'I just don't fit anywhere': Support experiences and future support needs of individuals with Asperger syndrome in middle adulthood

Autism

Volumn 16, Issue 5, 2012, Pages 532-546

  Griffith, Gemma M ^a   Totsika, Vasiliki ^a   Nash, Susie ^a   Hastings, Richard P ^a  

^a BANGOR UNIVERSITY   (United Kingdom)

Author keywords

adults; Asperger syndrome; qualitative; support services

Indexed keywords

ADULT; ANXIETY; ARTICLE; ASPERGER SYNDROME; CLINICAL ARTICLE; COMMUNICATION DISORDER; DEPRESSION; EMPLOYMENT; EXPERIENCE; FEMALE; HUMAN; INTERPERSONAL COMMUNICATION; MALE; MIDDLE AGED; MOOD CHANGE; PERCEPTION; PHENOMENOLOGY; PRIORITY JOURNAL; SEMI STRUCTURED INTERVIEW; SOCIAL INTERACTION; SOCIAL SUPPORT;

ADULT; ANXIETY; ASPERGER SYNDROME; DEPRESSION; EMPLOYMENT; FEMALE; HEALTH SERVICES NEEDS AND DEMAND; HUMANS; MALE; MENTAL HEALTH SERVICES; MIDDLE AGED; QUALITATIVE RESEARCH; SOCIAL WORK;

EID: 84867360696     PISSN: 13623613     EISSN: 14617005     Source Type: Journal    
DOI: 10.1177/1362361311405223     Document Type: Article

References (24)

1. Diagnostic and Statistical Manual of Mental Disorders. Washington, DC: American Psychiatric Association ; 1994 :
2. Baron-Cohen S, Wheelwright S. The Empathy Quotient: An investigation of adults with Asperger syndrome or high functioning autism, and normal sex differences. Journal of Autism and Developmental Disorders. 2004 ; 34: 163-75
3. Brocki JM, Weardon AJ. A critical evaluation of the use of interpretative phenomenological analysis (IPA) in health psychology. Psychology and Health. 2006 ; 21: 87-108
4. Carrington S, Graham L. Perceptions of school by two teenage boys with Asperger syndrome and their mothers: A qualitative study. Autism. 2001 ; 5 (1). 37-48
5. Fulfilling and Rewarding Lives. London: Department of Health ; 2010 :
6. Elliot R, Fisher CT, Rennie DL. Evolving guidelines for publication of qualitative research studies in psychology and related fields. British Journal of Clinical Psychology. 1999 ; 38: 215-29
7. Harker M, King N Tomorrow's Big Problem: Housing Options for People with Autism: A Guide for Service Commissioners, Providers and Families. London: National Autistic Society ; 2004 :
8. Hendricks D, Wehman P. Transition for school to adulthood for youth with autism spectrum disorders: Review and recommendations. Focus on Autism and other Developmental Disabilities. 2009 ; 24 (2). 77-88
9. Howard B, Cohn E, Orsmond G. Understanding and negotiating friendships; perspectives from an adolescent with Asperger syndrome. Autism. 2006 ; 33 (5). 489-507
10. Howlin P, Goode S, Hutton J, Rutter M. Adult outcome for children with autism. Journal of Child Psychology and Psychiatry. 2004 ; 45 (2). 212-29
11. Hurlbutt K, Chalmers L. Adults with autism speak out: perceptions of their life experiences. Focus on Autism and other Developmental Disabilities. 2002 ; 17 (2). 103-11
12. Hurlbutt K, Chalmers L. Employment and adults with Asperger syndrome. Focus on Autism and other Developmental Disabilities. 2004 ; 19 (4). 215-22
13. Huws JC, Jones SP. Diagnosis, disclosure, and having autism; An interpretative phenomenological analysis of the perceptions of young people with autism. Journal of Intellectual and Developmental Disability. 2008 ; 33 (2). 99-107
14. Molloy H, Vasil L Asperger Syndrome, Adolescence and Identity: Looking Beyond the Label. London: Jessica Kingsley ; 2004 :
15. Muller E, Schuler A, Burton BA, Yates GB. Meeting the vocational support needs of individuals with Asperger syndrome and other autism spectrum disabilities. Journal of Vocational Rehabilitation. 2003 ; 18: 163-75
16. Muller E, Schuler A, Yates GB. Social challenges and supports from the perspective of individuals with Asperger syndrome and other autism spectrum disabilities. Autism. 2008 ; 12 (2). 173-90
17. Powell A Taking Responsibility: Good Practice Guidelines for Services for Adults with Asperger Syndrome. London: National Autistic Society ; 2002 :
18. Punshon C, Skirrow P, Murphy G. The 'not guilty' verdict. Psychological reactions to a diagnosis of Asperger syndrome in adulthood. Autism. 2009 ; 13 (3). 265-83
19. Reilly DE, Huws JC, Hastings RP, Vaughan FL. 'When your child dies you don't belong in that world anymore'-experiences of mothers whose child with an intellectual disability has died. Journal of Applied Research in Intellectual Disabilities. 2008 ; 21: 546-60
20. Smith JA, Jarman M, Osborn M Qualitative Health Psychology; Theories and Methods. Murray M Chamberlain K, ed. London: Sage ; 1999: 218-40.
21. Smith JA, Michie S, Stephenson M, Quarral O. Risk perception and decision-making processes in candidates for genetic testing for Huntingdon's disease: An interpretative phenomenological analysis. Journal of Health Psychology. 2002 ; 7: 131-44
22. Sturges JE, Hanrahan KJ. Comparing telephone and face-to-face qualitative interviewing; A research note. Qualitative Research. 2004 ; 4: 107-18
23. Willig C Introducing Qualitative Research in Psychology: Adventures in Theory and Method. Buckingham: Open University Press ; 2001 :
24. Williams E. Who really needs a 'theory' of mind? An interpretative phenomenological analysis of the autobiographical writings of ten high-functioning individuals with and autism spectrum disorder. Theory and Psychology. 2004 ; 14 (5). 704-24