Community-responsive research priorities: Health research infrastructure

Progress in Community Health Partnerships: Research, Education, and Action

Volumn 6, Issue 3, 2012, Pages 339-348

  Jones, Bonnie ^a   Lightfoot, Alexandra ^a,b,c   De Marco, Molly ^a,b   Roman Isler, Malika ^a,d   Ammerman, Alice ^a,b,c   Nelson, Debi ^f   Harrison, Lisa ^f   Motsinger, Brenda ^a,c   Melvin, Cathy ^a,c,e   Corbie Smith, Giselle ^a,c,d,e  

^a North Carolina Translational and Clinical Sciences Institute   (United States)

^b University of North Carolina Center for Health Promotion Disease Prevention   (United States)

^c IL   (United States)

^d UNIVERSITY OF NORTH CAROLINA SCHOOL OF MEDICINE   (United States)

^e UNIVERSITY OF NORTH CAROLINA   (United States)

^f North Carolina Division of Public Health   (United States)

Author keywords

Community engagement; Community health partnerships; Community based participatory research; Health disparities; Health outcomes; Priority setting process

Indexed keywords

ARTICLE; CAPACITY BUILDING; COMMUNITY CARE; HEALTH CARE PLANNING; HEALTH SERVICES RESEARCH; HUMAN; ORGANIZATION AND MANAGEMENT; PARTICIPATORY RESEARCH; PUBLIC RELATIONS; TRANSLATIONAL RESEARCH;

CAPACITY BUILDING; COMMUNITY NETWORKS; COMMUNITY-BASED PARTICIPATORY RESEARCH; COMMUNITY-INSTITUTIONAL RELATIONS; HEALTH PRIORITIES; HEALTH SERVICES RESEARCH; HUMANS; TRANSLATIONAL MEDICAL RESEARCH;

EID: 84867857186     PISSN: 15570541     EISSN: 1557055X     Source Type: Journal    
DOI: 10.1353/cpr.2012.0045     Document Type: Article

References (59)

1. NCRR fact sheet: Clinical and Translational Science Awards. Clinical and Translational Science Awards. Available from: http://www.ctsaweb.org/docs/CTSA_FactSheet.pdf
2. Heller C, de Melo-Martin I. Clinical and Translational Science Awards: Can they increase the efficiency and speed of clinical and translational research? Acad Med. 2009;84(4):424-32.
3. Pober JS, Neuhauser CS, Pober JM. Obstacles facing translational research in academic medical centers. FASEB J. 2001; 15(13):2303-13.
4. Sung NS, Crowley WF, Jr., Genel M, et al. Central challenges facing the national clinical research enterprise. JAMA. 2003; 289(10):1278-87.
5. Crowley WF, Jr., Thier SO. The continuing dilemma in clinical investigation and the future of American health care: A system-wide problem requiring collaborative solutions. Acad Med. 1996;71(11):1154-63.
6. Califf RM, Berglund L. Linking scientific discovery and better health for the nation: The first three years of the NIH's Clinical and Translational Science Awards. Acad Med. 2010; 85(3):457-62.
7. About CTSA [updated 2011; cited 2011 Apr 10]. Available from: http://www.ctsaweb.org/index.cfm?fuseaction=home.aboutHome
8. Flicker S. Ethical dilemmas in community-based participatory research: Recommendations for institutional review boards. J Urban Health. 2007;84(4):478-93.
9. NC TraCS: About Us. Available from: zttp://tracs.unc.edu /index.php?option=com_content&view=article&id=106& Itemid=139
10. America's Health Rankings. Data tables [updated 2008]. Available from: http://www.americashealthrankings.org/2008/tables.html
11. United States Census Bureau. Table 2: Average life expectancy at birth by state for 2000 and ratio of estimates and projections of deaths: 2001 to 2003 [updated 2005]. Available from: http://www.census.gov/population/projections/MethTab2.xls
12. University of North Carolina at Chapel Hill [updated 2010; cited 2010 Aug 23]. Available from: http://www.unc.edu /about/mission
13. University of North Carolina at Chapel Hill School of Public Health. Engaged Institution Initiative (EII) [updated 2006; cited 2011 Jan 11]. Available from: http://www.sph.unc.edu/school/engaged_institution_initiative_eii_5617_9474.html
14. Carolina Center for Public Service. Carnegie Community Engagement Classification updated 2006; cited 2011 Jan 11]. Available from: http://www.unc.edu/ccps/learn-morecarnegie.php
15. Ahmed SM, Palermo AG. Community engagement in research: Frameworks for education and peer review. Am J Public Health. 2010;100:1380-7.
16. Murry VM, Berkel C, Brody GH, Gibbons M, Gibbons FX. The Strong African American Families Program: Longitudinal pathways to sexual risk reduction. J Adolesc Health. 2007; 41(4):333-42.
17. Corbie-Smith G, Yaggy S, Lyn M, Green M, Ornelas IJ, Simmons T, et al. Development of an interinstitutional collabor ation to support community-partnered research addressing the health of emerging Latino populations. Acad Med. 2010;85:728-35.
18. Wells KB, Staunton A, Norris KC, et al. Building an academiccommunity partnered network for clinical services research: The Community Health Improvement Collaborative (CHIC). Ethn Dis. 2006;16 Suppl 1:S3-17.
19. Brody GH, McBride Murry V, Gerrard M, Gibbons FX, Molgaard V, McNair L, et al. The Strong African American Families Program: Translating research into prevention program ming. Child Dev. 2004;75(3):900-17.
20. Israel B, Schulz AJ, Parker EA, Becker AB. Review of communitybased research: Assessing partnership approaches to improve public health. Annu Rev Public Health. 1998;19(1):173.
21. Lindau ST, Makelarski JA, Chin MH, Desautels S, Johnson D, Johnson WE, Jr., et al. Building community-engaged health research and discovery infrastructure on the South Side of Chicago: Science in service to community priorities. Prev Med. 2011;52:200-7.
22. Kevern J, Webb C. Focus groups as a tool for critical social research in nurse education. Nurse Educ Today. 2001;21(4):323-33.
23. CDC/ATSDR. Principles of community engagement [updated 1997; cited 2010]. Available from: http://www.cdc.gov/phppo/pce/
24. Cornwall A, Jewkes R. What is participatory research? Soc Sci Med. 1995;41(12):1667-76.
25. Sampselle CM, Pienta KJ, Markel DS. The CTSA mandate: Are we there yet? Res Theory Nurs Pract. 2010;24(1):64-73.
26. Brugge D, Kole A. A case study of community-based participatory research ethics: The Healthy Public Housing Initiative. Sci Eng Ethics. 2003;9(4):485-501.
27. Engel J. Prevention: A statewide perspective. NC Med J. 2010;71(1).
28. Spade J. Preventing disease and promoting health in North Carolina communities: The North Carolina Prevention Action Plan and Healthy Carolinians. N C Med J. 2010;71(1):84-8.
29. NC TraCS Community Engagement Core [cited 2010 Aug 23]. Available from: http://tracs.unc.edu/index.php?option=com_ content&view=article&id=138&Itemid = 201
30. Center for Health Promotion and Disease Prevention. Mission and vision statement cited 2011 Mar 11]. Available from: http://www.hdpd.unc.edu/about-us
31. Spade J. Preventing disease and promoting health in North Carolina communities: The North Carolina prevention action plan and healthy Carolinians. NC Med J. 2010;71(1):84-8.
32. Healthy Carolinians Community Assessment Cycle [updated 2010; cited 2010 Ag 23]. Available from: http://www.healthy carolinians.org/assessment/cycle.aspx
33. Healthy Carolinians [cited 2010 Aug 23]. Available from: http://www.healthycarolinians.org/
34. Healthy Carolinians. Healthy Carolinians Community Assessment updated 2010; cited 2010 Aug 4]. Available from: http://www.healthycarolinians.org/assessment/guidebook.aspx
35. U.S. Census Bureau. Census 2000 summary file 3. [Machine Readable Data File; updated 2002; cited 2005 Apr]. Available from: http://census.state.nc.us
36. NC CATCH. North Carolina Comprehensive Assessment for Tracking and Community Health [updated 2009; cited 2009]. Available from: http://www.epi.state.nc.us/SCHS/catch
37. Lieb S. Principles of Adult Learning [updated 1991; cited 2011 Apr 24]. Available from: http://honolulu.hawaii.edu/intranet /committees/FacDevCom/guidebk/teachtip/adults-2.htm
38. National Center for Research Resources (NCRR), Clinical and translational science awards [updated 2010; cited 2010 Dec 10]. Available from: http://www.ncrr.nih.gov/clinical_research_ resources/clinical_and_translational_science_awards/
39. National Center on Minority Health and Health Disparities (NCMHD). NCMHD community based participatory research initiative [updated 2010; cited 2010 Dec 10]. Available from: http://www.ncmhd.nih.gov/our_programs/Community ParticipationResearch.asp
40. National Institutes of Health (NIH). RFA-07-004, communitybased participatory research at NIMH [updated 2006; cited 2010 Dec 30]. Available from: http://grants.nih.gov/grants/guide/pa-files/PAR-07-004.html
41. National Institutes of Health (NIH). Multiple principle investigators updated 2009; cited 2010 Dec 30]. Available from: http://grants.nih.gov/grants/multi_pi/
42. National Institutes of Health (NIH). PAR-09-092, academiccommunity partnership series [updated 2009; cited 2010 Dec 30]. Available from: http://grants.nih.gov/grants/guide /pa-files/par-09-092.html
43. Federal Register. Federal Policy for the protection of human subjects: Notices and rules. Federal Register. 1991.
44. Ammerman A, Corbie-Smith G, St George DM, Washington C, Weathers B, Jackson-Christian B. Research expectations among African American church leaders in the PRAISE! project: A randomized trial guided by community-based participatory research. Am J Public Health. 2003;93(10):1720-7.
45. Cook WK. Integrating research and action: a systematic review of community-based participatory research to address health disparities in environmental and occupational health in the USA. J Epidemiol Community Health. 2008;62(8):668-76.
46. O'Fallon LR, Wolfle GM, Brown D, Dearry A, Olden K. Strategies for setting a national research agenda that is responsive to community needs. Environ Health Perspect. 2003; 111(16):1855-60.
47. Fisher CB. Integrating science and ethics in research with high-risk children and youth. Soc Res Child Dev. 1993;7:1-27.
48. Strauss RP, Sengupta S, Quinn SC, Goeppinger J, Spaulding C, Kegeles SM, et al. The role of community advisory boards: Involving communities in the informed consent process. Am J Public Health. 2001;91(12):1938-43.
49. Key informant interviews [updated 2008; cited 2011 Apr 4]. Available from: http://www.oasas.state.ny.us/prevention /needs/documents/KeyInformantInterviews.pdf
50. Guidelines for conducting a focus group [updated 2005; cited 2011 Apr 4]. Available from: http://www.dsamh.utah.gov/spf /pdf/how_to_conduct_a_focus_group.pdf
51. Phillips C. Using logic models to bring together planning, evaluation, and action [updated 2004; cited 2011 Apr 4]. Available from: http://ww2.wkkf.org/DesktopModules/WKF.00_ DmaSupport/ViewDocaspx?fld=PDFFile&CID=281&ListID =28&ItemID=2813669&LanguageID=0
52. Getting the lay of the land on health: A guide for using interviews to gather information (key informant interviews) [updated 1999; cited 2011 Apr 4]. Available from: http://www.accessproject.org/downloads/final%20document.pdf
53. Simmons A, Reynolds RC, Swinburn B. Defining community capacity building: Is it possible? Prev Med. 2011;52(3-4):193-9.
54. McKnight JL, Kretzmann JP. Mapping community capacity. Rev. Ed. Evanston (IL): Institute for Policy Research, Northwestern University; 1996.
55. Beaulieu LJ. Mapping the assets of your community: A key component for building local capacity. Starkville (MS): Southern Rural Development Center; 2002.
56. Roehlkepartain EC. Beyond needs assessments: Identifying a community's resources and hopes [updated 2008; cited 2011 Apr 4]. Available from: http://www.servicelearning.org /instant_info/fact_sheets/cb_facts/beyond_needs_assess
57. Helliwell JF. Social capital, the economy and well-being. Montreal: McGill-Queen's University Press; 2001.
58. Drolet BC, Lorenzi NM. Translational research: Understanding the continuum from bench to bedside. Transl Res. 2011 2011; 157(1):1-5.
59. Minkler M. Community-based research partnerships: Challenges and opportunities. J Urban Health. 2005;82 Suppl 2:ii3-12.