Psychosocial health care needs assessment of adult cancer patients: A consensus-based guideline

Supportive Care in Cancer

Volumn 20, Issue 12, 2012, Pages 3343-3354

  Howell, D ^a,b   Mayo, S ^a   Currie, S ^c   Jones, G ^d,e   Boyle, M ^f   Hack, T ^g,h   Green, E ⁱ   Hoffman, L ^j,k   Collacutt, V ^l   McLeod, D ^m   Simpson, J ^c  

^a UNIVERSITY HEALTH NETWORK   (Canada)

^b UNIVERSITY OF TORONTO   (Canada)

^c McMaster University ^*

^d MCMASTER UNIVERSITY   (Canada)

^e CREDIT VALLEY HOSPITAL   (Canada)

^f BRITISH COLUMBIA CANCER AGENCY   (Canada)

^g UNIVERSITY OF MANITOBA   (Canada)

^h CANCERCARE MANITOBA   (Canada)

ⁱ CANCER CARE ONTARIO   (Canada)

^j MCGILL UNIVERSITY HEALTH CENTRE   (Canada)

^k ROYAL VICTORIA HOSPITAL   (Canada)

^l ALBERTA HEALTH SERVICES   (Canada)

^m QUEEN ELIZABETH II HEALTH SCIENCES CENTRE   (Canada)

more..

Author keywords

Assessment; Cancer; Consensus; Guideline; Psychosocial; Review

Indexed keywords

CANADA; CANCER PATIENT; COMMUNICATION SKILL; CONSENSUS DEVELOPMENT; DISTRESS SYNDROME; DOCTOR PATIENT RELATION; EVIDENCE BASED PRACTICE; HEALTH CARE NEED; NEEDS ASSESSMENT; PRACTICE GUIDELINE; PRIORITY JOURNAL; PSYCHOSOCIAL CARE; REVIEW; SYSTEMATIC REVIEW (TOPIC);

ADULT; CANADA; CONSENSUS; HEALTH SERVICES; HUMANS; MEDICAL ONCOLOGY; MENTAL HEALTH SERVICES; NEEDS ASSESSMENT; NEOPLASMS;

EID: 84868482702     PISSN: 09414355     EISSN: 14337339     Source Type: Journal    
DOI: 10.1007/s00520-012-1468-x     Document Type: Review

References (49)

1. Ashbury FD, Findlay H, Reynolds B, McKerracher K (1998) A Canadian survey of cancer patients' experiences: are their needs being met? J Pain Symptom Manage 16(5):298-306
2. Boberg EW, Gustafson DH, Hawkins RP, Offord KP, Koch C,Wen KY, Kreutz K, Salner A (2003) Assessing the unmet information, support and care delivery needs of men with prostate cancer. Patient Educ Couns 49(3):233-242
3. Gustafson DH, Taylor JO, Thompson S, Chesney P (1993) Assessing the needs of breast cancer patients and their families. Qual Manag Health Care 2(1):6-17
4. Richardson A, Sitzia J, Brown V, Medina J, Richardson A (2005) Patients' needs assessment tools in cancer care: principles and practice. King's College, Londonn
5. Sanson-Fisher R, Girgis A, Boyes A, Bonevski B, Burton L, Cook P (2000) The unmet supportive care needs of patients with cancer. Supportive Care Review Group. Cancer 88(1):226-237. doi:10.1002/(SICI)1097-0142(20000101)88:1<226:: AIDCNCR30> 3.0.CO;2-PP
6. Fitch M (1994) Provincial Cancer Network Supportive Care Work Group: Report and Recommendations. Submission to Cancer Care Ontario, Torontoo
7. Richardson A, Medina J, Brown V, Sitzia J (2007) Patients' needs assessment in cancer care: a review of assessment tools. Support Care Cancer 15(10):1125-1144. doi:10.1007/s00520-006-0205-8
8. Vachon M (2006) Psychosocial distress and coping after cancer treatment. Cancer Nurs 29(2 Suppl):26-31
9. Vachon ML (1998) Psychosocial needs of patients and families. J Palliat Care 14(3):49-56
10. Adler NE, Page AEK (eds) (2008) Cancer care for the whole patient: meeting psychosocial health needs. The National Academies Press, Washington
11. Wen KY, Gustafson DH (2004) Needs assessment for cancer patients and their families. Health Qual Life Outcomes 2:11. doi:10.1186/1477-7525-2-11
12. Canada A (2008) Qmentum program 2009 standards: cancer care and oncology services (ver 2). Ottawa, ONN
13. National Comprehensive Cancer Network (2007) Distress management (v.1.2008). National Comprehensive Care Network, Inc. http://www.nccn.org/ professionals/physician-gls/f-guidelines.asp. Accessed 6 June 2008
14. National Breast Cancer Centre and National Cancer Control Initiative (2003) Clinical practice guidelines for the psychosocial care of adults with cancer. National Breast Cancer Centre, Camperdownn
15. Fitch MI (2008) Supportive care framework: theoretical underpinnings. In: Fitch MI, Porter HB, Page BD (eds) Supportive care framework: a foundation for person-centred care. Pappin Communications, Pembrokee
16. Holland JC, Alici Y (2010) Management of distress in cancer patients. J Support Oncol 8(1):4-12
17. Jacobsen PB, Ransom S (2007) Implementation of NCCN distress management guidelines by member institutions. J Natl Compr Canc Netw 5(1):99-103
18. Canadian Association of Psychosocial Oncology (1999) National Psychosocial Oncology Standards of Canada Canadian Association of Psychosocial Oncology. http://www.capo.ca. Accessed 8 June 2008
19. Gerteis M, Edgman-Levitan S, Daley J, Delbanco TL (eds) (1993) Through the patient's eyes: understanding and promoting patientcentred care. Jossey-Bass, San Franciscoo
20. National Institute for Clinical Evidence (2004) Improving supportive and palliative care for adults with cancer: executive summary. National Institute for Clinical Evidence, Londonn
21. ADAPTE Collaboration ADAPTE Framework. http://www.adapte. org/rubrique/adapte-framework.php. Accessed 22 July 2008
22. Appraisal of Guidelines for Research and Evaluation (AGREE) Collaboration Appraisal of guidelines for research and evaluation (AGREE) instrument. http://www.agreetrust.org/docs/AGREE- Instrument-English.pdf. Accessed 22 July 2008
23. Kristeller JL, Rhodes M, Cripe LD, Sheets V (2005) Oncologist Assisted Spiritual Intervention Study (OASIS): patient acceptability and initial evidence of effects. Int J Psychiatry Med 35(4):329-347
24. Bramsen I, van der Linden MH, Eskens FJ, Bijvank EM, van Groeningen CJ, Kaufman HJ, Aaronson NK (2008) Evaluation of a face-to-face psychosocial screening intervention for cancer patients: acceptance and effects on quality of life. Patient Educ Couns 70(1):61-68. doi:10.1016/j.pec.2007.09.010
25. Boyes A, Newell S, Girgis A, McElduff P, Sanson-Fisher R (2006) Does routine assessment and real-time feedback improve cancer patients' psychosocial well-being? Eur J Cancer Care (Engl) 15 (2):163-171. doi:10.1111/j.1365-2354. 2005.00633.xx
26. Detmar SB, Muller MJ, Schornagel JH, Wever LD, Aaronson NK (2002) Health-related quality-of-life assessments and patientphysician communication: a randomized controlled trial. JAMA 288(23):3027-3034
27. McLachlan SA, Allenby A, Matthews J, Wirth A, Kissane D, Bishop M, Beresford J, Zalcberg J (2001) Randomized trial of coordinated psychosocial interventions based on patient selfassessments versus standard care to improve the psychosocial functioning of patients with cancer. J Clin Oncol 19(21):4117-4125
28. Sarna L (1998) Effectiveness of structured nursing assessment of symptom distress in advanced lung cancer. Oncol Nurs Forum 25 (6):1041-1048
29. Taenzer P, Bultz BD, Carlson LE, Speca M, DeGagne T, Olson K, Doll R, Rosberger Z (2000) Impact of computerized quality of life screening on physician behaviour and patient satisfaction in lung cancer outpatients. Psychooncology 9(3):203-213. doi:10.1002/1099-1611(200005/06)9:3<203::AID-PON453>3.0. CO;2-Y
30. Velikova G, Booth L, Smith AB, Brown PM, Lynch P, Brown JM, Selby PJ (2004) Measuring quality of life in routine oncology practice improves communication and patient well-being: a randomized controlled trial. J Clin Oncol 22(4):714-724. doi:10.1200/JCO.2004.06.078
31. Rosenbloom SK, Victorson DE, Hahn EA, Peterman AH, Cella D (2007) Assessment is not enough: a randomized controlled trial of the effects of HRQL assessment on quality of life and satisfaction in oncology clinical practice. Psychooncology 16(12):1069-1079. doi:10.1002/pon.1184
32. Kirkova J, Davis MP, Walsh D, Tiernan E, O'Leary N, LeGrand SB, Lagman RL, Russell KM (2006) Cancer symptom assessment instruments: a systematic review. J Clin Oncol 24(9):1459-1473. doi:10.1200/JCO.2005.02.8332
33. Hodgkinson K, Butow P, Hunt GE, Pendlebury S, Hobbs KM, Lo SK, Wain G (2007) The development and evaluation of a measure to assess cancer survivors' unmet supportive care needs: the CaSUN (Cancer Survivors' Unmet Needs measure). Psychooncology 16(9):796-804. doi:10.1002/pon.1137
34. Hodgkinson K, Butow P, Hobbs KM, Hunt GE, Lo SK, Wain G (2007) Assessing unmet supportive care needs in partners of cancer survivors: the development and evaluation of the Cancer Survivors' Partners Unmet Needs measure (CaSPUN). Psychooncology 16 (9):805-813. doi:10.1002/pon.1138
35. Shelby RA, Lamdan RM, Siegel JE, Hrywna M, Taylor KL (2006) Standardized versus open-ended assessment of psychosocial and medical concerns among African American breast cancer patients. Psychooncology 15(5):382-397. doi:10.1002/pon.959
36. Wright EP, KielyM, Johnston C, Smith AB, Cull A, Selby PJ (2005) Development and evaluation of an instrument to assess social difficulties in routine oncology practice. Qual Life Res 14(2):373-386
37. Wright P, Smith A, Roberts K, Selby P, Velikova G (2007) Screening for social difficulties in cancer patients: clinical utility of the Social Difficulties Inventory. Br J Cancer 97(8):1063-1070. doi:10.1038/sj.bjc.6604006
38. Veach TA, Nicholas DR, Barton MA (2002) Cancer and the family life cycle: a practitioner's guide. Brunner-Routledge, New Yorkk
39. Hutchison SD, Steginga SK, Dunn J (2006) The tiered model of psychosocial intervention in cancer: a community based approach. Psychooncology 15(6):541-546. doi:10.1002/pon.973
40. Greenhalgh J, Long AF, Flynn R (2005) The use of patient reported outcome measures in routine clinical practice: lack of impact or lack of theory? Soc Sci Med 60(4):833-843. doi:10.1016/j.socscimed.2004.06.022
41. Howell D (2009) Literature review and environmental scan: psychosocial, supportive and palliative care standards and guidelines. Technical Document, Addendum 2009. The Cancer Journey Action Group, Canadian Partnership Against Cancerr
42. Grimshaw JM, Thomas RE, MacLennan G, Fraser C, Ramsay CR, Vale L, Whitty P, Eccles MP, Matowe L, Shirran L, Wensing M, Dijkstra R, Donaldson C (2004) Effectiveness and efficiency of guideline dissemination and implementation strategies. Health Technol Assess 8 (6):iii-iv, 1-72. doi:94-08-29 [pii]
43. Fraser Health Hospice Palliative Care Program (2006) Depression in the terminally ill. http://www.fraserhealth.ca/Services/HomeandCommunityCare/ HospicePalliativeCare/Pages/SymptomGuidelines.aspx. Accessed 22 July 2008
44. National Consensus Project for Quality Palliative Care (2004) Clinical Practice Guidelines for Quality Palliative Care. National Consensus Project for Quality Palliative Care, Pittsburghh
45. Qaseem A, Snow V, Shekelle P, Casey DE Jr, Cross JT Jr, Owens DK, Dallas P, Dolan NC, Forciea MA, Halasyamani L, Hopkins RH Jr (2008) Evidence-based interventions to improve the palliative care of pain, dyspnea, and depression at the end of life: a clinical practice guideline from the American College of Physicians. Ann Intern Med 148(2):141-146
46. Registered Nurses' Association of Ontario (2002) Crisis intervention. Registered Nurses' Association of Ontario, Torontoo
47. Rodin G, Katz M, Lloyd N, Green E, Mackay JA, Wong R and members of the Supportive Care Guidelines Group (2006) Evidence-based series #13-6: Section 1: the management of depression in cancer patients: a clinical practice guideline. http://www.cancercare.on.ca. Accessed 8 June 2008
48. Scottish Intercollegiate Guidelines Network (2005) Management of breast cancer in women: a national clinical guideline. Scottish Intercollegiate Guidelines Network, Edinburgh
49. Scottish Intercollegiate Guidelines Network (2008) Management of cervical cancer: a national clinical guideline. Scottish Intercollegiate Guidelines Network, Edinburghh