'Having cancer changed my life, and changed my life forever': Survival, illness legacy and service provision following cancer in childhood

Chronic Illness

Volumn 3, Issue 4, 2007, Pages 278-295

  Drew, Sarah ^a  

^a UNIVERSITY OF MELBOURNE   (Australia)

Author keywords

Adolescence; Cancer survival; Childhood; Healthcare; Quality of life

Indexed keywords

ADULT; ARTICLE; CANCER CLASSIFICATION; CANCER RESEARCH; CANCER SURVIVAL; CHILDHOOD CANCER; CLINICAL ARTICLE; CONTROLLED STUDY; FEMALE; HEALTH CARE PERSONNEL; HEALTH SERVICE; HUMAN; MALE; MEDICAL INFORMATION; QUALITY OF LIFE; QUESTIONNAIRE; SELF CONCEPT; SEX RATIO; SOCIAL PSYCHOLOGY; WELLBEING; ADOLESCENT; HEALTH CARE DELIVERY; INTERVIEW; LIFE EVENT; NEOPLASM; PATIENT; PSYCHOLOGICAL ASPECT; SURVIVOR;

ADOLESCENT; ADULT; DELIVERY OF HEALTH CARE; FEMALE; HUMANS; INTERVIEWS AS TOPIC; LIFE CHANGE EVENTS; MALE; NEOPLASMS; PATIENTS; QUALITY OF LIFE; SELF CONCEPT; SURVIVORS;

EID: 40149098615     PISSN: 17423953     EISSN: 17459206     Source Type: Journal    
DOI: 10.1177/1742395307085236     Document Type: Article

References (68)

1. Hewitt M, Weiner SL, Simone JV, eds. Childhood cancer survivorship: improving quality of life. Washington: National Academic Press, 2003.
2. Attiyeh EF, London WB, Mosse YP Chromosome 1p and 11q deletions and outcome in neuroblastoma. N Engl J Med 2005 ; 353: 2243 - 53.
3. van Eys J. Jhe truly cured child? Pediatrician 1991 ; 18: 90 - 5.
4. Oeffinger KC, Eshelman DA, Tomlinson GE, Buchanan GR Programs for adult survivors of childhood cancer. J Clin Oncol 1998 ; 16: 2864 - 7.
5. Eiser C. Practitioner review: long-term consequences of childhood cancer. J Child Psychol Psychiatry 1998 ; 39: 621 - 33.
6. Kissen G. Late effects of treatment on paediatric oncology. In: Selby P, Bailey C, eds. Cancer and the adolescent. London: BMJ Publishing Group, 1996.
7. Bloom JR Surviving and thriving. Psycho-Oncology 2002 ; 11: 89 - 92.
8. Bury M. Chronic illness as biographical disruption. Sociol Health Illness 1982 ; 4: 167 - 82.
9. Hyden LC Illness as narrative. Sociol Health Illness 1997 ; 19: 48 - 69.
10. Williams GH The genesis of chronic illness: narrative reconstruction. Sociol Health Illness 1984 ; 6: 175 - 200.
11. Williams SJ Chronic illness as biographical disruption or biographical disruption as chronic illness? Reflections on a core concept. Sociol Health Illness 2000 ; 22: 40 - 67.
12. Helman CG Culture, health and illness, 4 th edn. Oxford: Butterworth Heinemann, 2000.
13. Frank AW The wounded storyteller: body, illness and ethics. Chicago: University of Chicago Press, 1995.
14. Frank AW The renewal of generosity: illness, medicine, and how to live. Chicago: University of Chicago Press, 2004.
15. van Eys J. Is all well with the young man, absolom? Springfield: Charles C., Chomas, 1988.
16. Drew S. The Delta factor: storying survival and the disjuncture between public narratives and personal stories of life after cancer. Storytelling Self Society 2005 ; 1: 76 - 102.
17. Drew S., Duncan R., Walter R. Qualitative epidemiology: moving beyond an oxymoron. Australasian Epidemiologist 2007 ; 14: 22 - 5.
18. Drew S. Self-reconstruction and biographical revisioning: survival following cancer in childhood or adolescence. Health 2003 ; 7: 181 - 99.
19. Drew S. Thinking about fertility: narratives of young adult survivors of cancer in childhood or adolescence. In: Kirkman M, Maher JM, Souter KT, eds. The fertile imagination: narratives of reproduction. Meridian 2002 ; 18: 83 - 101.
20. Drew S. Stranger in the community: life after cancer in childhood. Unpublished doctoral thesis. Melbourne: The University of Melbourne, 2003.
21. Zebrack BJ, Chesler MA Health-related worries, self-image and life outlooks of long-term survivors of childhood cancer. Health Social Work 2001 ; 26: 245 - 56.
22. Zebrack BJ, Chesler MA Quality of life in childhood cancer survivors. Psycho-Oncology 2002 ; 11: 132 - 41.
23. Billson A., Walker D. Assessment of health status in survivors of cancer. Arch Dis Childhood 1994 ; 70: 200 - 4.
24. Eiser C., Morse R. Can parents rate their child's health related quality of life? Results of a systematic review. Qualitative Life Res 2001 ; 10: 347 - 57.
25. Fochtman D. The concept of suffering in children and adolescents with cancer. J Paediatr Oncol Nurs 2006 ; 23: 92 - 102.
26. Strauss A., Corbin J. Basics of qualitative research: grounded theory procedures and techniques. London: Sage, 1990.
27. Strauss A. Qualitative analysis for social scientists. Sydney: Cambridge University Press, 1987.
28. Bryman A., Burgess RG Developments in qualitative data analysis: an introduction. In: Bryman A, Burgess RG, eds. Analyzing qualitative data. New York: Routledge, 1994.
29. Charmaz K. Grounded theory. In: Smith JA, Harre R, Langenhove LV, eds. Rethinking methods in psychology. London: Sage, 1995.
30. Mattingly C., Garro L. Narrative and the cultural construction of illness and healing. Berkeley: University of California Press, 2000.
31. Gubrium JF, Hostein JA Narrative practice and the coherence of personal stories. Sociological Q 1998 ; 39: 163.
32. Somers MR The narrative construction of identity: a relational and network approach. Theory Society 1994 ; 23: 605 - 49.
33. Bruner J. Acts of meaning. Cambridge, MA: Harvard University Press, 1990.
34. Charmaz K. Qualitative interviewing and grounded theory analysis. In: Gubrium JF, Holstein JA, eds. Handbook of interview research: context and method., London: Sage, 2002.
35. Harding S. Introduction: is there a feminist method? In: Harding S, ed. Feminism and methodology. Bloomington: Indiana University Press, 1987.
36. Carr-Gregg M. The adolescent with cancer in the Australian Health Care System. Unpublished doctoral thesis. Sydney: University of New South Wales, 1986.
37. Prouty D., Ward-Smith P., Hutto CJ The lived experience of adult survivors of childhood cancer. J Paediatr Oncol Nurs 2006 ; 23: 143 - 51.
38. Grealy L. Autobiography of a face. New York: Houghton Mifflin Company, 1994.
39. Grealy L. Mirrors. In: Foster P, ed. Minding the body: women writers on body and soul. New York: Anchor Books, Doubleday, 1994.
40. Miles S. Topic of cancer. Good Weekend Melbourne 2000 ; 32 - 4.
41. LaroucheSS, Chin-Peuckert. Changes in body image experienced by adolescents with cancer. J Paediatr Oncol Nurs 2006 ; 23: 200 - 9.
42. Williams SJ, Bendelow GA Recalcitrant bodies? Children, cancer and the transgression of corporeal boundaries. Health 2000 ; 4: 51 - 00.
43. Alasker FD Pubertal timing, overweight and psychological adjustment. J Early Adolescence 1992 ; 12: 396 - 419.
44. Holsen I., Kraft P. The relationship between body image and depressed mood in adolescence: a 5-year longitudinal panel study. J Health Psychol 2001 ; 6: 613 - 27.
45. Bearison DJ They never want to tell you: children talk about cancer. Cambridge, MA: Harvard University Press, 1991.
46. Bluebond-Langer M. The private worlds of dying children. New Jersey: Princetown University Press, 1980.
47. Good MJD, Good BJ, Schaffer C., Lind SE American oncology and the discourse on hope. Culture Medicine Psychiatry 1990 ; 14: 59 - 79.
48. Gordon DR Rmbodying illness, embodying cancer. Culture Medicine Psychiatry 1990 ; 14: 275 - 97.
49. McNamara B. Fragile lives: death, dying and care. Crows Nest NSW: Allen and Unwin, 2001.
50. Gravelle K., Bertram JA Getting married and raising a family: teenagers face to face with cancer. New York: Julian Messner, 1986.
51. Rosen D. Between two worlds: bridging the cultures of child health and adult medicine. J Adolescent Health 1995 ; 17: 10 - 16.
52. Viner R. Transition from paediatric to adult health care. Bridging the gaps or passing the buck? Arch Dis Child 1999 ; 81: 271 - 5.
53. Viner R., Keane M. Youth matters: evidence based best practice for the care of young people in hospital. London: Caring for Children in the Health Services, 1998.
54. Stiller CA Cancer in adolescence: special problems; special solutions. BMJ 1994 ; 308: 1382 - 3.
55. Parsons SK, Brown AP Evaluation of quality of life in childhood cancer survivors: a methodological conundrum. Med Pediatr Oncol 1998 ; (Suppl. 1). 46 - 53.
56. Blum RW Transition to adult health care: setting the stage. J Adolescent Health 1995 ; 17: 3 - 5.
57. Sawyer S., Blair S., Bowes G. Chronic illness in adolescents: transfer or transition to adult services? J Paediatr Child Health 1997 ; 33: 88 - 90.
58. Sawyer SM, Aroni R. The sticky issue of adherence. J Paediatr Child Health 2003 ; 39: 2 - 5.
59. Sawyer SM, Aroni R. Self-management in adolescents with chronic illness. What does it mean and how can it be achieved? Med J Aust 2005 ; 183: 405 - 9.
60. Marcell AV, Klein JD, Fisher I., et al. Male adolescent use of health care services: where are the boys? J Adolescent Health 2002 ; 30: 35 - 43.
61. Rosen D. Transition to adult health-care for adolescents and young-adults with cancer. Cancer (Suppl.) 1993 ; 71: 3411 - 14.
62. Sawyer SM, Drew SE, Duncan RE Young people with chronic disease: the double whammy. Aust Fam Physician 2007 ; 36: 622 - 7.
63. Sawyer SM, Drew S., Yeo MS, Britto MB Adolescents and chronic disease. Lancet 2007 ; 369: 1481 - 9.
64. D'Angio G. Foreword. In: Keene N, Hobbie W, Ruccione K, eds. Childhood cancer survivors: a practical guide to your future. Cambridge: O'Reilly, 2000.
65. Konsler GK, Jones GR Transition issues for survivors of childhood cancer and their healthcare providers. Cancer Pract 1993 ; 1: 319 - 24.
66. Keene N, Hobbie W, Ruccione K, eds. Childhood cancer survivors: a practical guide to your future. Cambridge: O'Reilly, 2000.
67. Mclean WE, Foley GV, Ruccione K., Skiar C. Transitions in the care of adolescents and young adult survivors of childhood cancer. Cancer 1996 ; 78: 1340 - 4.
68. Zebrack BJ, Chesler MA Quality of life in childhood cancer survivors. Psycho-Oncology 2001 ; 11: 132 - 41.