Assessing the unmet information, support and care delivery needs of men with prostate cancer

Patient Education and Counseling

Volumn 49, Issue 3, 2003, Pages 233-242

  Boberg, Eric W ^a   Gustafson, David H ^a   Hawkins, Robert P ^a   Offord, Kenneth P ^b   Koch, Courtney ^a   Wen, Kuang Yi ^a   Kreutz, Kendra ^a   Salner, Andrew ^c  

^a UNIVERSITY OF WISCONSIN MADISON   (United States)

^b MAYO CLINIC   (United States)

^c HARTFORD HOSPITAL   (United States)

Author keywords

Needs assessment; Patient education; Prostate cancer; Social support

Indexed keywords

ADULT; AGED; ARTICLE; CANCER RECURRENCE; CAUCASIAN; CONTROLLED STUDY; EDUCATION; HEALTH CARE NEED; HEALTH SERVICES RESEARCH; HUMAN; MAJOR CLINICAL STUDY; MALE; MARRIAGE; MEDICAL INFORMATION; PATIENT EDUCATION; PRIORITY JOURNAL; PROSTATE CARCINOMA; SOCIAL SUPPORT;

AGED; EMOTIONS; HEALTH SERVICES NEEDS AND DEMAND; HUMANS; MALE; NEEDS ASSESSMENT; PATIENT EDUCATION; PROSTATIC NEOPLASMS; QUALITY OF LIFE; QUESTIONNAIRES; SOCIAL SUPPORT;

EID: 0037333619     PISSN: 07383991     EISSN: None     Source Type: Journal    
DOI: 10.1016/S0738-3991(02)00183-0     Document Type: Article

References (42)

1. Gustafson D.H., Taylor J.O., Thompson S., Chesney P. Assessing the needs of breast cancer patients and their families. Qual Manage Health Care. 2:1993;6-17.
2. Gustafson D.H., Arora N.K., Nelson E.C., Boberg E.W. Increasing understanding of patient needs during and after hospitalization. Jt Comm J Qual Improv. 27:2001;81-92.
3. Bonovski B., Sanson-Fisher R., Girgis A., Burton L., Cook P., Boyes A. Supportive Care Review Group: evaluation of an instrument to assess the needs of patients with cancer. Cancer. 88:2000;217-225.
4. Merkouris A., Ifantopoulis J., Lanara V., Lemonidou C. Patient satisfaction: a key concept for evaluating and improving nursing services. J Nursing Manage. 7:1999;19-28.
5. Bader M.M.M. Nursing care behaviors that predict patient satisfaction. J Nursing Qual. 2:1988;11-17.
6. Rose K. A qualitative analysis of the information needs of informal caregivers of terminally ill cancer patients. J Clin Nurs. 8:1999;81-88.
7. Rich M., Taylor S.A., Chalfen R. Illness as a social construct: understanding what asthma means to the patient to better treat the disease. Jt Comm J Qual Improv. 26:2000;244-253.
8. Bredart A., Razavi D., Robertson C., Didier F., Scaffidi E., Fonzo D.et al. Assessment of quality of care in an oncology institute using information on patients' satisfaction. Oncology. 61(2):2001;120-128.
9. Kaldenberg D.O., Becker B.W. Evaluations of care by ambulatory surgery patients. Health Care Manage Rev. 24(3):1999;73-83.
10. Klein E.A., Grass J.A., Calabrese D.A., Kay R.A., Sargeant W., O'Hara J.F. Maintaining quality of care and patient satisfaction with radical prostatectomy in the era of cost containment. Urology. 48(2):1996;269-276.
11. Jacobs V. Informational needs of surgical patients following discharge. App Nurs Res. 13:2000;12-18.
12. Degner L.F., Davison B.J., Sloan J.A., Mueller B. Development of a scale to measure information needs in cancer care. J Nurs Manage. 6:1998;137-153.
13. Leydon G.M., Boulton M., Moynihan C., Jones A., Mossman J., Boudioni M.et al. Cancer patients' information needs and information-seeking behavior: in-depth interview study. BMJ. 320:2000;909-913.
14. Harrison D.E., Galloway S., Graydon J.E., Palmer-Wickham S., Rich-van der Bij L. Information needs and preference for information of women with breast cancer over a first course of radiation therapy. Patient Educ Couns. 38:1999;217-225.
15. Hellbom M., Glimelius B., Sjoden P. Individual psychosocial support for cancer patients: utilization and patient satisfaction. Patient Educ Couns. 34:1998;247-256.
16. Crane-Ross D., Roth D., Lauber B.G. Consumers' and case managers' perceptions of mental health and community support service needs. Comm. Mental Health J. 36:2000;161-178.
17. Dowsett D.A. Psychological needs of adult patients following renal transplantation and implications for care. Edtna-Erca J. 22:1996;2-7.
18. Carroll S. Breast cancer. Part 3: psychosocial care. Prof Nurse. 13:1998;875-883.
19. Sanson-Fisher R., Girgis A., Boyes A., Bonevski B., Burton L., Cook P. Supportive Care Review Group: the unmet supportive care needs of patients with cancer. Cancer. 88:2000;225-236.
20. Huyse F.J., Lyons J.S., Stiefel F.C., Slaets J.P., de Jonge P., Fink P.et al. "INTERMED": a method to assess health service needs. I. Development and reliability. Gen. Hospital Psychiat. 21:1999;39-48.
21. Girgis A, Foot G. Satisfaction with breast cancer care: a summary of the literature 1984-1994. NHMRC National Breast Cancer Center, Sydney; 1995.
22. Greenlee R.T., Hill-Harmon M.B., Marray T., Thun M. Cancer statistics, 2001. CA Cancer J Clin. 51:2001;15-36.
23. Middleton R.G., Thompson I.M., Austenfeld M.S., Cooner W.H., Correa R.J., Gibbons R.P.et al. Prostate Cancer Clinical Guidelines Panel Summary report on the management of clinically localized prostate cancer. J Urol. 154:1995;2144-2148.
24. Litwin M.S., Hays R.D., Fink A., Ganz P.A., Leake B., Leach G.E.et al. Quality-of-life outcomes in men treated for localized prostate cancer. JAMA. 273:1995;129-135.
25. daSilva FC, Fossa SD, Aaronson NK, Serbouti S, Denis L, Casselman J, et al., the EORTC Genitourinary Tract Cancer Cooperative Group. The quality of life of patients with newly diagnosed M1 prostate cancer: experience with EORTC clinical trial 30853. Eur J Cancer 1995;32A:72-77.
26. Cassileth BR, Soloway MS, Vogelzang NJ, Chou JM, Schellhammer PD, Seidmon EJ, et al., the Zoladex Prostate Cancer Study Group. Quality of life and psychosocial status in stage D prostate cancer. Qual Life Res 1992;1:323-330.
27. Villavicencio H. Quality of life of patients with advanced and metastatic prostatic carcinoma. Eur Urol. 24(Suppl 2):1993;118-121.
28. Shrader-Bogen C.L., Kjellberg J.L., McPherson C.P., Murray C.L. Quality of life and treatment outcomes: prostate carcinoma patients' perspectives after prostatectomy or radiation therapy. Cancer. 79:1997;1977-1986.
29. Kornblith A.B., Herr H.W., Ofman U.S., Scher H.I., Holland J.C. Quality of life of patients with prostate cancer and their spouses: the value of a data base in clinical care. Cancer. 73:1994;2791-2802.
30. Gustafson DH, Cats-Baril W, Alemi, F. Systems to Support Health Policy Analysis: Theory, Models and Applications. Ann Arbor (MI): Health Administration Press; 1992.
31. Boberg EW, Wang K, Johnson P, Gustafson DH. Understanding the Needs of People Living With Asthma. Madison (WI): Center for Health Systems Research and Analysis; 1998.
32. Flanagan J.C. The critical incident technique. Psychol. Bull. 51:1954;327-358.
33. Delbecq A, Van de Ven A, Gustafson DH. Group Techniques for Program Planning: A Guide to Nominal Group and Delphi Processes. Chicago (IL): Scott, Foresman; 1975.
34. Howe R.J. Prostate cancer: a patient's perspective. J Urol. 152:1994;1700-1703.
35. Kaps E.C. The role of the support group, "Us Too" Cancer. 74(7 Suppl):1994;2188-2189.
36. Mazur D.J., Hickam D.H. Patient preferences for management of localized prostate cancer. Western J Med. 165:1996;26-30.
37. Stratmann W.C., Zastowny T.R., Bayer L.R., Adams E.H., Black G.S., Fry P.A. Patient satisfaction surveys and multicollinearity. Qual Manag Health Care. 2:1994;1-12.
38. Healy J.M. Jr., Govoni L.A., Smolker E.D. Patient reports about ambulatory care. Qual Manag Health Care. 4:1995;71-81.
39. Gustafson D.H., McTavish F.M., Boberg E.W., Owens B.H., Sherbeck C., Wise M.et al. Empowering patients using computer-based health support systems. Qual Health Care. 8:1999;49-56.
40. Merrill R.M., Brawley O.W. Prostate cancer incidence and mortality rates among white and black men. Epidemiology. 8:1997;126-131.
41. Powell I.J. Prostate cancer in the African-American: is this a difference disease? Sem Urol Oncol. 16(4):1998;221-226.
42. Hall J.A., Roter D.L., Katz N.R. Meta-analysis of correlates of provider behavior in medical encounters. Med. Care. 26(7):1988;657-675.