Genetic research among the Havasupai: A cautionary tale

Virtual Mentor

Volumn 13, Issue 2, 2011, Pages 113-117

  Sterling, Robyn L ^a  

^a NONE

Author keywords

[No Author keywords available]

Indexed keywords

EID: 84870872428     PISSN: 19377010     EISSN: None     Source Type: Journal    
DOI: 10.1001/virtualmentor.2011.13.2.hlaw1-1102     Document Type: Article

References (13)

1. Viswanathan M, Ammerman A, Eng E, et al. Community-based participatory research: assessing the evidence. US Agency for Healthcare Research and Quality; 2004: 3. http://www.ahrq.gov/downloads/pub/evidence/pdf/cbpr/cbpr.pdf. Accessed January 18, 2011.
2. Minkler M. Community-based research partnerships: challenges and opportunities. J Urban Health. 2005;82(2 Suppl 2): ii4.
3. Grodin MA. Historical origins of the Nuremberg Code. In: Annas GJ, Grodin MA, eds. The Nazi Doctors and the Nuremberg Code. Oxford: Oxford University Press; 1992: 140.
4. US Centers for Disease Control and Prevention. US Public Health Service syphilis study at Tuskegee: the Tuskegee timeline. http://www.cdc.gov/tuskegee/timeline.htm. Accessed January 13, 2011.
5. National Research Act. PL 93-348.
6. The National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research. The Belmont Report: ethical principles and guidelines for the protection of human subjects of research; 1979. National Institutes of Health. http://ohsr.od.nih.gov/guidelines/belmont.html. Accessed January 5, 2011.
7. Protection of human subjects. 45 CFR 46. http://ohsr.od.nih.gov/guidelines/45cfr46.html. Accessed January 18, 2011. There are instances in which informed consent may be waived, but that will not be addressed in this article.
8. Protection of human subjects. 45 CFR 46 116(a). http://ohsr.od.nih.gov/guidelines/45cfr46.html. Accessed January 18, 2011.
9. Dalal M, Skeete R, Yeo HL, Lucas GI, Rosenthal MS. A physician team’s experiences in community-based participatory research: insights into effective group collaborations. Am J Prev Med. 2009;37(6 Suppl 1): S288-S289.
10. Wolf LE. Advancing research on stored biological materials: reconciling law, ethics and practice. Minnesota J Law Sci Tech. 2010;11(1):99-156.
11. Havasupai Tribe v Arizona Board of Regents, 220 Ariz. 214, 217-218 (2008).
12. Harmon A. Indian tribe wins fight to limit research on its DNA. New York Times. April 21, 2010. http://www.nytimes.com/2010/04/22/us/22dna.html?scp=1&sq=indian%20tribe%20wins%20fight%20to%20limit%20research%20on%20its%20dna&st= cse. Accessed January 4, 2011.
13. Havasupai Tribe v Arizona Board of Regents, 220 Ariz. 214, 222 (2008).