A comparison of patient and proxy symptom assessments in advanced cancer patients

Palliative Medicine

Volumn 13, Issue 4, 1999, Pages 311-323

  Nekolaichuk, Cheryl L ^a,b   Bruera, Eduardo ^a   Spachynski, Kathy ^a   MacEachern, Tara ^a   Hanson, John ^a   Maguire, Thomas O ^a  

^a UNIVERSITY OF ALBERTA   (Canada)

^b GREY NUNS COMMUNITY HOSPITAL   (Canada)

Author keywords

Neoplasms; Outcome assessment (health care); Palliative care

Indexed keywords

ADULT; ADVANCED CANCER; AGED; ANXIETY; APPETITE; ARTICLE; CLINICAL ARTICLE; CLINICAL TRIAL; CONTROLLED CLINICAL TRIAL; CONTROLLED STUDY; DEPRESSION; DROWSINESS; DYSPNEA; FEMALE; HUMAN; INTERMETHOD COMPARISON; MALE; NAUSEA; NURSE; PAIN ASSESSMENT; PHYSICAL ACTIVITY; PHYSICIAN; RATING SCALE; SELF REPORT; STATISTICAL ANALYSIS; SYMPTOM; WELLBEING;

EID: 0032768161     PISSN: 02692163     EISSN: None     Source Type: Journal    
DOI: 10.1191/026921699675854885     Document Type: Article

References (56)

1. Foley K. The treatment of cancer pain. N Engl J Med 1985; 313: 84-95.
2. Bruera E. Research in symptoms other than pain. In: Doyle D, Hanks G, MacDonald N eds. Oxford textbook of palliative medicine. Oxford: Oxford Medical Publications, 1993: 87-92.
3. Bruera E, Fox R, Chadwick S, Brenneis C, MacDonald N. Changing patterns in the treatment of pain and other symptoms in advanced cancer patients. J Pain Symptom Manage 1987; 2: 139-44.
4. Vainio A, Auvinen A. Prevalence of symptoms among patients with advanced cancer: an international collaborative study. J Pain Symptom Manage 1986; 12: 3-10.
5. Beeney LJ, Butow PN, Dunn SM. 'Normal' adjustment to cancer: characteristics and assessment. In: Portenoy RK, Bruera E eds. Topics in palliative care, Volume 1. New York: Oxford University Press, 1997: 213-44.
6. Breitbart W, Bruera E, Chochinov H, Lynch M. Neuropsychiatric syndromes and psychological symptoms in patients with advanced cancer. J Pain Symptom Manage 1995; 10: 131-41.
7. Chochinov HM. Psychiatric care of the cancer patient. Med North Am 1994; 17: 671-74.
8. Chochinov HM, Wilson KG, Enns M, Landers S. Prevalence of depression in the terminally ill: Effects of diagnostic criteria and symptom threshold judgments. Am J Psychiatry 1994; 151: 537-40.
9. Derogatis LR, Morrow GR, Fetting J et al. The prevalence of psychiatric disorders among cancer patients. J Am Med Assoc 1983; 249: 751-57.
10. Lynch ME. The assessment and prevalence of affective disorders in advanced cancer. J Palliat Care 1995; 11(1): 10-18.
11. US Public Health Service Agency for Health Care Policy and Research. US Public Health Service, 1994.
12. Bruera E. Patient assessment in palliative cancer care. Cancer Treat Rev 1996; 22(Suppl. A): 3-12.
13. Bruera E, MacDonald S. Audit methods: the Edmonton Symptom Assessment System. In: Higginson I ed. Clinical audit in palliative care. Oxford: Radcliffe Medical Press, 1993: 61-77.
14. Higginson I. Audit methods: a community schedule. In: Higginson I ed. Clinical audit in palliative care. Oxford: Radcliffe Medical Press, 1993: 34-47.
15. Higginson I. Audit methods: Validation and inpatient use. In: Higginson I ed. Clinical audit in palliative care. Oxford: Radcliffe Medical Press, 1993: 48-54.
16. McCorkle R, Young K. Development of a symptom distress scale. Cancer Nurs 1978; 1: 373-78.
17. Samurel N, Leddy SK, Greco K et al. Development and testing of the symptom experience scale. J Pain Symptom Manage 1996; 12: 221-28.
18. Sutherland HJ, Lockwood GA, Cunningham AJ. A simple, rapid method for assessing psychological distress in cancer patients: Evidence of validity for linear analog scales. J Psychosoc Oncol 1989; 7: 31-43.
19. Dudgeon D, Raubertas RF, Rosenthal SN. The short-form McGill Pain Questionnaire in chronic cancer pain. J Pain Symptom Manage 1993; 8: 191-95.
20. Grossman SA, Sheidler VR, McGuire DB, Geer C, Santor D, Piantadosi S. A comparison of the Hopkins Pain Rating Instrument with standard visual analogue and verbal descriptor scales in patients with cancer pain. J Pain Symptom Manage 1992; 7: 196-203.
21. Yates JW, Chalmer B, McKegney FP. Evaluation of patients with advanced cancer using the Karnofsky performance status. Cancer 1980; 45: 2220-24.
22. Bruera E, Watanabe S. New developments in the assessment of pain in cancer patients. Support Care Cancer 1994; 2: 312-18.
23. Portenoy RK. Cancer pain: general design issues. In: Max MB, Portenoy RK, Laska EM eds. Advances in pain research and therapy, Volume 18. The design of analgesic clinical trials. New York: Raven Press, 1991: 233-66.
24. Bruera E, Fainsinger RL, Miller MJ, Kuehn N. The assessment of pain intensity in patients with cognitive failure: a preliminary report. J Pain Symptom Manage 1992; 7: 267-70.
25. Brunelli C, Costantini M, Di Giulio P et al. Quality-of-life evaluation: when do terminal cancer patients and health-care providers agree? J Pain Symptom Manage 1998; 15: 151-58.
26. Cleeland CS, Gonin R, Hatfield AK et al. Pain and its treatment in outpatients with metastatic cancer. N Engl J Med 1994; 330: 592-96.
27. Higginson IJ. Can professionals improve their assessments? [commentary]. J Pain Symptom Manage 1998; 15: 149-50.
28. Nekolaichuk CL, Bruera E, Maguire TO. An examination of the reliability of the Edmonton Symptom Assessment System (ESAS) in a palliative care setting [abstract]. J Palliat Care 1998; 14(3): 125-26.
29. Sprangers MAG, Aaronson NK. The role of health care providers and significant others in evaluating the quality of life of patients with chronic disease: a review. J Clin Epidemiol 1992; 45: 743-60.
30. Peteet J, Tay V, Cohen G, MacIntyre J. Pain characteristics and treatment in an outpatient cancer population. Cancer 1986; 57: 1259-65.
31. Grossman SA, Sheidler VR, Swedeen K, Mucenski J, Piantadosi S. Correlation of patient and caregiver ratings of cancer pain. J Pain Symptom Manage 1991; 6: 53-57.
32. Slevin ML, Plant H, Lynch D, Drinkwater J, Gregory WM. Who should measure quality of life, the doctor or the patient? Br J Cancer 1988; 57: 109-12.
33. Sneeuw KCA, Aaronson NK, Sprangers MAG, Delmar SB, Wever LDV, Schornagel JH. Value of caregiver ratings in evaluating the quality of life of patients with cancer. J Clin Oncol 1997; 15: 1206-17.
34. Bruera E, Kuehn N, Miller MJ, Selmser P, MacMillan K. The Edmonton Symptom Assessment System (ESAS): a simple method for the assessment of palliative care patients. J Palliat Care 1991; 7(2): 6-9.
35. Higginson IJ, McCarthy M. Validity of the support team assessment schedule: do staffs' ratings reflect those made by patients or their families? Palliat Med 1993; 7: 219-28.
36. Huskisson EC. Visual analogue scales. In: Melzack R ed. Pain measurement and assessment. New York: Raven Press, 1983: 33-37.
37. Price DD, McGrath PA, Rafii A, Buckingham B. The validation of visual analogue scales as ratio scale measures for chronic and experimental pain. Pain 1983; 17: 45-56.
38. Ahles TA, Ruckdeschel JC, Blanchard EB. Cancer-related pain: II. Assessment with visual analogue scales. J Psychosom Res 1984; 28: 121-24.
39. Law M, McIntosh J, Morrison L, Baptiste S. A comparison of two pain measurement scales: their clinical value. Can J Rehab 1987; 1: 55-58.
40. Wilkie D, Lovejoy N, Dodd M, Tesler M. Cancer pain intensity measurement: Concurrent validity of three tools: finger dynamometer, pain intensity number scale, visual analogue scale. Hospice J 1990; 6: 1-13.
41. Bruera E, Carraro S, Roca E, Cedaro L, Chacon R. Association between malnutrition and calorie intake, emesis, psychological depression, glucose taste, and tumor mass. Cancer Treat Rep 1984; 68: 873-76.
42. Bruera E, Brenneis C, Michaud M et al. Association between asthenia and nutritional status, lean body mass, anemia, psychological status, and tumor mass in patients with advanced breast cancer. J Pain Symptom Manage 1989; 4: 59-63.
43. Hurny C, Bernhard J, Coates A et al. Responsiveness of a single-item indicator versus a multi-item scale: assessment of emotional well-being in an international adjuvant breast cancer trial. Medical Care 1996; 34: 234-48.
44. Selby PJ, Chapman JAW, Etazadi-Amoli J, Dalley D, Boyd NF. The development of a method for assessing the quality of life of cancer patients. Br J Cancer 1984; 50: 13-22.
45. Boyd NF, Selby PJ, Sutherland HJ, Hogg S. Measurement of the clinical status of patients with breast cancer: evidence for the validity of self assessment with linear analogue scales. J Clin Epidemiol 1988; 41: 243-50.
46. Sutherland HJ, Lockwood GA, Cunningham AJ. A simple, rapid method for assessing psychological distress in cancer patients: evidence of validity for linear analog scales. J Psychosoc Oncol 1989; 7: 31-43.
47. Stevens J. Applied multivariate statistics for the social sciences, 3rd edn. Mahwah, NJ: Lawrence Erlbaum, 1996.
48. Bruera E, Sloan P, Mount B, Scott J, Suarez-Almazor M. A randomized, double-blind, double-dummy, crossover trial comparing the safety and efficacy of oral sustained-release hydromorphone with immediate-release hydromorphone in patients with cancer pain. J Clin Oncol 1996; 14: 1713-17.
49. Bruera E, Fainsinger R, Spachynski K, Babul N, Harsanyi Z, Darke AC. Clinical efficacy and safety of a novel controlled-release morphine suppository and subcutaneous morphine in cancer pain: a randomized evaluation. J Clin Oncol 1995; 13: 1520-27.
50. Cohen J. Statistical power analysis for the behavioral sciences, 2nd edn. Hillsdale, NJ: Lawrence Erlbaum, 1988.
51. World Health Organization Expert Committee. Cancer pain relief and palliative care. Technical Report Series No. 804. Geneva: World Health Organization, 1990.
52. Pereira J, Hanson J, Bruera E. The frequency and clinical course of cognitive impairment in patients with terminal cancer. Cancer 1997; 79: 835-42.
53. Bruera E, Schoeller T, Wenk R et al. A prospective multicenter assessment of the Edmonton Staging System for cancer pain. J Pain Symptom Manage 1995; 10: 348-55.
54. Zenz M. Morphine myths: sedation, tolerance, addiction. Postgrad Med J 1991; 67(Suppl. 5): S100-S102.
55. Cleeland CS. The impact of pain on the patient with cancer. Cancer 1984; 54: 2635-41.
56. Foley KM. Pain assessment and cancer pain syndromes. In: Doyle D, MacDonald N eds. Oxford textbook of palliative medicine. Oxford: Oxford Medical Publications, 1993: 148-65.