Measuring quality of life in Parkinson's disease: Selection of-an-appropriate health-related quality of life instrument

Physiotherapy

Volumn 97, Issue 1, 2011, Pages 83-89

  Soh, Sze Ee ^a   McGinley, Jennifer ^a,b   Morris, Meg E ^a  

^a THE UNIVERSITY OF MELBOURNE   (Australia)

^b ROYAL CHILDREN'S HOSPITAL   (Australia)

Author keywords

HRQOL; Parkinson's disease; Physiotherapy; QOL; Quality of life

Indexed keywords

CLINICAL PRACTICE; EMOTION; HEALTH CARE FACILITY; HEALTH STATUS; HUMAN; MEASUREMENT; NOTE; PARKINSON DISEASE; PHYSIOTHERAPIST; PRIORITY JOURNAL; QUALITY OF LIFE; RELIABILITY; SCORING SYSTEM; SOCIAL STATUS; VALIDITY; WELLBEING;

HEALTH STATUS; HUMANS; PARKINSON DISEASE; QUALITY OF LIFE; QUESTIONNAIRES;

EID: 78651078441     PISSN: 00319406     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.physio.2010.05.006     Document Type: Note

References (32)

1. Morris M.E., Martin C.L., Schenkman M.L. Striding out with Parkinson disease: evidence-based physical therapy for gait disorders. Phys Ther 2010, 90:280-288.
2. Schrag A., Jahanshahi M., Quinn N. How does Parkinson's disease affect quality of life? A comparison with quality of life in the general population. Move Disord 2000, 15:1112-1118.
3. Dowding C.H., Shenton C.L., Salek S.S. A review of the health-related quality of life and economic impact of Parkinson's disease. Drugs Aging 2006, 23:693-721.
4. The WHOQOL Group. The World Health Organization quality of life assessment (WHOQOL): Position paper from the World Health Organization. Soc Sci Med 1995;41:1403-9.
5. Hawthorne G. Measuring the value of health-related quality of life. Quality of life impairment in schizophrenia, mood and anxiety disorders 2007, 99-132. Springer, Secaucus. M.S. Ritsner, A.G. Awad (Eds.).
6. Pearlman R.A., Uhlmann R.F. Quality of life in chronic diseases-perceptions of elderly patients. J Gerontol 1988, 43:M25-30.
7. McKinlay A., Grace R.C., Dalrymple-Alford J.C., Anderson T.J., Fink J., Roger D. Neuropsychiatric problems in Parkinson's disease: comparisons between self and caregiver report. Aging Ment Health 2008, 12:647-653.
8. Hunt S.M. Cross-cultural issues in the use of sociomedical indicators. Health Policy 1986, 6:149-158.
9. Lau A., McKenna K. Conceptualizing quality of life for elderly people with stroke. Disabil Rehabil 2001, 23:227-238.
10. Cummins R.A. Moving from the quality of life concept to a theory. J Intellect Disabil Res 2005, 49:699-706.
11. International Wellbeing Group Personal wellbeing index 2006, Australian Centre on Quality of Life, Deakin University, Melbourne. 4th ed.
12. Ware J.E., Sherbourne C.D. The MOS 36-item short form health survey (SF-36): conceptual framework and item selection. Med Care 1992, 30:473-483.
13. Cummins R.A. The domains of life satisfaction: an attempt to order chaos. Soc Indic Res 1996, 38:303-328.
14. Lindstrom B. Quality of life-a model for evaluating health for all. Conceptual considerations and policy implications. Sozial-Und Praventivmedizin 1992, 37:301-306.
15. Doward L.C., McKenna S.P. Defining patient-reported outcomes. Value Health 2004, 7:4-8.
16. Wood-Dauphinee S. Assessing quality of life in clinical research: from where have we come and where are we going?. J Clin Epidemiol 1999, 52:355-363.
17. World Health Organization International classification of functioning, disability and health: short version 2001, WHO, Geneva.
18. Royal Dutch Society for Physical Therapy Clinical practice guidelines for physical therapy in patients with Parkinson's disease. Suppl Dutch J Physiother 2004, 114:1-86.
19. Guyatt G.H., Vanzanten S., Feeny D.H., Patrick D.L. Measuring quality of life in clinical trials: a taxonomy and review. Can Med Assoc J 1989, 140:1441-1448.
20. Hunt S.M., McEwen J., McKenna S.P. Measuring health status-a new tool for clinicians and epidemiologists. J R Coll Gen Pract 1985, 35:185-188.
21. Bergner M., Bobbitt R.A., Carter W.B., Gilson B.S. The Sickness Impact Profile-development and final revision of a health-status measure. Med Care 1981, 19:787-805.
22. Hagell P., Tornqvist A.L., Hobart J. Testing the SF-36 in Parkinson's disease. J Neurol 2008, 255:246-254.
23. Hagell P., Whalley D., McKenna S.P., Lindvall O. Health status measurement in Parkinson's disease: validity of the PDQ-39 and Nottingham Health Profile. Move Disord 2003, 18:773-783.
24. Peto V., Jenkinson C., Fitzpatrick R., Greenhall R. The development and validation of a short measure of functioning and well-being for individuals with Parkinsons disease. Qual Life Res 1995, 4:241-248.
25. deBoer A., Wijker W., Speelman J.D., deHaes J. Quality of life in patients with Parkinson's disease: development of a questionnaire. J Neurol Neurosurg Psychiatr 1996, 61:70-74.
26. Marinus J., Ramaker C., van Hilten J.J., Stiggelbout A.M. Health related quality of life in Parkinson's disease: a systematic review of disease specific instruments. J Neurol Neurosurg Psychiatr 2002, 72:241-248.
27. Calne S., Schulzer M., Mak E., Guyette C., Rohs G., Hatchard S., et al. Validating a quality of life rating scale for idiopathic parkinsonism: Parkinson's Impact Scale (PIMS). Parkinson Relat Disord 1996, 2:55-61.
28. Welsh M., McDermott M.P., Holloway R.G., Plumb S., Pfeiffer R., Hubble J., et al. Development and testing of the Parkinson's disease quality of life scale. Move Disord 2003, 18:637-645.
29. Williams A. Euroqol-a new facility for the measurement of health-related quality of life. Health Policy 1990, 16:199-208.
30. Hawthorne G., Richardson J., Osborne R. The Assessment of Quality of Life (AQoL) instrument: a psychometric measure of health-related quality of life. Qual Life Res 1999, 8:209-224.
31. Hawthorne G., Richardson J., Day N.A. A comparison of the Assessment of Quality of Life (AQoL) with four other generic utility instruments. Ann Med 2001, 33:358-370.
32. The World Health Organization quality of life assessment (WHOQOL): development and general psychometric properties. Soc Sci Med 1998; 46:1569-85.