Transitional care in rheumatology in Germany;Transition in die erwachsenenrheumatologie

Internist

Volumn 53, Issue 9, 2012, Pages 1054-1061

  Schalm, S ^a,b   Jansson, A F ^a  

^a LUDWIG MAXIMILIANS UNIVERSITY   (Germany)

^b Rheumatologie im Würmtal ^*  (Germany)

Author keywords

Adolescent; Arthritis juvenile rheumatoid; Health care structures; Rheumatology; Transition to adult care

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CHILD; GERMANY; HEALTH CARE DELIVERY; HUMAN; JUVENILE RHEUMATOID ARTHRITIS; MODEL; PATIENT CARE; RHEUMATIC DISEASE;

ADOLESCENT; ADOLESCENT HEALTH SERVICES; ADULT; CHILD; CHILD HEALTH SERVICES; CHILD, PRESCHOOL; FORECASTING; GERMANY; HUMANS; INFANT; INFANT, NEWBORN; PATIENT TRANSFER; PHYSICIAN-PATIENT RELATIONS; RHEUMATIC DISEASES; RHEUMATOLOGY; YOUNG ADULT;

EID: 84866721019     PISSN: 00209554     EISSN: 14321289     Source Type: Journal    
DOI: 10.1007/s00108-012-3027-4     Document Type: Article

References (36)

1. Arkela-Kautiainen M, Haapasaari J, Kautiainen H et al (2005) Favourable social functioning and health related quality of life of patients with JIA in early adulthood. Ann Rheum Dis 64:875-880
2. Busse FP, Hiermann P, Galler A et al (2007) Evaluation of patients' opinion and metabolic control after transfer of young adults with type 1 diabetes from a pediatric diabetes clinic to adult care. Horm Res 67:132-138
3. Dannecker GE, Quartier P (2009) Juvenile idiopathische arthritis: classification, clinical presentation and current treatment. Horm Res 72(Suppl 1):4-12
4. Crowly R, Wolfe I, Lock K, McKee M (2011) Improving the transition between paediatric and adult healthcare a systemic review. Arch Dis Child 96:548-553
5. Duguépéroux I, Tamalet A, Sermet-Gaudelus I et al (2008) Clinical changes of patients with cystic fibrosis during transition from pediatric to adult care. J Adoles Health 43:459-465
6. Flato B, Lien G, Smerdal A et al (2003) Prognostic factors in juvenile rheumatoid arthritis: a case control study revealing early predictors and outcome after 14.9 years. J Rheumatol 30:386-393
7. Ganser G, Kilmek R, Illhardt A, Mannhardt W (2012) Transitionskonzepte bei juveniler idiopathischer Arthritis. Monatsschr Kinderheilkd 160:231-236
8. Haas JP (2010) Genetic background of juvenile idiopathic arthritis. Z Rheumatol 69:488-495
9. Holmes-Walker DJ, Llewellyn AC, Farrell K (2007) A transition care programme which improves diabetes control and reduces hospital admission rates in young adults with Type 1 diabetes aged 15-25 years. Diabet Med 24:764-769
10. Kipps S, Bahu T, Ong K et al (2002) Current methods of transfer of young people with Type 1 diabetes to adult services. Diabet Med 19:649-654
11. McDonagh JE (2007) Transition of care from paediatric to adult rheumatology. Arch Dis Child 92:802-807
12. McDonagh JE, Southwood TR, Shaw KL (2007) The impact of a coordinated transitional care programme on adolescents with juvenile idiopathic arthritis. Rheumatology (Oxford) 46:161-168
13. McDonagh JE (2008) Young people first, juvenile idiopathic arthritis. Transitional care in rheumatology. Arthritis Rheum 59:1162-1170
14. McDonagh JE, Kelly DA (2010) The challenges and opportunities of transitional care research. Paediatr Transplant 14:688-700
15. Minden K, Niewerth M, Listing J et al (2002) Long-term outcome in patients with juvenile idiopathic arthritis. Arthritis Rheum 46:2392-2401
16. Minden K, Niewerth M, Listing J et al (2004) Burden and cost of illness in patients with juvenile idiopathic arthritis. Ann Rheum Dis 63:836-842
17. Minden K, Niewerth M, Zink A, Ganser G (2005) Transition-Clinic - Der nicht ganz einfache Übergang in die Rheumatologie für Erwachsene. Z Rheumatol 64:327-333
18. Minden K, Niewerth M (2008) Klinische Formen der JIA und ihre Klassifikation. Z Rheumatol 67:100-110
19. Minden K (2009) Adults outcomes of patients with juvenile idiopathic arthritis. Horm Res 72(Suppl 1):20-25
20. Minden K, Niewerth M (2012) Rheumakranke Kinder und Jugendliche. Kerndokumentation und Prognose. Monatsschr Kinderheilkd 160:237-243
21. Niewerth M, Minden K (2011) Transition - Der schwierige Weg des Übergangs von der pädiatrischen in die internistische Rheumatologie. Arthritis Rheuma 4:265-269
22. Niewerth M, Jansson AF, Schalm S et al (im Druck) Transition in der pädiatrischen Rheumatologie. Status quo. In: Reinecke M, Zepp (Hrsg) Report Versorgungsforschung Transition - Spezielle Versorgungsanforderungen an die medizinische Betreuung beim Übergang vom Kindes- und Jugendalter zum Erwachsenenalter, Bd. 5. Deutscher Ärzte-Verlag, Köln
23. Oen K, Mallerson PN, Cabral DA et al (2002) Disease course and outcome of juvenile rheumatoid arthritis in a multicenter cohort. J Rheumatol 29:1989-1999
24. Orr DP, Fineberg NS, Gray DL (1996) Glycemic control and transfer of health care among adolescents with insulin dependent diabetes mellitus. J Adolesc Health 18:44-47
25. Packham JC, Hall MH (2002) Long-term follow-up of 246 adults with juvenile idiopathic arthritis: functional outcome. Rheumatology 41:1428-1435
26. Petty RE, Southwood TR, Baum J et al (1998) Revision of the proposed criteria for juvenile idiopathic arthritis: Durban 1997. J Rheumatol 25:1991-1994
27. Robertson L, McDonagh JE et al (2006) Growing up and moving on. When should young people with chronic rheumatic disease move from paediatric to adult centered care? Ann Rheum Dis 65:74-80
28. Shaw KL, Southwood TR, McDonagh JE (2007) British society of paediatric and adolescent rheumatology. Young people's satisfaction of transitional care in adolescent rheumatology in the UK. Child Care Health Dev 33:368-379
29. Saurenmann RK, Levin AV, Feldmann BM et al (2007) Prevalence, risk factors and outcome of uveitis in juvenile idiopathic arthritis: a long term follow-up study. Arthritis Rheum 56:647-657
30. Steinkam G, Ullrich G, Müller C et al (2001) Transition of adult patients with cystic fibrosis from paediatric to adult care-the patients' perspective before and after start-up of an adult clinic. Eur J Med Res 6:85-92
31. Tucker LB, Cabral DA (2006) Transition of the adolescent patient with rheumatic disease: issues to consider. Pediatr Clin North Am 52:641-652
32. Bernardini AL, Vanelli M, Chiari G et al (2004) Adherence to physical activity in young people with type 1 diabetes. Acta Biomed 75:153-157
33. Van Walleghem N, MacDonald CA, Dean HJ (2006) Building connections for young adults with type 1 diabetes mellitus in Manitoba: feasibility and acceptability of a transition initiative. Chronic Dis Can 27:130-134
34. Vidal M, Jansa M, Anguita C et al (2004) Impact of a special therapeutic education programme in patients transferred from a paediatric to an adult diabetes unit. Eur Diabetes Nurs 1:23-27
35. Zack J, Jacobs CP, Keenan PM et al (2003) Perspectives of patients with cystic fibrosis on preventive counseling and transition to adult care. Pediatr Pulmonol 36:376-383
36. Zak M, Pedersen FK (2000) Juvenile chronic arthritis into adulthood: a long- term follow-up study. Rheumatology (Oxford) 38:198-204