메뉴 건너뛰기




Volumn 14, Issue 12, 2012, Pages 963-970

Factors associated with knowledge of and satisfaction with newborn screening education: A survey of mothers

Author keywords

education; genetic screening; newborn screening; public health genomics

Indexed keywords

ADULT; BLOOD SAMPLING; CANADA; CONTROLLED STUDY; DRIED BLOOD SPOT TESTING; EDUCATIONAL STATUS; FEMALE; HEALTH CARE PERSONNEL; HEALTH EDUCATION; HEALTH SURVEY; HUMAN; INTERPERSONAL COMMUNICATION; KNOWLEDGE; MOTHER; NEWBORN SCREENING; PRENATAL SCREENING; QUESTIONNAIRE; REVIEW; RISK; SATISFACTION;

EID: 84870654075     PISSN: 10983600     EISSN: 15300366     Source Type: Journal    
DOI: 10.1038/gim.2012.87     Document Type: Review
Times cited : (34)

References (28)
  • 3
    • 25844514754 scopus 로고    scopus 로고
    • Talking with parents before newborn screening
    • DOI 10.1016/j.jpeds.2005.08.001, PII S0022347605007456
    • Clayton EW. Talking with parents before newborn screening. J Pediatr 2005;147(3 suppl):S26-S29. (Pubitemid 41400255)
    • (2005) Journal of Pediatrics , vol.147 , Issue.3 SUPPL.
    • Clayton, E.W.1
  • 5
    • 34548046707 scopus 로고    scopus 로고
    • Information and informed consent for neonatal screening: Opinions and preferences of parents
    • DOI 10.1111/j.1523-536X.2007.00176.x
    • Detmar S, Hosli E, Dijkstra N, Nijsingh N, Rijnders M, Verweij M. Information and informed consent for neonatal screening: opinions and preferences of parents. Birth 2007;34:238-244. (Pubitemid 47283877)
    • (2007) Birth , vol.34 , Issue.3 , pp. 238-244
    • Detmar, S.1    Hosli, E.2    Dijkstra, N.3    Nijsingh, N.4    Rijnders, M.5    Verweij, M.6
  • 7
    • 70349264089 scopus 로고    scopus 로고
    • Informing parents about expanded newborn screening: Influences on provider involvement
    • Hayeems RZ, Miller FA, Little J, et al. Informing parents about expanded newborn screening: influences on provider involvement. Pediatrics 2009;124:950-958.
    • (2009) Pediatrics , vol.124 , pp. 950-958
    • Hayeems, R.Z.1    Miller, F.A.2    Little, J.3
  • 8
    • 24344493910 scopus 로고    scopus 로고
    • Informing parents about newborn screening
    • DOI 10.1111/j.0737-1209.2005.220408.x
    • Kemper AR, Fant KE, Clark SJ. Informing parents about newborn screening. Public Health Nurs 2005;22:332-338. (Pubitemid 41261313)
    • (2005) Public Health Nursing , vol.22 , Issue.4 , pp. 332-338
    • Kemper, A.R.1    Fant, K.E.2    Clark, S.J.3
  • 9
    • 33745297628 scopus 로고    scopus 로고
    • Expanded newborn screening for biochemical disorders: The effect of a false-positive result
    • DOI 10.1542/peds.2005-2294
    • Gurian EA, Kinnamon DD, Henry JJ, Waisbren SE. Expanded newborn screening for biochemical disorders: the effect of a false-positive result. Pediatrics 2006;117:1915-1921. (Pubitemid 46071234)
    • (2006) Pediatrics , vol.117 , Issue.6 , pp. 1915-1921
    • Gurian, E.A.1    Kinnamon, D.D.2    Henry, J.J.3    Waisbren, S.E.4
  • 10
    • 33748704081 scopus 로고    scopus 로고
    • A review of the psychosocial effects of false-positive results on parents and current communication practices in newborn screening
    • DOI 10.1007/s10545-006-0381-1
    • Hewlett J, Waisbren SE. A review of the psychosocial effects of false-positive results on parents and current communication practices in newborn screening. J Inherit Metab Dis 2006;29:677-682. (Pubitemid 44390431)
    • (2006) Journal of Inherited Metabolic Disease , vol.29 , Issue.5 , pp. 677-682
    • Hewlett, J.1    Waisbren, S.E.2
  • 11
    • 64849093360 scopus 로고    scopus 로고
    • Newborn blood collections Science gold mine, ethical minefield
    • Couzin-Frankel J. Newborn blood collections. Science gold mine, ethical minefield. Science 2009;324:166-168.
    • (2009) Science , vol.324 , pp. 166-168
    • Couzin-Frankel, J.1
  • 12
    • 79953327702 scopus 로고    scopus 로고
    • State laws regarding the retention and use of residual newborn screening blood samples
    • Lewis MH, Goldenberg A, Anderson R, Rothwell E, Botkin J. State laws regarding the retention and use of residual newborn screening blood samples. Pediatrics 2011;127:703-712.
    • (2011) Pediatrics , vol.127 , pp. 703-712
    • Lewis, M.H.1    Goldenberg, A.2    Anderson, R.3    Rothwell, E.4    Botkin, J.5
  • 15
    • 79954428003 scopus 로고    scopus 로고
    • Committee opinion 481 newborn screening
    • American College of Obstetricians and Gynecologists Committee on Genetics
    • American College of Obstetricians and Gynecologists Committee on Genetics. Committee opinion no. 481: newborn screening. Obstet Gynecol 2011;117: 762-765.
    • (2011) Obstet Gynecol , vol.117 , pp. 762-765
  • 16
    • 33747591403 scopus 로고    scopus 로고
    • Newborn screening: Toward a uniform screening panel and system
    • Newborn screening: toward a uniform screening panel and system. Genet Med 2006;8(suppl 1):1S-252S.
    • (2006) Genet Med , vol.8 , Issue.SUPPL. 1
  • 17
    • 0001373172 scopus 로고    scopus 로고
    • Serving the family from birth to the medical home. Newborn screening: A blueprint for the future-A call for a national agenda on state newborn screening programs
    • American Academy of Pediatrics Newborn Screening Task Force
    • American Academy of Pediatrics Newborn Screening Task Force. Serving the family from birth to the medical home. Newborn screening: a blueprint for the future-a call for a national agenda on state newborn screening programs. Pediatrics 2000;106:389-427.
    • (2000) Pediatrics , vol.106 , pp. 389-427
  • 18
    • 20344380953 scopus 로고    scopus 로고
    • Informed choice and public health screening for children: The case of blood spot screening
    • DOI 10.1111/j.1369-7625.2005.00324.x
    • Hargreaves KM, Stewart RJ, Oliver SR. Informed choice and public health screening for children: the case of blood spot screening. Health Expect 2005;8:161-171. (Pubitemid 40780465)
    • (2005) Health Expectations , vol.8 , Issue.2 , pp. 161-171
    • Hargreaves, K.M.1    Stewart, R.J.2    Oliver, S.R.3
  • 20
    • 33845906586 scopus 로고    scopus 로고
    • New mothers' awareness of newborn screening, and their attitutdes to the retention and use of screening samples for research purposes
    • Davey A, French D, Dawkins H, O'Leary P. New mothers' awareness of newborn screening, and their attitutdes to the retention and use of screening samples for research purposes. Genom Soc Pol 2005;1:41-51.
    • (2005) Genom Soc Pol , vol.1 , pp. 41-51
    • Davey, A.1    French, D.2    Dawkins, H.3    O'Leary, P.4
  • 21
    • 49249084799 scopus 로고    scopus 로고
    • Survey response rate levels and trends in organizational research
    • Baruch Y, Holtom BC. Survey response rate levels and trends in organizational research. Hum Relat 2008;61:1139-1160.
    • (2008) Hum Relat , vol.61 , pp. 1139-1160
    • Baruch, Y.1    Holtom, B.C.2
  • 22
    • 78649666322 scopus 로고    scopus 로고
    • Why do patients want information if not to take part in decision making?
    • Manson NC. Why do patients want information if not to take part in decision making? J Med Ethics 2010;36:834-837.
    • (2010) J Med Ethics , vol.36 , pp. 834-837
    • Manson, N.C.1
  • 23
    • 84869144134 scopus 로고    scopus 로고
    • Parental information use in the context of newborn bloodspot screening. An exploratory mixed methods study
    • e-pub ahead of print 16 February 2012
    • Nicholls SG, Southern KW. Parental information use in the context of newborn bloodspot screening. An exploratory mixed methods study. J Community Genet 2012; e-pub ahead of print 16 February 2012.
    • (2012) J Community Genet
    • Nicholls, S.G.1    Southern, K.W.2
  • 24
    • 84856467855 scopus 로고    scopus 로고
    • Newborn screening education on the internet: A content analysis of North American newborn screening program websites
    • Araia MH, Potter BK. Newborn screening education on the internet: a content analysis of North American newborn screening program websites. J Community Genet 2011;2:127-134.
    • (2011) J Community Genet , vol.2 , pp. 127-134
    • Araia, M.H.1    Potter, B.K.2
  • 25
    • 25144491710 scopus 로고    scopus 로고
    • Completeness and complexity of information available to parents from newborn-screening programs
    • DOI 10.1542/peds.2004-0834
    • Fant KE, Clark SJ, Kemper AR. Completeness and complexity of information available to parents from newborn-screening programs. Pediatrics 2005;115:1268-1272. (Pubitemid 43843230)
    • (2005) Pediatrics , vol.115 , Issue.5 , pp. 1268-1272
    • Fant, K.E.1    Clark, S.J.2    Kemper, A.R.3
  • 26
    • 21344433687 scopus 로고    scopus 로고
    • Newborn screening information supports public health more than informed choice
    • DOI 10.1177/001789690506400203
    • Hargreaves K, Stewart R, Oliver S. Newborn screening information supports public health more than informed choice. Health Educ J 2005;64:110-119. (Pubitemid 40904979)
    • (2005) Health Education Journal , vol.64 , Issue.2 , pp. 110-119
    • Hargreaves, K.1    Stewart, R.2    Oliver, S.3
  • 27
    • 84863393820 scopus 로고    scopus 로고
    • Public attitudes regarding the use of residual newborn screening specimens for research
    • Botkin JR, Rothwell E, Anderson R, et al. Public attitudes regarding the use of residual newborn screening specimens for research. Pediatrics 2012;129:231-238.
    • (2012) Pediatrics , vol.129 , pp. 231-238
    • Botkin, J.R.1    Rothwell, E.2    Anderson, R.3
  • 28
    • 84856547266 scopus 로고    scopus 로고
    • Citizens' values regarding research with stored samples from newborn screening in Canada
    • Bombard Y, Miller FA, Hayeems RZ, et al. Citizens' values regarding research with stored samples from newborn screening in Canada. Pediatrics 2012;129:239-247.
    • (2012) Pediatrics , vol.129 , pp. 239-247
    • Bombard, Y.1    Miller, F.A.2    Hayeems, R.Z.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.