A survey of adherence to haemophilia therapy in six European countries: Results and recommendations

Haemophilia

Volumn 14, Issue 5, 2008, Pages 931-938

  De Moerloose, Philippe ^a   Urbancik, W ^b   Van Den Berg, H M ^c   Richards, M ^d  

^a GENEVA UNIVERSITY HOSPITALS   (Switzerland)

^b BAXTER INNOVATIONS GMBH   (Austria)

^c MEANDER MEDICAL CENTER   (Netherlands)

^d ST JAMES S UNIVERSITY HOSPITAL   (United Kingdom)

Author keywords

Adherence; Compliance; Europe; Haemophilia; Prophylaxis; Recommendations

Indexed keywords

BLOOD CLOTTING FACTOR 8 CONCENTRATE; RECOMBINANT BLOOD CLOTTING FACTOR 8;

ADOLESCENT; ADULT; AGE DISTRIBUTION; ARTICLE; CHILD; CONTROLLED STUDY; CORRELATION ANALYSIS; DRUG DOSE REGIMEN; ELECTRONIC MEDICAL RECORD; EUROPE; FRANCE; GERMANY; HEMOPHILIA A; HUMAN; INTERNET; INTERVIEW; ITALY; MAJOR CLINICAL STUDY; NURSE; NURSE PATIENT RELATIONSHIP; PATIENT COMPLIANCE; PATIENT SELECTION; PHYSICIAN; PRIORITY JOURNAL; SPAIN; SWEDEN; SYMPTOMATOLOGY; UNITED KINGDOM;

ADOLESCENT; ADULT; AGE FACTORS; CHILD; CHILD, PRESCHOOL; EUROPE; FACTOR VIII; HEALTH SURVEYS; HEMARTHROSIS; HEMOPHILIA A; HUMANS; MALE; PATIENT COMPLIANCE; PROFESSIONAL-PATIENT RELATIONS; RISK FACTORS; YOUNG ADULT;

EID: 51249087295     PISSN: 13518216     EISSN: 13652516     Source Type: Journal    
DOI: 10.1111/j.1365-2516.2008.01843.x     Document Type: Article

References (18)

1. Fischer K, van der Bom JG, Molho P et al. Prophylactic versus on-demand treatment strategies for severe haemophilia: A comparison of costs and long-term outcome. Haemophilia 2002; 8: 745-52.
2. Berntorp E, Astermark J, Björkman S et al. Consensus perspectives on prophylactic therapy for haemophilia: Summary statement. Haemophilia 2003; 9(Suppl. 1): 1-4.
3. Blanchette VS, Manco-Johnson M, Santagostino E, Ljung R. Optimizing factor prophylaxis for the haemophilia population: Where do we stand? Haemophilia 2004; 10(Suppl. 4): 94-104.
4. Ljung RC, van den Berg HM, Petrini P et al. Port-A-Cath usage in children with haemophilia: Experience of 53 cases. Acta Paediatr 1998; 87: 1051-4.
5. van Dijk K, van Der Bom JG, Bax KN, van Der Zee DC, van Den Berg MH. Use of implantable venous access devices in children with severe hemophilia: benefits and burden. Haematologica 2004; 89: 189-94.
6. van Dijk K, Fischer K, van der Bom JG, Scheibel E, Ingerslev J, van den Berg HM. Can long-term prophylaxis for severe haemophilia be stopped in adulthood? Results from Denmark and the Netherlands. Br J Haematol 2005; 130: 107-12.
7. van den Berg HM, Dunn A, Fischer K, Blanchette VS. Prevention and treatment of musculoskeletal disease in the haemophilia population: Role of prophylaxis and synovectomy. Haemophilia 2006; 12(Suppl. 3): 159-68.
8. Richards M, Altisent C, Batorova A et al. Should prophylaxis be used in adolescent and adult patients with severe haemophilia? A European survey of practice and outcome data. Haemophilia 2007; 13: 473-80.
9. Lindvall K, Colstrup L, Wollter IM et al. Compliance with treatment and understanding of own disease in patients with severe and moderate haemophilia. Haemophilia 2006; 12: 47-51.
10. Geraghty S, Dunkley T, Harrington C, Lindvall K, Maahs J, Sek J. Practice patterns in haemophilia A therapy -global progress towards optimal care. Haemophilia 2006; 12: 75-81.
11. Hacker MR, Geraghty S, Manco-Johnson M. Barriers to compliance with prophylaxis therapy in haemophilia. Haemophilia 2001; 7: 392-6.
12. Du Treil S, Rice J, Leissinger CA. Quantifying adherence to treatment and its relationship to quality of life in a well-characterized haemophilia population. Haemophilia 2007; 13: 493-501.
13. World Health Organisation. Adherence to Long-Term Therapies: Evidence for Action. Geneva: World Health Organisation, 2003.
14. De Geest S, Dobbels F, Fluri C, Paris W, Troosters T. Adherence to the therapeutic regimen in heart, lung, and heart-lung transplant recipients. J Cardiovasc Nurs 2005; 5(Suppl.): S88-98.
15. Lau RC, Matsui D, Greenberg M, Koren G. Electronic measurement of compliance with mercaptopurine in pediatric patients with acute lymphoblastic leukaemia. Med Pediatr Oncol 1998; 30: 85-90.
16. Roosendaal G, Drenth ER, Poerschke M, Verkerk EC, van den Berg HM, Metselaar M. Enhanced communication between care professionals and patients with hemophilia by using a web enabled electronic logbook. Stud Health Technol Inform 2004; 103: 191-4.
17. Walker I, Sigouin C, Sek J et al. Comparing hand-held computers and paper diaries for haemophilia home therapy: A randomized trial. Haemophilia 2004; 10: 698-704.
18. Kripalani S, Yao X, Haynes RB. Interventions to enhance medication adherence in chronic medical conditions. A systematic review. Arch Intern Med 2007; 167: 540-55.