Caregiver education and support: Results of a multi-site pilot in an HMO

Home Health Care Services Quarterly

Volumn 21, Issue 2, 2002, Pages 49-72

  Leutz, Walter ^a   Capitman, John ^a   Ruwe, Mathilda ^a   Nuneza Ching, Viarida ^c   Flaherty Robb, Marna ^b,c   Phillip Percy, Marlene Mckenzie ^c   Lee, Wilhemena ^d  

^a BRANDEIS UNIVERSITY   (United States)

^b OREGON HEALTH AND SCIENCE UNIVERSITY   (United States)

^c KAISER PERMANENTE   (United States)

^d UNIVERSITY OF MARYLAND   (United States)

Author keywords

Caregiver; Caregiver training; Caregiving; Hmo; Integration; Managed care

Indexed keywords

AGED; ARTICLE; CAREGIVER; CLINICAL TRIAL; EDUCATION; EVALUATION; GROUP PRACTICE; HEALTH CARE QUALITY; HEALTH EDUCATION; HEALTH MAINTENANCE ORGANIZATION; HEALTH SERVICES RESEARCH; HOME CARE; HUMAN; MULTICENTER STUDY; ORGANIZATION AND MANAGEMENT; PILOT STUDY; PSYCHOLOGICAL ASPECT; PUBLIC RELATIONS; QUESTIONNAIRE; SOCIAL BEHAVIOR; SOCIAL SUPPORT; UNITED STATES; UTILIZATION REVIEW;

AGED; CAREGIVERS; COMMUNITY-INSTITUTIONAL RELATIONS; GROUP PRACTICE, PREPAID; HEALTH EDUCATION; HEALTH MAINTENANCE ORGANIZATIONS; HEALTH SERVICES RESEARCH; HOME NURSING; HUMANS; PILOT PROJECTS; PROGRAM EVALUATION; QUESTIONNAIRES; SOCIAL RESPONSIBILITY; SOCIAL SUPPORT; UNITED STATES;

EID: 0036370477     PISSN: 01621424     EISSN: 15450856     Source Type: Journal    
DOI: 10.1300/J027v21n02_04     Document Type: Article

References (56)

1. Anthony, C.R., Zarit, S.H., and Gatz, M. (1998). Symptoms of psychological distress among caregiver of dementia patients. Psychology and Aging, 3, 245-248.
2. Archbold, P.G. (1982). An analysis of parent caring by women. Home Health Care Services Quarterly, 3(2), 5-26.
3. Archbold, P. G. and B. J. Stewart. (1996). The nature of the caregiving role and nursing interventions for caregiving families. In Advances in Gerontological Nursing. E. A. Swanson and T. Tripp-Reimer, eds. New York, Springer: 133-156.
4. Archbold, P. G., B. J. Stewart, Greenlick, M.R., and Harvath, T. (1990). Mutuality and preparedness as predictors of caregiver role strain. Research in Nursing and Health, 13, 375-384.
5. Archbold, P. G., and B. J. Stewart et al. (1992). The clinical assessment of mutuality and preparedness in family caregivers to frail older people. Key Aspects of Elder Care. S. G. Funk, E. M. Tornquist, M. T. Champagne and L. A. Copp, eds. New York, NY, Springer: 328-339.
6. Arno, P. S., and C. Levine et al. (1999). The economic value of informal caregiving. Health Affairs, 18(2), 182-188.
7. Baldwin, S. and J. Twigg. (1991). Women and community care-reflections on a debate. Women’s Issues in Social Policy. M. Maclean and D. Groves, eds. London, Routledge: 117-136.
8. Barnes, M. and A. Walker. (1996). Consumerism versus empowerment: A principled approach to the involvement of older service users. Policy and Politics, 24(2), 375-393.
9. Brodaty, H., M. Gresham, and G. Luscombe. 1997. The Prince Henry Hospital dementia caregivers’ training programme. International Journal of Geriatric Psychiatry, 12 (2):183-92.
10. Brody, K., and R. E. Johnson et al. (1997). Evaluation of a self-report screening instrument to predict frailty outcomes in aging populations. The Gerontologist, 37(2), 182-191.
11. Collins, C., and M. Strommel et al. (1991). Assessment of the attitudes of family caregivers toward community services. The Gerontologist, 31(6), 756-761.
12. Coppel, D.B., Burton, C., Becker, J., and Fiore, J. (1985). Relationships of cognition and associated coping reactions to depression in spousal caregiver of Alzheimer’s Disease. Cognitive Therapy and Research, 9, 253-266.
13. Crown, W. H. (1998). Statistical Models for Social and Behavioral Sciences: Multiple Regression and Limited Dependent Variable Models. Pager Publisher, Westport, CT.
14. Cowart, M. E. (1996). Long-term care policy and the American family. Journal of Aging & Social Policy, 7(3/4), 169-184.
15. Deimling, G.T., and Bass, D.M. (1986). Symptoms of mental impairment among elderly adults and their effects on their caregivers. Journal of Gerontology, 41 778-784.
16. Doty, P., and M. E. Jackson et al. (1998). The impact of female caregivers’ employment status on patterns of formal and informal eldercare. The Gerontologist, 38(3), 331-341.
17. Emanuel, E. J., and D. L. Fairclough et al. (1999). Assistance from family members, friends, paid care giver, and volunteers in the care of terminally ill patients. New England Journal of Medicine, 341(13), 956-963.
18. England, S., and S. Kiegher et al. (1991). Community care policies and gender justice. Critical Perspectives on Aging: The Political and Moral Economy of Growing Old. M. Minkler and C. Estes. Amityville, NY: Baywood Publishing Company: 227-244.
19. Farkas, J. I. and C. L. Himes. (1997). The influence of caregiving and employment on the voluntary activities of midlife and older women. Journal of Gerontology: Social Sciences, 52(4), S180-189.
20. Farran, C. J. (1997). Theoretical perspectives concerning positive aspects of caring for elderly persons with dementia: Stress/adaptation and existentialism. The Gerontologist, 37, 250-257.
21. Forbes, S. and N. Hoffart. (1998). Elders’ decision making regarding the use of long-term care services: A precarious balance. Qualitative Health Research, 8(6), 736-750.
22. Friedman, L., Daly, M.P., and Lazur, A.M. (1995). Burden among white and black caregivers to elderly adults. Journal of Gerontology: Social Sciences, 50, S110-S118.
23. Green, W. H. (1993). Econometric Analysis 2nd Edition, 279-287. Prentice Hall, New Jersey.
24. Greenlick, M.R. (1992). Educating physicians for population-based clinical practice. JAMA, 267(12), 1645-1648.
25. Greenlick, M.R. (1996). The house that Medicare built: Remodeling for the 21st century. Health Care Financing Review, 18(2), 131-145.
26. Greenlick, M. R., and L. Nonnenkamp et al. (1988). The S/HMO demonstration: Policy implications for long term care in HMOs. Pride Institute Journal, 7(3), 15-24.
27. Haigler, D. H., and K. B. Mims et al. (1998). Caring for You, Caring for Me. Athens, GA, University of Georgia Press.
28. Harrington, M. (1998). The care equation. The American Prospect. (39), 61-67.
29. Hausman, J.A. (1978). Specification tests in econometrics. Econometrica, 46:1251-71.
30. Hepburn, K.W., J. Tornatore, B. Center, and S.W. Ostwald. (2001). Dementia family caregiver training: Affecting beliefs about caregiving and caregiver outcomes. Journal of the American Geriatrics Society 49(4):450-7.
31. Hobbs, F.B. and Damon, B.L. (1996). 65+ in the United States. U.S. Bureau of Census. Current Population Reports, Special Studies, 23-190. Washington D.C., US Government Printing Office.
32. Interregional Committee on Aging. (1990). Guide to the Model of Care for Older Members. Portland, OR, Model of Care Subcommittee, Kaiser Permanente.
33. Kennedy, P. (1998). Guide to Econometrics, 4th Edition. The MIT Press, Cambridge Massachusetts.
34. Knight, B.G. Lutzky, S.M. and Macofsky-Urban, F. (1993). A meta analytic review of interventions for caregiver distress: Recommendations for future research. The Gerontologist, 33, 240-248.
35. Leutz, W., andM. Greenlick et al. (2001). Bridging the Gap: Linking Medical Care and Community Care for People with Disabilities. Portland, OR, Kaiser Permanente Center for Health Research.
36. Levine, C. (1999). The loneliness of the long-term care giver. New England Journal of Medicine, 340(20), 1587-1590.
37. Litwak, E., and D. J. Jessop et al. (1994). Optimal use of formal and informal systems over the life course. Family caregiving across the lifespan. E. Kahana, D. E. Biegel and M. L. Wykle, eds. Thousand Oaks, CA, Sage Publications: 96-130.
38. Liu, K., and K. Manton et al. (2000). Changes in home care use by disabled elderly persons: 1982-1994. Journal of Gerontology: Social Sciences, 55B(4), S245-S253.
39. Lorig, K. R., P. Ritter, A. L. Stewart, D. S. Sobel, B. W. Brown, A. Bandura, V. M. Gonzalez, D. D. Laurent, and H. R. Holman. (2001). Chronic disease self-management program: 2-year health status and health care utilization outcomes. Medical Care, 39(11):1217-1223.
40. Mittelman, M.S., Ferris, E.M., Shulman, E., Steinberg, G., Ambinder, A., Mackellum, J.A. and Cohen, J. (1995). A comprehensive support program: Effect on depression in spouse-caregivers of AD patients. The Gerontologist, 35, 792-802.
41. National Alliance for Caregiving and the American Association of Retired Persons. (1997). Family Caregiving in the United States: Findings from a National Survey. Bethesda, MD.
42. Newcomer, R., Yordi, C., DuNah, R., Fox, P., and Wilkerson, A. (1999). The effects of Medicare Alzheimer’s Disease demonstration on caregiver burden and depression. Health Services Research, 34(3), 668-689.
43. Noelker, L. S. and D. M. Bass. (1994). Relationships between the elderly’s formal and informal helpers. Family caregiving across the lifespan. E. Kahana, D. E. Biegel and M. L. Wykle. Thousand Oaks, CA, Sage Publications, 4, 356-381.
44. Ostwald, S.W., K.W. Hepburn, W. Caron, T. Burns, and R. Mantell. (1999). Reducing caregiver burden: A randomized psycho-educational intervention for caregivers of persons with dementia. The Gerontologist, 39(3):299-309.
45. Pavalko, E. K. and J. E. Artis. (1997). Women’s caregiving and paid work: Causal relationships in late midlife. Journal of Gerontology: Social Sciences, 52(4), S1170-179.
46. Pearlin L.I., J.T. Mullan, S.J. Semple, andM.M. Skaff. (1990). Caregiving and the stress process: An overview of concepts and their measures. Gerontologist, 30(5):583-94.
47. Pindyck, R. S. and P. Rubinfeld. (1998). Econometric Models and Econometric Forecasts 4th Edition. pp. 179-198. Irwin McGraw Hill Company.
48. Robinson, K., and K. Yates. (1994). Effects of two caregiver-training programs on burden and attitude toward help. Archives of Psychiatric Nursing 8 (5):312-9.
49. Schulz, R. and S. R. Beach. (1999). Caregiving as a risk factor for mortality. Journal of the American Medical Association, 282(23), 2215-2219.
50. Shanas, E. (1979). The family as a social support systemin old age. The Gerontologist, 19, 169-174.
51. Teri, L. (1999). Training families to provide care: Effects on people with dementia. International Journal of Geriatric Psychiatry 14 (2):110-6.
52. Twigg, J. and K. Atkin. (1994). Carers perceived, policy and practice in informal care. Buckingham, Open University Press.
53. Senate Committee on Aging, The American Association of Retired Persons, The Federal Council on Aging, and the U.S. Administration on Aging. (1991). Aging American trends and projections. (DHHS Publ # FCOA 91-28001). Washington D.C.: US Dept of Health and Human Services.
54. Wallace, S.P., Levy-Storms, L., Kington, R.S. and Anderson, R.M. (1998). The persistence of race and ethnicity in the use of long term care. Journal of Gerontology: Social Sciences, 53B, S104-S112.
55. Walker, A. (1984). Community care and the elderly in Great Britain: Theory and practice. Readings in the Political Economy of Aging. M. Minkler and C. Estes. Amityville, NY, Baywood Publishing Company.
56. Wyrwick, K. W., N. A. Nienaber, W. M. Tierney, andF. D. Wolinsky. (1999). Linking Clinical Relevance and Statistical Significance in Evaluating Intra-individual Changes in Health Related Quality of Life. Clinical Care, 37(5):469-478.