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Volumn 54, Issue 10, 2012, Pages 1300-1308

Development of the Huntington disease work function scale

(254)  Brossman, Bradley a   Williams, Janet K b   Downing, Nancy b   Mills, James A b   Paulsen, Jane b   Wassink, Thomas b   Cross, Stephen b   Kimble, Mycah b   Ryan, Patricia b   Wood, Jessica b   Epping, Eric A b   Beglinger, Leigh J b   Chiu, Edmond c   Yastrubetskaya, Olga c   Preston, Joy c   Goh, Anita c   Fonseka, Chathushka c   Antonopoulos, Stephanie c   Loi, Samantha c   Chua, Phyllis c   more..


Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; COGNITION; CONTENT VALIDITY; ENDICOTT WORK PRODUCTIVITY SCALE; HUMAN; HUNTINGTON CHOREA; HUNTINGTON DISEASE WORK FUNCTION SCALE; INTERNAL CONSISTENCY; INTERRATER RELIABILITY; INTERVIEW; PILOT STUDY; RATING SCALE; SELF REPORT; SOCIAL ADJUSTMENT SCALE SELF REPORT; WORK CAPACITY;

EID: 84867577975     PISSN: 10762752     EISSN: 15365948     Source Type: Journal    
DOI: 10.1097/JOM.0b013e31825f30ab     Document Type: Article
Times cited : (9)

References (54)
  • 1
    • 77955853895 scopus 로고    scopus 로고
    • Work functioning measurement: Tools for occupational mental health research
    • Nieuwenhuijsen K, Franche RL, van Dijk FJ. Work functioning measurement: tools for occupational mental health research. J Occup Environ Med. 2010;52:778-790.
    • (2010) J Occup Environ Med. , vol.52 , pp. 778-790
    • Nieuwenhuijsen, K.1    Franche, R.L.2    Van Dijk, F.J.3
  • 2
    • 67650301824 scopus 로고    scopus 로고
    • Work values: Some demographic and cultural correlates
    • Warr P. Work values: some demographic and cultural correlates. J Occup Organ Psychol. 2008;81:751-775.
    • (2008) J Occup Organ Psychol. , vol.81 , pp. 751-775
    • Warr, P.1
  • 4
    • 78650278301 scopus 로고    scopus 로고
    • Huntington's disease: A clinical review
    • Roos RA. Huntington's disease: a clinical review. Orphanet J Rare Dis. 2010;5:40.
    • (2010) Orphanet J Rare Dis. , vol.5 , pp. 40
    • Roos, R.A.1
  • 5
    • 0030937818 scopus 로고    scopus 로고
    • Genotypes at the GluR6 kainate receptor locus are associated with variation in the age of onset of Huntington disease
    • Rubinsztein DC, Leggo J, Chiano M, et al. Genotypes at the GluR6 kainate receptor locus are associated with variation in the age of onset of Huntington disease. Proc Natl Acad Sci U S A. 1997;94:3872-3876.
    • (1997) Proc Natl Acad Sci u S A , vol.94 , pp. 3872-3876
    • Rubinsztein, D.C.1    Leggo, J.2    Chiano, M.3
  • 6
    • 85085224100 scopus 로고    scopus 로고
    • Bureau of Labor Statistics Updated Accessed August 29, 2011
    • Bureau of Labor Statistics. Earnings by age and sex. Available at: http://www.bls.gov/opub/ted/2010/ted 20101025.htm. Updated 2010. Accessed August 29, 2011.
    • (2010) Earnings by Age and Sex
  • 7
    • 78649262050 scopus 로고    scopus 로고
    • The clinical and genetic features of Huntington disease
    • Sturrock A, Leavitt BR. The clinical and genetic features of Huntington disease. J Geriatr Psychiatry Neurol. 2010;23:243-259.
    • (2010) J Geriatr Psychiatry Neurol. , vol.23 , pp. 243-259
    • Sturrock, A.1    Leavitt, B.R.2
  • 8
    • 77951226301 scopus 로고    scopus 로고
    • Cognitive deficits in Huntington's disease on the repeatable battery for the assessment of neuropsychological status
    • Duff K, Beglinger LJ, Theriault D, Allison J, Paulsen JS. Cognitive deficits in Huntington's disease on the repeatable battery for the assessment of neuropsychological status. J Clin Exp Neuropsychol. 2010;32:231-238.
    • (2010) J Clin Exp Neuropsychol. , vol.32 , pp. 231-238
    • Duff, K.1    Beglinger, L.J.2    Theriault, D.3    Allison, J.4    Paulsen, J.S.5
  • 9
    • 0035964234 scopus 로고    scopus 로고
    • Clinical markers of early disease in persons near onset of Huntington's disease
    • Paulsen JS, Zhao H, Stout JC, et al. Clinical markers of early disease in persons near onset of Huntington's disease. Neurology. 2001;57:658-662.
    • (2001) Neurology , vol.57 , pp. 658-662
    • Paulsen, J.S.1    Zhao, H.2    Stout, J.C.3
  • 10
    • 48249114740 scopus 로고    scopus 로고
    • Detection of Huntington's disease decades before diagnosis: The PREDICT-HD study
    • Paulsen JS, Langbehn DR, Stout JC, et al. Detection of Huntington's disease decades before diagnosis: the PREDICT-HD study. J Neurol Neurosurg Psychiatry. 2008;79:874-880.
    • (2008) J Neurol Neurosurg Psychiatry , vol.79 , pp. 874-880
    • Paulsen, J.S.1    Langbehn, D.R.2    Stout, J.C.3
  • 11
    • 70449931956 scopus 로고    scopus 로고
    • Motor abnormalities in premanifest persons with Huntington's disease: The PREDICT-HD study
    • Biglan K, Ross C, Langbehn D, et al. Motor abnormalities in premanifest persons with Huntington's disease: the PREDICT-HD study. Mov Disorders. 2009;24:1763-1772.
    • (2009) Mov Disorders. , vol.24 , pp. 1763-1772
    • Biglan, K.1    Ross, C.2    Langbehn, D.3
  • 12
    • 77949483015 scopus 로고    scopus 로고
    • Early detection of Huntington's disease
    • Paulsen JS. Early detection of Huntington's disease. Future Neurol. 2010;5:85-104.
    • (2010) Future Neurol. , vol.5 , pp. 85-104
    • Paulsen, J.S.1
  • 13
    • 62149136286 scopus 로고    scopus 로고
    • Functional imaging in Huntington's disease
    • Paulsen JS. Functional imaging in Huntington's disease. Exp Neurol. 2009;216:272-277.
    • (2009) Exp Neurol. , vol.216 , pp. 272-277
    • Paulsen, J.S.1
  • 14
    • 77953537855 scopus 로고    scopus 로고
    • Striatal and white matter predictors of estimated diagnosis for Huntington disease
    • Paulsen JS, Nopoulos PC, Aylward E, et al. Striatal and white matter predictors of estimated diagnosis for Huntington disease. Brain Res Bull. 2010;82:201-207.
    • (2010) Brain Res Bull. , vol.82 , pp. 201-207
    • Paulsen, J.S.1    Nopoulos, P.C.2    Aylward, E.3
  • 15
    • 50549093575 scopus 로고    scopus 로고
    • Work and recreational changes among people with neurological illness and their caregivers
    • McCabe MP, Roberts C, Firth L. Work and recreational changes among people with neurological illness and their caregivers. Disabil Rehabil. 2008;30:600-610.
    • (2008) Disabil Rehabil. , vol.30 , pp. 600-610
    • McCabe, M.P.1    Roberts, C.2    Firth, L.3
  • 16
    • 77953810571 scopus 로고    scopus 로고
    • Earliest functional declines in Huntington disease
    • Beglinger LJ, O'Rourke JJ, Wang C, et al. Earliest functional declines in Huntington disease. Psychiatry Res. 2010;178:414-418.
    • (2010) Psychiatry Res. , vol.178 , pp. 414-418
    • Beglinger, L.J.1    O'Rourke, J.J.2    Wang, C.3
  • 17
    • 78349250529 scopus 로고    scopus 로고
    • Challenges assessing clinical endpoints in early Huntington disease
    • Paulsen JS, Wang C, Duff K, et al. Challenges assessing clinical endpoints in early Huntington disease. Mov Disord. 2010;25:2595-2603.
    • (2010) Mov Disord. , vol.25 , pp. 2595-2603
    • Paulsen, J.S.1    Wang, C.2    Duff, K.3
  • 18
    • 84865662691 scopus 로고    scopus 로고
    • Assessmentofday-to-day functioning in prodromal and early Huntington disease
    • Vaccarino AL, Sills T, Anderson KE, et al. Assessmentofday-to-day functioning in prodromal and early Huntington disease. PLoS Curr. 2011;3: RRN1262.
    • (2011) PLoS Curr. , vol.3
    • Vaccarino, A.L.1    Sills, T.2    Anderson, K.E.3
  • 19
    • 77954380463 scopus 로고    scopus 로고
    • Perception, experience, and response to genetic discrimination in Huntington disease: The international RESPOND-HD study
    • Erwin C, Williams JK, Juhl AR, et al. Perception, experience, and response to genetic discrimination in Huntington disease: The international RESPOND-HD study. Am J Med Genet B Neuropsychiatr Genet. 2010;153B:1081-1093.
    • (2010) Am J Med Genet B Neuropsychiatr Genet , vol.153 B , pp. 1081-1093
    • Erwin, C.1    Williams, J.K.2    Juhl, A.R.3
  • 21
    • 77952390050 scopus 로고    scopus 로고
    • "Frontal" behaviors before the diagnosis of Huntington's disease and their relationship to markers of disease progression: Evidence of early lack of awareness
    • Duff K, Paulsen JS, Beglinger LJ, et al. "Frontal" behaviors before the diagnosis of Huntington's disease and their relationship to markers of disease progression: evidence of early lack of awareness. J Neuropsychiatry Clin Neurosci. 2010;22:196-207.
    • (2010) J Neuropsychiatry Clin Neurosci. , vol.22 , pp. 196-207
    • Duff, K.1    Paulsen, J.S.2    Beglinger, L.J.3
  • 22
    • 34248560852 scopus 로고    scopus 로고
    • Patients with Huntington's disease have impaired awareness of cognitive, emotional, and functional abilities
    • Hoth KF, Paulsen JS, Moser DJ, Tranel D, Clark LA, Bechara A. Patients with Huntington's disease have impaired awareness of cognitive, emotional, and functional abilities. J Clin Exp Neuropsychol. 2007;29:365-376.
    • (2007) J Clin Exp Neuropsychol. , vol.29 , pp. 365-376
    • Hoth, K.F.1    Paulsen, J.S.2    Moser, D.J.3    Tranel, D.4    Clark, L.A.5    Bechara, A.6
  • 23
    • 70349777957 scopus 로고    scopus 로고
    • WHODAS II with people after stroke and their relatives
    • Schlote A, Richter M, Wunderlich MT, et al. WHODAS II with people after stroke and their relatives. Disabil Rehabil. 2009;31:855-864.
    • (2009) Disabil Rehabil. , vol.31 , pp. 855-864
    • Schlote, A.1    Richter, M.2    Wunderlich, M.T.3
  • 24
    • 33846957350 scopus 로고    scopus 로고
    • Validity and reliability of surrogate information for controls in a case-control study on Alzheimer's disease
    • Villanueva V, Garcia AM. Validity and reliability of surrogate information for controls in a case-control study on Alzheimer's disease. J Alzheimers Dis. 2006;10:409-416.
    • (2006) J Alzheimers Dis. , vol.10 , pp. 409-416
    • Villanueva, V.1    Garcia, A.M.2
  • 25
    • 33751009238 scopus 로고    scopus 로고
    • 4th ed. Westport, CT: American Council on Education/Praeger
    • Brennan RL, ed. Educational Measurement. 4th ed. Westport, CT: American Council on Education/Praeger; 2006.
    • (2006) Educational Measurement
    • Brennan, R.L.1
  • 27
    • 33846087451 scopus 로고    scopus 로고
    • Early cognitive deficits in Swedish gene carriers of Huntington's disease
    • RobinsWahlin TB, Lundin A, Dear K. Early cognitive deficits in Swedish gene carriers of Huntington's disease. Neuropsychology. 2007;21:31-44.
    • (2007) Neuropsychology , vol.21 , pp. 31-44
    • RobinsWahlin, T.B.1    Lundin, A.2    Dear, K.3
  • 28
    • 33847715903 scopus 로고    scopus 로고
    • Verbal episodic memory declines prior to diagnosis in Huntington's disease
    • Solomon AC, Stout JC, Johnson SA, et al. Verbal episodic memory declines prior to diagnosis in Huntington's disease. Neuropsychologia. 2007;45:1767-1776.
    • (2007) Neuropsychologia , vol.45 , pp. 1767-1776
    • Solomon, A.C.1    Stout, J.C.2    Johnson, S.A.3
  • 29
    • 36549036813 scopus 로고    scopus 로고
    • Psychiatric symptoms in Huntington's disease before diagnosis: The PREDICT-HD study
    • Predict-HD Investigators of the Huntington Study Group
    • Duff K, Paulsen JS, Beglinger LJ, Langbehn DR, Stout JC; Predict-HD Investigators of the Huntington Study Group. Psychiatric symptoms in Huntington's disease before diagnosis: the PREDICT-HD study. Biol Psychiatry. 2007;62:1341-1346.
    • (2007) Biol Psychiatry , vol.62 , pp. 1341-1346
    • Duff, K.1    Paulsen, J.S.2    Beglinger, L.J.3    Langbehn, D.R.4    Stout, J.C.5
  • 30
    • 34447562912 scopus 로고    scopus 로고
    • "No one else sees the difference": Family members' perceptions of changes in persons with preclinical Huntington disease
    • Williams JK, Hamilton R, Nehl C, et al. "No one else sees the difference": family members' perceptions of changes in persons with preclinical Huntington disease. Am J Med Genet. Part B Neuropsychiatr Genet. 2007;144B:636-641.
    • (2007) Am J Med Genet. Part B Neuropsychiatr Genet. , vol.144 B , pp. 636-641
    • Williams, J.K.1    Hamilton, R.2    Nehl, C.3
  • 31
    • 77956416220 scopus 로고    scopus 로고
    • Couples' attributions for functional changes in prodromal Huntington disease
    • Downing NR, Williams JK, Paulsen JS. Couples' attributions for functional changes in prodromal Huntington disease. J Genet Counsel. 2010;19:343-352.
    • (2010) J Genet Counsel. , vol.19 , pp. 343-352
    • Downing, N.R.1    Williams, J.K.2    Paulsen, J.S.3
  • 32
    • 0018303366 scopus 로고
    • Huntington disease: Clinical care and evaluation
    • Shoulson I, Fahn S. Huntington disease: clinical care and evaluation. Neurology. 1979;29:1-3.
    • (1979) Neurology , vol.29 , pp. 1-3
    • Shoulson, I.1    Fahn, S.2
  • 33
    • 85009332113 scopus 로고    scopus 로고
    • Unified Huntington's Disease Rating Scale: Reliability and consistency
    • Huntington Study Group
    • Huntington Study Group. Unified Huntington's Disease Rating Scale: reliability and consistency. Mov Disord. 1996;11:136-142.
    • (1996) Mov Disord. , vol.11 , pp. 136-142
  • 34
    • 0030935538 scopus 로고    scopus 로고
    • Endicott Work Productivity Scale (EWPS): A new measure to assess treatment effects
    • Endicott J, Nee J. Endicott Work Productivity Scale (EWPS): a new measure to assess treatment effects. Psychopharmacol Bull. 1997;33:13-16.
    • (1997) Psychopharmacol Bull. , vol.33 , pp. 13-16
    • Endicott, J.1    Nee, J.2
  • 35
    • 0345074139 scopus 로고    scopus 로고
    • The World Health Organization Health and Work Performance Questionnaire (HPQ)
    • Kessler RC, Barber C, Beck A, et al. The World Health Organization Health and Work Performance Questionnaire (HPQ). J Occup Environ Med. 2003;45:156-174.
    • (2003) J Occup Environ Med. , vol.45 , pp. 156-174
    • Kessler, R.C.1    Barber, C.2    Beck, A.3
  • 36
    • 77955446151 scopus 로고    scopus 로고
    • Mild cognitive impairment in prediagnosed Huntington disease
    • Duff K, Paulsen J, Mills J, et al. Mild cognitive impairment in prediagnosed Huntington disease. Neurology. 2010;75:500-507.
    • (2010) Neurology , vol.75 , pp. 500-507
    • Duff, K.1    Paulsen, J.2    Mills, J.3
  • 37
    • 34250164294 scopus 로고    scopus 로고
    • Worker productivity outcome measures in arthritis
    • Escorpizo R, Bombardier C, Boonen A, et al. Worker productivity outcome measures in arthritis. J Rheumatol. 2007;34:1372-1380.
    • (2007) J Rheumatol. , vol.34 , pp. 1372-1380
    • Escorpizo, R.1    Bombardier, C.2    Boonen, A.3
  • 39
    • 34247605501 scopus 로고    scopus 로고
    • The impact of bipolar disorder upon work functioning: A qualitative analysis
    • Michalek EE, Yatham LN, Maxwell V, Hale S, Lam W. The impact of bipolar disorder upon work functioning: a qualitative analysis. Bipolar Disord. 2007;9:126-143.
    • (2007) Bipolar Disord. , vol.9 , pp. 126-143
    • Michalek, E.E.1    Yatham, L.N.2    Maxwell, V.3    Hale, S.4    Lam, W.5
  • 40
    • 0034241415 scopus 로고    scopus 로고
    • Focus on research methods. Whatever happened to qualitative description?
    • Sandelowski M. Focus on research methods. Whatever happened to qualitative description? Res Nurs Health. 2000;23:334-340.
    • (2000) Res Nurs Health , vol.23 , pp. 334-340
    • Sandelowski, M.1
  • 41
    • 1842477303 scopus 로고    scopus 로고
    • A new model for prediction of the age of onset and penetrance for Huntington's disease based on CAG length
    • International Huntington's Disease Collaborative Group
    • Langbehn DR, Brinkman RR, Falush D, Paulsen JS, Hayden MR; International Huntington's Disease Collaborative Group. A new model for prediction of the age of onset and penetrance for Huntington's disease based on CAG length. Clin Genet. 2004;65:267-277.
    • (2004) Clin Genet. , vol.65 , pp. 267-277
    • Langbehn, D.R.1    Brinkman, R.R.2    Falush, D.3    Paulsen, J.S.4    Hayden, M.R.5
  • 43
    • 0036480717 scopus 로고    scopus 로고
    • A comparison of World-Wide-Web and Paper-and-Pencil Personality Questionnaires
    • Pettit FA. A comparison of World-Wide-Web and Paper-and-Pencil Personality Questionnaires. Behav Methods Res. 2002;34:50-54.
    • (2002) Behav Methods Res. , vol.34 , pp. 50-54
    • Pettit, F.A.1
  • 45
    • 77954504186 scopus 로고    scopus 로고
    • FDA guidance on patient reported outcomes
    • Speight J, Barendse SM. FDA guidance on patient reported outcomes. BMJ. 2010;340:c2921.
    • (2010) BMJ , vol.340
    • Speight, J.1    Barendse, S.M.2
  • 46
    • 0141933065 scopus 로고    scopus 로고
    • From impressions to data: Increasing the objectivity of cognitive interviews
    • Conrad F, Blair J. From impressions to data: increasing the objectivity of cognitive interviews. 1996 Proc Sect Surv Res Methods. 1996;1:1-9.
    • (1996) 1996 Proc Sect Surv Res Methods , vol.1 , pp. 1-9
    • Conrad, F.1    Blair, J.2
  • 47
    • 47249102977 scopus 로고    scopus 로고
    • The measurement of everyday cognition (ECog): Scale development and psychometric properties
    • Farias ST, Mungas D, Reed BR, et al. The measurement of everyday cognition (ECog): scale development and psychometric properties. Neuropsychology. 2008;22:531-544.
    • (2008) Neuropsychology , vol.22 , pp. 531-544
    • Farias, S.T.1    Mungas, D.2    Reed, B.R.3
  • 50
    • 0035092025 scopus 로고    scopus 로고
    • A comparison of three scales for assessing social functioning in primary care
    • Weissman MM, Olfson M, Gameroff MJ, Feder A, Fuentes M. A comparison of three scales for assessing social functioning in primary care. Am J Psychiatry. 2001;158:460-466.
    • (2001) Am J Psychiatry , vol.158 , pp. 460-466
    • Weissman, M.M.1    Olfson, M.2    Gameroff, M.J.3    Feder, A.4    Fuentes, M.5
  • 51
    • 80052484592 scopus 로고    scopus 로고
    • Indexing disease progression at study entry with individuals at-risk for Huntington disease
    • Zhang Y, Long JD, Mills JA, et al. Indexing disease progression at study entry with individuals at-risk for Huntington disease. Am J Med Genet B Neuropsychiatr Genet. 2011;156B:751-763.
    • (2011) Am J Med Genet B Neuropsychiatr Genet , vol.156 B , pp. 751-763
    • Zhang, Y.1    Long, J.D.2    Mills, J.A.3
  • 52
    • 77951669598 scopus 로고    scopus 로고
    • Alzheimer's prevention initiative: A proposal to evaluate presymptomatic treatments as quickly as possible
    • Reiman EM, Langbaum JB, Tariot PN. Alzheimer's prevention initiative: a proposal to evaluate presymptomatic treatments as quickly as possible. Biomark Med. 2010;4:3-14.
    • (2010) Biomark Med. , vol.4 , pp. 3-14
    • Reiman, E.M.1    Langbaum, J.B.2    Tariot, P.N.3
  • 53
    • 77955487508 scopus 로고    scopus 로고
    • National Institutes of Health state-of-the-science conference statement: Preventing Alzheimer disease and cognitive decline
    • Daviglus ML, Bell CC, Berrettini W, et al. National Institutes of Health state-of-the-science conference statement: Preventing Alzheimer disease and cognitive decline. Ann Intern Med. 2010;153:176-181.
    • (2010) Ann Intern Med. , vol.153 , pp. 176-181
    • Daviglus, M.L.1    Bell, C.C.2    Berrettini, W.3
  • 54
    • 77956622710 scopus 로고    scopus 로고
    • Clinical prediction of Parkinson's disease: Planning for the age of neuroprotection
    • Postuma RB, Gagnon JF, Montplaisir J. Clinical prediction of Parkinson's disease: planning for the age of neuroprotection. J Neurol Neurosurg Psychiatry. 2010;81:1008-1013.
    • (2010) J Neurol Neurosurg Psychiatry , vol.81 , pp. 1008-1013
    • Postuma, R.B.1    Gagnon, J.F.2    Montplaisir, J.3


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