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Volumn 21, Issue 8, 2012, Pages 1437-1450

Using three legacy measures to develop a health-related quality of life tool for young adult survivors of childhood cancer

Author keywords

Childhood cancer; Measurement; Quality of life; Rasch analysis; Young adult survivor

Indexed keywords

ADAPTIVE BEHAVIOR; ADULT; AGE; ARTICLE; FEMALE; HEALTH STATUS INDICATOR; HUMAN; HUMAN RELATION; MALE; MENTAL STRESS; NEOPLASM; PAIN ASSESSMENT; PSYCHOLOGICAL ASPECT; PSYCHOMETRY; QUALITY OF LIFE; REGISTER; SURVIVOR; TIME;

EID: 84867074804     PISSN: 09629343     EISSN: None     Source Type: Journal    
DOI: 10.1007/s11136-011-0055-9     Document Type: Article
Times cited : (6)

References (56)
  • 5
    • 33845978769 scopus 로고    scopus 로고
    • Health-related quality of life and adverse late effects in adult (very) long-term childhood cancer survivors
    • Blaauwbroek, R., Stant, A. D., Groenier, K. H., Kamps, W. A., Meyboom, B., & Postma, A. (2007). Health-related quality of life and adverse late effects in adult (very) long-term childhood cancer survivors. European Journal of Cancer, 43, 122-130.
    • (2007) European Journal of Cancer , vol.43 , pp. 122-130
    • Blaauwbroek, R.1    Stant, A.D.2    Groenier, K.H.3    Kamps, W.A.4    Meyboom, B.5    Postma, A.6
  • 6
    • 34548120183 scopus 로고    scopus 로고
    • Assessing psychological and health-related quality of life (HRQL) late effects after childhood cancer
    • Boman, K. K. (2007). Assessing psychological and health-related quality of life (HRQL) late effects after childhood cancer. Acta Paediatrica, 96, 1265-1268.
    • (2007) Acta Paediatrica , vol.96 , pp. 1265-1268
    • Boman, K.K.1
  • 7
    • 77954542258 scopus 로고    scopus 로고
    • Late effects and quality of life of childhood cancer survivors: Part 1. Impact of stem cell transplantation
    • Ishida, Y., Honda, M., Ozono, S., Okamura, J., Asami, K., Maeda, N., et al. (2010). Late effects and quality of life of childhood cancer survivors: Part 1. Impact of stem cell transplantation. International Journal of Hematology, 91, 865-876.
    • (2010) International Journal of Hematology , vol.91 , pp. 865-876
    • Ishida, Y.1    Honda, M.2    Ozono, S.3    Okamura, J.4    Asami, K.5    Maeda, N.6
  • 9
    • 13244283170 scopus 로고    scopus 로고
    • Quality of life in long-term childhood cancer survivors and the relation of late effects and subjective well-being
    • Pemberger, S., Jagsch, R., Frey, E., Felder-Puig, R., Gadner, H., Kryspin-Exner, I., et al. (2005). Quality of life in long-term childhood cancer survivors and the relation of late effects and subjective well-being. Supportive Care in Cancer, 13, 49-56.
    • (2005) Supportive Care in Cancer , vol.13 , pp. 49-56
    • Pemberger, S.1    Jagsch, R.2    Frey, E.3    Felder-Puig, R.4    Gadner, H.5    Kryspin-Exner, I.6
  • 11
    • 0030983902 scopus 로고    scopus 로고
    • Psychological functioning of adolescent and young adult survivors of pediatric malignancy
    • Elkin, T. D., Phipps, S., Mulhern, R. K., & Fairclough, D. (1997). Psychological functioning of adolescent and young adult survivors of pediatric malignancy. Medical and Pediatric Oncology, 29, 582-588.
    • (1997) Medical and Pediatric Oncology , vol.29 , pp. 582-588
    • Elkin, T.D.1    Phipps, S.2    Mulhern, R.K.3    Fairclough, D.4
  • 13
    • 31344471465 scopus 로고    scopus 로고
    • Quality of life and current coping in young adult survivors of childhood cancer: Positive expectations about the further course of the disease were correlated with better quality of life
    • Stam, H., Grootenhuis, M. A., Caron, H. N., & Last, B. F. (2006). Quality of life and current coping in young adult survivors of childhood cancer: Positive expectations about the further course of the disease were correlated with better quality of life. Psychooncology, 15, 31-43.
    • (2006) Psychooncology , vol.15 , pp. 31-43
    • Stam, H.1    Grootenhuis, M.A.2    Caron, H.N.3    Last, B.F.4
  • 14
    • 0031017211 scopus 로고    scopus 로고
    • Comparison of psychologic outcome in adult survivors of childhood acute lymphoblastic leukemia versus sibling controls: A cooperative children's cancer group and national institutes of health study
    • Zeltzer, L. K., Chen, E., Weiss, R., Guo, M. D., Robison, L. L., Meadows, A. T., et al. (1997). Comparison of psychologic outcome in adult survivors of childhood acute lymphoblastic leukemia versus sibling controls: A cooperative children's cancer group and national institutes of health study. Journal of Clinical Oncology, 15, 547-556.
    • (1997) Journal of Clinical Oncology , vol.15 , pp. 547-556
    • Zeltzer, L.K.1    Chen, E.2    Weiss, R.3    Guo, M.D.4    Robison, L.L.5    Meadows, A.T.6
  • 15
    • 0032126524 scopus 로고    scopus 로고
    • Quality of life and psychosocial adjustment of young patients after treatment of bone cancer
    • Felder-Puig, R., Formann, A. K., Mildner, A., Bretschneider, W., Bucher, B., Windhager, R., et al. (1998). Quality of life and psychosocial adjustment of young patients after treatment of bone cancer. Cancer, 83, 69-75.
    • (1998) Cancer , vol.83 , pp. 69-75
    • Felder-Puig, R.1    Formann, A.K.2    Mildner, A.3    Bretschneider, W.4    Bucher, B.5    Windhager, R.6
  • 17
    • 9844267320 scopus 로고    scopus 로고
    • Long-term survival and quality of life in patients treated with a national all protocol 15-20 years earlier: IDM/HDM and late effects?
    • Moe, P. J., Holen, A., Glomstein, A., Madsen, B., Hellebostad, M., Stokland, T., et al. (1997). Long-term survival and quality of life in patients treated with a national all protocol 15-20 years earlier: IDM/HDM and late effects? Pediatric Hematology and Oncology, 14, 513-524.
    • (1997) Pediatric Hematology and Oncology , vol.14 , pp. 513-524
    • Moe, P.J.1    Holen, A.2    Glomstein, A.3    Madsen, B.4    Hellebostad, M.5    Stokland, T.6
  • 18
    • 0034053070 scopus 로고    scopus 로고
    • Quality of life in survivors with a van ness-borggreve rotationplasty after bone tumour resection
    • Veenstra, K. M., Sprangers, M. A., van der Eyken, J. W., & Taminiau, A. H. (2000). Quality of life in survivors with a van ness-borggreve rotationplasty after bone tumour resection. Journal of Surgical Oncology, 73, 192-197.
    • (2000) Journal of Surgical Oncology , vol.73 , pp. 192-197
    • Veenstra, K.M.1    Sprangers, M.A.2    Van Der Eyken, J.W.3    Taminiau, A.H.4
  • 19
    • 41449102291 scopus 로고    scopus 로고
    • Fatigue and sleep disturbance in adult survivors of childhood cancer: A report from the childhood cancer survivor study (CCSS)
    • Mulrooney, D. A., Ness, K. K., Neglia, J. P., Whitton, J. A., Green, D. M., Zeltzer, L. K., et al. (2008). Fatigue and sleep disturbance in adult survivors of childhood cancer: A report from the childhood cancer survivor study (CCSS). Sleep, 31, 271-281.
    • (2008) Sleep , vol.31 , pp. 271-281
    • Mulrooney, D.A.1    Ness, K.K.2    Neglia, J.P.3    Whitton, J.A.4    Green, D.M.5    Zeltzer, L.K.6
  • 20
    • 34548382062 scopus 로고    scopus 로고
    • The effects of response bias on self-reported quality of life among childhood cancer survivors
    • O'Leary, T. E., Diller, L., & Recklitis, C. J. (2007). The effects of response bias on self-reported quality of life among childhood cancer survivors. Quality of Life Research, 16, 1211-1220.
    • (2007) Quality of Life Research , vol.16 , pp. 1211-1220
    • O'Leary, T.E.1    Diller, L.2    Recklitis, C.J.3
  • 21
    • 0028829548 scopus 로고
    • Measurement of the quality of life in cancer survivors
    • Ferrell, B. R., Dow, K. H., & Grant, M. (1995). Measurement of the quality of life in cancer survivors. Quality of Life Research, 4, 523-531.
    • (1995) Quality of Life Research , vol.4 , pp. 523-531
    • Ferrell, B.R.1    Dow, K.H.2    Grant, M.3
  • 23
    • 77952548211 scopus 로고    scopus 로고
    • Psychometric evaluation of the impact of cancer (IOC-CS) scale for young adult survivors of childhood cancer
    • Zebrack, B. J., Donohue, J. E., Gurney, J. G., Chesler, M. A., Bhatia, S., & Landier, W. (2010). Psychometric evaluation of the impact of cancer (IOC-CS) scale for young adult survivors of childhood cancer. Quality of Life Research, 19, 207-218.
    • (2010) Quality of Life Research , vol.19 , pp. 207-218
    • Zebrack, B.J.1    Donohue, J.E.2    Gurney, J.G.3    Chesler, M.A.4    Bhatia, S.5    Landier, W.6
  • 25
    • 21144450948 scopus 로고    scopus 로고
    • Late mortality in survivors of autologous hematopoietic-cell transplantation: Report from the bone marrow transplant survivor study
    • Bhatia, S., Robison, L. L., Francisco, L., Carter, A., Liu, Y., Grant, M., et al. (2005). Late mortality in survivors of autologous hematopoietic-cell transplantation: Report from the bone marrow transplant survivor study. Blood, 105, 4215-4222.
    • (2005) Blood , vol.105 , pp. 4215-4222
    • Bhatia, S.1    Robison, L.L.2    Francisco, L.3    Carter, A.4    Liu, Y.5    Grant, M.6
  • 26
    • 0034268535 scopus 로고    scopus 로고
    • Item response theory and health outcomes measurement in the 21st century
    • Hays, R. D., Morales, L. S., & Reise, S. P. (2000). Item response theory and health outcomes measurement in the 21st century. Medical Care, 38 II28-II42.
    • (2000) Medical Care , vol.38
    • Hays, R.D.1    Morales, L.S.2    Reise, S.P.3
  • 28
    • 34447115830 scopus 로고    scopus 로고
    • Developing tailored instruments: Item banking and computerized adaptive assessment
    • Bjorner, J. B., Chang, C. H., Thissen, D., & Reeve, B. B. (2007). Developing tailored instruments: Item banking and computerized adaptive assessment. Quality of Life Research, 16(Suppl 1), 95-108.
    • (2007) Quality of Life Research , vol.16 , Issue.SUPPL. 1 , pp. 95-108
    • Bjorner, J.B.1    Chang, C.H.2    Thissen, D.3    Reeve, B.B.4
  • 29
    • 34447125847 scopus 로고    scopus 로고
    • Applying item response theory (IRT) modeling to questionnaire development, evaluation, and refinement
    • Edelen, M. O., & Reeve, B. B. (2007). Applying item response theory (IRT) modeling to questionnaire development, evaluation, and refinement. Quality of Life Research, 16(Suppl 1), 5-18.
    • (2007) Quality of Life Research , vol.16 , Issue.SUPPL. 1 , pp. 5-18
    • Edelen, M.O.1    Reeve, B.B.2
  • 30
    • 0026877917 scopus 로고
    • The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection
    • Ware, J. E., Jr, & Sherbourne, C. D. (1992). The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection. Medical Care, 30, 473-483.
    • (1992) Medical Care , vol.30 , pp. 473-483
    • Ware Jr., J.E.1    Sherbourne, C.D.2
  • 31
    • 0036137657 scopus 로고    scopus 로고
    • Development of a short osteoporosis quality of life questionnaire by equating items from two existing instruments
    • Badia, X., Prieto, L., Roset, M., Diez-Perez, A., & Herdman, M. (2002). Development of a short osteoporosis quality of life questionnaire by equating items from two existing instruments. Journal of Clinical Epidemiology, 55, 32-40.
    • (2002) Journal of Clinical Epidemiology , vol.55 , pp. 32-40
    • Badia, X.1    Prieto, L.2    Roset, M.3    Diez-Perez, A.4    Herdman, M.5
  • 34
    • 70349758217 scopus 로고    scopus 로고
    • Psychosocial outcomes and service use among young adults with cancer
    • Zebrack, B., Hamilton, R., & Smith, A. W. (2009). Psychosocial outcomes and service use among young adults with cancer. Seminars in Oncology, 36, 468-477.
    • (2009) Seminars in Oncology , vol.36 , pp. 468-477
    • Zebrack, B.1    Hamilton, R.2    Smith, A.W.3
  • 35
    • 67650706330 scopus 로고    scopus 로고
    • Cutoff criteria for fit indexes in covariance structure analysis: Conventional criteria versus new alternatives
    • Hu, L., & Bentler, B. M. (1999). Cutoff criteria for fit indexes in covariance structure analysis: Conventional criteria versus new alternatives. Structural Equation Modeling, 6, 1-55.
    • (1999) Structural Equation Modeling , vol.6 , pp. 1-55
    • Hu, L.1    Bentler, B.M.2
  • 38
    • 0037980149 scopus 로고    scopus 로고
    • Interpretation of changes in health-related quality of life: The remarkable universality of half a standard deviation
    • Norman, G. R., Sloan, J. A., & Wyrwich, K. W. (2003). Interpretation of changes in health-related quality of life: The remarkable universality of half a standard deviation. Medical Care, 41, 582-592.
    • (2003) Medical Care , vol.41 , pp. 582-592
    • Norman, G.R.1    Sloan, J.A.2    Wyrwich, K.W.3
  • 41
    • 0035161690 scopus 로고    scopus 로고
    • A psychometric analysis of the quality of life-cancer survivors (QOL-CS) in survivors of childhood cancer
    • Zebrack, B. J., & Chesler, M. A. (2001). A psychometric analysis of the quality of life-cancer survivors (QOL-CS) in survivors of childhood cancer. Quality of Life Research, 10, 319-329.
    • (2001) Quality of Life Research , vol.10 , pp. 319-329
    • Zebrack, B.J.1    Chesler, M.A.2
  • 42
    • 0041584277 scopus 로고    scopus 로고
    • Elk Grove Village, IL: American Academy of Pediatrics
    • Berkowitz, C. D. (2008). Pediatrics: a primary care approach (p. 837). Elk Grove Village, IL: American Academy of Pediatrics.
    • (2008) Pediatrics: A Primary Care Approach , pp. 837
    • Berkowitz, C.D.1
  • 43
    • 0037312061 scopus 로고    scopus 로고
    • Embracing uncertainty: An exploration of the experiences of childhood cancer survivors
    • Parry, C. (2003). Embracing uncertainty: An exploration of the experiences of childhood cancer survivors. Qualitative Health Research, 13, 227-246.
    • (2003) Qualitative Health Research , vol.13 , pp. 227-246
    • Parry, C.1
  • 44
    • 10744228140 scopus 로고    scopus 로고
    • CTCAE v3.0: Development of a comprehensive grading system for the adverse effects of cancer treatment
    • Trotti, A., Colevas, A. D., Setser, A., Rusch, V., Jaques, D., Budach, V., et al. (2003). CTCAE v3.0: Development of a comprehensive grading system for the adverse effects of cancer treatment. Seminars in Radiation Oncology, 13, 176-181.
    • (2003) Seminars in Radiation Oncology , vol.13 , pp. 176-181
    • Trotti, A.1    Colevas, A.D.2    Setser, A.3    Rusch, V.4    Jaques, D.5    Budach, V.6
  • 45
    • 36448978298 scopus 로고    scopus 로고
    • Validation and comparison of the health-related quality-of-life instruments EORTC QLQ-C30 and SF-36 in assessment of patients with chronic nonmalignant pain
    • Fredheim, O. M., Borchgrevink, P. C., Saltnes, T., & Kaasa, S. (2007). Validation and comparison of the health-related quality-of-life instruments EORTC QLQ-C30 and SF-36 in assessment of patients with chronic nonmalignant pain. Journal of Pain and Symptom Management, 34, 657-665.
    • (2007) Journal of Pain and Symptom Management , vol.34 , pp. 657-665
    • Fredheim, O.M.1    Borchgrevink, P.C.2    Saltnes, T.3    Kaasa, S.4
  • 46
    • 0036164596 scopus 로고    scopus 로고
    • The comparability of quality of life scores. A multitrait multimethod analysis of the EORTC QLQ-C30, SF-36 and FLIC questionnaires
    • Kuenstner, S., Langelotz, C., Budach, V., Possinger, K., Krause, B., & Sezer, O. (2002). The comparability of quality of life scores. A multitrait multimethod analysis of the EORTC QLQ-C30, SF-36 and FLIC questionnaires. European Journal of Cancer, 38, 339-348.
    • (2002) European Journal of Cancer , vol.38 , pp. 339-348
    • Kuenstner, S.1    Langelotz, C.2    Budach, V.3    Possinger, K.4    Krause, B.5    Sezer, O.6
  • 47
    • 33947511485 scopus 로고    scopus 로고
    • Item response theory methods can improve the measurement of physical function by combining the modified health assessment questionnaire and the SF-36 physical function scale
    • Martin, M., Kosinski, M., Bjorner, J. B., Ware, J. E., Jr., Maclean, R., & Li, T. (2007). Item response theory methods can improve the measurement of physical function by combining the modified health assessment questionnaire and the SF-36 physical function scale. Quality of Life Research, 16, 647-660.
    • (2007) Quality of Life Research , vol.16 , pp. 647-660
    • Martin, M.1    Kosinski, M.2    Bjorner, J.B.3    Ware Jr., J.E.4    Maclean, R.5    Li, T.6
  • 48
    • 74349091696 scopus 로고    scopus 로고
    • Young adult survivors of childhood cancer; experiences affecting self-image, relationships, and present life
    • Enskar, K., & Bertero, C. (2010). Young adult survivors of childhood cancer; experiences affecting self-image, relationships, and present life. Cancer Nursing, 33, E18-E24.
    • (2010) Cancer Nursing , vol.33
    • Enskar, K.1    Bertero, C.2
  • 49
    • 70349154560 scopus 로고    scopus 로고
    • Factors affecting quality of life in Taiwanese survivors of childhood cancer
    • Chou, L. N., & Hunter, A. (2009). Factors affecting quality of life in Taiwanese survivors of childhood cancer. Journal of Advanced Nursing, 65, 2131-2141.
    • (2009) Journal of Advanced Nursing , vol.65 , pp. 2131-2141
    • Chou, L.N.1    Hunter, A.2
  • 50
    • 33749571721 scopus 로고    scopus 로고
    • Health-related quality of life for Latino survivors of childhood cancer
    • Casillas, J. N., Zebrack, B. J., & Zeltzer, L. K. (2006). Health-related quality of life for Latino survivors of childhood cancer. Journal of Psychosocial Oncology, 24, 125-145.
    • (2006) Journal of Psychosocial Oncology , vol.24 , pp. 125-145
    • Casillas, J.N.1    Zebrack, B.J.2    Zeltzer, L.K.3
  • 51
    • 61349190381 scopus 로고    scopus 로고
    • Between being cured and being healed: The paradox of childhood cancer survivorship
    • Cantrell, M. A., & Conte, T. M. (2009). Between being cured and being healed: The paradox of childhood cancer survivorship. Qualitative Health Research, 19, 312-322.
    • (2009) Qualitative Health Research , vol.19 , pp. 312-322
    • Cantrell, M.A.1    Conte, T.M.2
  • 52
    • 26444437828 scopus 로고    scopus 로고
    • Thematic evidence of psychosocial thriving in childhood cancer survivors
    • Parry, C., & Chesler, M. A. (2005). Thematic evidence of psychosocial thriving in childhood cancer survivors. Qualitative Health Research, 15, 1055-1073.
    • (2005) Qualitative Health Research , vol.15 , pp. 1055-1073
    • Parry, C.1    Chesler, M.A.2
  • 53
    • 0037347573 scopus 로고    scopus 로고
    • The psycho-social impact of infertility on young male cancer survivors: A qualitative investigation
    • Green, D., Galvin, H., & Horne, B. (2003). The psycho-social impact of infertility on young male cancer survivors: A qualitative investigation. Psychooncology, 12, 141-152.
    • (2003) Psychooncology , vol.12 , pp. 141-152
    • Green, D.1    Galvin, H.2    Horne, B.3
  • 54
    • 5744236790 scopus 로고    scopus 로고
    • Fertility issues for young adult survivors of childhood cancer
    • Zebrack, B. J., Casillas, J., Nohr, L., Adams, H., & Zeltzer, L. K. (2004). Fertility issues for young adult survivors of childhood cancer. Psychooncology, 13, 689-699.
    • (2004) Psychooncology , vol.13 , pp. 689-699
    • Zebrack, B.J.1    Casillas, J.2    Nohr, L.3    Adams, H.4    Zeltzer, L.K.5
  • 56
    • 40149098615 scopus 로고    scopus 로고
    • 'Having cancer changed my life, and changed my life forever': Survival, illness legacy and service provision following cancer in childhood
    • Drew, S. (2007). 'Having cancer changed my life, and changed my life forever': Survival, illness legacy and service provision following cancer in childhood. Chronic Illness, 3, 278-295.
    • (2007) Chronic Illness , vol.3 , pp. 278-295
    • Drew, S.1


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