Carers' assessment, skills and information sharing: Theoretical framework and trial protocol for a randomised controlled trial evaluating the efficacy of a complex intervention for carers of inpatients with anorexia nervosa

European Eating Disorders Review

Volumn 21, Issue 1, 2013, Pages 60-71

  Goddard, Elizabeth ^a   Raenker, Simone ^a   MacDonald, Pamela ^a   Todd, Gillian ^b   Beecham, Jennifer ^c   Naumann, Ulrike ^a   Bonin, Eva Maria ^c   Schmidt, Ulrike ^a   Landau, Sabine ^a   Treasure, Janet ^a  

^a KING'S COLLEGE LONDON   (United Kingdom)

^b SOUTH LONDON AND MAUDSLEY NHS FOUNDATION TRUST   (United Kingdom)

^c LONDON SCHOOL OF ECONOMICS   (United Kingdom)

Author keywords

anorexia nervosa; carers; eating disorders; family intervention; inpatient; motivational interviewing; randomised controlled trial; skills training; treatment

Indexed keywords

ANOREXIA NERVOSA; ARTICLE; BODY MASS; CAREGIVER BURDEN; CAREGIVER SUPPORT; CLINICAL EFFECTIVENESS; EVIDENCE BASED MEDICINE; EXPERIENCED CARERS HELPING OTHERS PROGRAM; FOLLOW UP; HEALTH CARE COST; HEALTH ECONOMICS; HOSPITAL DISCHARGE; HUMAN; INFORMATION DISSEMINATION; RANDOMIZED CONTROLLED TRIAL (TOPIC); RELAPSE; SELF HELP; SKILL; SOCIAL PSYCHOLOGY; STUDY DESIGN; SYMPTOMATOLOGY;

ANOREXIA NERVOSA; CAREGIVERS; COMMUNICATION; COST-BENEFIT ANALYSIS; HUMANS; INFORMATION DISSEMINATION; MOTIVATIONAL INTERVIEWING; OUTCOME AND PROCESS ASSESSMENT (HEALTH CARE); RECURRENCE; SELF EFFICACY; STRESS, PSYCHOLOGICAL;

EID: 84870918664     PISSN: 10724133     EISSN: 10990968     Source Type: Journal    
DOI: 10.1002/erv.2193     Document Type: Article

References (62)

1. Barber, B. K., (1996). Parental psychological control: Revisiting a neglected construct. Child Development, 67, 3296-3319.
2. Baron, R. M., &, Kenny, D. A., (1986). The moderator-mediator variable distinction in social psychological research: Conceptual, strategic, and statistical considerations. Journal of Personality and Social Psychology, 51 (6), 1173-1182.
3. Bauer, S., Winn, S., Schmidt, U., &, Kordy, H., (2005). Construction, scoring and validation of the short evaluation of eating disorders (SEED). European Eating Disorders Review, 13 (3), 191-200.
4. Beecham, J., (2000). Unit costs-Not exactly child's play. A guide to estimating unit costs for children's social care. Darlington: Department of Health, Darlington Social Research Unit, PSSRU.
5. Beecham, J., &, Knapp, M., (2001). Costing psychiatric interventions. In, G. Thornicroft, (Ed.), Measuring mental health needs (Second edn). London: Royal College of Psychiatrists.
6. Beecham, J., Green, J., Jacobs, B., &, Dunn, G., (2009). Cost variation in child and adolescent psychiatric inpatient treatment. European Child & Adolescent Psychiatry, 18, 535-542.
7. Brown, T. A., Chorpita, B. F., Korotitsch, W., &, Barlow, D. H., (1997). Psychometric properties of the Depression Anxiety Stress Scales (DASS) in clinical samples. Behaviour Research and Therapy, 35 (1), 79-89.
8. Campbell, M., Fitzpatrick, R., Haines, A., Kinmonth, A. L., Sandercock, P., Spiegelhalter, D., et al. (2000). Framework for design and evaluation of complex interventions to improve health. British Medical Journal, 321, 694-696.
9. Cole, J., &, Kazarian, S. S., (1988). The Level of Expressed Emotion scale: A new measure of expressed emotion. Journal of Clinical Psychology, 44 (3), 392-397.
10. Craig, P., Dieppe, P., Macintyre, S., Michie, S., Nazareth, I., &, Petticrew, M., (2008). Developing and evaluation complex interventions: The new Medical Research Council guidance. British Medical Journal, 337, c1655.
11. Curtis, L., (2010). Unity costs of health and social care. Canterbury: Personal Social Services Research Unit, University of Kent.
12. Dunn, G., Maracy, M., Dowrick, C., Ayuso-Mateos, J. L., Dalgard, O. S., Page, H., et al. (2003). Estimating psychological treatment effects from a randomised controlled trial with both non-compliance and loss to follow-up. The British Journal of Psychiatry, 183 (4), 323-331.
13. Efron, B., &, Tibshirani, R., (1993). An introduction to the bootstrap. New York: Chapman and Hall.
14. Fairburn, C., &, Beglin, S., (1994). Assessment of eating disorders: Interview or self-report questionnaire? International Journal of Eating Disorders, 16, 363-370.
15. Fisher, C. A., Hetrick, S. E., &, Rushford, N., (2010). Family therapy for anorexia nervosa. Cochrane Database of Systematic Reviews, 4, CD004780.
16. Francis, J., &, McDaid, D., (2009). SCIE's work on economics and the importance of informal care. In, L. Curtis, (Ed.), Unit costs of health and social care 2009. Canterbury: Personal Social Services Research Unit, University of Kent.
17. Glasziou, P., Chalmers, I., Altman, D. G., Bastian, H., Boutron, I., Brice, A., et al. (2010). Taking healthcare interventions from trial to practice. British Medical Journal, 341, c3853.
18. Goddard, E., Macdonald, P., Sepulveda, A. R., Naumann, U., Landau, S., Schmidt, U., et al. (2011). Cognitive interpersonal maintenance model of eating disorders: Intervention for carers. The British Journal of Psychiatry, 199 (3), 225-231.
19. Goddard, E., Macdonald, P., &, Treasure, J., (2010). An examination of the impact of the Maudsley Collaborative Care skills training workshops on patients with anorexia nervosa: A qualitative study. European Eating Disorders Review, 19 (2), 150-161.
20. Graap, H., Bleich, S., Herbst, F., Trostmann, Y., Wancata, J., &, de Zwaan, M., (2008). The needs of carers of patients with anorexia and bulimia nervosa. European Eating Disorders Review, 16 (1), 21-29.
21. Grover, M., Naumann, U., Mohammad-Dar, L., Glennon, D., Ringwood, S., Eisler, I., et al. (2011). A randomized controlled trial of an Internet-based cognitive-behavioural skills package for carers of people with anorexia nervosa. Psychological Medicine, 41, 2581-2591.
22. Haigh, R., &, Treasure, J., (2003). Investigating the needs of carers in the area of eating disorders: Development of the Carers' Needs Assessment Measure (CaNAM). European Eating Disorders Review, 11 (2), 125-141.
23. Kazarian, S. S., Malla, A. K., Cole, J. D., &, Baker, B., (1990). Comparisons of two expressed emotion scales with the Camberwell Family Interview. Journal of Clinical Psychology, 46 (3), 306-309.
24. Krauth, C., Buser, K., &, Vogel, H., (2002). How high are the costs of eating disorders-anorexia nervosa and bulimia nervosa-for German society? The European Journal of Health Economics, 3 (4), 244-250.
25. Kyriacou, O., Treasure, J., &, Schmidt, U., (2008a). Expressed emotion in eating disorders assessed via self-report: An examination of factors associated with expressed emotion in carers of people with anorexia nervosa in comparison to control families. International Journal of Eating Disorders, 41 (1), 37-46.
26. Kyriacou, O., Treasure, J., &, Schmidt, U., (2008b). Understanding how parents cope with living with someone with anorexia nervosa: Modelling the factors that are associated with carer distress. International Journal of Eating Disorders, 41, 233-242.
27. Lewis, G., Anderson, L., Araya, R., Elgie, R., Harrison, G., Proudfoot, J., et al. (2003). Self-help interventions for mental health problems.
28. Long, C. G., Fitzgerald, K., &, Hollin, C. R., (2012). Treatment of chronic anorexia nervosa: A 4-year follow-up of adult patients treated in an acute inpatient setting. Clinical Psychology & Psychotherapy, 19 (1), 1-13.
29. Lovibond, S. H., &, Lovibond, P. F., (1993). Manual for the Depression Anxiety Stress Scales (DASS): Psychology Foundation Mongraph.
30. Luce, K. H., &, Crowther, J. H., (1999). The reliability of the eating disorder examination-Self report questionnaire version (EDE-Q). International Journal of Eating Disorders, 25, 349-351.
31. Macdonald, P., Murray, J., Goddard, E., &, Treasure, J., (2011). Carer's experience and perceived effects of a skills based training programme for families of people with eating disorders: A qualitative study. European Eating Disorders Review, 19 (6), 475-486.
32. Michie, S., Ashford, S., Sniehotta, F. F., Dombrowski, S. U., Bishop, A., &, French, D. P., (2011). A refined taxonomy of behaviour change techniques to help people change their physical activity and healthy eating behaviours: The CALO-RE taxonomy. Psychology & Health, 26 (11), 1479-1498.
33. Moher, D., Hopewell, S., Schulz, K. F., Montori, V., GOtzsche, P. C., Devereaux, P. J., et al. (2010). CONSORT 2010 explanation and elaboration: Updated guidelines for reporting parallel group randomised trials. British Medical Journal, 23 (340), c869.
34. Moyers, T. B., Martin, T., Manuel, J. K., Miller, W. R., &, Ernst, D., (2007). Revised global scales: Motivational interviewing integrity 3.0 (MITI 3.0).
35. National Collaborating Centre for Mental Health. (2004). Eating disorders: Core interventions in the treatment and management of anorexia nervosa, bulimia nervosa, and related eating disorders. London: National Institute for Clinical Excellence.
36. O'Brien, B. J., &, Briggs, A. H., (2002). Analysis of uncertainty in health care cost-effectiveness studies: An introduction to statistical issues and methods. Statistical Methods in Medical Research, 11, 455-468.
37. Perkins, S. J., Murphy, R. M., Schmidt, U. S., &, Williams, C., (2006). Self-help and guided self-help for eating disorders. Cochrane Database of Systematic Reviews, 19 (3), CD004191. DOI: 10.002/14651858.CD004191.pub2
38. Pike, K. M., Walsh, B. T., Vitousek, K., Wilson, G. T., &, BAuer, J., (2003). Cognitive therapy in the posthospitalization treatment of anorexia nervosa. The American Journal of Psychiatry, 160, 2046-2049.
39. Prochaska, J. O., &, Velicer, W. F., (1997). The transtheoretical model of health behavior change. American Journal of Health Promotion, 12 (1), 38-48.
40. Raenker, S., (2011). Mothers and fathers in eating disorders: Should family interventions be tailored to the needs of female and male carers? Unpublished PhD, King's College London, London.
41. Rollnick, S., Butler, C. C., Kinnersley, P., Gregory, J., &, Mash, B., (2010). Motivational interviewing. British Medical Journal, 340, c1900.
42. Schmidt, U., &, Treasure, J., (2006). Anorexia nervosa: Valued and visible. A cognitive-interpersonal maintenance model and its implications for research and practice. British Journal of Clinical Psychology, 45, 343-366.
43. Sepulveda, A. R., Lopez, C., Macdonald, P., &, Treasure, J., (2008). Feasibility and acceptability of DVD and telephone coaching-based skills training for carers of people with an eating disorder. International Journal of Eating Disorders, 41, 318-325.
44. Sepulveda, A. R., Lopez, C., Todd, G., Whitaker, W., &, Treasure, J., (2008). An examination of the impact of "the Maudsley eating disorder collaborative care skills workshops" on the well being of carers: A pilot study. Social Psychiatry and Psychiatric Epidemiology, 43, 584-591.
45. Sepulveda, A. R., Kyriacou, O., &, Treasure, J., (2009). Development and validation of the Accommodation and Enabling Scale for Eating Disorders (AESED) for caregivers in eating disorders. BMC Health Services Research, 9 (171).
46. Sepulveda, A. R., Todd, G., Whitaker, W., Grover, M., Stahl, D., &, Treasure, J., (2010). Expressed emotion in relatives of patients with eating disorders following skills training program. International Journal of Eating Disorders, 43 (7), 603-610.
47. Sepulveda, A. R., Whitney, J., Hankins, M., &, Treasure, J., (2008). Development and validation of an Eating Disorder Symptom Impact Scale (EDSIS) for carers of people with eating disorders. Health and Quality of Life Outcomes, 6 (28).
48. Soenens, B., Elliot, A. J., Goossens, L., Vansteenkiste, M., Luyten, P., &, Duriez, B., (2005). The intergenerational transmission of perfectionism: Parents' psychological control as an intervening variable. Journal of Family Psychology, 19 (3), 358-366.
49. Soenens, B., Vansteenkiste, M., Vandereycken, W., Luyten, P., Sierens, E., &, Goossens, L., (2008). Perceived parental psychological control and eating-disordered symptoms: Maladaptive perfectionism as a possible intervening variable. The Journal of Nervous and Mental Disease, 196 (2), 144-152.
50. Sterne, J. A. C., White, I. R., Carlin, J. B., Spratt, M., Royston, P., Kenward, M. G., et al. (2009). Multiple imputation for missing data in epidemiological and clinical research: Potential and pitfalls. British Medical Journal, 338, b2393.
51. The Princess Royal Trust for Carers. What is a carer? Viewed April 10, 2012, from www.carers.org
52. Treasure, J., Sepulveda, A. R., Macdonald, P., Lopez, C., Zabala, M. J., Kyriacou, O., et al. (2008). Interpersonal maintaining factors in eating disorder: Skill sharing interventions for carers. International Journal of Child and Adolescent Health, 1 (4), 331-338.
53. Treasure, J., Smith, G., &, Crane, A., (2007). Skills based learning for caregivers of a loved one with an eating disorder: The new Maudsley method. Hove: Routledge.
54. Vos, T., Mathers, C., Herrman, H., Harvey, C., Gureje, O., Bui, D., et al. (2001). The burden of mental disorders in Victoria, 1996. Social Psychiatry and Psychiatric Epidemiology, 36 (2), 53-62.
55. Walsh, B., Kaplan, A., Attia, E., Olmsted, M., Parides, M., Carter, J., et al. (2006). Fluoxetine after weight restoration in anorexia nervosa Journal of the American Medical Association, 295, 2605-2612.
56. White, I. R., Horton, N. J., Carpenter, J., &, Pocock, S. J., (2011). Strategy for intention to treat analysis in randomised trials with missing outcome data. BMJ, 342, d40.
57. Whitney, J., Haigh, R., Wienman, J., &, Treasure, J., (2007). Caring for people with eating disorders: Factors associated with psychological distress and negative caregiving appraisals in carers of people with eating disorders. British Journal of Clinical Psychology, 46, 413-428.
58. Whitney, J., Murray, J., Gavan, K., Todd, G., Whitaker, W., &, Treasure, J., (2005). Experience of caring for someone with anorexia nervosa: Qualitative study. The British Journal of Psychiatry, 187, 444-449.
59. WHOQOL Group. (1998). Development of the World Health Organization WHOQUOL-BREF quality of life assessment. Psychological Medicine, 28 (3), 551-558.
60. Wiedemann, G., Rayki, O., Feinstein, E., &, Hahlweg, K., (2002). The Family Questionnaire: Development and validation of a new self-report scale for assessing expressed emotion. Psychiatry Research, 109 (3), 265-279.
61. Winn, S., Perkins, S., Walwyn, R., Schmidt, U., Eisler, I., Treasure, J., et al. (2007). Predictors of mental health problems and negative caregiving experiences in carers of adolescents with bulimia nervosa. International Journal of Eating Disorders, 40, 171-178.
62. Zabala, M. J., Macdonald, P., &, Treasure, J., (2009). Appraisal of caregiving burden, expressed emotion and psychological distress in families of people with eating disorders: A systematic review. European Eating Disorders Review, 17 (5), 338-349.