SF-36 includes less Parkinson Disease (PD)-targeted content but is more responsive to change than two PD-targeted health-related quality of life measures

Quality of Life Research

Volumn 18, Issue 9, 2009, Pages 1219-1237

  Brown, Carlos A ^a   Cheng, Eric M ^a   Hays, Ron D ^b   Vassar, Stefanie D ^a   Vickrey, Barbara G ^a  

^a VA GREATER LOS ANGELES HEALTHCARE SYSTEM   (United States)

^b UNIVERSITY OF CALIFORNIA   (United States)

Author keywords

Health related quality of life; Parkinson Disease; PDQ 39; PDQUALIF; Responsiveness; SF 36

Indexed keywords

ADULT; AGED; ARTICLE; COGNITION; CONTROLLED STUDY; DISEASE SEVERITY; FEMALE; HUMAN; INTERVIEW; MAJOR CLINICAL STUDY; MALE; PARKINSON DISEASE; PRIORITY JOURNAL; QUALITY OF LIFE; REGRESSION ANALYSIS; RELIABILITY; SCORING SYSTEM; SHORT FORM 36; TELEPHONE;

AGED; AGED, 80 AND OVER; FEMALE; HEALTH STATUS; HUMANS; INTERVIEWS AS TOPIC; LOS ANGELES; MALE; MIDDLE AGED; PARKINSON DISEASE; QUALITY OF LIFE; QUESTIONNAIRES;

EID: 70349970691     PISSN: 09629343     EISSN: None     Source Type: Journal    
DOI: 10.1007/s11136-009-9530-y     Document Type: Article

References (34)

1. JG Nutt GF Wooten 2005 Diagnosis and initial management of Parkinson's disease New England Journal of Medicine 353 10 1021 16148287 10.1056/NEJMcp043908 (Pubitemid 41262336)
2. AE Lang AM Lozano 1998 Parkinson's disease-second of two parts New England Journal of Medicine 339 16 1130 9770561 10.1056/NEJM199810153391607 (Pubitemid 28465762)
3. AM Damiano C Snyder B Strausser MK Willian 1999 A review of health-related quality-of-life concepts and measures for Parkinson's disease Quality of Life Research 8 3 235 243 10472154 10.1023/A:1008823222574 (Pubitemid 29367292)
4. TB Ustun S Chatterji J Bickenbach N Kostanjsek M Schneider 2003 The international classification of functioning, disability and health: A new tool for understanding disability and health Disability and Rehabilitation 25 11-12 565 571 12959329 (Pubitemid 36806189)
5. RD Hays H Hahn G Marshall 2002 Use of the SF-36 and other health-related quality of life measures to assess persons with disabilities Archives of Physical Medicine and Rehabilitation 83 12 Suppl 2 S4 S9 12474166 10.1053/apmr.2002.36837 (Pubitemid 35424683)
6. Ware, J. E. (1993). SF-36 health survey: Manual and interpretation guide. Boston: The Health Institute, New England Medical Center.
7. BG Vickrey RD Hays BJ Genovese LW Myers GW Ellison 1997 Comparison of a generic to disease-targeted health-related quality-of-life measures for multiple sclerosis Journal of Clinical Epidemiology 50 5 557 569 9180648 10.1016/S0895-4356(97)00001-2 (Pubitemid 27270205)
8. BG Vickrey RD Hays J Graber R Rausch J Engel Jr RH Brook 1992 A health-related quality of life instrument for patients evaluated for epilepsy surgery Medical Care 30 4 299 319 1556879 10.1097/00005650-199204000-00002
9. V Peto C Jenkinson R Fitzpatrick 1998 PDQ-39: A review of the development, validation and application of a Parkinson's disease quality of life questionnaire and its associated measures Journal of Neurology 245 Suppl 1 S10 S14 9617716 10.1007/PL00007730
10. R Fitzpatrick V Peto C Jenkinson R Greenhall N Hyman 1997 Health-related quality of life in Parkinson's disease: A study of outpatient clinic attenders Movement Disorders 12 6 916 922 9399215 10.1002/mds.870120613 (Pubitemid 27496768)
11. M Welsh MP McDermott RG Holloway S Plumb R Pfeiffer J Hubble 2003 Development and testing of the Parkinson's disease quality of life scale Movement Disorders 18 6 637 645 12784266 10.1002/mds.10424 (Pubitemid 36790278)
12. S Wiebe G Guyatt B Weaver S Matijevic C Sidwell 2003 Comparative responsiveness of generic and specific quality-of-life instruments Journal of Clinical Epidemiology 56 1 52 60 12589870 10.1016/S0895-4356(02)00537-1 (Pubitemid 36183315)
13. BL Den Oudsten GL Van Heck J De Vries 2007 The suitability of patient-based measures in the field of Parkinson's disease: A systematic review Movement Disorders 22 10 1390 1401 10.1002/mds.21539 (Pubitemid 47287461)
14. Hays, R. D., Kim, S., Spritzer, K. L., Kaplan, R. M., Tally, S., Feeny, D., et al. (2009). Effects of mode and order of administration on generic health-related quality of life scores. Value Health. doi: 10.1111/j.1524-4733. 2009.00566.x.
15. C Jenkinson R Fitzpatrick V Peto 1999 Health-related quality-of-life measurement in patients with Parkinson's disease Pharmacoeconomics 15 2 157 165 10351189 10.2165/00019053-199915020-00004 (Pubitemid 29093258)
16. SJ Coons S Rao DL Keininger RD Hays 2000 A comparative review of generic quality-of-life instruments Pharmacoeconomics 17 1 13 35 10747763 10.2165/00019053-200017010-00002
17. JP Hobson NI Edwards RJ Meara 2001 The Parkinson's disease activities of daily living scale: A new simple and brief subjective measure of disability in Parkinson's disease Clinical Rehabilitation 15 3 241 246 11386393 10.1191/026921501666767060 (Pubitemid 32471882)
18. DC Hadorn RD Hays 1991 Multitrait-multimethod analysis of health-related quality-of-life measures Medical Care 29 9 829 840 1921534 10.1097/00005650- 199109000-00004
19. K Kroenke RL Spitzer JB Williams 2001 The PHQ-9: Validity of a brief depression severity measure Journal of General Internal Medicine 16 9 606 613 11556941 10.1046/j.1525-1497.2001.016009606.x (Pubitemid 32823891)
20. B Lowe J Unutzer CM Callahan AJ Perkins K Kroenke 2004 Monitoring depression treatment outcomes with the Patient Health Questionnaire-9 Medical Care 42 12 1194 1201 15550799 10.1097/00005650-200412000-00006
21. Movement Disorder Society Task Force on Rating Scales for Parkinson's Disease 2003 The unified Parkinson's disease rating scale (UPDRS): Status and recommendations Movement Disorders 18 7 738 750 10.1002/mds.10473 (Pubitemid 36939968)
22. LJ Cronbach 1951 Coefficient alpha and the internal structure of tests Psychometrika 16 3 297 334 10.1007/BF02310555
23. C Mosier 1943 On the reliability of a weighted composite Psychometrika 8 3 161 168 10.1007/BF02288700
24. A Riazi JC Hobart DL Lamping R Fitzpatrick JA Freeman C Jenkinson, et al. 2003 Using the SF-36 measure to compare the health impact of multiple sclerosis and Parkinson's disease with normal population health profiles Journal of Neurology, Neurosurgery and Psychiatry 74 6 710 714 10.1136/jnnp.74.6.710 (Pubitemid 36628279)
25. Nunnally, J. C. (1978). Psychometric theory. New York: McGraw-Hill.
26. MH Liang MG Larson KE Cullen JA Schwartz 1985 Comparative measurement efficiency and sensitivity of five health status instruments for arthritis research Arthritis and Rheumatism 28 5 542 547 4004963 10.1002/art.1780280513 (Pubitemid 15109906)
27. Fayers, P. M., Hays, R. D. (2005). Assessing quality of life in clinical trials. New York: Oxford University Press.
28. KN Lohr 2002 Assessing health status and quality-of-life instruments: Attributes and review criteria Quality of Life Research 11 3 193 205 10.1023/A:1015291021312 (Pubitemid 34553501)
29. DA Revicki D Cella RD Hays JA Sloan WR Lenderking NK Aaronson 2006 Responsiveness and minimal important differences for patient reported outcomes Health and Quality of Life Outcomes 4 1 70 17005038 10.1186/1477-7525-4-70 (Pubitemid 44649667)
30. G Guyatt S Walter G Norman 1987 Measuring change over time: Assessing the usefulness of evaluative instruments Journal of Chronic Diseases 40 2 171 178 3818871 10.1016/0021-9681(87)90069-5 (Pubitemid 17007065)
31. Cohen, J. (1969). Statistical power analysis for the behavioral sciences. London: Academic Press.
32. S Kim RD Hays GL Birbeck BG Vickrey 2003 Responsiveness of the quality of life in epilepsy inventory (QOLIE-89) in an antiepileptic drug trial Quality of Life Research 12 2 147 155 12639061 10.1023/A:1022209105926 (Pubitemid 36255779)
33. Hays, R. D., Wang, E. (1992). Multitrait scaling program: MULTI. In Proceedings of the seventeenth annual SAS users group international conference (pp. 1151-1156).
34. BB Reeve RD Hays JB Bjorner KF Cook PK Crane JA Teresi, et al. 2007 Psychometric evaluation and calibration of health-related quality of life item banks: Plans for the patient-reported outcomes measurement information system (PROMIS) Medical Care 45 5 Suppl 1 S22 S31 17443115 10.1097/01.mlr.0000250483. 85507.04