-
1
-
-
79955129252
-
The relative burden of haemophilia A and the impact of target joint development on health-related quality of life: results from the ADVATE Post-Authorization Safety Surveillance (PASS) study
-
Klamroth R, Pollmann H, Hermans C et al. The relative burden of haemophilia A and the impact of target joint development on health-related quality of life: results from the ADVATE Post-Authorization Safety Surveillance (PASS) study. Haemophilia 2011; 17: 412-21.
-
(2011)
Haemophilia
, vol.17
, pp. 412-421
-
-
Klamroth, R.1
Pollmann, H.2
Hermans, C.3
-
2
-
-
0038779220
-
Health-related quality of life as outcome parameter in haemophilia treatment
-
discussion 2.
-
Fischer K, van der Bom JG, van den Berg HM. Health-related quality of life as outcome parameter in haemophilia treatment. Haemophilia 2003; 9(Suppl. 1): 75-81 discussion 2.
-
(2003)
Haemophilia
, vol.9
, Issue.SUPPL. 1
, pp. 75-81
-
-
Fischer, K.1
van der Bom, J.G.2
van den Berg, H.M.3
-
4
-
-
34547757915
-
Prophylaxis versus episodic treatment to prevent joint disease in boys with severe hemophilia
-
Manco-Johnson MJ, Abshire TC, Shapiro AD et al. Prophylaxis versus episodic treatment to prevent joint disease in boys with severe hemophilia. N Engl J Med 2007; 357: 535-44.
-
(2007)
N Engl J Med
, vol.357
, pp. 535-544
-
-
Manco-Johnson, M.J.1
Abshire, T.C.2
Shapiro, A.D.3
-
5
-
-
0036264581
-
Aspects of haemophilia prophylaxis in Sweden
-
Ljung RC. Aspects of haemophilia prophylaxis in Sweden. Haemophilia 2002; 8(Suppl. 2): 34-7.
-
(2002)
Haemophilia
, vol.8
, Issue.SUPPL. 2
, pp. 34-37
-
-
Ljung, R.C.1
-
7
-
-
0026635406
-
Twenty-five years' experience of prophylactic treatment in severe haemophilia A and B
-
Nilsson IM, Berntorp E, Lofqvist T, Pettersson H. Twenty-five years' experience of prophylactic treatment in severe haemophilia A and B. J Intern Med 1992; 232: 25-32.
-
(1992)
J Intern Med
, vol.232
, pp. 25-32
-
-
Nilsson, I.M.1
Berntorp, E.2
Lofqvist, T.3
Pettersson, H.4
-
8
-
-
84875053569
-
-
MASAC recommendation concerning prophylaxis (Regular administration of clotting factor concentrate to prevent bleeding). Available at:Accessed April 18, 2012.
-
MASAC recommendation concerning prophylaxis (Regular administration of clotting factor concentrate to prevent bleeding). 2007. Available at: http://www.hemophilia.org/NHFWeb/MainPgs/MainNHF.aspx?menuid=57&contentid=1007. Accessed April 18, 2012.
-
(2007)
-
-
-
9
-
-
73049092113
-
Efficacy and safety of secondary prophylactic versus on-demand sucrose-formulated recombinant factor viii treatment in adults with severe hemophilia a: results from a 13-month crossover study
-
Collins P, Faradji A, Morfini M, Enriquez MM, Schwartz L. Efficacy and safety of secondary prophylactic versus on-demand sucrose-formulated recombinant factor viii treatment in adults with severe hemophilia a: results from a 13-month crossover study. J Thromb Haemost 2010; 8: 83-9.
-
(2010)
J Thromb Haemost
, vol.8
, pp. 83-89
-
-
Collins, P.1
Faradji, A.2
Morfini, M.3
Enriquez, M.M.4
Schwartz, L.5
-
10
-
-
0036862120
-
Prophylactic versus on-demand treatment strategies for severe haemophilia: a comparison of costs and long-term outcome
-
Fischer K, van der Bom JG, Molho P et al. Prophylactic versus on-demand treatment strategies for severe haemophilia: a comparison of costs and long-term outcome. Haemophilia 2002; 8: 745-52.
-
(2002)
Haemophilia
, vol.8
, pp. 745-752
-
-
Fischer, K.1
van der Bom, J.G.2
Molho, P.3
-
11
-
-
0034913232
-
Barriers to compliance with prophylaxis therapy in haemophilia
-
Hacker MR, Geraghty S, Manco-Johnson M. Barriers to compliance with prophylaxis therapy in haemophilia. Haemophilia 2001; 7: 392-6.
-
(2001)
Haemophilia
, vol.7
, pp. 392-396
-
-
Hacker, M.R.1
Geraghty, S.2
Manco-Johnson, M.3
-
12
-
-
33646013584
-
Adherence to prophylactic infusions of factor VIII or factor IX for haemophilia
-
Thornburg CD, Pipe SW. Adherence to prophylactic infusions of factor VIII or factor IX for haemophilia. Haemophilia 2006; 12: 198-9.
-
(2006)
Haemophilia
, vol.12
, pp. 198-199
-
-
Thornburg, C.D.1
Pipe, S.W.2
-
13
-
-
34447116591
-
Identifying and overcoming barriers to prophylaxis in the management of haemophilia
-
Petrini P. Identifying and overcoming barriers to prophylaxis in the management of haemophilia. Haemophilia 2007; 13(Suppl. 2): 16-22.
-
(2007)
Haemophilia
, vol.13
, Issue.SUPPL. 2
, pp. 16-22
-
-
Petrini, P.1
-
14
-
-
37749043474
-
Physicians' perceptions of adherence to prophylactic clotting factor infusions
-
Thornburg CD. Physicians' perceptions of adherence to prophylactic clotting factor infusions. Haemophilia 2008; 14: 25-9.
-
(2008)
Haemophilia
, vol.14
, pp. 25-29
-
-
Thornburg, C.D.1
-
15
-
-
51249087295
-
A survey of adherence to haemophilia therapy in six European countries: results and recommendations
-
De Moerloose P, Urbancik W, Van Den Berg HM, Richards M. A survey of adherence to haemophilia therapy in six European countries: results and recommendations. Haemophilia 2008; 14: 931-8.
-
(2008)
Haemophilia
, vol.14
, pp. 931-938
-
-
De Moerloose, P.1
Urbancik, W.2
Van Den Berg, H.M.3
Richards, M.4
-
16
-
-
34548317170
-
Quantifying adherence to treatment and its relationship to quality of life in a well-characterized haemophilia population
-
du Treil S, Rice J, Leissinger CA. Quantifying adherence to treatment and its relationship to quality of life in a well-characterized haemophilia population. Haemophilia 2007; 13: 493-501.
-
(2007)
Haemophilia
, vol.13
, pp. 493-501
-
-
du Treil, S.1
Rice, J.2
Leissinger, C.A.3
-
17
-
-
0037810806
-
Prophylaxis for severe haemophilia: clinical and economical issues
-
Fischer K, Van Den Berg M. Prophylaxis for severe haemophilia: clinical and economical issues. Haemophilia 2003; 9: 376-81.
-
(2003)
Haemophilia
, vol.9
, pp. 376-381
-
-
Fischer, K.1
Van Den Berg, M.2
-
18
-
-
0035432179
-
PedsQL™ 4.0: reliability and validity of the Pediatric Quality of Life Inventory™ Version 4.0 generic core scales in healthy and patient populations
-
Varni JW, Seid M, Kurtin PS. PedsQL™ 4.0: reliability and validity of the Pediatric Quality of Life Inventory™ Version 4.0 generic core scales in healthy and patient populations. Med Care 2001; 39: 800-12.
-
(2001)
Med Care
, vol.39
, pp. 800-812
-
-
Varni, J.W.1
Seid, M.2
Kurtin, P.S.3
-
19
-
-
0030096228
-
A 12-Item Short-Form Health Survey: construction of scales and preliminary tests of reliability and validity
-
Ware J Jr, Kosinski M, Keller SD. A 12-Item Short-Form Health Survey: construction of scales and preliminary tests of reliability and validity. Med Care 1996; 34: 220-33.
-
(1996)
Med Care
, vol.34
, pp. 220-233
-
-
Ware Jr., J.1
Kosinski, M.2
Keller, S.D.3
-
20
-
-
77950240992
-
VERITAS-Pro: a new measure of adherence to prophylactic regimens in haemophilia
-
Duncan N, Kronenberger W, Roberson C, Shapiro A. VERITAS-Pro: a new measure of adherence to prophylactic regimens in haemophilia. Haemophilia 2010; 16: 247-55.
-
(2010)
Haemophilia
, vol.16
, pp. 247-255
-
-
Duncan, N.1
Kronenberger, W.2
Roberson, C.3
Shapiro, A.4
-
21
-
-
80052037388
-
Haemophilia Utilization Group Study - Part Va (HUGS Va): design, methods and baseline data
-
Zhou ZY, Wu J, Baker J et al. Haemophilia Utilization Group Study - Part Va (HUGS Va): design, methods and baseline data. Haemophilia 2011; 17: 729-36.
-
(2011)
Haemophilia
, vol.17
, pp. 729-736
-
-
Zhou, Z.Y.1
Wu, J.2
Baker, J.3
-
22
-
-
42549103134
-
Assessment of treatment practice patterns for severe hemophilia a: a global nurse perspective
-
Khair K, Lawrence K, Butler R, O'Shea E, Christie BA. Assessment of treatment practice patterns for severe hemophilia a: a global nurse perspective. Acta Haematol 2008; 119: 115-23.
-
(2008)
Acta Haematol
, vol.119
, pp. 115-123
-
-
Khair, K.1
Lawrence, K.2
Butler, R.3
O'Shea, E.4
Christie, B.A.5
-
23
-
-
33645973263
-
Practice patterns in haemophilia A therapy - global progress towards optimal care
-
Geraghty S, Dunkley T, Harrington C, Lindvall K, Maahs J, Sek J. Practice patterns in haemophilia A therapy - global progress towards optimal care. Haemophilia 2006; 12: 75-81.
-
(2006)
Haemophilia
, vol.12
, pp. 75-81
-
-
Geraghty, S.1
Dunkley, T.2
Harrington, C.3
Lindvall, K.4
Maahs, J.5
Sek, J.6
-
24
-
-
0027300142
-
Treatment compliance in childhood and adolescence
-
Tebbi CK. Treatment compliance in childhood and adolescence. Cancer 1993; 71: 3441-9.
-
(1993)
Cancer
, vol.71
, pp. 3441-3449
-
-
Tebbi, C.K.1
-
25
-
-
44249085317
-
Internal and external determinants of bleeding patterns on prophylaxis for severe haemophilia A
-
Fischer K, Collins P, Astermark J. Internal and external determinants of bleeding patterns on prophylaxis for severe haemophilia A. Blood 2007; 110: 1145.
-
(2007)
Blood
, vol.110
, pp. 1145
-
-
Fischer, K.1
Collins, P.2
Astermark, J.3
|