Improving the delivery of patient education about kidney transplant in a transplant center

Progress in Transplantation

Volumn 22, Issue 4, 2012, Pages 403-412

  Wilson, Rula ^a   Brown, D R ^a   Boothe, M A S ^a   Weng, F L ^b  

^a UNIVERSITY OF MEDICINE AND DENTISTRY OF NEW JERSEY   (United States)

^b SAINT BARNABAS MEDICAL CENTER   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ARTICLE; CHRONIC KIDNEY FAILURE; FEMALE; HUMAN; INFORMATION PROCESSING; KIDNEY TRANSPLANTATION; MALE; MIDDLE AGED; PATIENT EDUCATION; UNITED STATES;

ADULT; FEMALE; FOCUS GROUPS; HUMANS; KIDNEY FAILURE, CHRONIC; KIDNEY TRANSPLANTATION; MALE; MIDDLE AGED; PATIENT EDUCATION AS TOPIC; UNITED STATES;

EID: 84870395985     PISSN: 15269248     EISSN: None     Source Type: Journal    
DOI: 10.7182/pit2012716     Document Type: Article

References (29)

1. Abecassis M, Bartlett ST, Collins AJ, et al. Kidney transplantation as primary therapy for end-stage renal disease: a National Kidney Foundation/Kidney Disease Outcomes Quality Initiative (NKF/KDOQITM) conference. Clin J Am Soc Nephrol. 2008; 3(2):471-480.
2. Neipp M, Karavul B, Jackobs S, et al. Quality of life in adult transplant recipients more than 15 years after kidney transplantation. Transplantation. 2006;81(12):1640-1644.
3. Wolfe RA, Ashby VB, Milford EL, et al. Comparison of mortality in all patients on dialysis, patients on dialysis awaiting transplantation, and recipients of a first cadaveric transplant. N Engl J Med. 1999;341(23):1725- 1730.
4. 2009 Annual Report of the US Organ Procurement and Transplantation Network and the Scientific Registry of Transplant Recipients: Transplant Data 1998-2008. http://www.srtr.org/annual-reports/default.aspx. Accessed May 14, 2012.
5. Waterman AD, Barrett AC, Stanley SL. Optimal transplant education for recipients to increase pursuit of living donation. Prog Transplant. 2008;18(1):55-62.
6. Schaeffner ES, Mehta J, Winkelmayer WC. Educational level as a determinant of access to and outcomes after kidney transplantation in the United States. Am J Kidney Dis. 2008;51(5):811-818.
7. Goldfarb-Rumyantzev AS, Sandhu GS, Baird B, et al. Effect of education on racial disparities in access to kidney transplantation. Clin Transplant. 2012;26(1):74-81.
8. Kappel DF, Whitlock ME, Parks-Thomas TD, Hong BA, Freedman BK. Increasing African American organ donation: the St Louis experience. Transplant Proc. 1993;25(4):2489-2490.
9. Callender CO, Hall MB, Branch D. An assessment of the effectiveness of the Mottep model for increasing donation rates and preventing the need for transplantation-adult findings: program years 1998 and 1999. Semin Nephrol. 2001;21(4):419-428.
10. Goldfarb-Rumyantzev AS, Koford JK, Baird BC, et al. Role of socioeconomic status in kidney transplant outcome. Clin J Am Soc Nephrol. 2006;1(2):313-322.
11. Rodrigue JR, Cornell DL, Lin JK, Kaplan B, Howard RJ. Increasing live donor kidney transplantation: a randomized controlled trial of a home-based educational intervention. Am J Transplant. 2007;7(2):394-401.
12. Kasiske BL, London W, Ellison MD. Race and socioeconomic factors influencing early placement on the kidney transplant waiting list. J Am Soc Nephrol. 1998;9(11):2142-2147.
13. Waterman AD, Brennan DC. Improving patient education delivery to increase living donation rates. zed controlled trial of a home-based educational intervention. Am J Transplant. 2007;7(2):269-270.
14. Gordon EJ, Caicedo JC, Ladner DP, Reddy E, Abecassis MM. Transplant center provision of education and culturally and linguistically competent care: a national study. zed controlled trial of a home-based educational intervention. Am J Transplant. 2010; 10(12):2701-2707.
15. Centers for Medicare & Medicaid Services. Hospital conditions of participation: requirements for approval and re-approval of transplant centers to perform organ transplants. Federal Reg. 2007; 72(61):15198-15280.
16. North American Transplant Coordinators Organization. Hospital Compliance With Federal and State Required Request Legislation. Lenexa, KS: North American Transplant Coordinators Organization; 2002. http://www.natco1.org/public-policy/ pdfs/Hospital CompliancewithFederalandStateRequiredRequestLegislation-000.pdf. Accessed May 14, 2012.
17. Connelly JO, O'Keefe N, Hathaway D, Wicks MN. Impact of a human interest video on living-donor kidney donation rates. J Biocommun. 1999;26(4):7-10.
18. Schweitzer EJ, Yoon S, Hart J, et al. Increased living donor volunteer rates with a formal recipient family education program. Am J Kidney Dis. 1997;29(5):739-745.
19. Butkus DE, Dottes AL, Meydrech EF, Barber WH. Effect of poverty and other socioeconomic variables on renal allograft survival. Transplantation. 2001;72(2):261-266.
20. Neyhart CD. Education of patients pre and post-transplant: improving outcomes by overcoming the barriers. Nephrol Nurs J. 2008;35(4):409-410.
21. Hays R, Gladding H. Helping helpers: a living donor mentor program. Nephrol News Issues. 2007;21(5):41, 45-47, 51 passim.
22. Gordon EJ, Wolf MS. Health literacy skills of kidney transplant recipients. Prog Transplant. 2009;19(1):25-34.
23. Pradel FG, Mullins CD, Bartlett ST. Exploring donors' and recipients' attitudes about living donor kidney transplantation. Prog Transplant. 2003;13(3):203-210.
24. Kranenburg LW, Richards M, Zuidema WC, et al. Avoiding the issue: patients' (non)communication with potential living kidney donors. Patient Educ Couns. 2009;74(1):39-44.
25. Barnieh L, McLaughlin K, Manns BJ, Klarenbach S, Yilmaz S, Hemmelgarn BR. Barriers to living kidney donation identified by eligible candidates with end-stage renal disease. Nephrol Dial Transplant. 2011;26(2):732-738.
26. Krueger RA, Casey MA. Focus Groups: A Practical Guide for Applied Research. 3rd ed. Thousand Oaks, CA: Sage Publications; 2000.
27. Nielson-Bohlman L, Panzer AM, Kindig DA, eds. Health Literacy: A Prescription to End Confusion. Washington, DC: The National Academies Press; 2004.
28. Grubbs V, Gregorich SE, Perez-Stable EJ, Hsu CY. Health literacy and access to kidney transplantation. Clin J Am Soc Nephrol. 2009;4(1):195-200.
29. Gazmararian JA, Williams MV, Peel J, Baker DW. Health literacy and knowledge of chronic disease. Patient Educ Couns. 2003;51(3):267-275.