The relatives' perspective on advanced cancer care in Denmark. A cross-sectional survey

Supportive Care in Cancer

Volumn 20, Issue 12, 2012, Pages 3179-3188

  Johnsen, Anna T ^a   Ross, Lone ^a   Petersen, Morten A ^a   Lund, Line ^a   Groenvold, Mogens ^a,b  

^a BISPEBJERG HOSPITAL   (Denmark)

^b UNIVERSITY OF COPENHAGEN   (Denmark)

Author keywords

Advanced cancer; Informal caregivers; Palliative care; Relatives; Satisfaction; Supportive care

Indexed keywords

ADULT; ADVANCED CANCER; CANCER DIAGNOSIS; CAREGIVER; CONVERGENT VALIDITY; CROSS-SECTIONAL STUDY; DENMARK; DISCRIMINANT VALIDITY; FAMCARE SCALE; FEMALE; HUMAN; MALE; PATIENT CARE; PRIORITY JOURNAL; RATING SCALE; RELATIVE; REVIEW; SATISFACTION; VALIDITY;

AGE FACTORS; CAREGIVERS; CONSUMER SATISFACTION; CROSS-SECTIONAL STUDIES; DELAYED DIAGNOSIS; DENMARK; FACTOR ANALYSIS, STATISTICAL; FAMILY; FEMALE; HUMANS; LOGISTIC MODELS; MALE; MIDDLE AGED; NEOPLASMS; PALLIATIVE CARE; PROFESSIONAL-FAMILY RELATIONS; PSYCHOMETRICS; QUESTIONNAIRES;

EID: 84868485059     PISSN: 09414355     EISSN: 14337339     Source Type: Journal    
DOI: 10.1007/s00520-012-1454-3     Document Type: Review

References (35)

1. Lis CG, Rodeghier M, Grutsch JF, Gupta D (2009) Distribution and determinants of patient satisfaction in oncology with a focus on health related quality of life. BMC Heal Serv Res 9:190
2. Bredart A, Razavi D, Robertson C et al (2001) Assessment of quality of care in an oncology institute using patients' satisfaction information. Oncology 61:120-128
3. Hall JA, Dornan MC (1990) Patient sociodemographic characteristics as predictors of satisfaction with medical care: a metaanalysis. Soc Sci Med 30:811-818
4. Carter GL, Lewin TJ, Gianacas L, Clover K, Adams C (2011) Caregiver satisfaction with out-patient oncology services: utility of the FAMCARE instrument and development of the FAMCARE-6. Support Care Cancer 19:565-572
5. Shim EJ, Lee KS, Park JH, Park JH (2010) Comprehensive needs assessment tool in cancer (CNAT): the development and validation. Support Care Cancer [Epub ahead of print]
6. Fagerstrom L (1998) The patient's perceived caring needs as a message of suffering. J Adv Nurs 28:978-987
7. Kristjanson LJ (1989) Quality of terminal care: salient indicators identified by families. J Palliat Care 5:21-30
8. Andershed B (2006) Relatives in end-of-life care - part 1: a systematic review of the literature the five last years, January 1999- February 2004. J Clin Nurs 15:1158-1169
9. Andershed B, Ternestedt BM (2001) Development of a theoretical framework describing relatives' involvement in palliative care. J Adv Nurs 34:554-562
10. Mok E, Chan F, Chan V, Yeung E (2003) Family experience caring for terminally ill patients with cancer in Hong Kong. Cancer Nursing 26:267-275
11. Stajduhar KI,MartinW, CairnsM(2010)What makes grief difficult? Perspectives from bereaved family caregivers and healthcare providers of advanced cancer patients. Palliat Support Care 8:277-289
12. Higginson I,Wade A, McCarthy M (1990) Palliative care: views of patients and their families. BMJ 301:277-281
13. Higginson I, Priest P, McCarthy M (1994) Are bereaved family members a valid proxy for a patient's assessment of dying. Soc Sci Med 38:553-557
14. Milberg A, Strang P, Carlsson M, Börjesson S (2003) Advanced palliative home care: next-of-kin's perspective. J Palliat Med 6:749-756
15. Kim Y, Given BA (2008) Quality of life of family caregivers of cancer survivors: across the trajectory of the illness. Cancer 112:2556-2568
16. Ringdal GI, Jordhoy MS, Kaasa S (2002) Family satisfaction with end-of-life care for cancer patients in a cluster randomized trial. J Pain Symptom Manage 24:53-63
17. Rodriguez KL, Bayliss NK, Jaffe E, Zickmund S, Sevick MA (2010) Factor analysis and internal consistency evaluation of the FAMCARE scale for use in the long-term care setting. Palliat Support Care 8:169-176
18. Gelfman LP, Meier DE, Morrison RS (2008) Does palliative care improve quality? A survey of bereaved family members. J Pain Symptom Manage 36:22-28
19. Morita T, Chihara S, Kashiwagi T (2002) Family satisfaction with inpatient palliative care in Japan. Palliat Med 16:185-193
20. Jarvis H, Burge FI, Scott CA (1996) Evaluating a palliative care program: methodology and limitations. J Palliat Care 12:23-33
21. Finlay E, Shreve S, Casarett D (2008) Nationwide veterans affairs quality measure for cancer: the family assessment of treatment at end of life. J Clin Oncol 26:3838-3844
22. Finkelstein BS, Singh J, Silvers JB, Neuhauser D, Rosenthal GE (1998) Patient and hospital characteristics associated with patient assessments of hospital obstetrical care. Medical Care 36:68-78
23. Kristjanson LJ (1993) Validity and reliability testing of the FAMCARE scale: measuring family satisfaction with advanced cancer care. Soc Sci Med 36:693-701
24. Mayland CR, Williams EMI, Ellershaw JE (2008) How well do current instruments using bereaved relatives' views evaluate care for dying patients? Palliat Med 22:133-144
25. Ringdal GI, Jordhoy MS, Kaasa S (2003) Measuring quality of palliative care: psychometric properties of the FAMCARE scale. Qual Life Res 12:167-176
26. Johnsen AT, Petersen MA, Pedersen L, Groenvold M (2009) Symptoms and problems in a nationally representative sample of advanced cancer patients. Palliat Med 23:491-501
27. American joint committee on cancer (2002) AJCC - cancer staging manual, 6th edn. Springer, Chicagoo
28. SAS Institute Inc (2004) SAS/STAT 9.1 User's Guide. SAS Institute Inc., Caryy
29. Fayers P, Machin D (2007). Quality of life. The assessment, analysis and interpretation of patient-reported outcomes. 2.nd ed. West Sussex: John Wiley & Sons Ltd
30. Sitzia J, Wood N (1997) Patient satisfaction: a review of issues and concepts. Soc Sci Med 45:1829-1843
31. McPherson CJ, Addington-Hall JM (2003) Judging the quality of care at the end of life: can proxies provide reliable information? Soc Sci Med 56:95-109
32. Baker R, Wu AW, Teno JM, Kreling B, Damiano A, Rubin H (2000) Family satisfaction with end-of-life care in seriously ill hospitalized adults. Journal of the American Geriatrics Society 48
33. Fakhoury W, McCarthy M, Addington-Hall J (1996) Determinants of informal caregivers' satisfaction with services for dying cancer patients. Soc Sci Med 42:721-731
34. Aoun S, Bird S, Kristjanson LJ, Currow D (2010) Reliability testing of the FAMCARE-2 scale: measuring family carer satisfaction with palliative care. Palliat Med 24:674-681
35. Hwang SS, Chang VT, Alejandro Y et al (2003) Caregiver unmet needs, burden, and satisfaction in symptomatic advanced cancer patients at a Veterans Affairs (VA) medical center. Palliat Support Care 1:319-329