-
1
-
-
33744792339
-
Recommendations for effective newborn screening communication: Results of focus groups with parents, providers, and experts
-
DOI 10.1542/peds.2005-2633M
-
Davis TC, Humiston SG, Arnold CL, et al. Recommendations for effective newborn screening communication: results of focus groups with parents, providers, and experts. Pediatrics 2006;117(5 Pt 2):S326-S340. (Pubitemid 46071321)
-
(2006)
Pediatrics
, vol.117
, Issue.5
-
-
Davis, T.C.1
Humiston, S.G.2
Arnold, C.L.3
Bocchini Jr., J.A.4
Bass III, P.F.5
Kennen, E.M.6
Bocchini, A.7
Williams, D.8
Kyler, P.9
Lloyd-Puryear, M.10
-
3
-
-
25844514754
-
Talking with parents before newborn screening
-
DOI 10.1016/j.jpeds.2005.08.001, PII S0022347605007456
-
Clayton EW. Talking with parents before newborn screening. J Pediatr 2005;147(3 suppl):S26-S29. (Pubitemid 41400255)
-
(2005)
Journal of Pediatrics
, vol.147
, Issue.3 SUPPL.
-
-
Clayton, E.W.1
-
5
-
-
34548046707
-
Information and informed consent for neonatal screening: Opinions and preferences of parents
-
DOI 10.1111/j.1523-536X.2007.00176.x
-
Detmar S, Hosli E, Dijkstra N, Nijsingh N, Rijnders M, Verweij M. Information and informed consent for neonatal screening: opinions and preferences of parents. Birth 2007;34:238-244. (Pubitemid 47283877)
-
(2007)
Birth
, vol.34
, Issue.3
, pp. 238-244
-
-
Detmar, S.1
Hosli, E.2
Dijkstra, N.3
Nijsingh, N.4
Rijnders, M.5
Verweij, M.6
-
7
-
-
70349264089
-
Informing parents about expanded newborn screening: Influences on provider involvement
-
Hayeems RZ, Miller FA, Little J, et al. Informing parents about expanded newborn screening: influences on provider involvement. Pediatrics 2009;124:950-958.
-
(2009)
Pediatrics
, vol.124
, pp. 950-958
-
-
Hayeems, R.Z.1
Miller, F.A.2
Little, J.3
-
8
-
-
24344493910
-
Informing parents about newborn screening
-
DOI 10.1111/j.0737-1209.2005.220408.x
-
Kemper AR, Fant KE, Clark SJ. Informing parents about newborn screening. Public Health Nurs 2005;22:332-338. (Pubitemid 41261313)
-
(2005)
Public Health Nursing
, vol.22
, Issue.4
, pp. 332-338
-
-
Kemper, A.R.1
Fant, K.E.2
Clark, S.J.3
-
9
-
-
33745297628
-
Expanded newborn screening for biochemical disorders: The effect of a false-positive result
-
DOI 10.1542/peds.2005-2294
-
Gurian EA, Kinnamon DD, Henry JJ, Waisbren SE. Expanded newborn screening for biochemical disorders: the effect of a false-positive result. Pediatrics 2006;117:1915-1921. (Pubitemid 46071234)
-
(2006)
Pediatrics
, vol.117
, Issue.6
, pp. 1915-1921
-
-
Gurian, E.A.1
Kinnamon, D.D.2
Henry, J.J.3
Waisbren, S.E.4
-
10
-
-
33748704081
-
A review of the psychosocial effects of false-positive results on parents and current communication practices in newborn screening
-
DOI 10.1007/s10545-006-0381-1
-
Hewlett J, Waisbren SE. A review of the psychosocial effects of false-positive results on parents and current communication practices in newborn screening. J Inherit Metab Dis 2006;29:677-682. (Pubitemid 44390431)
-
(2006)
Journal of Inherited Metabolic Disease
, vol.29
, Issue.5
, pp. 677-682
-
-
Hewlett, J.1
Waisbren, S.E.2
-
11
-
-
64849093360
-
Newborn blood collections Science gold mine, ethical minefield
-
Couzin-Frankel J. Newborn blood collections. Science gold mine, ethical minefield. Science 2009;324:166-168.
-
(2009)
Science
, vol.324
, pp. 166-168
-
-
Couzin-Frankel, J.1
-
12
-
-
79953327702
-
State laws regarding the retention and use of residual newborn screening blood samples
-
Lewis MH, Goldenberg A, Anderson R, Rothwell E, Botkin J. State laws regarding the retention and use of residual newborn screening blood samples. Pediatrics 2011;127:703-712.
-
(2011)
Pediatrics
, vol.127
, pp. 703-712
-
-
Lewis, M.H.1
Goldenberg, A.2
Anderson, R.3
Rothwell, E.4
Botkin, J.5
-
13
-
-
78751681441
-
Research ethics Research practice and participant preferences: The growing gulf
-
Trinidad SB, Fullerton SM, Ludman EJ, Jarvik GP, Larson EB, Burke W. Research ethics. Research practice and participant preferences: the growing gulf. Science 2011;331:287-288.
-
(2011)
Science
, vol.331
, pp. 287-288
-
-
Trinidad, S.B.1
Fullerton, S.M.2
Ludman, E.J.3
Jarvik, G.P.4
Larson, E.B.5
Burke, W.6
-
14
-
-
80051472673
-
Addressing the vaccine confidence gap
-
Larson HJ, Cooper LZ, Eskola J, Katz SL, Ratzan S. Addressing the vaccine confidence gap. Lancet 2011;378:526-535.
-
(2011)
Lancet
, vol.378
, pp. 526-535
-
-
Larson, H.J.1
Cooper, L.Z.2
Eskola, J.3
Katz, S.L.4
Ratzan, S.5
-
15
-
-
79954428003
-
Committee opinion 481 newborn screening
-
American College of Obstetricians and Gynecologists Committee on Genetics
-
American College of Obstetricians and Gynecologists Committee on Genetics. Committee opinion no. 481: newborn screening. Obstet Gynecol 2011;117: 762-765.
-
(2011)
Obstet Gynecol
, vol.117
, pp. 762-765
-
-
-
16
-
-
33747591403
-
Newborn screening: Toward a uniform screening panel and system
-
Newborn screening: toward a uniform screening panel and system. Genet Med 2006;8(suppl 1):1S-252S.
-
(2006)
Genet Med
, vol.8
, Issue.SUPPL. 1
-
-
-
17
-
-
0001373172
-
Serving the family from birth to the medical home. Newborn screening: A blueprint for the future-A call for a national agenda on state newborn screening programs
-
American Academy of Pediatrics Newborn Screening Task Force
-
American Academy of Pediatrics Newborn Screening Task Force. Serving the family from birth to the medical home. Newborn screening: a blueprint for the future-a call for a national agenda on state newborn screening programs. Pediatrics 2000;106:389-427.
-
(2000)
Pediatrics
, vol.106
, pp. 389-427
-
-
-
18
-
-
20344380953
-
Informed choice and public health screening for children: The case of blood spot screening
-
DOI 10.1111/j.1369-7625.2005.00324.x
-
Hargreaves KM, Stewart RJ, Oliver SR. Informed choice and public health screening for children: the case of blood spot screening. Health Expect 2005;8:161-171. (Pubitemid 40780465)
-
(2005)
Health Expectations
, vol.8
, Issue.2
, pp. 161-171
-
-
Hargreaves, K.M.1
Stewart, R.J.2
Oliver, S.R.3
-
20
-
-
33845906586
-
New mothers' awareness of newborn screening, and their attitutdes to the retention and use of screening samples for research purposes
-
Davey A, French D, Dawkins H, O'Leary P. New mothers' awareness of newborn screening, and their attitutdes to the retention and use of screening samples for research purposes. Genom Soc Pol 2005;1:41-51.
-
(2005)
Genom Soc Pol
, vol.1
, pp. 41-51
-
-
Davey, A.1
French, D.2
Dawkins, H.3
O'Leary, P.4
-
21
-
-
49249084799
-
Survey response rate levels and trends in organizational research
-
Baruch Y, Holtom BC. Survey response rate levels and trends in organizational research. Hum Relat 2008;61:1139-1160.
-
(2008)
Hum Relat
, vol.61
, pp. 1139-1160
-
-
Baruch, Y.1
Holtom, B.C.2
-
22
-
-
78649666322
-
Why do patients want information if not to take part in decision making?
-
Manson NC. Why do patients want information if not to take part in decision making? J Med Ethics 2010;36:834-837.
-
(2010)
J Med Ethics
, vol.36
, pp. 834-837
-
-
Manson, N.C.1
-
23
-
-
84869144134
-
Parental information use in the context of newborn bloodspot screening. An exploratory mixed methods study
-
e-pub ahead of print 16 February 2012
-
Nicholls SG, Southern KW. Parental information use in the context of newborn bloodspot screening. An exploratory mixed methods study. J Community Genet 2012; e-pub ahead of print 16 February 2012.
-
(2012)
J Community Genet
-
-
Nicholls, S.G.1
Southern, K.W.2
-
24
-
-
84856467855
-
Newborn screening education on the internet: A content analysis of North American newborn screening program websites
-
Araia MH, Potter BK. Newborn screening education on the internet: a content analysis of North American newborn screening program websites. J Community Genet 2011;2:127-134.
-
(2011)
J Community Genet
, vol.2
, pp. 127-134
-
-
Araia, M.H.1
Potter, B.K.2
-
25
-
-
25144491710
-
Completeness and complexity of information available to parents from newborn-screening programs
-
DOI 10.1542/peds.2004-0834
-
Fant KE, Clark SJ, Kemper AR. Completeness and complexity of information available to parents from newborn-screening programs. Pediatrics 2005;115:1268-1272. (Pubitemid 43843230)
-
(2005)
Pediatrics
, vol.115
, Issue.5
, pp. 1268-1272
-
-
Fant, K.E.1
Clark, S.J.2
Kemper, A.R.3
-
26
-
-
21344433687
-
Newborn screening information supports public health more than informed choice
-
DOI 10.1177/001789690506400203
-
Hargreaves K, Stewart R, Oliver S. Newborn screening information supports public health more than informed choice. Health Educ J 2005;64:110-119. (Pubitemid 40904979)
-
(2005)
Health Education Journal
, vol.64
, Issue.2
, pp. 110-119
-
-
Hargreaves, K.1
Stewart, R.2
Oliver, S.3
-
27
-
-
84863393820
-
Public attitudes regarding the use of residual newborn screening specimens for research
-
Botkin JR, Rothwell E, Anderson R, et al. Public attitudes regarding the use of residual newborn screening specimens for research. Pediatrics 2012;129:231-238.
-
(2012)
Pediatrics
, vol.129
, pp. 231-238
-
-
Botkin, J.R.1
Rothwell, E.2
Anderson, R.3
-
28
-
-
84856547266
-
Citizens' values regarding research with stored samples from newborn screening in Canada
-
Bombard Y, Miller FA, Hayeems RZ, et al. Citizens' values regarding research with stored samples from newborn screening in Canada. Pediatrics 2012;129:239-247.
-
(2012)
Pediatrics
, vol.129
, pp. 239-247
-
-
Bombard, Y.1
Miller, F.A.2
Hayeems, R.Z.3
|