Revealing barriers and facilitators to use a new genetic test: Comparison of three user involvement methods

Journal of Community Genetics

Volumn 3, Issue 4, 2012, Pages 237-249

  Rhebergen, Martijn D F ^a   Visser, Maaike J ^a   Verberk, Maarten M ^a   Lenderink, Annet F ^a   Van Dijk, Frank J H ^a   Kezic, Sanja ^a   Hulshof, Carel T J ^a  

^a UNIVERSITY OF AMSTERDAM   (Netherlands)

Author keywords

Attitude; Contact dermatitis; Genetic testing; Occupational health; Public opinion; User involvement

Indexed keywords

ADULT; ARTICLE; COHORT ANALYSIS; CONTENT ANALYSIS; CONTROLLED STUDY; FEMALE; GENETIC ANALYSIS; GENETIC SUSCEPTIBILITY; HAND ECZEMA; HEALTH SURVEY; HUMAN; INFORMATION PROCESSING; INTERMETHOD COMPARISON; INTERVIEW; MALE; NURSING STUDENT; PRIORITY JOURNAL; QUESTIONNAIRE; RISK ASSESSMENT; SYSTEMATIC REVIEW; THEMATIC ANALYSIS;

EID: 84869123490     PISSN: 1868310X     EISSN: 18686001     Source Type: Journal    
DOI: 10.1007/s12687-012-0080-6     Document Type: Article

References (41)

1. Balas AE, Boren SA (2000) Yearbook of medical informatics: managing knowledge for health care improvement. Schattauer Verlagsgesellschaft mbH, Stuttgart
2. Bartholomew LK, Parcel GS, Kok G, Gottlieb NH (2006) Planning health promotion programs. Jossey-Bass, San Francisco
3. Belsito DV (2005) Occupational contact dermatitis: etiology, prevalence, and resultant impairment/disability. J Am Acad Dermatol 53:303-313
4. Bryman A (2001) Social research methods. Oxford University Press, Cary
5. Cameron LD, Muller C (2009) Psychosocial aspects of genetic testing. Curr Opin Psychiatry 22:218-223
6. Cameron LD, Sherman KA, Marteau TM, Brown PM (2009) Impact of genetic risk information and type of disease on perceived risk, anticipated affect, and expected consequences of genetic tests. Health Psychol 28:307-316
7. Chew AL, Maibach HI (2003) Occupational issues of irritant contact dermatitis. Int Arch Occup Environ Health 76:339-346
8. Condit C (2001) What is 'public opinion' about genetics? Nat Rev Genet 2:811-815
9. De Jongh CM, John SM, Bruynzeel DP, Calkoen F, Van Dijk FJ, Khrenova L, Rustemeyer T, Verberk MM, Kezic S (2008a) Cytokine gene polymorphisms and susceptibility to chronic irritant contact dermatitis. Contact Dermatitis 58:269-277
10. De Jongh CM, Khrenova L, Verberk MM, Calkoen F, Van Dijk FJ, Voss H, John SM, Kezic S (2008b) Loss-of-function polymorphisms in the filaggrin gene are associated with an increased susceptibility to chronic irritant contact dermatitis: a case-control study. Br J Dermatol 159:621-627
11. Denzin NK, Lincoln YS (2000) Handbook of qualitative research. Sage, Thousand Oaks
12. Diepgen TL (2003) Occupational skin-disease data in Europe. Int Arch Occup Environ Health 76:331-338
13. Diepgen TL, Coenraads PJ (1999) The epidemiology of occupational contact dermatitis. Int Arch Occup Environ Health 72:496-506
14. Fern EF (1982) The use of focus groups for idea generation: the effects of group size, acquaintanceship, and moderator on response quantity and quality. J Mark Res 19:1-13
15. Folch-Lyon E, De La Macorra L, Schearer SB (1981) Focus group and survey research on family planning in Mexico. Stud Fam Plan 12:409-432
16. Glasziou P, Haynes B (2005) The paths from research to improved health outcomes. Evid Based Nurs 8:36-38
17. Graham ID, Logan J, Harrison MB, Straus SE, Tetroe J, Caswell W, Robinson N (2006) Lost in knowledge translation: time for a map? J Contin Educ Health Prof 26:13-24
18. Greenhalgh T, Robert G, Macfarlane F, Bate P, Kyriakidou O (2004) Diffusion of innovations in service organizations: systematic review and recommendations. Milbank Q 82:581-629
19. Grol R, Wensing M (2006) Implementation [Implementatie: effectieve verbetering van de patientenzorg]. Elsevier, Maarssen
20. Harel A, Abuelo D, Kazura A (2003) Adolescents and genetic testing: what do they think about it? J Adolesc Health 33:489-494
21. Henneman L, Timmermans DR, Van Der Wal G (2004) Public experiences, knowledge and expectations about medical genetics and the use of genetic information. Community Genet 7:33-43
22. Henneman L, Timmermans DR, Van Der Wal G (2006) Public attitudes toward genetic testing: perceived benefits and objections. Genet Test 10:139-145
23. International Organization for Standardization (ISO) (1999) Humancentred design processes for interactive systems. ISO, Geneva
24. Kaplowitz MD (2000) Statistical analysis of sensitive topics in group and individual interviews. Qual Quant 34:419-431
25. Kezic S, Visser MJ, Verberk MM (2009) Individual susceptibility to occupational contact dermatitis. Ind Health 47:469-478
26. Kitzinger J (1995) Qualitative research. Introducing focus groups BMJ 311:299-302
27. Kujala K (2003) User involvement: a review of the benefits and challenges. Behaviour Info Technol 22:1-16
28. Kvale S (1996) Interviews: an introduction to qualitative research interviewing. SAGE, Thousand Oaks
29. Molin S, Vollmer S, Weiss EH, Ruzicka T, Prinz JC (2009) Filaggrin mutations may confer susceptibility to chronic hand eczema characterized by combined allergic and irritant contact dermatitis. Br J Dermatol 161:801-807
30. Morgan DL (1996) Focus groups. Annu Rev Sociol 22:129-152
31. Sanderson SC, Wardle J, Jarvis MJ, Humphries SE (2004) Public interest in genetic testing for susceptibility to heart disease and cancer: a population-based survey in the UK. Prev Med 39:458-464
32. Sanderson S, Zimmern R, Kroese M, Higgins J, Patch C, Emery J (2005) How can the evaluation of genetic tests be enhanced? Lessons learned from the ACCE framework and evaluating genetic tests in the United Kingdom. Genet Med 7:495-500
33. Steiner DL, Norman GR (2008) Health measurement scales: a practical guide to their development and use. Oxford University Press, Oxford
34. Straus SE, Tetroe J, Graham I (2009) Defining knowledge translation. CMAJ 181:165-168
35. Sussner KM, Thompson HS, Valdimarsdottir HB, Redd WH, Jandorf L (2009) Acculturation and familiarity with, attitudes towards and beliefs about genetic testing for cancer risk within Latinas in East Harlem, New York City. J Genet Couns 18:60-71
36. Tercyak KP, Peshkin BN, Wine LA, Walker LR (2006) Interest of adolescents in genetic testing for nicotine addiction susceptibility. Prev Med 42:60-65
37. Teutsch SM, Bradley LA, Palomaki GE, Haddow JE, Piper M, Calonge N, Dotson WD, Douglas MP, Berg AO (2009) The Evaluation of Genomic Applications in Practice and Prevention (EGAPP) initiative: methods of the EGAPP working group. Genet Med 11:3-14
38. Toiviainen H, Jallinoja P, Aro AR, Hemminki E (2003) Medical and lay attitudes towards genetic screening and testing in Finland. Eur J Hum Genet 11:565-572
39. Ward VM, Bertrand JT, Brown LF (1991) The comparability of focus group and survey results. Eval Rev 42:702-737
40. Ward V, House A, Hamer S (2009) Developing a framework for transferring knowledge into action: a thematic analysis of the literature. J Health Serv Res Policy 14:156-164
41. Wutich A, Lant T, White DD, Larson KL, Gartin M (2010) Comparing focus group and individual responses on sensitive topics: a study of water decision makers in a desert city. Field Methods 22:88-110