Communication about palliative care for patients with chronic obstructive pulmonary disease

Journal of Palliative Care

Volumn 21, Issue 3, 2005, Pages 157-164

  Curtis, J Randall ^a   Engelberg, Ruth A ^a   Wenrich, Marjorie D ^b   Au, David H ^a  

^a UNIVERSITY OF WASHINGTON   (United States)

^b UNIVERSITY OF WASHINGTON SCHOOL OF MEDICINE   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 26844459830     PISSN: 08258597     EISSN: None     Source Type: Journal    
DOI: 10.1177/082585970502100308     Document Type: Review

References (51)

1. Pauwels RA, Buist AS, Calverley CR, Hurd SS, on behalf of the GOLD Scientific Committee. Global strategy for the diagnosis, management, and prevention of chronic obstructive pulmonary disease, NHLBI/WHO Workshop Summary. Am J Respir Crit Care Med 2001; 163: 1256-1276.
2. Mannino DM. COPD: epidemiology, prevalence, morbidity and mortality, and disease heterogeneity. Chest 2002; 121: 121S-126S.
3. Michaud CM, Murray CJ, Bloom BR. Burden of disease - implications for future research. JAMA 2001; 285: 535-539.
4. Murray CJ, Lopez AD. Alternative projections of mortality and disability by cause, 1990-2020: Global Burden of Disease Study. Lancet 1997; 349: 1498-1504.
5. Sullivan SD, Ramsey SD, Lee TA. The economic burden of COPD. Chest 2000; 117: 5S-9S.
6. Gore JM, Brophy CJ, Greenstone MA. How do we care for patients with end-stage chronic obstructive pulmonary disease (COPD)? A comparison of palliative care and quality of life in COPD and lung cancer. Thorax 2000; 55: 1000-1006.
7. Claessens MT, Lynn J, Zhong Z, Desbiens NA, Phillips RS, Wu AW, et al. Dying with lung cancer or chronic obstructive pulmonary disease: insights from SUPPORT. J Am Geriatr Soc 2000; 48: S146-S153.
8. Au DH, Udris EM, Fihn SD, McDonell MB, Curtis JR. Differences in health care utilization at the end of life among patients with COPD and patients with lung cancer. Arch Intern Med 2005 [in press].
9. O'Donnell DE, Aaron S, Bourbeau J, Hernandez P, Marciniuk D, Balter M, et al. State of the Art Compendium: Canadian Thoracic Society recommendations for the management of chronic obstructive pulmonary disease. Can Respir J 2004; 11(suppl B): 7B-59B.
10. Heffner JE, Fahy B, Hilling L, Barbieri C. Outcomes of advance directive education of pulmonary rehabilitation patients. Am J Respir Crit Care Med 1997; 155: 1055-1059.
11. Heffner JE, Fahy B, Hilling L, Barbieri C. Attitudes regarding advance directives among patients in pulmonary rehabilitation. Am J Respir Crit Care Med 1996; 154: 1735-1740.
12. Curtis JR, Engelberg RA, Nielsen EL, Au DH, Patrick DL. Patient-physician communication about EOL care for patients with severe COPD. Eur Respir J 2004; 24: 200-205.
13. National Consensus Project for Quality Palliative Care. Clinical practice guidelines for quality palliative care, executive summary. J Palliat Med 2004; 7: 611-627.
14. The SUPPORT Principal Investigators. A controlled trial to improve care for seriously ill hospitalized patients: The study to understand prognoses and preferences for outcomes and risks of treatments (SUPPORT). JAMA 1995; 274: 1591-1598.
15. Elkington H, White P, Addington-Hall J, Higgs R, Pettinari C. The last year of life of COPD: a qualitative study of symptoms and services. Respir Med 2004; 98: 439-445.
16. Skilbeck J, Mott L, Page H, Smith D, Hjelmeland-Ahmedzai S, Clark D. Palliative care in chronic obstructive airways disease: a needs assessment. Palliat Med 1998; 12: 245-254.
17. Celli BR, Cote CG, Marin JM, Casanova C, Montes de Oca M, Mendez RA, et al. The body-mass index, airflow obstruction, dyspnea, and exercise capacity index in chronic obstructive pulmonary disease. N Engl J Med 2004; 350: 1005-1012.
18. Curtis JR, Wenrich MD, Carline JD, Shannon SE, Ambrozy DM, Ramsey PG. Patients' perspectives on physicians' skills at EOL care: differences between patients with COPD, cancer, and AIDS. Chest 2002; 122: 356-362.
19. Jones I, Kirby A, Ormiston P, Loomba Y, Chan KK, Rout J, et al. The needs of patients dying of chronic obstructive pulmonary disease in the community. Fam Pract 2004; 21: 310-313.
20. Fried TR, Bradley EH, O'Leary J. Prognosis communication in serious illness: perceptions of older patients, caregivers, and clinicians. J Am Geriatr Soc 2003; 51: 1398-1403.
21. Elkington H, White P, Higgs R, Pettinari CJ. GPs' views of discussions of prognosis in severe COPD. Fam Pract 2001; 18: 440-444.
22. McNeely PD, Hebert PC, Dales RE, O'Connor AM, Wells G, McKim D, Sullivan KE. Deciding about mechanical ventilation in end-stage chronic obstructive pulmonary disease: how respirologists perceive their role. CMAJ 1997; 156: 177-183.
23. Knauft ME, Nielsen EL, Engelberg RA, Patrick DL, Curtis JR. Barriers and facilitators to communication about end-of-life care for patients with COPD. Chest 2005 [in press].
24. Hofmann JC, Wenger NS, Davis RB, Teno J, Connors AF Jr., Desbiens N, et al. Patients' preferences for communication with physicians about EOL decisions. Ann Intern Med 1997; 127: 1-12.
25. Back AL, Arnold RM, Quill TE. Hope for the best, and prepare for the worst. Ann Intern Med 2003; 138: 439-443.
26. Curtis JR, Wenrich MD, Carline JD, Shannon SE, Ambrozy DM, Ramsey PG. Understanding physicians' skills at providing EOL care: perspectives of patients, families, and health care workers. J Gen Intern Med 2001; 16: 41-49.
27. Carline JD, Curtis JR, Wenrich MD, Shannon SE, Ambrozy DM, Ramsey PG. Physicians' interactions with health care teams and systems in the care of dying patients: perspectives of dying patients, family members, and health care providers. J Pain Symptom Manage 2003; 25: 19-28.
28. McSweeny A, Heaton R, Grant I, Cugell D, Solliday N, Timms T. Chronic obstructive pulmonary disease; socioemotional adjustment and life quality. Chest 1980; 77: 309-311.
29. Prigatano GP, Wright EC, Levin D. Quality of life and its predictors in patients with mild hypoxemia and chronic obstructive pulmonary disease. Arch Intern Med 1984; 144: 1613-1619.
30. Light RW, Merrill EJ, Despars JA, Gordon GH, Mutalipassi LR. Prevalence of depression and anxiety in patients with COPD. Chest 1985; 87: 35-38.
31. Engstrom CP, Persson LO, Larsson S, Ryden A, Sullivan M. Functional status and well-being in chronic obstructive pulmonary disease with regard to clinical parameters and smoking: a descriptive and comparative study. Thorax 1996; 51: 825-830.
32. van Ede L, Yzermans CJ, Brouwer HJ. Prevalence of depression in patients with chronic obstructive pulmonary disease: a systematic review. Thorax 1999; 54: 688-692.
33. Borson S, McDonald GJ, Gayle T, Deffebach M, Lakshminarayan S, Van Tuinen C. Improvement in mood, physical symptoms, and function with nortriptyline for depression in patients with chronic obstructive pulmonary disease. Psychosomatics 1992; 33: 190-201.
34. Blank K, Robison J, Doherty E, Prigerson H, Duffy J, Schwartz HI. Life-sustaining treatment and assisted death choices in depressed older patients. J Am Geriatr Soc 2001; 49: 153-161.
35. Garrett JM, Harris RP, Norburn JK, Patrick DL, Danis M. Life-sustaining treatments during terminal illness: Who wants what? J Gen Intern Med 1993; 8: 361-368.
36. Rosenfeld KE, Wenger NS, Phillips RS, Connors AF, Dawson NV, Layde P, et al. Factors associated with change in resuscitation preferences of seriously ill patients. Arch Intern Med 1996; 156: 1558-1564.
37. Stapleton RD, Nielsen EL, Engelberg RA, Patrick DL, Curtis JR. Association of depression and life-sustaining treatment preferences in patients with COPD. Chest 2005; 127: 328-334.
38. Uhlmann RF, Pearlman RA. Perceived quality of life and preferences for life-sustaining treatment in older adults. Arch Intern Med 1991; 151: 495-497.
39. Levenson JW, McCarthy EP, Lynn J, Davis RB, Phillips RS. The last six months of life for patients with congestive heart failure. J Am Geriatr Soc 2000; 48: S101-S109.
40. Sprangers MA, Aaronson NK. The role of health care providers and significant others in evaluating the quality of life of patients with chronic disease: a review. J Clin Epidemiol 1992; 45: 743-760.
41. Wilson KA, Dowling AJ, Abdolell M, Tannock IF. Perception of quality of life by patients, partners, and treating physicians. Qual Life Res 2000; 9: 1041-1052.
42. Schneiderman LJ, Kaplan RM, Pearlman RA, Teetzel H. Do physicians' own preferences for life-sustaining treatment influence their perceptions of patients' preferences. J Clin Ethics 1993; 4: 28-33.
43. Schneiderman LJ, Kronick R, Kaplan RM, Anderson JP, Langer RD. Effects of offering advance directives on medical treatment and costs. Ann Intern Med 1992; 117: 599-606.
44. Danis M, Mutran E, Garrett JM. A prospective study of the impact of patient preferences on life-sustaining treatment and hospital cost. Crit Care Med 1996; 24: 1811-1817.
45. Danis M, Southerland LI, Garrett JM, Smith JL, Hielema F, Pickard CG. A prospective study of advance directives for life-sustaining care. N Engl J Med 1991; 324: 882-888.
46. Teno JM, Lynn J, Connors AFJ, Wenger N, Phillips RS, Alzola C, et al. The illusion of EOL savings with advance directives. J Am Geriatr Soc 1997; 45: 513-518.
47. Teno JM, Lynn J, Wegner N, Phillips RS, Murphy DP, Connors AF Jr., et al. Advance directives for seriously ill hospitalized patients: effectiveness with the Patient Self-Determination Act and the SUPPORT intervention. J Am Geriatr Soc 1997; 45: 500-507.
48. Teno JM, Licks S, Lynn J, Wenger N, Connors AF Jr., Phillips RS, et al. Do advance directives provide instructions that direct care? J Am Geriatr Soc 1997; 45: 508-512.
49. Dales RE, O'Connor A, Hebert P, Sullivan K, McKim D, Llewellyn-Thomas H. Intubation and mechanical ventilation for COPD: development of an instrument to elicit patient preferences. Chest 1999; 116: 792-800.
50. Singer P. Advance directives in COPD. Monaldi Arch Chest Dis 1995; 50: 62-63.
51. Hansen-Flaschen J. Chronic obstructive pulmonary disease: the last year of life. Respir Care 2004; 49: 90-97; discussion: 97-98.