Physicians' perceptions of adherence to prophylactic clotting factor infusions

Haemophilia

Volumn 14, Issue 1, 2008, Pages 25-29

  Thornburg, C D ^a  

^a DUKE UNIVERSITY MEDICAL CENTER   (United States)

Author keywords

Adherence; Haemophilia; Prophylaxis

Indexed keywords

BLOOD CLOTTING FACTOR 8; BLOOD CLOTTING FACTOR 9;

ADULT; ARTICLE; CLINICAL PRACTICE; CONTROLLED STUDY; DRUG INFUSION; FISHER EXACT TEST; HEALTH SURVEY; HEMOPHILIA; HUMAN; MEDICAL EDUCATION; MEDICAL RECORD; PATIENT COMPLIANCE; PHYSICIAN; PRESCRIPTION; PRIORITY JOURNAL; SELF REPORT; VASCULAR ACCESS;

ATTITUDE OF HEALTH PERSONNEL; BLOOD COAGULATION FACTORS; DRUG UTILIZATION; HEMOPHILIA A; PATIENT COMPLIANCE; PERCEPTION; PHYSICIAN'S PRACTICE PATTERNS; PHYSICIAN-PATIENT RELATIONS; PHYSICIANS; PREMEDICATION; PRESCRIPTIONS, DRUG;

EID: 37749043474     PISSN: 13518216     EISSN: 13652516     Source Type: Journal    
DOI: 10.1111/j.1365-2516.2007.01591.x     Document Type: Article

References (22)

1. World Health Organization Report. Adherence to long-term therapies: evidence for action. Available at: http://www.who.int/chronic_conditions/ adherencereport/en/, 2003.
2. Haynes RB, Taylor DW, Sackett DL Compliance in Health Care. Baltimore: Johns Hopkins University Press, 1979: 11-22.
3. Haynes RB, Dantes R. Patient compliance and the conduct and interpretation of therapeutic trials. Control Clin Trials 1987; 8: 12-19.
4. duTreil S, Rice J, Leissinger CA. Scoring adherence in hemophilia care and comparing it to quality of life (QoL). Blood 2005; 106: 2260a.
5. Shapiro AD. A global view on prophylaxis: Possibilities and consequences. Haemophilia 2003; 9 (Suppl. 1): 10-7.
6. Berntorp E, Boulyjenkov V, Brettler D et.al. Modern treatment of haemophilia. Bull World Health Organ 1995; 73: 691-701.
7. Medical and Scientific Advisory Council. MASAC Recommendations Concerning Prophylaxis Medical Bulletin 193 (Chapter Advisory 197), 1994.
8. Manco-Johnson MJ, Abshire TC, Brown D et.al. Initial results of a randomized, prospective trial of prophylaxis to prevent joint disease in young children with factor VIII (FVIII) deficiency. Blood 2005; 106: 3a.
9. Hacker MR, Geraghty S, Manco-Johnson M. Barriers to compliance with prophylaxis therapy in haemophilia. Haemophilia 2001; 7: 392-6.
10. Manco-Johnson MJ, Nuss R, Geraghty S, Funk S, Kilcoyne R. Results of secondary prophylaxis in children with severe hemophilia. Am J Hematol 1994; 47: 113-7.
11. Thornburg CD, Pipe SW. Adherence to prophylactic infusions of factor VIII or factor IX for haemophilia. Haemophilia 2006; 12: 198-9.
12. Centers for Disease Control and Prevention. Summary Report of UDC Activity (National): Treatment/Clinical Characteristics (Hemophilia). Available at: http://www2a.cdc.gov/ncbddd/htcweb/udc_report.asp, 2006.
13. Cabana MD, Kim C. Physician adherence to preventive cardiology guidelines for women. Womens Health Issues 2003; 13: 142-9.
14. Bosworth H. Medication treatment adherence. In: Bosworth H, Oddone E, Weinberger M eds. Patient Treatment Adherence: Concepts, Interventions, and Measurement. Mahweh: Lawrence Erlbaum Associates Publishers, 2006: 158.
15. Haynes RB, Sackett DL, Gibson ES et.al. Improvement of medication compliance in uncontrolled hypertension. Lancet 1976; 1: 1265-8.
16. Psaty BM, Koepsell TD, Wagner EH, LoGerfo JP, Inui TS. The relative risk of incident coronary heart disease associated with recently stopping the use of beta-blockers. JAMA 1990; 263: 1653-7.
17. Osterberg L, Blaschke T. Adherence to medication. N Engl J Med 2005; 353: 487-97.
18. Shapiro AD. Why is primary prophylaxis underutilized in the United States? Haemophilia 2003; 9: 670-2.
19. Geraghty S, Dunkley T, Harrington C, Lindvall K, Maahs J, Sek J. Practice patterns in haemophilia A therapy - global progress towards optimal care. Haemophilia 2006; 12: 75-81.
20. Manco-Johnson MJ, Blanchette VS. North American prophylaxis studies for persons with severe haemophilia: Background, rationale and design. Haemophilia 2003; 9 (Suppl. 1): 44-8.
21. Pipe SW. The promise and challenges of bioengineered recombinant clotting factors. J Thromb Haemost 2005; 3: 1692-701.
22. Collins PW, Bolton-Maggs P, Stephenson D, Jenkins B, Loran C, Winter M. Pilot study of an internet-based electronic patient treatment record and communication system for haemophilia, Advoy.com. Haemophilia 2003; 9: 285-91.