What makes grief difficult? Perspectives from bereaved family caregivers and healthcare providers of advanced cancer patients

Palliative and Supportive Care

Volumn 8, Issue 3, 2010, Pages 277-289

  Stajduhar, Kelli I ^a   Martin, Wanda ^a   Cairns, Moira ^a  

^a UNIVERSITY OF VICTORIA   (Canada)

Author keywords

Advanced cancer; Bereavement; Family caregivers; Grief; Healthcare providers

Indexed keywords

ADAPTIVE BEHAVIOR; ADULT; ATTITUDE TO DEATH; ATTITUDE TO HEALTH; BEREAVEMENT; CAREGIVER; CONFERENCE PAPER; EMPATHY; FAMILY; FAMILY RELATION; FEMALE; HEALTH SERVICE; HUMAN; INFORMATION PROCESSING; MALE; MIDDLE AGED; NEOPLASM; NURSING; PALLIATIVE THERAPY; PARAMEDICAL PERSONNEL; PSYCHOLOGICAL ASPECT; QUALITATIVE RESEARCH; SOCIAL SUPPORT;

ADAPTATION, PSYCHOLOGICAL; ADULT; ALLIED HEALTH PERSONNEL; ATTITUDE TO DEATH; ATTITUDE TO HEALTH; BEREAVEMENT; CAREGIVERS; EMPATHY; FAMILY; FAMILY RELATIONS; FEMALE; FOCUS GROUPS; HEALTH SERVICES NEEDS AND DEMAND; HUMANS; MALE; MIDDLE AGED; NEOPLASMS; PALLIATIVE CARE; QUALITATIVE RESEARCH; SOCIAL SUPPORT;

EID: 77958541992     PISSN: 14789515     EISSN: 14789523     Source Type: Journal    
DOI: 10.1017/S1478951510000076     Document Type: Conference Paper

References (53)

1. Addington-Hall, J. & Karlsen, S. (2000). Do home deaths increase distress in bereavement? Palliative Medicine, 14, 161-162.
2. Bodnar, J.C. & Kiecolt-Glaser, J.K. (1994). Caregiver depression after bereavement: Chronic stress isn't over when it's over. Psychology and Aging, 9, 372-380.
3. Bonanno, G.A., Moskowitz, J.T., Papa, A., et al. (2005). Resilience to loss in bereaved spouses, bereaved parents, and bereaved gay men. Journal of Personality and Social Psychology, 88, 827-843.
4. Bonnano, G.A.,Wortman, C.B., Lehman, D.R., et al. (2002). Resilience to loss and chronic grief: A prospective study from preloss to 18 months postloss. Journal of Personality and Social Psychology, 83, 1150-1164.
5. Brazil, K., Bedard, M. & Willison, K. (2003). Bereavement adjustment and support among caregivers. Journal of Mental Health and Aging, 9, 193-204.
6. Cairns, M., Thompson, M. & Wainwright, W. (2003). Transitions in Dying and Bereavement: A Psychosocial Guide for Hospice and Palliative Care. Winnipeg: Health Professions Press.
7. Chentsova-Dutton, Y.& Zisook, S. (2005). Adaptation to bereavement. Death Studies, 29, 877-903.
8. Chentsova-Dutton, Y., Shucter, S., Hutchin, S., et al. (2002). Depression and grief reactions in hospice caregivers: From pre-death to 1 year afterwards. Journal of Affective Disorders, 69, 53-60.
9. Chochinov, H.M., Holland, J.C. & Katz, L.Y. (1998). Bereavement: A special issue in oncology. In Psycho-oncology, Holland, J.C. (ed.), pp. 1016-1032. New York: Oxford University Press.
10. Dumont, S., Turgeon, J., Allard, P., et al. (2006). Caring for a loved one with advanced cancer: Determinants of psychological distress in family caregivers. Journal of Palliative Medicine, 9, 912-921.
11. Ellifritt, J., Nelson, K.A. & Walsh, D. (2003). Complicated bereavement: A national survey of potential risk factors. American Journal of Hospice and Palliative Care, 20, 114-120.
12. Ellison, N.M. & Ptacek, J.T. (2002). Physician interactions with families and caregivers after a patient's death: Current practices and proposed changes. Journal of Palliative Medicine, 5, 49-55.
13. Ferrario, S.R., Cardillo, V., Vicario, F., et al. (2004). Advanced cancer at home: Caregiving and bereavement. Palliative Medicine, 18, 129-136.
14. Goodridge, D., Bond, J.B., Camerson, C., et al. (2005). Endof-life care in a nursing home: A study of family, nurse and healthcare aide perspectives. International Journal of Palliative Nursing, 11, 226-232.
15. Grbich, C.F., Parker, D. & Maddocks, I. (2001). The emotions and coping strategies of caregivers of family members with terminal cancer. Journal of Palliative Care, 17, 30-36.
16. Grinyer, A. (2006). Caring for a young adult with cancer: The impact on mothers' health. Health and Social Care in the Community, 14, 311-318.
17. Haley, W.E., LaMonde, L.A., Han, B., et al. (2003). Predictors of depression and life satisfaction among spousal caregivers in hospice: Application of a stress process model. Journal of Palliative Medicine, 6, 215-224.
18. Herbert, R.S., Prigerson, H.G., Schultz, R., et al. (2006). Preparing caregivers for the death of a loved one: A theoretical framework and suggestions for future research. Journal of Palliative Medicine, 9, 1164-1171.
19. Hodde, N.M., Engelberg, R.A., Treece, P.D., et al. (2004). Factors associated with nurse assessment of the quality of dying and death in the intensive care unit. Critical Care Medicine, 32, 1648-1653.
20. Jo, S., Brazil, K., Lohfeld, L., et al. (2007). Caregiving at end of life: Perspectives from Spousal caregivers and care recipients. Palliative and Supportive Care, 5, 11-17.
21. Jutras, S. & Veilleux, F. (1991). Informal caregiving: Correlates of perceived burden. Canadian Journal on Aging, 10, 40-55.
22. Kim, Y., Baker, F., Spillers, R.L., et al. (2006). Psychological adjustment of cancer caregivers with multiple roles. Psycho-Oncology, 15, 795-804.
23. Kissane, D.W. & McKenzie, D.P. (1997). Family coping and bereavement outcome. Palliative Medicine, 11, 191-201.
24. Koop, P.M. & Strang, V.R. (2003). The bereavement experience following home-based family caregiving for persons with advanced cancer. Clinical Nursing Research, 12, 127-144.
25. Koop, P.M. & Strang, V.R. (1997) Predictors of bereavement outcomes in families of patients with cancer: A literature review. Canadian Journal of Nursing Research, 29, 33-50.
26. Kramer, B.J., Boelk, A.Z. & Auer, C. (2006). Family conflict at the end of life: Lessons learned in a model program for vulnerable older adults. Journal of Palliative Medicine, 9, 791-801.
27. Lehman, D.R., Ellard, J.H. & Wortman, C.B. (1986). Social support for the bereaved: Recipients' and providers' perspectives on what is helpful. Journal of Consulting and Clinical Psychology, 54, 438-446.
28. McLaughlin, D., Sullivan, K. & Hasson, F. (2007). Hospice at home service: The carer's perspective. Support Care Cancer, 15, 163-170.
29. Moen, P., Robison, J. & Dempster-McClain, D. (1995). Caregiving and women's well-being: A life course approach. Journal of Health and Social Behaviour, 36, 259-273.
30. Ong, A.D., Bergeman, C.S. & Bisconti, T.L. (2004). The role of daily positive emotions during conjugal bereavement. Journal of Gerontology, 59B, 168-176.
31. Osse, B.H.P., Vernooij-Dassen, M.J.F.J., Schade, E., et al. (2006). Problems experienced by the informal caregivers of cancer patients and their needs for support. Cancer Nursing, 29, 378-388.
32. Park, C.L. & Folkman, S. (1997). Stability and change in psychosocial resources during caregiving and bereavement in partners of men with AIDS. Journal of Personality, 65, 421-447.
33. Parkes, C.M. (1993). Bereavement. In Oxford Textbook of Palliative Medicine, Doyle, D., Hanks, G.C.W.& MacDonald, N. (eds.), pp. 663-678. Oxford: Oxford University Press.
34. Penning, M.J. (1998). In the middle: Parental caregiving in the context of other roles. Journal of Gerontology, 53B, S188-S197.
35. Pierson, C.M., Curtis, J.R. & Patrick, D.L. (2002). A good death: A qualitative study of patients with advanced AIDS. AIDS Care, 14, 587-598.
36. Prigerson, H.G., Frank, E., Kasl, S.V., et al. (1995). Complicated grief and bereavement-related depression as distinct disorders: Preliminary empirical validation in elderly bereaved spouses. American Journal of Psychiatry, 152, 22-30.
37. Rando, T. (1993). Treatment of Complicated Mourning. Champaign: Research Press.
38. Sawatzky, J.E. & Fowler-Kerry, S. (2003). Journal of Psychiatric and Mental Health Nursing, 10, 277-286.
39. Scharlach, A.E. (1994). Caregiving and employment: Competing or complementary roles? The Gerontologist, 29, 382-387
40. Schulz, R., Newsom, J.T., Fleissner, K., et al. (1997). The effects of bereavement after family caregiving. Aging & Mental Health, 1, 269-282.
41. Stajduhar, K.I. (2003). Examining the perspectives of family members involved in the delivery of palliative care at home. Journal of Palliative Care, 19, 27-35.
42. Stajduhar, K.I. & Davies, B. (2005). Variations in and factors influencing family members' decisions for palliative home care. Palliative Medicine, 19, 21-32.
43. Stajduhar, K.I. (1997). Loss and bereavement: HIV/AIDS family caregiving experiences. Canadian Journal of Nursing Research, 29, 73-86.
44. Steinhauser, K.E., Christakis, N.A., Clipp, E.C., et al. (2000). Factors considered important at the end of life by patients, family, physicians, and other care providers. Journal of the American Medical Association, 284, 2476-2482.
45. Stroebe, M.S., Hansson, R.O., Stroebe,W., et al. (2001). Introduction: Concepts and issues in contemporary research on bereavement. In Handbook of Bereavement Research: Consequences, Coping and Care, Stroebe, M.S., Hansson, R.O., Stroebe, W. et al. (eds.), pp. 3-22. Washington, DC: American Psychological Association.
46. Stroebe, M.S., Folkman, S., Hansson, R.O., et al. (2006). The prediction of bereavement outcome: Development of an integrative risk factor framework. Social Science & Medicine, 63, 2440-2451.
47. Teschendorf, B., Schwartz, C., Estwing Ferrans, C., et al. (2007). Caregiver role stress: When families become providers. Cancer Control, 14, 183-189.
48. Ungar, L. & Florian, V. (2004). What helps middle-aged widows with their psychological and social adaptation several years after their loss? Death Studies, 28, 621-642.
49. van Baarsen, B. (2002). Theories on coping with loss: The impact of social support and self-esteem on adjustment to emotional and social loneliness following a partner's death in later life. Journal of Gerontology, 57B, S33-S42.
50. Vigano, A., Dorgan, M., Bruera, E., et al. (1999). The relative accuracy of the clinical estimation of the duration of life for patients with end of life cancer. Cancer, 86, 170-176.
51. von Gunten, C.F., Ferris, F.D. & Emanuel, L.L. (2000). Ensuring competency in end-of-life care: Communication and relational skills. Journal of the American Medical Association, 284, 3051-3057.
52. Williams, A., Crooks, V., Stajduhar, K.I., et al. (2006). Canada's Compassionate Care Benefit: Views of family caregivers in chronic illness. International Journal of Palliative Nursing, 12, 438-445.
53. Wyatt, G.K., Friedman, L., Given, C.W., et al. (1999). A profile of bereaved caregivers following provision of terminal care. Journal of Palliative Care, 15, 13-25.