메뉴 건너뛰기




Volumn 38, Issue 8, 2012, Pages 479-484

An analysis of US fertility centre educational materials suggests that informed consent for preimplantation genetic diagnosis may be inadequate

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; ETHICS; FEMALE; FERTILITY; HUMAN; INFORMED CONSENT; METHODOLOGY; OUTPATIENT DEPARTMENT; PATIENT EDUCATION; PREGNANCY; PRENATAL DIAGNOSIS; STANDARD; TEACHING; UNITED STATES;

EID: 84866316331     PISSN: 03066800     EISSN: 14734257     Source Type: Journal    
DOI: 10.1136/medethics-2011-100154     Document Type: Article
Times cited : (11)

References (32)
  • 2
    • 43449117767 scopus 로고    scopus 로고
    • Genetic testing of embryos, practices and perspectives of US in vitro fertilization clinics
    • Baruch S, Kaufman D, Hudson K. Genetic testing of embryos: practices and perspectives of US in vitro fertilization clinics. Fertil Steril 2008;89:1053-8.
    • (2008) Fertil Steril , vol.89 , pp. 1053-1058
    • Baruch, S.1    Kaufman, D.2    Hudson, K.3
  • 3
    • 80053306797 scopus 로고    scopus 로고
    • Use of preimplantation genetic diagnosis and preimplantation genetic screening in the United States, a Society for Assisted Reproductive Technology Writing Group paper
    • Ginsburg ES, Baker VL, Racowsky C, et al. Use of preimplantation genetic diagnosis and preimplantation genetic screening in the United States: a Society for Assisted Reproductive Technology Writing Group paper. Fertil Steril 2011;96:865-8.
    • (2011) Fertil Steril , vol.96 , pp. 865-868
    • Ginsburg, E.S.1    Baker, V.L.2    Racowsky, C.3
  • 5
    • 41049116899 scopus 로고    scopus 로고
    • Health of children conceived after preimplantation genetic diagnosis, a preliminary outcome study
    • Banerjee I, Shevlin M, Taranissi M, et al. Health of children conceived after preimplantation genetic diagnosis: a preliminary outcome study. Reprod BioMed Online 2008;16:376-81.
    • (2008) Reprod BioMed Online , vol.16 , pp. 376-381
    • Banerjee, I.1    Shevlin, M.2    Taranissi, M.3
  • 6
    • 70649083959 scopus 로고    scopus 로고
    • Growth and health outcome of 102 2-year-old children conceived after preimplantation genetic diagnosis or screening
    • Desmyttere S, Bonduelle M, Nekkebroeck J, et al. Growth and health outcome of 102 2-year-old children conceived after preimplantation genetic diagnosis or screening. Early Hum Dev 2009;85:755-9.
    • (2009) Early Hum Dev , vol.85 , pp. 755-759
    • Desmyttere, S.1    Bonduelle, M.2    Nekkebroeck, J.3
  • 7
    • 44949177456 scopus 로고    scopus 로고
    • Mental and psychomotor development of 2-year-old children born after preimplantation genetic diagnosis/screening
    • Nekkebroeck J, Bonduelle M, Desmyttere S, et al. Mental and psychomotor development of 2-year-old children born after preimplantation genetic diagnosis/screening. Hum Reprod 2008;23:1560-6.
    • (2008) Hum Reprod , vol.23 , pp. 1560-1566
    • Nekkebroeck, J.1    Bonduelle, M.2    Desmyttere, S.3
  • 8
    • 47649124524 scopus 로고    scopus 로고
    • Socio-emotional and language development of 2-year-old children born after PGD/PGS, and parental well-being
    • Nekkebroeck J, Bonduelle M, Desmyttere S, et al. Socio-emotional and language development of 2-year-old children born after PGD/PGS, and parental well-being. Hum Reprod 2008;23:1849-57.
    • (2008) Hum Reprod , vol.23 , pp. 1849-1857
    • Nekkebroeck, J.1    Bonduelle, M.2    Desmyttere, S.3
  • 9
    • 77949549950 scopus 로고    scopus 로고
    • Neurological condition of infants born after in vitro fertilization with preimplantation genetic screening
    • Middelburg KJ, Heineman MJ, Haadsma ML, et al. Neurological condition of infants born after in vitro fertilization with preimplantation genetic screening. Pediatr Res 2010;67:430e4.
    • (2010) Pediatr Res , vol.67 , pp. 430-434
    • Middelburg, K.J.1    Heineman, M.J.2    Haadsma, M.L.3
  • 10
    • 79959875510 scopus 로고    scopus 로고
    • Mental, psychomotor, neurologic, and behavioral outcomes of 2-year-old children born after preimplantation genetic screening, follow-up of a randomized controlled trial
    • Middelburg KJ, van der Heide M, Houtzager B, et al. Mental, psychomotor, neurologic, and behavioral outcomes of 2-year-old children born after preimplantation genetic screening: follow-up of a randomized controlled trial. Fertil Steril 2011;96:165-9.
    • (2011) Fertil Steril , vol.96 , pp. 165-169
    • Middelburg, K.J.1    van der Heide, M.2    Houtzager, B.3
  • 11
    • 71049156641 scopus 로고    scopus 로고
    • Evaluation of blastomere biopsy using a mouse model indicates the potential high risk of neurodegenerative disorders in the offspring
    • Yu Y, Wu J, Fan Y, et al. Evaluation of blastomere biopsy using a mouse model indicates the potential high risk of neurodegenerative disorders in the offspring. Mol Cell Proteomics 2009;8:1490-500.
    • (2009) Mol Cell Proteomics , vol.8 , pp. 1490-1500
    • Yu, Y.1    Wu, J.2    Fan, Y.3
  • 12
    • 28844450356 scopus 로고    scopus 로고
    • PGD patients' and providers' attitudes to the use and regulation of preimplantation genetic diagnosis
    • Kalfoglou A, Scott J, Hudson K. PGD patients' and providers' attitudes to the use and regulation of preimplantation genetic diagnosis. Reprod Biomed Online 2005;11:486-96.
    • (2005) Reprod Biomed Online , vol.11 , pp. 486-496
    • Kalfoglou, A.1    Scott, J.2    Hudson, K.3
  • 13
    • 70349694513 scopus 로고    scopus 로고
    • Patient education and informed consent for preimplantation genetic diagnosis, health literacy for genetics and assisted reproductive technology
    • McGowan ML, Burant CJ, Moran R, et al. Patient education and informed consent for preimplantation genetic diagnosis: health literacy for genetics and assisted reproductive technology. Genet Med 2009;11:640-645.
    • (2009) Genet Med , vol.11 , pp. 640-645
    • McGowan, M.L.1    Burant, C.J.2    Moran, R.3
  • 16
    • 84866339228 scopus 로고    scopus 로고
    • Waiting for Harrison
    • Patel R. Waiting for Harrison. Good Housekeeping 2005;240:102-6.
    • (2005) Good Housekeeping , vol.240 , pp. 102-106
    • Patel, R.1
  • 17
    • 84873512294 scopus 로고    scopus 로고
    • Newsweek 11 March. (accessed 26 May 2011)
    • Springen K, Cowley G. Risk-free babies. Newsweek 11 March 2002. http://www.newsweek.com/2002/03/10/risk-free-babies.html (accessed 26 May 2011).
    • (2002) Risk-free babies
    • Springen, K.1    Cowley, G.2
  • 20
    • 0033679692 scopus 로고    scopus 로고
    • Managing scientific uncertainty in environmental health, the example of electric and magnetic fields
    • Lambrozo J, Lynch CG. Managing scientific uncertainty in environmental health: the example of electric and magnetic fields. J Contingencies Crisis Manag 2000;8:229-33.
    • (2000) J Contingencies Crisis Manag , vol.8 , pp. 229-233
    • Lambrozo, J.1    Lynch, C.G.2
  • 21
    • 57149102909 scopus 로고    scopus 로고
    • On knowing and believing, prenatal screening and resistance to 'risk-medicine'
    • Gross SE, Shuval JT. On knowing and believing: prenatal screening and resistance to 'risk-medicine'. Heath Risk Soc 2008;10:549-64.
    • (2008) Heath Risk Soc , vol.10 , pp. 549-564
    • Gross, S.E.1    Shuval, J.T.2
  • 22
    • 7244228087 scopus 로고    scopus 로고
    • Deaf by design
    • Dennis C. Deaf by design. Nature 2004;431:894-6.
    • (2004) Nature , vol.431 , pp. 894-896
    • Dennis, C.1
  • 23
    • 84873506749 scopus 로고    scopus 로고
    • Wall St J 12 February(accessed 28 Jul 2011)
    • Naik G. A baby, please. blond, frecklesdhold the colic. Wall St J 12 February 2009. http://online.wsj.com/article/SB123439771603075099.html (accessed 28 Jul 2011).
    • (2009) A baby, please. blond, frecklesdhold the colic.
    • Naik, G.1
  • 24
    • 33744529521 scopus 로고    scopus 로고
    • Preimplantation genetic diagnosis, public policy and public attitudes
    • Hudson K. Preimplantation genetic diagnosis: public policy and public attitudes. Fertil Steril 2006;85:1638-45.
    • (2006) Fertil Steril , vol.85 , pp. 1638-1645
    • Hudson, K.1
  • 25
    • 0003681087 scopus 로고    scopus 로고
    • Risk society revisited, theory, politics, critiques, and research programmes
    • Cambridge, MA, Polity Press
    • Beck U. Risk society revisited: theory, politics, critiques, and research programmes. World Risk Society. Cambridge, MA: Polity Press, 1999:133-52.
    • (1999) World Risk Society , pp. 133-152
    • Beck, U.1
  • 26
    • 39449124736 scopus 로고    scopus 로고
    • The ethics of human gene transfer
    • Kimmelman J. The ethics of human gene transfer. Nat Rev Genet 2008;9:239-44.
    • (2008) Nat Rev Genet , vol.9 , pp. 239-244
    • Kimmelman, J.1
  • 27
    • 0142084745 scopus 로고    scopus 로고
    • LMO2-associated clonal T cell proliferation in two patients after gene therapy for SCID-X1
    • Hacein-Bey-Abina S, Von Kalle C, Schmidt M, et al. LMO2-associated clonal T cell proliferation in two patients after gene therapy for SCID-X1. Science 2003;302:415-19.
    • (2003) Science , vol.302 , pp. 415-419
    • Hacein-Bey-Abina, S.1    Von Kalle, C.2    Schmidt, M.3
  • 28
    • 0042738935 scopus 로고    scopus 로고
    • Occurrence of leukaemia following gene therapy of X-linked SCID
    • Kohn DB, Sadelain M, Glorioso JC. Occurrence of leukaemia following gene therapy of X-linked SCID. Nat Rev Cancer 2003;3:477-88.
    • (2003) Nat Rev Cancer , vol.3 , pp. 477-488
    • Kohn, D.B.1    Sadelain, M.2    Glorioso, J.C.3
  • 29
    • 61849121315 scopus 로고    scopus 로고
    • Lessons learned from the gene therapy trial for ornithine transcarbamylase deficiency
    • Wilson JM. Lessons learned from the gene therapy trial for ornithine transcarbamylase deficiency. Mol Genet Metab 2009;96:151-7.
    • (2009) Mol Genet Metab , vol.96 , pp. 151-157
    • Wilson, J.M.1
  • 30
    • 34249014741 scopus 로고    scopus 로고
    • Cambridge, MA, Harvard Business School Press
    • Spar DL. The Baby Business. Cambridge, MA: Harvard Business School Press, 2006.
    • (2006) The Baby Business
    • Spar, D.L.1
  • 31
    • 77249164111 scopus 로고    scopus 로고
    • Preimplantation genetic diagnosis and parental preferences, beyond deadly disease
    • Baruch S. Preimplantation genetic diagnosis and parental preferences: beyond deadly disease. Houst J Health Law Policy 2008;8:245-70.
    • (2008) Houst J Health Law Policy , vol.8 , pp. 245-270
    • Baruch, S.1
  • 32
    • 59449095306 scopus 로고    scopus 로고
    • Cambridge, UK, Polity Press
    • Beck U. World at Risk. Cambridge, UK: Polity Press, 2007.
    • (2007) World at Risk
    • Beck, U.1


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.