Unmet need and problems accessing specialty medical and related services among children with special health care needs

Maternal and Child Health Journal

Volumn 10, Issue 2, 2006, Pages 201-216

  Warfield, Marji Erickson ^a   Gulley, Stephen ^a  

^a BRANDEIS UNIVERSITY   (United States)

Author keywords

Access problems; Access to care; Child disability; Children with special health care needs (CSHCN); Unmet need

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CHILD; CHILD BEHAVIOR; CHILD HEALTH CARE; DISABILITY; EDUCATION; FEMALE; HEALTH CARE ACCESS; HEALTH CARE DELIVERY; HEALTH CARE NEED; HEALTH INSURANCE; HEALTH SERVICE; HOME CARE; HUMAN; INFANT; MAJOR CLINICAL STUDY; MALE; MEDICAL SPECIALIST; MENTAL HEALTH; PEDIATRICIAN; PRIORITY JOURNAL; SOCIAL PROBLEM;

ADOLESCENT; ATTITUDE TO HEALTH; CHILD HEALTH SERVICES; CHILD, PRESCHOOL; DISABLED CHILDREN; HEALTH CARE SURVEYS; HEALTH SERVICES ACCESSIBILITY; HOME CARE SERVICES; HUMANS; INFANT; INSURANCE, HEALTH; MEDICAL ASSISTANCE; MENTAL HEALTH SERVICES; NEEDS ASSESSMENT; PARENTS; SOCIOECONOMIC FACTORS; UNITED STATES;

EID: 33646096739     PISSN: 10927875     EISSN: 15736628     Source Type: Journal    
DOI: 10.1007/s10995-005-0041-3     Document Type: Article

References (55)

1. Stein R. Healthcare for children: What's right, what's wrong, what's next ? New York: United Hospital Fund, 1997.
2. Beers NS, Kemeny A, Sherritt L, Palfrey J. Variations in State-Level definitions: Children with special health care needs. Public Health Rep 2003;118:434-47.
3. Gortmaker S, Sappenfield W. Chronic childhood disorders: Prevalence and impact. Pediatr Clin N Am 1984;31:3-18.
4. Muldoon J, Neff JM, Gay JC. Profiling the health service needs of populations using diagnosis-based classification systems. J Ambulat Care Manag 1997;20:1-18.
5. Perrin E, Newacheck P, Pless I, Stein R. Issues involved in the definition and classification of chronic health issues. Pediatrics 1993;91(4):787-93.
6. Stein R, Bauman L, Westbrook L, Coupley S, Ireys H. Framework for identifying children who have chronic conditions: The case for a new definition. J Pediatr 1993;122(3):342-7.
7. Pless I, Pinkerton P. Chronic childhood disorders: Promoting patterns of adjustment. London: Kimperton, 1975.
8. Bethell C. Quality information for people with special health care needs, 2000.
9. Perrin J. Health services research for children with disabilities. Milbank Quart 2002;80(2):303-24.
10. Shenkman E, Wu S, Nackashi J, Sherman J. Managed care organizational characteristics and health care used among children with special health care needs. Health Services Res 2003;38(6):1599-624.
11. Weller W, Minkowitz C, Anderson G. Utilization of medical and health related services among school-age children and adolescents with special health care needs (1997 National Health Interview Survey on Disability [NHIS-D] Baseline Data). Pediatrics 2003;112(3):593-603.
12. Witt WK, Riley JA. Mental health services use among school-aged children with disabilities: The role of sociodemographics, functional limitations, family burdens, and care coordination. Health Services Res 2003;38(6, Part l):1441-66.
13. Newacheck P, McManus M, Fox H. Access to health care for children with special health care needs. Pediatrics 2000;105(4):760-6.
14. Silver E, Stein R. Access to care, unmet health needs & poverty status among children with and without chronic conditions. Ambulat Pediatr 2001;1(6):314-20.
15. Simpson L, Fraser I. Children and managed care: What research can, can't and should tell us about impact. Med Care Res Rev 1999;56(Supplement 2):9-36.
16. Kuhlthau K, Nyman R, Ferris T, Beal, Correlates of use of specialty care. Pediatrics, 2004;113(3):e249-55.
17. Newacheck P, Hughes D, Hung Y, Wong S, Stoddard J. Health needs and consumer views the unmet health needs of America's children. Pediatrics 2000;105(4):989-97.
18. Krauss M, Gulley S, Sciegai M, Wells N. Access to specialty medical care for children with mental retardation, autism, and other special health care needs. Mental Retard 2003;41(5):329-39.
19. Mayer M, Skinner A, Slifkin R. Unmet need for routine and specialty care: Data from the national survey of children with special needs. Pediatrics 2004;113(2):e109-15.
20. Davidoff A. Insurance for children with special health care needs; patterns of coverage and burden on families to provide adequate insurance. Pediatrics 2004;114(2):394-403.
21. Bethell C, Read D, Stein R, Blumberg S, Wells N, Newacheck P. Identifying children with special health care needs: Development and evaluation of a short screening instrument. Ambulat Pediatr 2002;2(1):38-48.
22. Mitchell J, Gaskin D. Do children receiving supplemental security income who are enrolled in medicaid fare better under a fee-for-service or comprehensive capitalization model? Pediatrics 2004;114(1):196-204.
23. Krauss M, Wells N, Gulley S, Anderson B. Navigating systems of care: Results from a national survey of families of children with special health care needs. Child Services Soc Policy Res Practice 2001;4(4):165-87.
24. Krauss M, Gulley S, Leiter V, Minihan P, Sciegaj M. The Family Partners Project: Report on a National Survey of Families of Children with Special Health Care Needs, 2000.
25. Ireys H, Nelson R. New federal policy for children with special health care needs: Implications for pediatricians. Pediatrics 1992;90(3):321-7.
26. Perrin J, Stein REK. Reinterpreting disability. Changes in supplemental security income for children. Pediatrics 1991;88:1047-51.
27. McPherson M. A new definition of children with special health care needs. Pediatrics 1998;102(1):137-40.
28. Horowitz S, Leaf PJ, Leventhal JM. Identification of psychosocial problems in pediatric care; do family attitudes make a difference? Arch Pediatr Adolesc Med 1998;152:367-71.
29. Dulcan M, Costello EJ, Costello AJ, Edelbrock C, Janiszewski S. The pediatrician as gatekeeper to mental health for children: Do parents' concerns open this gate? J Am Child Adolesc Psychiatry 1990;29:453-8.
30. Strickland B., McPherson M, Weissman G, Van Dyck P, Huang ZJ, Newacheck P. Access to the medical home: Results of the national survey of children with special health care needs. Pediatrics 2004;113(5):1485-92.
31. Kelleher K, Childs GE, Wasserman RC, McInerny TK, Nutting PA, Gardner P. Insurance status and recognition of psychosocial problems: A report from the pediatric research in office settings and the ambulatory sentinel practice networks. Arch Pediatric Adolesc Med 1997;151:1109-15.
32. Blumenthal D, Causino N, Chang YC. The duration of ambulatory visits to physicians. J Fam Practice 1999;48(4):264-71.
33. Reid R, Hurtado MP, Starfield B. Managed care, primary care and quality for children. Curr Opin Pediatr 1996;8(2):164-70.
34. Briggs-Gowan M, Horowitz S, Stone ME, Leventhal JM, Leaf PJ. Mental health in pediatric settings: Distribution of disorders and factors related to service use. J Am Child Adolesc Psychiatry 2000;39(7):841-8.
35. Murphy J., Ichinose C, Hicks RC. Utility of the Pediatric Sympton Checklist as a psychosocial screen to meet the federal Early and Periodic Screening Diagnosis and Treatment (EPSDT) standards: A pilot study. J Pediatr 1996;129(6):864-9.
36. Healthy People 2010, 2004.
37. American Academy of Pediatrics Committee on Children with Disabilities. Care Coordination: Integrating Health and Related Systems of Care for Children. Pediatrics 1999;104:978-81.
38. Cheng T. Primary care pediatrics: 2004 and beyond. Pediatrics 2004:1802-9.
39. Fox HL, SJ, McManus MA. Generous coverage for children with special health care needs in most states. Maternal and Child Health Policy Research Center, 2003.
40. Gannotti M, Kaplan LC, Handwerker WP, Groce NE. Cultural influences on health care use: Differences in perceived unmet needs and expectations of providers by Latino and Euro-American parents of children with special health care needs. J Dev Behav Pediatr, 2004;25(3):156-66.
41. Card D, Huffstetler W. Chronic illness: Impact and interventions. Home Health Care 2002;4:513-30.
42. Guillett S. Preparing student nurses to provide home care for children with disabilities. A strength-based approach. Home Health Care Manag Practice 2002;15(1):47-58.
43. Newacheck P, Stoddard J, Halfton N. Children with chronic illness and Medicaid managed care. Pediatrics 1997;93:497-500.
44. Szilagyi P. Care of children with special health care needs. Future Children 2003;13(1):137-52.
45. Kuhlthau K, Walker DK, Perrin JM, Bauman L, Gortmaker SL, Newacheck PW, Stein EK. Assessing managed care for children with chronic conditions. Health Affairs 1998;17:42-52.
46. Margolis P, Carey T, Lannon CM, Earp JL, Leninger L. The rest of the access-to care puzzle: Addressing structural and personal barriers to health care for socially disadvantaged children. Arch Pediatr Adolesc Med 1995;149:541-5.
47. Cull W, Yudkowsky K, Shipman SA, Pan RJ. Pediatric training and job market trends: Results from the American Academy of Pediatrics third year resident survey. Pediatrics 1997;112(4):787-92.
48. Freed G, Nahra TA, Wheeler RC. Predicting the pediatric workforce: Use of trend analysis. Am Med Assoc 2003:570-5.
49. Shipman S, Lurie JD, Goodman DC. The general pediatrician: Projecting future workforce supply and requirements. Pediatrics 2004;113(3):435-42.
50. Gray J, Safrain C, Davis RB, Pompilo-Weitzner G, Stewart JE, Zaccagnini L, Pursley D. CareLink: Using the internet and telemedicine to improve care for high-risk infants. Pediatrics 2000;106(6):1318-27.
51. Karp W, Grigsby K, McSwiggam-Hardin M, Crotteau-Pursley A, Adams LN, Bell W, Stachman ME, Kanto WP. Use of telemedicine for children with special health care needs. Pediatrics 2000;105(4):843-7.
52. Sulzbacher S, Mas J, Larson EH, Shurtleff DB, Pediatric tele health consultation to rural schools and clinics in the Pacific northwest. J Special Educ Technol 2004;19(1):35-40.
53. Peters C. Children with special health care needs: Minding the gaps, 2005.
54. American Academy of Pediatrics Medical Home Initiatives for Children with Special Needs Project Advisory Committee. Policy Statement. The Medical Home. 2002; 110(1).
55. Cooley W, McAllister JW, Sherrieb K, Clark RE. The medical home index: Development and validation of a new practice-level measure. Ambulat Pediatr 2003;3(4):173-80.