Astegiano, Marco ^c   Michelini, Ilaria ^b   Häuser, Wienfried ^d,e   Corazza, Gino R ^a  

^a UNIVERSITY OF PAVIA   (Italy)

^b FONDAZIONE IRCCS POLICLINICO SAN MATTEO   (Italy)

^c UNIVERSITY OF TURIN   (Italy)

^d KLINIKUM SAARBRÜCKEN   (Germany)

^e TECHNICAL UNIVERSITY OF MUNICH   (Germany)

Author keywords

Celiac disease; Gliadin; Quality of life assessment; Questionnaires

Indexed keywords

ADULT; ARTICLE; CELIAC DISEASE; CELIAC DISEASE QUESTIONNAIRE; CRONBACH ALPHA COEFFICIENT; DISCRIMINANT VALIDITY; EMOTION; FEMALE; GASTROINTESTINAL SYMPTOM; HUMAN; INTERNAL CONSISTENCY; MAJOR CLINICAL STUDY; MALE; QUALITY OF LIFE; QUESTIONNAIRE; SOCIAL PROBLEM; TRANSLATIONAL RESEARCH; VALIDATION PROCESS; WELLBEING;

ADULT; CELIAC DISEASE; CULTURAL CHARACTERISTICS; FEMALE; HUMANS; LANGUAGE; MALE; QUALITY OF LIFE; QUESTIONNAIRES; TRANSLATIONS;

EID: 84871429924     PISSN: 09536205     EISSN: 18790828     Source Type: Journal    
DOI: 10.1016/j.ejim.2012.09.015     Document Type: Article

References (38)

1. F. Biagi, C. Klersy, D. Balduzzi, and G.R. Corazza Are we not over-estimating the prevalence of coeliac disease in the general population? Ann Med 42 2010 557 561
2. F. Biagi, and G.R. Corazza Mortality in celiac disease Nat Rev Gastroenterol Hepatol 7 2010 158 162
3. S. Martucci, F. Biagi, A. Di Sabatino, and G.R. Corazza Coeliac disease Dig Liver Dis 34 2002 S150 S153
4. P. Bech Quality of life measurements in chronic disorders Psycother Psychosom 59 1993 1 10 (Pubitemid 23082147)
5. S. Lohiniemi, K. Mustalahti, P. Collin, and M. Mäki Measuring quality of life in coeliac disease patients S. Lohiniemi, P. Collin, M. Mäki, Changing features of coeliac disease 1998 The Finnish Coeliac Society Tampere, Finland 73 77
6. C. Hallert, and S. Lohiniemi Quality of celiac disease patients living on a gluten-free diet Nutrition 15 1999 795 796
7. C. Hallert, C. Grännö, C. Grant, S. Hultén, G. Midhagen, and M. Ström Quality of life of adult coeliac patients treated for 10 years Scand J Gastroenterol 33 1998 933 938 (Pubitemid 28439309)
8. C. Ciacci, A. Iavarone, G. Mazzacca, and A. De Rosa Depressive symptoms in adult coeliac disease Scand J Gastroenterol 33 1998 247 250 (Pubitemid 28156912)
9. S. Lohiniemi, M. Mäki, K. Kaukinen, P. Laippala, and P. Collin Gastrointestinal symptoms rating scale in coeliac disease patients on wheat starch-based gluten-free diets Scand J Gastroenterol 35 2000 947 949
10. M.M. Kolsteren, H.M. Koopman, G. Schalekamp, and M.L. Mearin Health-related quality of life in children with celiac disease J Pediatr 138 2001 593 595 (Pubitemid 32319739)
11. G. Addolorato, E. Capristo, G. Ghittoni, C. Valeri, R. Mascianà, and C. Ancona Anxiety but not depression decreases in coeliac patients after one-year gluten-free diet: a longitudinal study Scand J Gastroenterol 36 2001 502 506 (Pubitemid 32328439)
12. P. Usai, L. Minerba, B. Marini, R. Cossu, S. Spada, and B. Carpiniello Case control study on health-related quality of life in adult celiac disease Dig Liver Dis 34 2002 547 552 (Pubitemid 35023637)
13. K. Mustalahti, S. Lohiniemi, P. Collin, N. Vuolteenaho, P. Laippala, and M. Mäki Gluten-free diet and quality of life in patients with screen detected celiac disease Eff Clin Pract 5 2002 105 113
14. C. Hallert, C. Grännö, S. Hultén, G. Midhagen, M. Ström, and H. Svensson Living with coeliac disease: controlled study of the burden of illness Scand J Gastroenterol 37 2002 39 42 (Pubitemid 34074732)
15. C. Ciacci, A. Iavarone, M. Siniscalchi, R. Romano, and A. De Rosa Psychological dimensions of celiac disease. Toward an integrated approach Dig Dis Sci 47 2002 2082 2087 (Pubitemid 35024826)
16. W. Häuser, J. Gold, J. Stein, W.F. Caspary, and A. Stallmach Health-related quality of life in adult celiac disease in Germany: results of a national survey Eur J Gastroenterol Hepatol 18 2006 7474
17. A. Lee, and J. Newman Celiac diet: its impact on quality of life J Am Diet Assoc 103 2003 1533 1535 (Pubitemid 39220505)
18. T. Fera, B. Cascio, G. Angelini, S. Martini, and C. Sategna Guidetti Affective disorders and quality of life in adult coeliac disease patients on a gluten-free diet Eur J Gastroenterol Hepatol 15 2003 1287 1292 (Pubitemid 39049671)
19. C. Hallert, O. Sandlund, and M. Broqvist Perceptions of health-related quality of life of men and women living with coeliac disease for 10 years Scand J Caring Sci 17 2003 301 307 (Pubitemid 41724465)
20. C. Ciacci, C. D'Agate, A. De Rosa, C. Franzese, S. Errichiello, and V. Gasperi Self-rated quality of life in celiac disease Dig Dis Sci 48 2003 2216 2220 (Pubitemid 38037313)
21. A. De Rosa, A. Troncone, M. Vacca, and C. Ciacci Characteristics and quality of illness behavior in celiac disease Psychosomatics 45 2004 336 342 (Pubitemid 38823609)
22. G. Addolorato, G. De Lorenzi, L. Abenavoli, L. Leggio, E. Capristo, and G. Gasbarrini Psychological support counseling improves gluten-free diet compliance in coeliac patients with affective disorder Aliment Pharmacol Ther 20 2004 777 782 (Pubitemid 39319233)
23. S.D. Johnston, C. Rodgers, and R.G. Watson Quality of life in screen-detected and typical coeliac disease and the effect of excluding dietary gluten Eur J Gastroenterol Hepatol 16 2004 1281 1286 (Pubitemid 39627526)
24. S. Case, and M. Zarkadas The gluten-free diet: its impact on the quality of life of adult patients with celiac disease J Am Diet Assoc 108 2004 A21
25. P.A. Pynnönen, E.T. Isometsä, M.A. Verkasalo, S.A. Kähkönen, I. Sipilä, and E. Savilahti Gluten-free diet may alleviate depressive and behavioural symptoms in adolescents with coeliac disease: a prospective follow-up case-series study BMC Psychiatry 5 2005 14
26. F. Casellas, J. Lopez Vivancos, and J.R. Malagelada Perceived health status in celiac disease Rev Esp Enferm Dig 97 2005 794 804 (Pubitemid 44400601)
27. S. Roos, A. Karner, and C. Hallert Psychological well-being of adult celiac patients treated for 10 years Dig Liver Dis 38 2006 177 180 (Pubitemid 44356172)
28. W. Häuser, A. Stallmach, W.F. Caspary, and J. Stein Predictors of reduced health-related quality of life in adults with coeliac disease Aliment Pharmacol Ther 25 2007 569 578
29. M. Peräaho, K. Kaukinen, K. Mustalahti, N. Vuolteenaho, M. Mäki, and P. Laippala Effect of an oats-containing gluten-free diet on symptoms and quality of life in coeliac disease. A randomized study Scand J Gastroenterol 39 2004 27 31 (Pubitemid 38221710)
30. F. Nachman, E. Mauriño, H. Vázquez, C. Sfoggia, A. Gonzalez, and V. Gonzalez Quality of life in celiac disease patients: prospective analysis on the importance of clinical severity at diagnosis and the impact of treatment Dig Liver Dis 41 2009 15 25
31. S.D. Dorn, L. Hernandez, M.T. Minaya, C.B. Morris, Y. Hu, and J. Leserman The development and validation of a new coeliac disease quality of life survey (CD-QOL) Aliment Pharmacol Ther 31 2010 666 675
32. W. Häuser, J. Gold, A. Stallmach, W.F. Caspary, and J. Stein Development and validation of the Celiac Disease Questionnaire (CDQ), a disease-specific health-related quality of life measure for adult patients with celiac disease J Clin Gastroenterol 41 2007 157 166 (Pubitemid 46148657)
33. F. Zingone, V. Passananti, P. Andreozzi, A. Ranaudo, E. Troncone, and C. Ciacci The Italian translation of the CDQOL questionnaire in celiac patients on gluten free diet Gut 60 2011 A390
34. M. Bullinger, J. Alonso, G. Apolone, A. Leplège, M. Sullivan, and S. Wood-Dauphinee Translating health status questionnaires and evaluating their quality: the IQOLA Project approach. International Quality of Life Assessment J Clin Epidemiol 51 1998 913 923 (Pubitemid 28527146)
35. J.E. Ware Jr., and B. Gandek Methods for testing data quality, scaling assumptions, and reliability: the IQOLA project approach. International Quality of Life Assessment J Clin Epidemiol 51 1998 945 952 (Pubitemid 28527149)
36. J.E. Ware, K.K. Snow, M. Kosinski, and B. Gandek SF-36 health survey: manual and interpretation guide 2000 Qualimetric, Inc. Lincoln, Rhode Island
37. G. Apolone, and P. Mosconi The Italian SF-36 Health Survey: translation, validation and norming J Clin Epidemiol 51 1998 1025 1036 (Pubitemid 28527158)
38. F. Biagi, A. Andrealli, P.I. Bianchi, A. Marchese, C. Klersy, and G.R. Corazza A gluten-free diet score to evaluate dietary compliance in patients with coeliac disease Br J Nutr 102 2009 882 887