Balancing empiricism and local cultural knowledge in the design of prevention research

Journal of Urban Health

Volumn 82, Issue SUPPL. 3, 2005, Pages

  Fisher, Philip A ^a   Ball, Thomas J ^a  

^a OREGON SOCIAL LEARNING CENTER   (United States)

Author keywords

American Indian and Alaska Native; Community based participatory research

Indexed keywords

ARTICLE; CULTURAL ANTHROPOLOGY; EMPIRICISM; EVALUATION; HEALTH CARE DELIVERY; HUMAN; MEDICAL RESEARCH; POPULATION MODEL; PRIORITY JOURNAL; PUBLIC HEALTH; SOCIAL ASPECT;

ADVISORY COMMITTEES; ALASKA; COMMUNITY HEALTH PLANNING; CONSUMER PARTICIPATION; COOPERATIVE BEHAVIOR; CULTURE; EMPIRICAL RESEARCH; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HEALTH SERVICES RESEARCH; HEALTH SERVICES, INDIGENOUS; HUMANS; INDIANS, NORTH AMERICAN; INUITS; MODELS, ORGANIZATIONAL; PRIMARY PREVENTION; RESEARCH DESIGN;

EID: 26644462878     PISSN: 10993460     EISSN: 14682869     Source Type: Journal    
DOI: 10.1093/jurban/jti063     Document Type: Article

References (82)

1. Weissberg RP, Greenberg MT. Prevention science and collaborative community action research: combining the best from both perspectives. J Ment Health. 1998;7:470-492.
2. Suarez-Balcazar Y, Harper GW. Community-based approaches to empowerment and participatory evaluation. J Prev Intervent Community. 2003;26:1-4.
3. Clarke HF, Mass H. Comox Valley Nursing Centre: from collaboration to empowerment. Public Health Nurs. 1998;15:216-224.
4. Puertas B, Schlesser M. Assessing community health among indigenous populations in Ecuador with a participatory approach: implications for health reform. J Community Health. 2001;26:133-147.
5. Lewin K. Action research and minority problems. J Soc Issues. 1946;1-2:34-36.
6. Brown LD, Tandon R. Ideology and political economy in inquiry: action research and participatory research. J Appl Behav Sci. 1983;19:277-294.
7. Wisner B, Stea D, Kruks S. Participatory and action research methods. In: Zube EH, Moore GT, eds. Advances in Environment, Behavior, and Design. Edmonton, OK: Environmental Design Research Association; 1991:271-296.
8. Brydon-Miller M. Participatory action research: psychology and social change. J Soc Issues. 1997;53:657-666.
9. McTaggart R. Principles for participatory action research. Adult Educ Q. 1991;41:168-187.
10. Park P. People, knowledge, and change in participatory research. Manage Learn. 1999;30:141-157.
11. Whyte WF, Greenwood DJ, Lazes P. Participatory action research: through practice to science in social research. Am Behav Set. 1989;32:513-551.
12. Greenwood DJ, Levin M. Introduction to Action Research. Thousand Oaks, CA: Sage Publications; 1998.
13. Redman RW. The power of partnerships: a model for practice, education, and research. Res Theory Nurs Pract. 2003;17:187-189.
14. Potvin L, Cargo M, McComber AM, Delormier T, Macaulay AC. Implementing participatory intervention and research in communities: lessons from the Kahnawake Schools Diabetes Prevention Project in Canada. Soc Sci Med. 2003;56:1295-1305.
15. Metzler MM, Higgins DL, Beeker CG, et al. Addressing urban health in Detroit, New York City, and Seattle through community-based participatory research partnerships. Am J Public Health. 2003;93:803-811.
16. Nastasi BK, Varjas K, Sarkar S, Jayasena A. Participatory model of mental health programming: lessons learned from work in a developing country. Sch Psychol Rev. 1998;27:260-276.
17. Nastasi BK, Varjas K, Schensul SL, Silva KT, Schensul JJ, Ratnayake P. The participatory intervention model: a framework for conceptualizing and promoting intervention acceptability. Sch Psychol Q. 2000;15:207-232.
18. Gilliam A, Davis D, Barrington T, Lacson R, Uhl G, Phoenix U. The value of engaging stakeholders in planning and implementing evaluations. AIDS Educ Prev. 2002;14:5-17.
19. Corbie-Smith G, Ammerman AS, Katz ML, et al. Trust, benefit, satisfaction, and burden: a randomized controlled trial to reduce cancer risk through African-American churches. J Gen Intern Med. 2003;18:531-541.
20. Reece M, Dodge B. A study in sexual health applying the principles of community-based participatory research. Arch Sex Behav. 2004;33:235-247.
21. Cargo M, Lévesque L, Macaulay AC, et al. Community governance of the Kahnawake Schools Diabetes Prevention Project, Kahnawake Territory, Mohawk Nation, Canada. Health Promot Int. 2003;18:177-187.
22. McAllister CL, Green BL, Terry MA, Herman V, Mulvey L. Parents, practitioners, and researchers: community-based participatory research with early head start. Am J Public Health. 2003;93:1672-1679.
23. Naylor P, Wharf-Higgins J, Blair L, Green L, O'Connor B. Evaluating the participatory process in a community-based heart health project. Soc Sci Med. 2002;55:1173-1187.
24. Stein BD, Kataoka S, Jaycox LH, et al. Theoretical basis and program design of a school-based mental health intervention for traumatized immigrant children: a collaborative research partnership. J Behav Health Serv Res. 2002;29:318-326.
25. Singhal R. Participatory rural appraisal: a community-based method. Psychol Stud. 2001;46:105-113.
26. Krieger J, Allen C, Cheadle A, et al. Using community-based participatory research to address social determinants of health: lessons learned from Seattle Partners for Health Communities. Health Educ Behav. 2002;29:361-382.
27. Washington AE, Nápoles-Springer A, Forté DA, Alexander M, Pérez-Stable EJ. Establishing centers to address treatment effectiveness in diverse ethnic groups: the MEDTEP experience. Ethn Health. 2002;7:231-242.
28. Castro FG, Barrera M Jr, Martinez CR Jr. The cultural adaptation of prevention interventions: resolving tensions between fidelity and fit. Prev Sci. 2004;5:41-45.
29. Shiu-Thornton S. Addressing cultural competency in research: integrating a community-based participatory research approach. Alcohol Clin Exp Res. 2003;27:1361-1364.
30. Cook P, Cook M, Tran L, Tu W. Children enabling change: a multicultural, participatory, community-based rehabilitation research project involving Chinese children with disabilities and their families. Child Youth Care Forum. 1997;26:205-219.
31. Gellis ZD. Using a participatory research approach to mobilize immigrant minority family caregivers. J Soc Work Res Eval. 2001;2:267-282.
32. Westby C, Hwa-Froelich D. Considerations in participatory action research when working cross-culturally. Folia Phoniatrica et Logopaedica. 2003;55:300-305.
33. Population Reference Bureau. 2000 United States Population Data Sheet [Wall chart]. Washington, DC: Population Reference Bureau; 2000.
34. Indian Health Service. Trends in Indian Health, 1998-1999. Available at: http://www.ihs.gov/PublicInfo/Publications/trends98/trends98.asp. Accessed February 23, 2005.
35. Bureau of Justice Statistics. American Indians and Crime. Washington, DC: U.S. Government Printing Office; 1999.
36. Blum RW, Potthoff SJ, Resnick MD. The impact of chronic conditions on Native American adolescents. Fam Syst Health. 1997;15:275-282.
37. Cummins JC, Ireland M, Resnick MD, Blum RW. Correlates of physical and emotional health among Native American adolescents. J Adolesc Health. 1999;24:38-44.
38. French SA, Story M, Neumark-Sztainer D, Downes B, Resnick M, Blum R. Ethnic differences in psychosocial and health behavior correlates of dieting, purging, and binge eating in a population-based sample of adolescent females. Int J Eat Disord. 1997;22:315-322.
39. Inouye DK. Our future is in jeopardy: the mental health of Native American adolescents. J Health Care Poor Underserved. 1993;4:6-8.
40. DeBruyn L, Chino M, Serna P, Fullerton-Gleason L. Child maltreatment in American Indian and Alaska Native communities: integrating culture, history, and public health for intervention and prevention. Child Maltreatment. 2001;6:89-102.
41. Marshall CA, Gotto GS IV, Cruz GP, Rey PF, Juarez GG. Working together as neighbors: rehabilitation researchers and indigenous people with disabilities in Mexico. J Voc Rehabil. 1998;11:53-63.
42. Norton IM, Manson SM. Research in American Indian and Alaska Native communities: navigating the cultural universe of values and process. J Consult Clin Psychol. 1996;64:856-860.
43. Weaver HN. The challenges of research in Native American communities: incorporating principles of cultural competence. J Soc Serv Res. 1997;23:1-15.
44. Berlin IN. Prevention of emotional problems among Native American children: overview of developmental issues. In: Chess S, Thomas A, eds. Annual Progress in Child Psychiatry and Child Development. New York, NY: Brunner/Mazel Publisher; 1983:320-333.
45. Petoskey EL, Van Stelle KR, De Jong JA. Prevention through empowerment in a Native American community. Drugs Soc. 1998;12:147-162.
46. Stubben JD. Working with and conducting research among American Indian families. Am Behav Sci. 2001;44:1466-1481.
47. U.S. Department of Health and Human Services. Mental Health: Culture, Race, and Ethnicity. Washington, DC: U.S. Department of Health and Human Services; 2001. Publication SMA-01-3613.
48. Thornton R. American Indian Holocaust and Survival: A Population History Since 1492. Norman: University of Oklahoma Press; 1987.
49. Duran E, Duran B. Native American Postcolonial Psychology. Albany: State University of New York Press; 1995.
50. Gagne M-A. The role of dependency and colonialism in generating trauma in first nations citizens: the James Bay Cree. In: Danieli Y, ed. International Handbook of Multigenerational Legacies of Trauma. New York, NY: Plenum Press; 1998:355-372.
51. Morrissette PJ. The holocaust of first nation people: residual effects on parenting and treatment implications. Contemp Fam Ther. 1994;16:381-392.
52. Baldwin JA. Conducting drug abuse prevention research in partnership with Native American communities: meeting challenges through collaborative approaches. Drugs Soc. 1999;14:77-92.
53. Beauvais F. Obtaining consent and other ethical issues in the conduct of research in American Indian communities. Drugs Soc. 1999;14:167-184.
54. Fleming CM. American Indians and Alaska Natives: changing societies past and present. In: Orlandi MA, ed. Cultural Competence for Evaluators: A Guide for Alcohol and Other Drug Abuse Prevention Practitioners Working with Ethnic/Racial Communities. Rockville, MD: U.S. Department of Health and Human Services; 1992:147-171.
55. Fleming CM. The Blue Bay Healing Center: community development and healing as prevention. Am Indian Alsk Native Ment Health Res Monogr Ser. 1994;4:134-165.
56. LaFromboise TD, Howard-Pitney B. The Zuni life skills development curriculum: a collaborative approach to curriculum development. Am Indian Alsk Native Ment Health Res Monogr Ser. 1994;4:98-121.
57. LaFromboise TD, Trimble JE, Mohatt GV. Counseling intervention and American Indian tradition: an integrative approach. Couns Psychol. 1990;18:628-654.
58. Mohatt GV. The community as informant or collaborator? Am Indian Alsk Native Ment Health Res. 1989;2:64-70.
59. Chataway CJ. An examination of the constraints on mutual inquiry in a participatory action research project. J Soc Issues. 1997;53:747-765.
60. Cheshire TC. Cultural transmission in urban American Indian families. Am Behav Sci. 2001;44:1528-1535.
61. Dickson G, Green KL. Participatory action research: lessons learning with aboriginal grandmothers. Health Care Women Int. 2001;22:471-482.
62. Goodman DD. Using the empowerment model to develop sex education for Native Americans. J Sex Educ Ther. 1998;23:135-144.
63. Kavanaugh K, Absalom K, Beil W Jr, Schliessmann L. Connecting and becoming culturally competent: a Lakota example. ANS Adv Nurs Sci. 1999;21:9-31.
64. Lantz PM, Orians CE, Liebow E, et al. Implementing women's cancer screening programs in American Indian and Alaska native populations. Health Care Women Int. 2003;24:674-696.
65. Mohatt GV, Hazel KL, Allen J, Stachelrodt M, Hensel C, Fath R. Unheard Alaska: culturally anchored participatory action research on sobriety with Alaska Natives. Am J Community Psychol. 2004;33:263-273.
66. Severtson DJ, Baumann LC, Will JA. A participatory assessment of environmental health concerns in an Ojibwa community. Public Health Nurs. 2002;19:47-58.
67. Tsey K, Whiteside M, Deemal A, Gibson T. Social determinants of health, the 'control factor' and the Family Wellbeing Empowerment Program. Australas Psychiatry. 2003;11:34-39.
68. Wallerstein N, Duran BM, Aguilar J, et al. Jemez Pueblo: built and social-cultural environments and health within a rural American Indian community in the southwest. Am J Public Health. 2003;93:1517-1518.
69. Fisher PA, Ball TJ. The Indian Family Wellness project: an application of the tribal participatory research model. Prev Sci. 2002;3:235-240.
70. Fisher PA, Ball TJ. Tribal participatory research: mechanisms of a collaborative model. Am J Community Psychol. 2003;32:207-216.
71. Gittelsohn J, Evans M, Helitzer D, et al. Formative research in a school-based obesity prevention program for Native American school children (Pathways). Health Educ Res. 1998;13:251-265.
72. Jumper-Thurman P, Plested BA, Edwards RW, Foley R, Burnside M. Community readiness: the journey to community healing. J Psychoactive Drugs. 2003;35:27-31.
73. Fisher PA, Bacon JG, Stork M. Teacher, parent, and youth report of problem behaviors among rural American Indian and White adolescents. Am Indian Alsk Native Ment Health Res. 1998;8:1-24.
74. Fisher PA, Storck M, Bacon JG. In the eye of the beholder: risk and protective factors in rural American Indian and Caucasian adolescents. Am J Orthopsychiatry. 1999;69:294-304.
75. Macaulay AC, Commanda LE, Freeman WL, et al. Participatory research maximizes community and lay involvement. BMJ. 1999;319:774-778.
76. American Indian Law Center. Model Tribal Research Code, with Materials for Tribal Regulation for Research and Checklist for Indian Health Boards. 3rd ed. Albuquerque, NM: American Indian Law Center; 1999.
77. Murray DM, Blitstein JL. Methods to reduce the impact of intraclass correlation in group-randomized trials. Eval Rev. 2003;27:79-103.
78. Biglan A. Changing Cultural Practices: A Contextualist Framework for Intervention Research. Reno, NV: Context Press; 1995.
79. Sprott JE. One person's "spoiling" is another's freedom to become: overcoming ethnocentric views about parental control. Soc Sci Med. 1994;38:1111-1124.
80. Hodge FS, Pasqua A, Marquez CA, Geishirt-Cantrell B. Utilizing traditional storytelling to promote wellness in American Indian communities. J Transcult Nurs. 2000;13:6-11.
81. Tom-Orme L. Native Americans explaining illness: storytelling as illness experience. In: Whaley BB, ed. Explaining Illness: Research, Theory, and Strategies. Mahwah, NJ: Lawrence Erlbaum Associates; 2000:237-257.
82. Ammerman A, Corbie-Smith G, St. George DMM, Washington C, Weathers B, Jackson-Christian B. Research expectations among African American church leaders in the PRAISE! Project: a randomized trial guided by community-based participatory research. Am J Public Health. 2003;93:1720-1727.