Supporting family members of people with traumatic brain injury using telehealth: A systematic review

Journal of Rehabilitation Medicine

Volumn 44, Issue 11, 2012, Pages 913-921

  Rietdijk, Rachael ^a   Togher, Leanne ^a   Power, Emma ^a  

^a UNIVERSITY OF SYDNEY   (Australia)

Author keywords

Caregivers, telehealth, systematic review; Carers; Family; Traumatic brain injury

Indexed keywords

BRAIN INJURY; FAMILY; HEALTH SERVICE; HUMAN; INTERNET; OUTCOME ASSESSMENT; REVIEW; TELEMEDICINE; TELEPHONE;

BRAIN INJURIES; FAMILY; HEALTH SERVICES; HUMANS; INTERNET; OUTCOME ASSESSMENT (HEALTH CARE); TELEMEDICINE; TELEPHONE;

EID: 84869064812     PISSN: 16501977     EISSN: None     Source Type: Journal    
DOI: 10.2340/16501977-1058     Document Type: Review

References (47)

1. WHO. Traumatic brain injuries. Geneva: WHO; 2006.
2. Ramkumar NA, Elliott TR. Family caregiving of persons following neurotrauma: Issues in research, service and policy. NeuroRehabilitation 2010;27:105-112.
3. O'Callaghan AM, McAllister L, Wilson L. Experiences of care: Perspectives of carers of adults with traumatic brain injury. Int J Speech Lang Pathol 2011;13:218-226.
4. Kreutzer J, Rapport L, Marwitz J, Harrison-Felix C, Hart T, Glenn M. et al. Caregivers' well-being after traumatic brain injury: a multicenter prospective investigation. Arch Phys Med Rehabil 2009;90:939-946.
5. Gan C, Gargaro J, Brandys C, Gerber G, Boschen K. Family caregivers' support needs after brain injury: A synthesis of perspectives from caregivers, programs, and researchers. Neuro-Rehabilitation 2010;27:5-18.
6. Aitken ME, McCarthy ML, Slomine BS, Ding R, Durbin DR, Jaffe KM. et al. Family burden after traumatic brain injury in children. Pediatrics 2009;123:199-206.
7. Rotondi AJ, Sinkule J, Balzer K, Harris J, Moldovan R. A qualitative needs assessment of persons who have experienced traumatic brain injury and their primary family caregivers. J Head Trauma Rehabil 2007;22:14-25. (Pubitemid 46145467)
8. Togher L, McDonald S, Tate R, Power E, Rietdijk R. Training communication partners of people with traumatic brain injury (TBI) improves casual conversational interactions. Brain Inj 2010;24:269-270.
9. Rivera PA, Elliott TR, Berry JW, Grant JS. Problem-solving training for family caregivers of persons with traumatic brain injuries: a randomized controlled trial. Arch Phys Med Rehabil 2008;89:931-941. (Pubitemid 351602261)
10. WHO. World report on disability. Geneva: WHO Press; 2011.
11. Perle LG, Langsam LC, Nierenberg B. Controversy clarified: An updated review of clinical psychology and tele-health. Clin Psychol Rev 2011;31:1247-1258.
12. Rogante M, Grigioni M, Cordella D, Giacomozzi C. Ten years of telerehabilitation: A literature overview of technologies and clinical applications. NeuroRehabilitation 2010;27:287-304.
13. Rosalynn Carter Institute for Caregiving. What makes a caregiver program effective [Internet]. 2009 [cited 2011 December 21]. Available from: http://www.rosalynncarter.org/what-makes-caregiver-programs-effective/.
14. Caregivers and Veterans Omnibus Health Services Act of 2010. S1963. United States, Lanham: Federal Information & News Dispatch, Inc.; 2010.
15. Kairy D, Lehoux P, Vincent C, Visintin M. A systematic review of clinical outcomes, clinical process, healthcare utilization and costs associated with telerehabilitation. Disabil Rehabil 2009;31:427-447.
16. Powell J, Chiu T, Eysenbach G. A systematic review of networked technologies supporting carers of people with dementia. J Telemed Telecare 2008;14:154-156.
17. Landis JR, Koch GG. The measurement of observer agreement for categorical data. Biometrics 1977;33:159-174. (Pubitemid 8054849)
18. Oxford Levels of Evidence Working Group. The Oxford 2011 Levels of Evidence [Internet]. 2011 [cited 2011 December 28]. Available from: http://www.cebm.net/index.aspx?o=5653.
19. PsycBITE. PEDro-P Scale [Internet]. 2010 [cited 2011 December 28]. Available from: http://www.psycbite.com/page.php?id=10.
20. Psychological Database for Brain Impairment Treatment Efficacy (PsycBITE) [database on the Internet]. Sydney: PsycBITE. 2004 [cited 2012 February 20]. Available from: http://www.psycbite.com.
21. Bell K. Development of a telephone follow-up program for individuals following traumatic brain injury. J Head Trauma Rehabil 2004;19:502-512. (Pubitemid 44138913)
22. Bell KR, Temkin NR, Esselman PC, Doctor JN, Bombardier CH, Fraser RT. et al. The effect of a scheduled telephone intervention on outcome after moderate to severe traumatic brain injury: A randomized trial. Arch Phys Med Rehabil 2005;86:851-856. (Pubitemid 40692348)
23. Bell KR, Brockway JA, Hart T, Whyte J, Sherer M, Fraser RT. et al. Scheduled telephone intervention for traumatic brain injury: A multicenter randomized controlled trial. Arch Phys Med Rehabil 2011;92:1152-1160.
24. Salazar AM, Warden DL, Schwab K, Spector J. Cognitive rehabilitation for traumatic brain injury: A randomized trial. JAMA 2000;283:3075-3081. (Pubitemid 30399717)
25. Warden DL, Salazar AM, Schwab KA. A home program of rehabilitation for moderately severe traumatic brain injury patients. J Head Trauma Rehabil 2000;15:1092-1102.
26. Wade S, Carey J, Wolfe C. The efficacy of an online cognitivebehavioral family intervention in improving child behavior and social competence following pediatric brain injury. Rehabil Psychol 2006;51:179-189. (Pubitemid 44252933)
27. Wade SL, Carey J, Wolfe CR. An online family intervention to reduce parental distress following pediatric brain injury. J Consult Clin Psychol 2006;74:445-454. (Pubitemid 44128225)
28. Carey JC, Wade SL, Wolfe CR. Lessons learned: the effect of prior technology use on Web-based interventions. Cyberpsychol Behav 2008;11:188-195. (Pubitemid 351555917)
29. Wade SL, Walz NC, Carey JC, Williams KM. Preliminary efficacy of a Web-based family problem-solving treatment program for adolescents with traumatic brain injury. J Head Trauma Rehabil 2008;23:369-377.
30. Wade SL, Walz NC, Carey JC, Williams KM. Brief report: Description of feasibility and satisfaction findings from an innovative online family problem-solving intervention for adolescents following traumatic brain injury. J Pediatr Psychol 2009;34:517-522.
31. Wade SL, Walz NC, Carey J, Williams KM, Cass J, Herren L. et al. A randomized trial of teen online problem solving for improving executive function deficits following pediatric traumatic brain injury. J Head Trauma Rehabil 2010;25:409-415.
32. Wade SL, Walz NO, Carey J, McMullen KM, Cass J, Mark E et al. Effect on behavior problems of teen online problem-solving for adolescent traumatic brain injury. Pediatrics 2011;128:e947-e953.
33. Wade SL, Taylor G, Stancin T, Kirkwood M, Brown TM. Webbased family problem solving therapy for teens with traumatic brain injury (TBI). Ann Behav Med 2011;41:s147.
34. Brown R, Pain K, Berwald C, Hirschi P, Delehanty R, Miller H. Distance education and caregiver support groups: comparison of traditional and telephone groups. J Head Trauma Rehabil 1999;14:257-268. (Pubitemid 29281210)
35. Hauber RP, Jones ML. Telerehabilitation support for families at home caring for individuals in prolonged states of reduced consciousness. J Head Trauma Rehabil 2002;17:535-541. (Pubitemid 35365127)
36. Wade SL, Wolfe CR, Pestian JP. A Web-based family problemsolving intervention for families of children with traumatic brain injury. Behav Res Methods Instrum Comp 2004;36:261-269. (Pubitemid 39196125)
37. Wade SL, Wolfe CR, Brown TM, Pestian JP. Can a Web-based family problem-solving intervention work for children with traumatic brain injury? Rehabili Psychol 2005;50:337-345. (Pubitemid 41746301)
38. Wade SL, Wolfe CR, Brown TM, Pestian JP. Putting the pieces together: Preliminary efficacy of a web-based family intervention for children with traumatic brain injury J Pediatr Psychol 2005;30:437-442.
39. Woods D, Catroppa C, Matthews J, Giallo R, Barnett P, Anderson V. Pediatric traumatic and non-traumatic brain injury: How clinical neuropsychology can help in the rehabilitation process. J Int Neuropsychol Soc 2011;17:s162.
40. Gilkey SNL, Carey J, Wade SL. Families in crisis: Considerations for the use of web-based treatment models in family therapy. Fam Soc 2009;90:37-45.
41. Rotondi AJ, Sinkule J, Spring M. An interactive web-based intervention for persons with TBI and their families: Use and evaluation by female significant others. J Head Trauma Rehabil 2005;3:173-185. (Pubitemid 40464073)
42. Sander A, Clark A, Atchison TB, Rueda M. A web-based videoconferencing approach to training caregivers in rural areas to compensate for problems related to traumatic brain injury. J Head Trauma Rehabil 2009;24:248-261.
43. Wade SL, Oberjohn K, Burkhardt A, Greenberg I. Feasibility and preliminary efficacy of a web-based parenting skills program for young children with traumatic brain injury. J Head Trauma Rehabil 2009;24:239-247.
44. Wade S, Oberjohn K, Conaway K, Osinka P, Bangert L. Live coaching of parenting skills using the internet: Implications for clinical practice. Prof Psychol Res Pr 2011;42:487-493.
45. Ekeland AG, Bowes A, Flottorp S. Effectiveness of telemedicine: A systematic review of reviews. Int J Med Inform 2010;79:736-771.
46. Brennan D, Georgeadis A, Baron C. Telerehabilitation tools for the provision of remote speech-language treatment. Top Stroke Rehabil 2002;8:71-78. (Pubitemid 34226097)
47. Craig P, Dieppe P, Macintyre S, Mitchie S, Nazareth I, Petticrew M. Developing and evaluating complex interventions: the new Medical Research Council guidance. BMJ 2008;337:a1655.