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Volumn 22, Issue 6, 2012, Pages 431-444

No Meaningful Apology for American Indian Unethical Research Abuses

Author keywords

American Indians; bioethics; Legacy of Tuskegee Syphilis Experiment; minority participation in research; research distrust; Tribal IRB

Indexed keywords


EID: 84870880385     PISSN: 10508422     EISSN: None     Source Type: Journal    
DOI: 10.1080/10508422.2012.730788     Document Type: Article
Times cited : (114)

References (74)
  • 2
    • 84870907450 scopus 로고    scopus 로고
    • Aberdeen Area Tribal Chairmen's Health Board
    • Aberdeen Area Tribal Chairmen's Health Board. (2012). TCU/Tribal IRB checklist. http://www.aatchb.org/epi/docs/ResearchEthics/T3-Checklist.doc
    • (2012) TCU/Tribal IRB checklist
  • 3
    • 0003435006 scopus 로고
    • Advisory Committee on Human Radiation Experiments, Washington, DC, Washington, DC,: Government Printing Office
    • Advisory Committee on Human Radiation Experiments. 1995. Final report of the Advisory Committee on Human Radiation Experiments, Washington, DC: Government Printing Office.
    • (1995) Final report of the Advisory Committee on Human Radiation Experiments
  • 4
    • 0036757367 scopus 로고    scopus 로고
    • The trachoma "menace" in the United States, 1897-1960
    • Allen, S. K. and Semba, R. D. 2002. The trachoma "menace" in the United States, 1897-1960. Survey of Ophthalmology, 47: 500-508.
    • (2002) Survey of Ophthalmology , vol.47 , pp. 500-508
    • Allen, S.K.1    Semba, R.D.2
  • 5
    • 0024933194 scopus 로고
    • Limited notions of culture ensure research failure
    • Beauvais, F. 1989. Limited notions of culture ensure research failure. The Journal of the National Center, 2: 25-28.
    • (1989) The Journal of the National Center , vol.2 , pp. 25-28
    • Beauvais, F.1
  • 8
    • 33748365190 scopus 로고    scopus 로고
    • Protecting the Navajo people through tribal regulation of research
    • Brugge, D. and Missaghian, M. 2006. Protecting the Navajo people through tribal regulation of research. Science and Engineering Ethics, 12: 491-507.
    • (2006) Science and Engineering Ethics , vol.12 , pp. 491-507
    • Brugge, D.1    Missaghian, M.2
  • 9
    • 33747571632 scopus 로고    scopus 로고
    • Lessons learned from community-based participatory research in Indian country
    • Burhansstipanov, L., Christopher, S. and Schumacher, S. A. 2005. Lessons learned from community-based participatory research in Indian country. Cancer Control, 20(1): 70-76.
    • (2005) Cancer Control , vol.20 , Issue.1 , pp. 70-76
    • Burhansstipanov, L.1    Christopher, S.2    Schumacher, S.A.3
  • 10
    • 79951813488 scopus 로고    scopus 로고
    • The Havasu'BaajaTribe and informed consent
    • Caplan, A. L. and Moreno, J. D. 2010. The Havasu'BaajaTribe and informed consent. The Lancet, 33: 621-622.
    • (2010) The Lancet , vol.33 , pp. 621-622
    • Caplan, A.L.1    Moreno, J.D.2
  • 11
    • 84870918100 scopus 로고    scopus 로고
    • A sorry saga: Obama signs Native American apology
    • January 20
    • Capriccioso, R. (2010, January 20). A sorry saga: Obama signs Native American apology. Indian Country Today. http://indiancountrytodaymedianetwork.com/2010/01/a-sorry-saga-obama-signs-native-american-apology/
    • (2010) Indian Country Today
    • Capriccioso, R.1
  • 12
    • 85044808474 scopus 로고    scopus 로고
    • The lost generation: American Indian women and sterilization abuse
    • Carpio, M. V. 2004. The lost generation: American Indian women and sterilization abuse. Social Justice, 31: 40-53.
    • (2004) Social Justice , vol.31 , pp. 40-53
    • Carpio, M.V.1
  • 13
    • 84870906569 scopus 로고
    • Chicago Committee to End Sterilization Abuse
    • Cherokee Nation v. Georgia, 30 U.S. 1 (1930)
    • Cherokee Nation v. Georgia, 30 U.S. 1 (1930). Chicago Committee to End Sterilization Abuse. (1977). Sterilization abuse: A task for the women's movement. http://www.cwluherstory.org/CWLUArchive/cesa.html
    • (1977) Sterilization abuse: A task for the women's movement
  • 14
    • 18844393684 scopus 로고    scopus 로고
    • Recommendations for conducting successful research with Native Americans
    • Christopher, S. 2005. Recommendations for conducting successful research with Native Americans. Journal of Cancer Education, 20(1): 47-51.
    • (2005) Journal of Cancer Education , vol.20 , Issue.1 , pp. 47-51
    • Christopher, S.1
  • 15
    • 48749092684 scopus 로고    scopus 로고
    • Building and maintaining trust in a community-based participatory research partnership
    • Christopher, S., Watts, V., McCormick, A. K. and Young, S. 2008. Building and maintaining trust in a community-based participatory research partnership. American Journal of Public Health, 98: 1398-1406.
    • (2008) American Journal of Public Health , vol.98 , pp. 1398-1406
    • Christopher, S.1    Watts, V.2    McCormick, A.K.3    Young, S.4
  • 16
    • 84870886682 scopus 로고
    • November 4, [Letter and report to Senator James Abourezk] (B-164031)
    • Comptroller General of the United States. 1976. November 4 [Letter and report to Senator James Abourezk] (B-164031)
    • (1976) Comptroller General of the United States
  • 17
    • 84926279657 scopus 로고
    • Crisis and response in Indian-White Relations: 1960-1984
    • Cornell, S. 1984. Crisis and response in Indian-White Relations: 1960-1984. Social Problems, 32: 44-59.
    • (1984) Social Problems , vol.32 , pp. 44-59
    • Cornell, S.1
  • 18
    • 77951871057 scopus 로고    scopus 로고
    • DNA returned to tribe, raising questions about consent
    • Couzin-Frankel, J. 2010. DNA returned to tribe, raising questions about consent. Science, 328: 558
    • (2010) Science , vol.328 , pp. 558
    • Couzin-Frankel, J.1
  • 19
    • 0016938997 scopus 로고
    • Epidemics as a factor in the Aboriginal depopulation in America
    • Crosby, A. W. 1976. Epidemics as a factor in the Aboriginal depopulation in America. William and Mary Quarterly, 33: 289-299.
    • (1976) William and Mary Quarterly , vol.33 , pp. 289-299
    • Crosby, A.W.1
  • 20
    • 3242882337 scopus 로고    scopus 로고
    • When two tribes go to war
    • Dalton, R. 2004. When two tribes go to war. Nature 500,: 500-502.
    • (2004) Nature 500 , pp. 500-502
    • Dalton, R.1
  • 21
    • 80052837197 scopus 로고    scopus 로고
    • Contract support funding and the federal policy of Indian tribal self-determination
    • Dean, S. B. and Webster, J. H. 2000. Contract support funding and the federal policy of Indian tribal self-determination. Tulsa Law Journal, 36: 349-379.
    • (2000) Tulsa Law Journal , vol.36 , pp. 349-379
    • Dean, S.B.1    Webster, J.H.2
  • 23
    • 84861957046 scopus 로고    scopus 로고
    • Lessons from the Havasupai Tribe v. Arizona State University Board of Regents: Recognizing group, cultural, and dignitary harms as legitimate risks warranting integration into research practice
    • Drabak-Syed, K. 2010. Lessons from the Havasupai Tribe v. Arizona State University Board of Regents: Recognizing group, cultural, and dignitary harms as legitimate risks warranting integration into research practice. Journal of Health and Biomedical Law, 6: 175-225.
    • (2010) Journal of Health and Biomedical Law , vol.6 , pp. 175-225
    • Drabak-Syed, K.1
  • 24
    • 5644291949 scopus 로고
    • Smallpox and the Indians in the American colonies
    • Duffy, J. 1951. Smallpox and the Indians in the American colonies. Bulletin of the History of Medicine, 25: 324-341.
    • (1951) Bulletin of the History of Medicine , vol.25 , pp. 324-341
    • Duffy, J.1
  • 25
    • 84870874576 scopus 로고    scopus 로고
    • White Feather medicine and the Blackfeet, 1855-1955: Native American health and the Department of the Interior
    • In: Hildreth M. L., Moran B. T., editors Reno, Reno,: University of Nevada Press
    • Edwards, D. D. 1998. "White Feather medicine and the Blackfeet, 1855-1955: Native American health and the Department of the Interior". In Disease and medical care in the mountain West: Essays on region, history, and practice, Edited by: Hildreth, M. L. and Moran, B. T. 43-58. Reno: University of Nevada Press.
    • (1998) Disease and medical care in the mountain West: Essays on region, history, and practice , pp. 43-58
    • Edwards, D.D.1
  • 26
    • 1442331998 scopus 로고    scopus 로고
    • Tribal participatory research: Mechanisms of a collaborative model
    • Fisher, P. A. and Ball, T. J. 2003. Tribal participatory research: Mechanisms of a collaborative model. American Journal of Community Psychology, 32(3/4): 207-216.
    • (2003) American Journal of Community Psychology , vol.32 , Issue.3-4 , pp. 207-216
    • Fisher, P.A.1    Ball, T.J.2
  • 27
    • 26644462878 scopus 로고    scopus 로고
    • Balancing empiricism and local cultural knowledge in the design of prevention research
    • Fisher, P. A. and Ball, T. J. 2005. Balancing empiricism and local cultural knowledge in the design of prevention research. Journal of Urban Health, 82(2 SUPPL. 3): iii44-iii55.
    • (2005) Journal of Urban Health , vol.82 , Issue.2 SUPPL. 3 , pp. 44-55
    • Fisher, P.A.1    Ball, T.J.2
  • 28
    • 0024893734 scopus 로고
    • Misalliances in the Barrow Alcohol Study
    • Foulks, E. F. 1989. Misalliances in the Barrow Alcohol Study. The Journal of the National Center, 2(3): 7-17.
    • (1989) The Journal of the National Center , vol.2 , Issue.3 , pp. 7-17
    • Foulks, E.F.1
  • 29
    • 11144292695 scopus 로고    scopus 로고
    • Appropriating availability: Reconciling purpose and text under the Indian Self-Determination and Education Assistance Act
    • Glazer, E. M. 2004. Appropriating availability: Reconciling purpose and text under the Indian Self-Determination and Education Assistance Act. University of Chicago Law Review, 71: 1637-1660.
    • (2004) University of Chicago Law Review , vol.71 , pp. 1637-1660
    • Glazer, E.M.1
  • 31
    • 63849167620 scopus 로고    scopus 로고
    • The repatriation of Native American human remains
    • Gulliford, A. 1996. The repatriation of Native American human remains. The Public Historian, 18: 119-143.
    • (1996) The Public Historian , vol.18 , pp. 119-143
    • Gulliford, A.1
  • 32
    • 77954626124 scopus 로고    scopus 로고
    • Indian tribe wins fight to limit research of its DNA
    • April 21
    • Harmon, A. 2010. Indian tribe wins fight to limit research of its DNA. The New York Times, April 21: A1
    • (2010) The New York Times
    • Harmon, A.1
  • 35
    • 0023107978 scopus 로고
    • Self-rating scales in cross-cultural psychiatry
    • Kinzie, J. and Manson, S. 1987. Self-rating scales in cross-cultural psychiatry. Hospital and Community Psychiatry, 38: 190-196.
    • (1987) Hospital and Community Psychiatry , vol.38 , pp. 190-196
    • Kinzie, J.1    Manson, S.2
  • 36
    • 18844431927 scopus 로고    scopus 로고
    • The Indian Health Service and the sterilization of Native American women
    • Lawrence, J. 2000. The Indian Health Service and the sterilization of Native American women. The American Indian Quarterly, 24: 400-419.
    • (2000) The American Indian Quarterly , vol.24 , pp. 400-419
    • Lawrence, J.1
  • 37
    • 84870892854 scopus 로고    scopus 로고
    • n.d, Window Rock, AZ, Window Rock, AZ,: The Native Peoples Technical Assistance Office. Historic Preservation Department, Cultural Resource Compliance Section
    • Maldonado, R. n.d. Navajo Nation IRB/Research protocols, Window Rock, AZ: The Native Peoples Technical Assistance Office. Historic Preservation Department, Cultural Resource Compliance Section.
    • Navajo Nation IRB/Research protocols
    • Maldonado, R.1
  • 39
    • 85163480638 scopus 로고
    • The depressive experience in American Indian communities: A challenge for psychiatric theory and diagnosis
    • In: Kleinman A., Good B., editors Berkeley, Berkeley,: University of California Press
    • Manson, S., Shore, J. and Bloom, J. 1985. "The depressive experience in American Indian communities: A challenge for psychiatric theory and diagnosis". In Culture and depression, Edited by: Kleinman, A. and Good, B. 331-368. Berkeley: University of California Press.
    • (1985) Culture and depression , pp. 331-368
    • Manson, S.1    Shore, J.2    Bloom, J.3
  • 40
    • 84870877980 scopus 로고
    • Trachoma and the army: The dangers incident to enlist recruits affected with the disease
    • McMullen, J. 1917. Trachoma and the army: The dangers incident to enlist recruits affected with the disease. Public Health Reports, 32: 1101-1104.
    • (1917) Public Health Reports , vol.32 , pp. 1101-1104
    • McMullen, J.1
  • 41
    • 77954655906 scopus 로고    scopus 로고
    • The Havasupai Indian tribe case - Lessons for research involving stored biological samples
    • Mello, M. M. and Wolf, L. E. 2010. The Havasupai Indian tribe case-Lessons for research involving stored biological samples. New England Journal of Medicine, 263: 204-207.
    • (2010) New England Journal of Medicine , vol.263 , pp. 204-207
    • Mello, M.M.1    Wolf, L.E.2
  • 43
    • 26644456451 scopus 로고    scopus 로고
    • Community-based research partnerships: Challenges and opportunities
    • Minkler, M. 2005. Community-based research partnerships: Challenges and opportunities. Journal of Urban Health, 82: 3-12.
    • (2005) Journal of Urban Health , vol.82 , pp. 3-12
    • Minkler, M.1
  • 44
    • 33749430939 scopus 로고    scopus 로고
    • I wonder, why would you do it that way? Ethical dilemmas in doing participatory research with Alaska Native communities
    • In: Trimble J. E., Fisher C. B., editors Thousand Oaks, CA, Thousand Oaks, CA,: Sage
    • Mohatt, G. V. and Thomas, L. R. 2005. "I wonder, why would you do it that way? Ethical dilemmas in doing participatory research with Alaska Native communities". In The handbook of ethical research with ethnocultural populations and communities, Edited by: Trimble, J. E. and Fisher, C. B. 93-114. Thousand Oaks, CA: Sage.
    • (2005) The handbook of ethical research with ethnocultural populations and communities , pp. 93-114
    • Mohatt, G.V.1    Thomas, L.R.2
  • 46
    • 84870950864 scopus 로고    scopus 로고
    • Navajo Human Research Review Board, Window Rock, AZ, Window Rock, AZ,: Navajo Division of Health
    • Navajo Human Research Review Board. 2007. IRB research protocol application guidelines, Window Rock, AZ: Navajo Division of Health.
    • (2007) IRB research protocol application guidelines
  • 48
    • 85005206477 scopus 로고
    • Telling about Whites, talking about Indians: Oppression, resistance, and contemporary American Indian identity
    • O'Nell, T. O. 1994. Telling about Whites, talking about Indians: Oppression, resistance, and contemporary American Indian identity. Cultural Anthropology, 9: 94-126.
    • (1994) Cultural Anthropology , vol.9 , pp. 94-126
    • O'Nell, T.O.1
  • 51
    • 77951228829 scopus 로고    scopus 로고
    • Havasupai tribe files $50M lawsuit against Arizona State University
    • March 17
    • Potkonjak, M. 2004. Havasupai tribe files $50M lawsuit against Arizona State University. East Valley Tribune, March 17
    • (2004) East Valley Tribune
    • Potkonjak, M.1
  • 52
    • 0036238096 scopus 로고    scopus 로고
    • Multicultural psychology: Bringing together gender and ethnicity
    • Reid, P. T. 2002. Multicultural psychology: Bringing together gender and ethnicity. Cultural Diversity and Ethnic Minority Psychology, 8: 103-114.
    • (2002) Cultural Diversity and Ethnic Minority Psychology , vol.8 , pp. 103-114
    • Reid, P.T.1
  • 53
    • 36249005333 scopus 로고    scopus 로고
    • Repatriation: A Pawnee's perspective
    • Riding, J. 1996. Repatriation: A Pawnee's perspective. American Indian Quarterly, 20: 238-250.
    • (1996) American Indian Quarterly , vol.20 , pp. 238-250
    • Riding, J.1
  • 54
    • 84870327360 scopus 로고    scopus 로고
    • The genographicproject: Traditional knowledge and population genetics
    • Rimmer, M. 2007. The genographicproject: Traditional knowledge and population genetics. Australian Indigenous Law Review, 11: 33-54.
    • (2007) Australian Indigenous Law Review , vol.11 , pp. 33-54
    • Rimmer, M.1
  • 56
    • 66849094159 scopus 로고    scopus 로고
    • Upper Saddle River, NJ: Pearson Education
    • Rubinstein, W. D. (2004). Genocide: A history. Upper Saddle River, NJ: Pearson Education. http://books.google.com/
    • (2004) Genocide: A history
    • Rubinstein, W.D.1
  • 57
    • 84859936493 scopus 로고    scopus 로고
    • Forced sterilization of Native Americans. Later twentieth century physician cooperation with national eugenic policies?
    • Rutecki, G. W. 2011. Forced sterilization of Native Americans. Later twentieth century physician cooperation with national eugenic policies?. Ethics and Medicine, 27: 33-43.
    • (2011) Ethics and Medicine , vol.27 , pp. 33-43
    • Rutecki, G.W.1
  • 59
    • 0024914930 scopus 로고
    • Transcultural research run amok or arctic hysteria?
    • Shore, J. H. 1989. Transcultural research run amok or arctic hysteria?. The Journal of the National Center, 2: 46-50.
    • (1989) The Journal of the National Center , vol.2 , pp. 46-50
    • Shore, J.H.1
  • 62
    • 84870872428 scopus 로고    scopus 로고
    • Genetic research among the Havasupai-A cautionary tale
    • Sterling, R. L. 2011. Genetic research among the Havasupai-A cautionary tale. Virtual Mentor, 13: 113-117.
    • (2011) Virtual Mentor , vol.13 , pp. 113-117
    • Sterling, R.L.1
  • 63
    • 0002384216 scopus 로고
    • The demography of Native North America: A question of American Indian survival
    • In: Jaimes M. A., editors Boston, MA, Boston, MA,: South End Press
    • Stiffarm, L. A. and Lane, P. 1992. "The demography of Native North America: A question of American Indian survival". In The state of Native America: genocide, colonization and resistance, Edited by: Jaimes, M. A. 23-53. Boston, MA: South End Press.
    • (1992) The state of Native America: Genocide, colonization and resistance , pp. 23-53
    • Stiffarm, L.A.1    Lane, P.2
  • 66
    • 0003815194 scopus 로고    scopus 로고
    • Population history of Native North Americans
    • In: Haines M. R., Steckel R. H., editors Cambridge, UK, Cambridge, UK,: Cambridge University Press
    • Thornton, R. 2000. "Population history of Native North Americans". In A population history of North America, Edited by: Haines, M. R. and Steckel, R. H. 9-50. Cambridge, UK: Cambridge University Press.
    • (2000) A population history of North America , pp. 9-50
    • Thornton, R.1
  • 67
    • 84870928685 scopus 로고
    • The treatment of trachoma with sulfanilamide: A report of 28 cases
    • Thygeson, R. 1938. The treatment of trachoma with sulfanilamide: A report of 28 cases. Transactions of the American Ophthalmological Society, 111: 1371-1372.
    • (1938) Transactions of the American Ophthalmological Society , vol.111 , pp. 1371-1372
    • Thygeson, R.1
  • 68
    • 84937324191 scopus 로고    scopus 로고
    • Native American women and coerced sterilization: On the Trail of Tears in the 1970s
    • Torpy, S. J. 2000. Native American women and coerced sterilization: On the Trail of Tears in the 1970s. American Indian Culture and Research Journal, 24: 1-22.
    • (2000) American Indian Culture and Research Journal , vol.24 , pp. 1-22
    • Torpy, S.J.1
  • 69
    • 84921258725 scopus 로고    scopus 로고
    • The itinerant researcher: Ethical and methodological issues in conducting cross-cultural mental health research
    • In: Crowley Jack D., Ali A., editors New York, NY, New York, NY,: Oxford University Press
    • Trimble, J. E., Scharron-del Rio, M. R. and Bernal, G. 2010. "The itinerant researcher: Ethical and methodological issues in conducting cross-cultural mental health research". In Silencing the self across cultures. Depression and gender in the social world, Edited by: Crowley Jack, D. and Ali, A. 73-95. New York, NY: Oxford University Press.
    • (2010) Silencing the self across cultures. Depression and gender in the social world , pp. 73-95
    • Trimble, J.E.1    Scharron-del Rio, M.R.2    Bernal, G.3
  • 72
    • 77950584885 scopus 로고    scopus 로고
    • Community-based participatory research contributions to intervention research: The intersection of science and practice to improve health equity
    • Wallerstein, N. and Duran, B. 2010. Community-based participatory research contributions to intervention research: The intersection of science and practice to improve health equity. American Journal of Public Health, 100: S40-S46.
    • (2010) American Journal of Public Health , vol.100
    • Wallerstein, N.1    Duran, B.2
  • 73
    • 0024915572 scopus 로고
    • Research of stigmatized conditions: Dilemma for the sociocultural psychiatrist
    • Westermeyer, J. 1989. Research of stigmatized conditions: Dilemma for the sociocultural psychiatrist. The Journal of the National Center, 2: 41-45.
    • (1989) The Journal of the National Center , vol.2 , pp. 41-45
    • Westermeyer, J.1
  • 74
    • 0024893621 scopus 로고
    • The Barrow study: An Alaskan's perspective
    • Wolf, A. S. 1989. The Barrow study: An Alaskan's perspective. The Journal of the National Center, 2: 35-40.
    • (1989) The Journal of the National Center , vol.2 , pp. 35-40
    • Wolf, A.S.1


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