Sexual and reproductive health in young people with congenital heart disease: A systematic review of the literature

Pediatric Cardiology

Volumn 26, Issue 6, 2005, Pages 805-811

  Hargrove, A ^a   Penny, D J ^b,c   Sawyer, S M ^a,c  

^a ROYAL CHILDREN'S HOSPITAL   (Australia)

^b ROYAL CHILDREN'S HOSPITAL   (Australia)

^c UNIVERSITY OF MELBOURNE   (Australia)

Author keywords

Adolescents; Congenital heart disease; Contraception; Pregnancy; Reproductive health; Sexual health

Indexed keywords

CONGENITAL HEART DISEASE; COUNSELING; GROUPS BY AGE; HEALTH CARE; HEALTH PROGRAM; HEART DISEASE; HUMAN; MEDICAL INFORMATION; MEDLINE; PARENTHOOD; PATIENT CARE; REPRODUCTION; REVIEW; RISK ASSESSMENT; SCIENTIFIC LITERATURE; SCREENING; SEXUAL HEALTH;

ADOLESCENT; ADULT; FEMALE; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HEALTH STATUS; HEART DEFECTS, CONGENITAL; HUMANS; MALE; PARENTING; REPRODUCTION; SEX EDUCATION; SEXUAL BEHAVIOR;

EID: 31144463956     PISSN: 01720643     EISSN: None     Source Type: Journal    
DOI: 10.1007/s00246-005-0950-3     Document Type: Review

References (37)

1. Avila WS, Grinberg M, Snitcowsky R, et al. (1995) Maternal and fetal outcome in pregnant women with Eisenmenger's syndrome. Eur Heart J 16:460-464
2. Blum RW (1997) Sexual health contraceptive needs of adolescents with chronic conditions. Arch Pediatr Adolesc Med 151:290-297
3. Burn J, Brennan P, Little J, et al. (1998) Recurrence risks in offspring of adults with major heart defects; results from first cohort of British collaborative study. Lancet 351:311-316
4. Burrows RF, Burrows EA (1998) Assessing the teratogenic potential of angiotensin-converting enzyme inhibitors in pregnancy. Aust N Z J Obstet Gynaecol 38:306-311
5. Cetta F, Podlecki DC, Bell TJ (1993) Adolescent knowledge of bacterial endocarditis prophylaxis. J Adolesc Health 14:540-542
6. Cetta F, Warnes CA (1995) Adults with congenital heart disease: patient knowledge of endocarditis prophylaxis. Mayo Clin Proc 70:50-54
7. Deanfield J, Thaulow E, Warnes C, et al. (2003) Management of grown up congenital heart disease. Eur Heart J 24:1035-1084
8. Dore A, de Guise P, Mercier LA Transition of care to adult congenital heart centres: what do patients know about their heart condition? Can J Cardiol 18:141-146
9. Doucet SB (1981) The young adult's perceptions of the effect of congenital heart disease on his life style. Nurs Pap 13:3-16
10. Ferencz C, Wiegmann FL Jr, Dunning RE (1980) Medical knowledge of young persons with heart disease. J Sch Health 50:133-136
11. Foster E, Graham TP, Jr, Driscoll DJ, et al. (2001) Task force 2: special health care needs of adults with congenital heart disease. J Am Coll Cardiol 37:1176-1183
12. Gantt LT (1992) Growing up heartsick: the experiences of young women with congenital heart disease. Health Care Women Int 13:241-248
13. Heller A, Rafman S, Zvagulis I, Pless IB (1985) Birth defects and psychosocial adjustment. Am J Dis Child 139:257-263
14. Horner T, Liberthson R, Jellinek MS (2000) Psychosocial profile of adults with complex congenital heart disease. Mayo Clin Proc 75:31-36
15. Kantoch MJ, Collins-Nakai RL, Medwid S, Ungstad E, Taylor DA (1997) Adult patients' knowledge about their congenital heart disease. Can J Cardiol 13:641-645
16. MacMahon B, Mckeown T, Record RG (1953) The incidence and life expectation of children with congenital heart disease. Br Heart J 15:121-129
17. Mendelson MA (1994) Contraception for women with congenital heart disease. Heart Dis Stroke 3:266-269
18. Mendelson MA (2001) Gynecologic and obstetric issues in the adolescent with heart disease. Adolesc Med 12:163-174
19. Moons P, De Volder E, Budts W, et al. (2001) What do adult patients with congenital heart disease know about their disease, treatment, and prevention of complications? A call for structured patient education. Heart 86:74-80
20. Neinstein L (1998) Contraception in women with special medical needs. Compr. Ther 24:229-250
21. Orr DP, Weller SC, Satterwhite B, Pless IB (1984) Psychosocial implications of chronic illness in adolescence. J Pediatr 104:152-157
22. Romano-Zelekha O, Hirsh R, Blieden L, Green M, Shohat T (2001) The risk for congenital heart defects in offspring of individuals with congenital heart defects. Clin Genet 59:325-329
23. Saunders CP, Roberts GJ (1997) Dental attitudes, knowledge, and health practices of parents of children with congenital heart. Arch Dis Child 76:539-540
24. Sawyer SM (2003) Developmentally appropriate healthcare for young people with chronic illness: questions of philosophy, policy, and practice. Pediatr Pulmonol 36:363-365
25. Sawyer SM, Roberts KV (1999) Sexual and reproductive health in young people with spina bifida. Dev Med Child Neurol 41:671-675
26. Sawyer SM, Tully MA, Colin AA (2001) Reproductive and sexual health in males with cystic fibrosis: a case for health professional education and training. Adolescent Health 28(1):36-40
27. Schor DP (1987) Sex and sexual abuse in developmentally disabled adolescents. Semin. Adolesc. Med 3:1-7
28. Sholler GF, Celermajer JM (1984) Prophylaxis of bacterial endocarditis: awareness of need. Med J Aust 140:650-652
29. Somerville J (1989) Congenital heart disease in the adolescent. Arch Dis Child 64:771-773
30. Somerville J (1997) Management of adults with congenital heart disease: an increasing problem. Annu Rev Med 48:283-293
31. Suris JC, Resnick MD, Cassuto N, Blum RW (1996) Sexual behavior of adolescents with chronic disease and disability. J Adolesc Health 19:124-131
32. Therrien J, Gatzoulis M, Graham T, et al. (2001) Canadian Cardiovascular Society Consensus Conference update: recommendations for the management of adults with congenital heart disease - part II. Can J Cardiol 7:1029-1050
33. Uzark K, Von Bargen-Mazza P, Messiter E (1989) Health education needs of adolescents with congenital heart disease. J Pediatr Health Care 3:137-143
34. Veldtman GR, Matley SL, Kendall L, et al. (2000) Illness understanding in children and adolescents with heart disease. Heart 84:395-397
35. Warnes CA, Liberthson R, Danielson GK, et al. (2001) Task force 1: the changing profile of congenital heart disease in adult life. J Am Coll Cardiol 37:1170-1175
36. Webb GD, Williams RG (2001) Care of the adult with congenital heart disease. J Am Coll Cardiol 37:1161-98
37. Wright M, Jarvis S, Wannamaker E, Cook D (1985) Congenital heart disease: functional abilities in young adults. Arch Phys Med Rehabil 66:289-293