메뉴 건너뛰기




Volumn 18, Issue 5, 2012, Pages 760-765

Treatment patterns, health-related quality of life and adherence to prophylaxis among haemophilia A patients in the United States

Author keywords

Adherence; Adolescent; Health related quality of life; On demand; Paediatric; Prophylaxis

Indexed keywords

ADOLESCENT; ADULT; AGE DISTRIBUTION; ARTICLE; CAREGIVER; CHILD; CLINICAL EVALUATION; DISEASE SEVERITY; FAMILY; FEMALE; HEALTH SURVEY; HEMOPHILIA A; HUMAN; MAJOR CLINICAL STUDY; MALE; PEDIATRICS; PRIORITY JOURNAL; PROPHYLAXIS; QUALITY OF LIFE; SCHOOL CHILD; SHORT FORM 12; TREATMENT PLANNING; UNITED STATES;

EID: 84865558828     PISSN: 13518216     EISSN: 13652516     Source Type: Journal    
DOI: 10.1111/j.1365-2516.2012.02813.x     Document Type: Article
Times cited : (62)

References (25)
  • 1
    • 79955129252 scopus 로고    scopus 로고
    • The relative burden of haemophilia A and the impact of target joint development on health-related quality of life: results from the ADVATE Post-Authorization Safety Surveillance (PASS) study
    • Klamroth R, Pollmann H, Hermans C et al. The relative burden of haemophilia A and the impact of target joint development on health-related quality of life: results from the ADVATE Post-Authorization Safety Surveillance (PASS) study. Haemophilia 2011; 17: 412-21.
    • (2011) Haemophilia , vol.17 , pp. 412-421
    • Klamroth, R.1    Pollmann, H.2    Hermans, C.3
  • 2
    • 0038779220 scopus 로고    scopus 로고
    • Health-related quality of life as outcome parameter in haemophilia treatment
    • discussion 2.
    • Fischer K, van der Bom JG, van den Berg HM. Health-related quality of life as outcome parameter in haemophilia treatment. Haemophilia 2003; 9(Suppl. 1): 75-81 discussion 2.
    • (2003) Haemophilia , vol.9 , Issue.SUPPL. 1 , pp. 75-81
    • Fischer, K.1    van der Bom, J.G.2    van den Berg, H.M.3
  • 4
    • 34547757915 scopus 로고    scopus 로고
    • Prophylaxis versus episodic treatment to prevent joint disease in boys with severe hemophilia
    • Manco-Johnson MJ, Abshire TC, Shapiro AD et al. Prophylaxis versus episodic treatment to prevent joint disease in boys with severe hemophilia. N Engl J Med 2007; 357: 535-44.
    • (2007) N Engl J Med , vol.357 , pp. 535-544
    • Manco-Johnson, M.J.1    Abshire, T.C.2    Shapiro, A.D.3
  • 5
    • 0036264581 scopus 로고    scopus 로고
    • Aspects of haemophilia prophylaxis in Sweden
    • Ljung RC. Aspects of haemophilia prophylaxis in Sweden. Haemophilia 2002; 8(Suppl. 2): 34-7.
    • (2002) Haemophilia , vol.8 , Issue.SUPPL. 2 , pp. 34-37
    • Ljung, R.C.1
  • 6
    • 0030910204 scopus 로고    scopus 로고
    • Haemophilia prophylaxis in young patients - a long-term follow-up
    • Lofqvist T, Nilsson IM, Berntorp E, Pettersson H. Haemophilia prophylaxis in young patients - a long-term follow-up. J Intern Med 1997; 241: 395-400.
    • (1997) J Intern Med , vol.241 , pp. 395-400
    • Lofqvist, T.1    Nilsson, I.M.2    Berntorp, E.3    Pettersson, H.4
  • 7
    • 0026635406 scopus 로고
    • Twenty-five years' experience of prophylactic treatment in severe haemophilia A and B
    • Nilsson IM, Berntorp E, Lofqvist T, Pettersson H. Twenty-five years' experience of prophylactic treatment in severe haemophilia A and B. J Intern Med 1992; 232: 25-32.
    • (1992) J Intern Med , vol.232 , pp. 25-32
    • Nilsson, I.M.1    Berntorp, E.2    Lofqvist, T.3    Pettersson, H.4
  • 8
    • 84875053569 scopus 로고    scopus 로고
    • MASAC recommendation concerning prophylaxis (Regular administration of clotting factor concentrate to prevent bleeding). Available at:Accessed April 18, 2012.
    • MASAC recommendation concerning prophylaxis (Regular administration of clotting factor concentrate to prevent bleeding). 2007. Available at: http://www.hemophilia.org/NHFWeb/MainPgs/MainNHF.aspx?menuid=57&contentid=1007. Accessed April 18, 2012.
    • (2007)
  • 9
    • 73049092113 scopus 로고    scopus 로고
    • Efficacy and safety of secondary prophylactic versus on-demand sucrose-formulated recombinant factor viii treatment in adults with severe hemophilia a: results from a 13-month crossover study
    • Collins P, Faradji A, Morfini M, Enriquez MM, Schwartz L. Efficacy and safety of secondary prophylactic versus on-demand sucrose-formulated recombinant factor viii treatment in adults with severe hemophilia a: results from a 13-month crossover study. J Thromb Haemost 2010; 8: 83-9.
    • (2010) J Thromb Haemost , vol.8 , pp. 83-89
    • Collins, P.1    Faradji, A.2    Morfini, M.3    Enriquez, M.M.4    Schwartz, L.5
  • 10
    • 0036862120 scopus 로고    scopus 로고
    • Prophylactic versus on-demand treatment strategies for severe haemophilia: a comparison of costs and long-term outcome
    • Fischer K, van der Bom JG, Molho P et al. Prophylactic versus on-demand treatment strategies for severe haemophilia: a comparison of costs and long-term outcome. Haemophilia 2002; 8: 745-52.
    • (2002) Haemophilia , vol.8 , pp. 745-752
    • Fischer, K.1    van der Bom, J.G.2    Molho, P.3
  • 11
    • 0034913232 scopus 로고    scopus 로고
    • Barriers to compliance with prophylaxis therapy in haemophilia
    • Hacker MR, Geraghty S, Manco-Johnson M. Barriers to compliance with prophylaxis therapy in haemophilia. Haemophilia 2001; 7: 392-6.
    • (2001) Haemophilia , vol.7 , pp. 392-396
    • Hacker, M.R.1    Geraghty, S.2    Manco-Johnson, M.3
  • 12
    • 33646013584 scopus 로고    scopus 로고
    • Adherence to prophylactic infusions of factor VIII or factor IX for haemophilia
    • Thornburg CD, Pipe SW. Adherence to prophylactic infusions of factor VIII or factor IX for haemophilia. Haemophilia 2006; 12: 198-9.
    • (2006) Haemophilia , vol.12 , pp. 198-199
    • Thornburg, C.D.1    Pipe, S.W.2
  • 13
    • 34447116591 scopus 로고    scopus 로고
    • Identifying and overcoming barriers to prophylaxis in the management of haemophilia
    • Petrini P. Identifying and overcoming barriers to prophylaxis in the management of haemophilia. Haemophilia 2007; 13(Suppl. 2): 16-22.
    • (2007) Haemophilia , vol.13 , Issue.SUPPL. 2 , pp. 16-22
    • Petrini, P.1
  • 14
    • 37749043474 scopus 로고    scopus 로고
    • Physicians' perceptions of adherence to prophylactic clotting factor infusions
    • Thornburg CD. Physicians' perceptions of adherence to prophylactic clotting factor infusions. Haemophilia 2008; 14: 25-9.
    • (2008) Haemophilia , vol.14 , pp. 25-29
    • Thornburg, C.D.1
  • 15
    • 51249087295 scopus 로고    scopus 로고
    • A survey of adherence to haemophilia therapy in six European countries: results and recommendations
    • De Moerloose P, Urbancik W, Van Den Berg HM, Richards M. A survey of adherence to haemophilia therapy in six European countries: results and recommendations. Haemophilia 2008; 14: 931-8.
    • (2008) Haemophilia , vol.14 , pp. 931-938
    • De Moerloose, P.1    Urbancik, W.2    Van Den Berg, H.M.3    Richards, M.4
  • 16
    • 34548317170 scopus 로고    scopus 로고
    • Quantifying adherence to treatment and its relationship to quality of life in a well-characterized haemophilia population
    • du Treil S, Rice J, Leissinger CA. Quantifying adherence to treatment and its relationship to quality of life in a well-characterized haemophilia population. Haemophilia 2007; 13: 493-501.
    • (2007) Haemophilia , vol.13 , pp. 493-501
    • du Treil, S.1    Rice, J.2    Leissinger, C.A.3
  • 17
    • 0037810806 scopus 로고    scopus 로고
    • Prophylaxis for severe haemophilia: clinical and economical issues
    • Fischer K, Van Den Berg M. Prophylaxis for severe haemophilia: clinical and economical issues. Haemophilia 2003; 9: 376-81.
    • (2003) Haemophilia , vol.9 , pp. 376-381
    • Fischer, K.1    Van Den Berg, M.2
  • 18
    • 0035432179 scopus 로고    scopus 로고
    • PedsQL™ 4.0: reliability and validity of the Pediatric Quality of Life Inventory™ Version 4.0 generic core scales in healthy and patient populations
    • Varni JW, Seid M, Kurtin PS. PedsQL™ 4.0: reliability and validity of the Pediatric Quality of Life Inventory™ Version 4.0 generic core scales in healthy and patient populations. Med Care 2001; 39: 800-12.
    • (2001) Med Care , vol.39 , pp. 800-812
    • Varni, J.W.1    Seid, M.2    Kurtin, P.S.3
  • 19
    • 0030096228 scopus 로고    scopus 로고
    • A 12-Item Short-Form Health Survey: construction of scales and preliminary tests of reliability and validity
    • Ware J Jr, Kosinski M, Keller SD. A 12-Item Short-Form Health Survey: construction of scales and preliminary tests of reliability and validity. Med Care 1996; 34: 220-33.
    • (1996) Med Care , vol.34 , pp. 220-233
    • Ware Jr., J.1    Kosinski, M.2    Keller, S.D.3
  • 20
    • 77950240992 scopus 로고    scopus 로고
    • VERITAS-Pro: a new measure of adherence to prophylactic regimens in haemophilia
    • Duncan N, Kronenberger W, Roberson C, Shapiro A. VERITAS-Pro: a new measure of adherence to prophylactic regimens in haemophilia. Haemophilia 2010; 16: 247-55.
    • (2010) Haemophilia , vol.16 , pp. 247-255
    • Duncan, N.1    Kronenberger, W.2    Roberson, C.3    Shapiro, A.4
  • 21
    • 80052037388 scopus 로고    scopus 로고
    • Haemophilia Utilization Group Study - Part Va (HUGS Va): design, methods and baseline data
    • Zhou ZY, Wu J, Baker J et al. Haemophilia Utilization Group Study - Part Va (HUGS Va): design, methods and baseline data. Haemophilia 2011; 17: 729-36.
    • (2011) Haemophilia , vol.17 , pp. 729-736
    • Zhou, Z.Y.1    Wu, J.2    Baker, J.3
  • 22
    • 42549103134 scopus 로고    scopus 로고
    • Assessment of treatment practice patterns for severe hemophilia a: a global nurse perspective
    • Khair K, Lawrence K, Butler R, O'Shea E, Christie BA. Assessment of treatment practice patterns for severe hemophilia a: a global nurse perspective. Acta Haematol 2008; 119: 115-23.
    • (2008) Acta Haematol , vol.119 , pp. 115-123
    • Khair, K.1    Lawrence, K.2    Butler, R.3    O'Shea, E.4    Christie, B.A.5
  • 23
    • 33645973263 scopus 로고    scopus 로고
    • Practice patterns in haemophilia A therapy - global progress towards optimal care
    • Geraghty S, Dunkley T, Harrington C, Lindvall K, Maahs J, Sek J. Practice patterns in haemophilia A therapy - global progress towards optimal care. Haemophilia 2006; 12: 75-81.
    • (2006) Haemophilia , vol.12 , pp. 75-81
    • Geraghty, S.1    Dunkley, T.2    Harrington, C.3    Lindvall, K.4    Maahs, J.5    Sek, J.6
  • 24
    • 0027300142 scopus 로고
    • Treatment compliance in childhood and adolescence
    • Tebbi CK. Treatment compliance in childhood and adolescence. Cancer 1993; 71: 3441-9.
    • (1993) Cancer , vol.71 , pp. 3441-3449
    • Tebbi, C.K.1
  • 25
    • 44249085317 scopus 로고    scopus 로고
    • Internal and external determinants of bleeding patterns on prophylaxis for severe haemophilia A
    • Fischer K, Collins P, Astermark J. Internal and external determinants of bleeding patterns on prophylaxis for severe haemophilia A. Blood 2007; 110: 1145.
    • (2007) Blood , vol.110 , pp. 1145
    • Fischer, K.1    Collins, P.2    Astermark, J.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.