Health-related quality of life of Australians with Parkinson disease: A comparison with international studies

Physiotherapy Canada

Volumn 64, Issue 4, 2012, Pages 338-346

  Soh, Sze Ee ^a,b   McGinley, Jennifer L ^b,c   Watts, Jennifer J ^d   Iansek, Robert ^c   Morris, Meg E ^a  

^a Physiotherapy Department   (Australia)

^b THE UNIVERSITY OF MELBOURNE   (Australia)

^c Kingston Centre   (Australia)

^d MONASH UNIVERSITY   (Australia)

Author keywords

Australia; Meta analysis; Parkinson disease; Quality of life

Indexed keywords

EID: 84868237786     PISSN: 03000508     EISSN: None     Source Type: Journal    
DOI: 10.3138/ptc.2011-26     Document Type: Article

References (47)

1. Wood-Dauphinee S. Assessing quality of life in clinical research: from where have we come and where are we going? J Clin Epidemiol. 1999;52(4):355-363. http://dx.doi.org/10.1016/S0895-4356(98)00179-6. Medline:10235176
2. Montel S, Bonnet AM, Bungener C. Quality of life in relation to mood, coping strategies, and dyskinesia in Parkinson's disease. J Geriatr Psychiatry Neurol. 2009;22(2):95-102. http://dx.doi.org/10.1177/0891988708328219. Medline:19150974
3. Brown CA, Cheng EM, Hays RD, et al. SF-36 includes less Parkinson Disease (PD)-targeted content but is more responsive to change than two PD-targeted health-related quality of life measures. Qual Life Res. 2009;18(9):1219-1237. http://dx.doi.org/10.1007/s11136-009-9530-y. Medline:19714487
4. Suzukamo Y, Ohbu S, Kondo T, et al. Psychological adjustment has a greater effect on health-related quality of life than on severity of disease in Parkinson's disease. Mov Disord. 2006;21(6):761-766. http://dx.doi.org/10.1002/mds.20817. Medline:16511869
5. Soh S-E, McGinley J, Morris ME. Measuring quality of life in Parkinson's disease: selection of-an-appropriate health-related quality of life instrument. Physiotherapy. 2011;97(1):83-89. http://dx.doi.org/10.1016/j.physio.2010.05.006. Medline:21295243
6. Zhao YJ, Tan LCS, Lau PN, et al. Factors affecting health-related quality of life amongst Asian patients with Parkinson's disease. Eur J Neurol. 2008;15(7):737-742. http://dx.doi.org/10.1111/j.1468-1331.2008.02178.x. Medline:18494793
7. Peto V, Jenkinson C, Fitzpatrick R, et al. The development and validation of a short measure of functioning and well being for individuals with Parkinson's disease. Qual Life Res. 1995;4(3):241-248. http://dx.doi.org/10.1007/BF02260863. Medline:7613534
8. Morris ME, Menz HB, McGinley JL, et al. Falls and mobility in Parkinson's disease: protocol for a randomised controlled clinical trial. BMC Neurol. 2011;11(1):93. http://dx.doi.org/10.1186/1471-2377-11-93. Medline:21801451
9. Folstein MF, Folstein SE, McHugh PR. "Mini-mental state". A practical method for grading the cognitive state of patients for the clinician. J Psychiatr Res. 1975;12(3):189-198. http://dx.doi.org/10.1016/0022-3956(75)90026-6. Medline:1202204
10. Hoehn MM, Yahr MD. Parkinsonism: onset, progression and mortality. Neurology. 1967;17(5):427-442. Medline:6067254
11. Fahn S, Elton R. UPDRS development Committee. Unified Parkinson's disease rating scale. In: Fahn S, editor. Recent developments in Parkinson's disease. New York: MacMillan; 1987. p. 153-163.
12. Martíez-Martí P, Serrano-Dueñas M, Vaca-Baquero V. Psychometric characteristics of the Parkinson's disease questionnaire (PDQ-39)-Ecuadorian version. Parkinsonism Relat Disord. 2005;11(5):297-304. http://dx.doi.org/10.1016/j.parkreldis.2005.02.003. Medline:15886043
13. Schrag A, Jahanshahi M, Quinn N. How does Parkinson's disease affect quality of life? A comparison with quality of life in the general population. Mov Disord. 2000;15(6):1112-1118. http://dx.doi.org/10.1002/1531-8257(200011)15:61112::AID-MDS10083.0.CO;2-A. Medline:11104193
14. Carod-Artal FJ, Vargas AP, Martinez-Martin P. Determinants of quality of life in Brazilian patients with Parkinson's disease. Mov Disord. 2007;22(10):1408-1415.http://dx.doi.org/10.1002/mds.21408. Medline:17516479
15. Carod-Artal FJ, Ziomkowski S, Mourão Mesquita H, et al. Anxiety and depression: main determinants of health-related quality of life in Brazilian patients with Parkinson's disease. Parkinsonism Relat Disord. 2008;14(2):102-108. http://dx.doi.org/10.1016/j.parkreldis.2007.06.011. Medline:17719828
16. Góez-Esteban JC, Zarranz JJ, Lezcano E, et al. Influence of motor symptoms upon the quality of life of patients with Parkinson's disease. Eur Neurol. 2007;57(3):161-165. http://dx.doi.org/10.1159/000098468. Medline:17213723
17. Zäh M, Friedman A, Sławek J, et al. Quality of life in Polish patients with long-lasting Parkinson's disease. Mov Disord. 2004;19(6):667-672. http://dx.doi.org/10.1002/mds.10698. Medline:15197705
18. Soh S-E, Morris ME, McGinley JL. Determinants of health-related quality of life in Parkinson's disease: a systematic review. Parkinsonism Relat Disord. 2011;17(1):1-9. http://dx.doi.org/10.1016/j.parkreldis.2010.08.012. Medline:20833572
19. Peto V, Jenkinson C, Fitzpatrick R. PDQ-39: a review of the development, validation and application of a Parkinson's disease quality of life questionnaire and its associated measures. J Neurol. 1998;245(S1 Suppl 1):S10-S14. http://dx.doi.org/10.1007/PL00007730. Medline:9617716
20. Jenkinson C, Fitzpatrick R, Peto V, et al. The Parkinson's Disease Questionnaire (PDQ-39): development and validation of a Parkinson's disease summary index score. Age Ageing. 1997;26(5):353-357. http://dx.doi.org/10.1093/ageing/26.5.353. Medline:9351479
21. Tan LCS, Luo N, Nazri M, et al. Validity and reliability of the PDQ-39 and the PDQ-8 in English-speaking Parkinson's disease patients in Singapore. Parkinsonism Relat Disord. 2004;10(8):493-499. http://dx.doi.org/10.1016/j.parkreldis.2004.05.007. Medline:15542010
22. Tsang KL, Chi I, Ho SL, et al. Translation and validation of the standard Chinese version of PDQ-39: a quality-of-life measure for patients with Parkinson's disease. Mov Disord. 2002;17(5):1036-1040. http://dx.doi.org/10.1002/mds.10249. Medline:12360555
23. Centre for Reviews and Dissemination. Systematic reviews: CRD's guidance for undertaking reviews in health care. York: University of York; 2009.
24. Carod-Artal FJ, Martinez-Martin P, Vargas AP. Independent validation of SCOPA-psychosocial and metric properties of the PDQ-39 Brazilian version. Mov Disord. 2007;22(1):91-98. http://dx.doi.org/10.1002/mds.21216. Medline:17094102
25. Gray A, McNamara I, Aziz T, et al. Quality of life outcomes following surgical treatment of Parkinson's disease. Mov Disord. 2002;17(1):68-75. http://dx.doi.org/10.1002/mds.1259. Medline:11835441
26. Reuther M, Spottke EA, Klotsche J, et al. Assessing health-related quality of life in patients with Parkinson's disease in a prospective longitudinal study. Parkinsonism Relat Disord. 2007;13(2):108-114. http://dx.doi.org/10.1016/j.parkreldis.2006.07.009. Medline:17055326
27. Tickle-Degnen L, Ellis T, Saint-Hilaire MH, et al. Self-management rehabilitation and health-related quality of life in Parkinson's disease: a randomized controlled trial. Mov Disord. 2010;25(2):194-204. http://dx.doi.org/10.1002/mds.22940. Medline:20077478
28. Jenkinson C, Heffernan C, Doll H, et al. The Parkinson's Disease Questionnaire (PDQ-39): evidence for a method of imputing missing data. Age Ageing. 2006;35(5):497-502. http://dx.doi.org/10.1093/ageing/afl055. Medline:16772362
29. Carod-Artal FJ, da Silveira Ribeiro L, Kummer W, et al. Psychometric properties of the SCOPA-AUT Brazilian Portuguese version. Mov Disord. 2010;25(2):205-212. http://dx.doi.org/10.1002/mds.22882. Medline:19938162
30. Martinez-Martin P, Serrano-Dueñas M, Forjaz MJ, et al. Two questionnaires for Parkinson's disease: are the PDQ-39 and PDQL equivalent? Qual Life Res. 2007;16(7):1221-1230. http://dx.doi.org/10.1007/s11136-007-9224-2. Medline:17534735
31. Chapuis S, Ouchchane L, Metz O, et al. Impact of the motor complications of Parkinson's disease on the quality of life. Mov Disord. 2005;20(2):224-230. http://dx.doi.org/10.1002/mds.20279. Medline:15384126
32. Haapaniemi TH, Sotaniemi KA, Sintonen H, et al. The generic 15D instrument is valid and feasible for measuring health related quality of life in Parkinson's disease. J Neurol Neurosurg Psychiatry. 2004;75(7):976-983. http://dx.doi.org/10.1136/jnnp.2003.015693. Medline:15201353
33. Herlofson K, Larsen JP. The influence of fatigue on health-related quality of life in patients with Parkinson's disease. Acta Neurol Scand. 2003;107(1):1-6.http://dx.doi.org/10.1034/j.1600-0404.2003.02033.x. Medline:12542506
34. Krikmann U, Taba P, Lai T, et al. Validation of an Estonian version of the Parkinson's Disease Questionnaire (PDQ-39). Health Qual Life Out. 2008; 6:23.
35. Dubayova T, Nagyova I, Havlikova E, et al. Neuroticism and extraversion in association with quality of life in patients with Parkinson's disease. Qual Life Res. 2009;18(1):33-42. http://dx.doi.org/10.1007/s11136-008-9410-x. Medline:18989757
36. Žiropada L, Stefanova E, Potrebić A, et al. Quality of life in Serbian patients with Parkinson's disease. Qual Life Res. 2009;18(7):833-839. http://dx.doi.org/10.1007/s11136-009-9500-4. Medline:19562515
37. Luo N, Tan LCS, Li SC, et al. Validity and reliability of the Chinese (Singapore) version of the Parkinson's Disease Questionnaire (PDQ- 39). Qual Life Res. 2005;14(1):273-279. http://dx.doi.org/10.1007/s11136-004-2654-1.Medline:15789961
38. Luo W, Gui XH, Wang B, et al. Validity and reliability testing of the Chinese (mainland) version of the 39-item Parkinson's Disease Questionnaire (PDQ-39). J Zhejiang Univ Sci B. 2010;11(7):531-8. http://dx.doi.org/10.1631/jzus.B0900380. Medline:20593519
39. Moore O, Kreitler S, Ehrenfeld M, et al. Quality of life and gender identity in Parkinson's disease. J Neural Transm. 2005;112(11):1511-1522. http://dx.doi.org/10.1007/s00702-005-0285-5. Medline:15785864
40. Moore O, Peretz C, Giladi N. Freezing of gait affects quality of life of peoples with Parkinson's disease beyond its relationships with mobility and gait. Mov Disord. 2007;22(15):2192-2195. http://dx.doi.org/10.1002/mds.21659. Medline:17712856
41. Nojomi M, Mostafavian Z, Shahidi GA, et al. Quality of life in patients with Parkinson's disease: Translation and psychometric evaluation of the Iranian version of PDQ-39. J Res Med Sci. 2010;15(2):63-69. Medline:21526061
42. Gardner MJ, Altman DG. Confidence intervals rather than P values: estimation rather than hypothesis testing. Br Med J (Clin Res Ed). 1986;292(6522):746-750. http://dx.doi.org/10.1136/bmj.292.6522.746. Medline:3082422
43. Fu SYK, Anderson D, Courtney M, et al. The relationship between country of residence, gender and the quality of life in Australian and Taiwanese midlife residents. Soc Indic Res. 2006;79(1):25-49. http://dx.doi.org/10.1007/s11205-005-3002-8.
44. Lau A, Cummins RA, McPherson W. An investigation into the crosscultural equivalence of the Personal Wellbeing Index. Soc Indic Res. 2005;72(3):403-430. http://dx.doi.org/10.1007/s11205-004-0561-z.
45. Verri A, Cummins RA, Petito F, et al. An Italian-Australian comparison of quality of life among people with intellectual disability living in the community. J Intellect Disabil Res. 1999;43(6):513-522. http://dx.doi.org/10.1046/j.1365-2788.1999.00241.x. Medline:10622368
46. Jenkinson C, Fitzpatrick R, Peto V, et al. The PDQ-8: Development and validation of a short-form Parkinson's Disease Questionnaire. Psychol Health. 1997;12(6):805-814. http://dx.doi.org/10.1080/08870449708406741.
47. Kreuter M, Sióteen A, Erkholm B, et al. Health and quality of life of persons with spinal cord lesion in Australia and Sweden. Spinal Cord. 2005;43(2):123-129. http://dx.doi.org/10.1038/sj.sc.3101692. Medline:15545980