Transition clinic - Bridging the gap between paediatric and adult care;Transition-clinic - Der nicht immer einfache übergang in die rheumatologie für erwachsene

Zeitschrift fur Rheumatologie

Volumn 64, Issue 5, 2005, Pages 327-333

  Minden, K ^a   Niewerth, M ^b   Zink, A ^b   Ganser, G ^c  

^a HELIOS KLINIKUM BERLIN BUCH   (Germany)

^b DEUTSCHES RHEUMA FORSCHUNGSZENTRUM   (Germany)

^c Sankt Josef Stift ^*  (Germany)

Author keywords

Health care provision; Juvenile idiopathic arthritis; Rheumatic diseases and adolescence; Transition

Indexed keywords

ARTICLE; BODY GROWTH; CHILDHOOD; CLINICAL RESEARCH; COOPERATION; HEALTH CARE NEED; HEALTH PROGRAM; HEALTH SERVICE; HUMAN; JUVENILE RHEUMATOID ARTHRITIS; OUTPATIENT CARE; OUTPATIENT DEPARTMENT; RHEUMATOLOGY; SOCIETY; TREATMENT OUTCOME;

ARTHRITIS, JUVENILE RHEUMATOID; ARTHRITIS, RHEUMATOID; DELIVERY OF HEALTH CARE, INTEGRATED; DISEASE PROGRESSION; HUMANS; PEDIATRICS; PHYSICIAN'S PRACTICE PATTERNS; PRACTICE GUIDELINES; RHEUMATOLOGY;

EID: 21744435756     PISSN: 03401855     EISSN: None     Source Type: Journal    
DOI: 10.1007/s00393-005-0746-0     Document Type: Article

References (34)

1. Adam V, St.-Pierre Y, Fautrel B, Clarke AE, Duffy CM, Penrod JR (2005) What is the impact of adolescent arthritis and rheumatism? Evidence from a national sample of Canadians. J Rheumatol 32:354-361
2. American Academy of Pediatrics, American Academy of Family Physicians, American College of Physicians - American Society of Internal Medicine (2002) A consensus statement on health care transitions for young adults with special health care needs. Pediatrics 110:1304-1306
3. Ansell BM, Chamberlain MA (1998) Children with chronic arthritis: the management of transition to adulthood. Baillieres Clin Rheumatol 12:363-373
4. Baines P, Chamberlain MA (1994) The physically disabled adolescent: Service provision in the community. Matern Child Health, pp 11-19
5. Bent N, Tennant A, Swift T, Posnett J, Scuffham P, Chamberlain MA (2002) Team approach versus ad hoc health service for young people with physical disabilities: a retrospective cohort study. Lancet 360:1280-1286
6. Blum RW, Garell D, Hadgman CH (1993) Transition from child-centered to adult health-care systems for adolescents with chronic conditions. A position paper of the Society for Adolescent Medicine. J Adolescent Health 14:570-576
7. Blum RW (1995) Conference proceedings: Moving on: transition from pediatric to adult health care. J Adolesc Health 17:3-36
8. Department of Health (2003) Getting the right start: national service framework for children. Standard for Hospital Services. (www.doh.gov.uk/nsf/)
9. Deutsches Institut für Medizinische Dokumentation und Information (2005) ICD-10-GM Systematisches Verzeichnis. http://www.dimdi.de/de/klassi/ diagnosen/icd10/. Köln
10. Dreher M, Dreher E (1997) Entwicklungsaufgaben im Jugendalter - Urteilstendenzen im Wandel eines Jahrzehnts. In: Glück J (Hrsg) 13. Tagung Entwicklungspsychologie, Kurzfassungen. Universität Wien, Wien, S 37
11. Flato B, Lien G, Smerdel A, Vinje O, Dale K, Johnston V, Sorskaar D, Moum T, Ploski R, Forre O (2003) Prognostic factors in juvenile rheumatoid arthritis: a case-control study revealing early predictors and outcome after 14.9 years. J Rheumatol 30:386-393
12. Foster HE, Marshall N, Myers A, Dunkley P, Griffiths ID (2003) Outcome in adults with juvenile idiopathic arthritis: a quality of life study. Arthritis Rheum 48:767-775
13. French AR, Mason T, Nelson AM, Crowson CS, O'Fallon WM, Khosla S, Gabriel SE (2002) Osteopenia in adults with a history of juvenile rheumatoid arthritis. A population based study. J Rheumatol 29:1065-1070
14. Greenen S, Powers L, Sells W (2003) Understanding the role of health care providers during the transition of adolescents with disabilities and special health care needs. J Adolesc Health 32:225-233
15. Kommission Regionale Rheumatologische Versorgung (1994) Memorandum der Deutschen Gesellschaft für Rheumatologie. Grundzüge einer wohnortnahen kontinuierlichen und kooperativen Versorgung von chronisch Rheumakranken in der Bundesrepublik Deutschland. Z Rheumatol 53:113-134
16. McDonagh JE, Kelly DA (2003) Transitioning care of the pediatric recipient to adult caregivers. Pediatr Clin N Am 50:1561-1583
17. McDonagh JE, Southwood TR, Shaw KL (2004) British Paediatric Rheumatology Group. Unmet education and training needs of rheumatology health professionals in adolescent health and transitional care. Rheumatology (Oxford) 43:737-743
18. McDonagh JE (2000) The adolescent challenge. Nephrol Dial Transplant 15:1761-1765
19. Minden K, Niewerth M, Listing J, Biedermann T, Bollow M, Schontube M, Zink A (2002) Long-term outcome in patients with juvenile idiopathic arthritis. Arthritis Rheum 46:2392-2401
20. Minden, K, Niewerth, M, Listing J, Biedermann T, Schöntube M, Zink A (2004) Burden and cost of illness in adult patients with juvenile idiopathic arthritis. Ann Rheum Dis 63:836-842
21. Nasr SZ, Campbell C, Howatt W (1992) Transition program from paediatric to adult care for cystic fibrosis patients. J Adolesc Health 13:682-685
22. Niewerth M, Minden K, Möbius D, Ganser G, Küster R-M, Zink A, AGKJR (2004) Die juvenile idiopathische Arthritis beim Übergang ins Erwachsenenalter. Z Rheumatol 63:267
23. Packham JC, Hall MA (2002) Long-term follow-up of 246 adults with juvenile idiopathic arthritis: functional outcome. Rheumatology (Oxford) 41:1428-1435
24. Rettig P, Athreya BH (1991) Adolescents with chronic disease: transition to adult health care. Arthritis Care Res 4:174-180
25. Salmi J, Huuponen T, Oksa H, Oksala H, Koivula T, Raita P (1986) Metabolic control in adolescent insulin-dependent diabetics referred from pediatric to adult clinic. Ann Clin Res 4:174-180
26. Sawyer SM, Bowes G (1999) Adolescence on the health agenda. Lancet 354:31-34
27. Sawyer SM (1998) The process of transition to adult health care services. In: Werther G, Court J (eds) Diabetes and Adolescent. Blackwell, Melbourne
28. Schidlow D, Fiel S (1990) Life beyond pediatrics. Transition of chronically ill adolescents from pediatric to adult health care systems. Med Clin North Am 74:1113-1120
29. Shaw KL, Southwood TR, McDonagh JE (2004) British Paediatric Rheumatology Group. Developing a programme of transitional care for adolescents with juvenile idiopathic arthritis: results of a postal survey. Rheumatology (Oxford) 43:211-219
30. Shaw KL, Southwood TR, McDonagh JE (2004) British Paediatric Rheumatology Group. Transitional care for adolescents with juvenile idiopathic arthritis: a Delphi study. Rheumatology (Oxford) 43:1000-1006
31. Thomas E, Symmons DP, Brewster DH, Black RJ, Macfarlane GJ (2003) National study of cause-specific mortality in rheumatoid arthritis, juvenile chronic arthritis, and other rheumatic conditions: a 20 year followup study. J Rheumatol 30:958-965
32. Viner R (2000) Effective transition from paediatric to adult services. Hospital Medicine 61:341-343
33. Viner R (1999) Transition from paediatric to adult care. Bridging the gap or passing the buck? Arch Dis Child 81:271-275
34. Zak M, Fledelius H, Pedersen FK (2003) Ocular complications and visual outcome in juvenile chronic arthritis: a 25-year follow-up study. Acta Ophthalmol Scand 81:211-215