Integration of palliative care throughout HIV disease

The Lancet Infectious Diseases

Volumn 12, Issue 7, 2012, Pages 571-575

  Simms, Victoria ^a,b   Higginson, Irene J ^b   Harding, Richard ^b,c  

^a LONDON SCHOOL OF HYGIENE AND TROPICAL MEDICINE   (United Kingdom)

^b KING'S COLLEGE LONDON   (United Kingdom)

^c UNIVERSITY OF CAPE TOWN   (South Africa)

Author keywords

[No Author keywords available]

Indexed keywords

ANTIRETROVIRUS AGENT;

AFRICA; CANCER PATIENT; CAREGIVER; HEALTH CARE QUALITY; HIGHLY ACTIVE ANTIRETROVIRAL THERAPY; HUMAN IMMUNODEFICIENCY VIRUS INFECTION; INFECTION RATE; LIFE EXPECTANCY; MORTALITY; NEUROPATHY; NOTE; NURSING CARE; OUTCOME ASSESSMENT; PAIN; PALLIATIVE THERAPY; PRACTICE GUIDELINE; PREVALENCE; PRIORITY JOURNAL; QUALITY OF LIFE; TERMINAL CARE; WORLD HEALTH ORGANIZATION;

AFRICA; ANTI-RETROVIRAL AGENTS; HEALTH SERVICES ACCESSIBILITY; HIV INFECTIONS; HUMANS; PAIN; PALLIATIVE CARE; QUALITY OF LIFE;

EID: 84862758608     PISSN: 14733099     EISSN: 14744457     Source Type: Journal    
DOI: 10.1016/S1473-3099(12)70085-3     Document Type: Note

References (75)

1. Berg KM, Cooperman NA, Newville H, Arnsten JH Self-efficacy and depression as mediators of the relationship between pain and antiretroviral adherence. AIDS Care 2009, 21:244-248.
2. Voss JG, Sukati NA, Seboni NM, et al. Symptom burden of fatigue in men and women living with HIV/AIDS in Southern Africa. J Assoc Nurses AIDS Care 2007, 18:22-31.
3. Capili B, Anastasi JK A symptom review: nausea and vomiting in HIV. J Assoc Nurses AIDS Care 1998, 9:47-56.
4. Ammassari A, Antinori A, Aloisi MS, et al. Depressive symptoms, neurocognitive impairment, and adherence to highly active antiretroviral therapy among HIV-infected persons. Psychosomatics 2004, 45:394-402.
5. Shawn ER, Campbell L, Mnguni MB, Defilippi KM, Williams AB The spectrum of symptoms among rural South Africans with HIV infection. J Assoc Nurses AIDS Care 2005, 16:12-23.
6. Trevino KM, Pargament KI, Cotton S, et al. Religious coping and physiological, psychological, social and spiritual outcomes in patients with HIV/AIDS: cross-sectional and longitudinal findings. AIDS Behav 2010, 14:379-389.
7. Thomas F Stigma, fatigue and social breakdown: exploring the impacts of HIV/AIDS on patient and carer well-being in the Caprivi Region, Namibia. Soc Sci Med 2006, 63:3174-3187.
8. Russell S, Seeley J, Ezati E, Wamai N, Were W, Bunnell R Coming back from the dead: living with HIV as a chronic condition in rural Africa. Health Policy Plan 2007, 22:344-347.
9. Simms V, Higginson IJ, Harding R What palliative care-related problems do patients experience at HIV diagnosis? A systematic review of the literature. J Pain Sympt Manage 2011, 42:734-753.
10. Willard S, Holzemer WL, Wantland DJ, et al. Does "asymptomatic" mean without symptoms for those living with HIV infection?. AIDS Care 2009, 21:322-328.
11. Greeff M, Phetlhu R, Makoae LN, et al. Disclosure of HIV status: experiences and perceptions of persons living with HIV/AIDS and nurses involved in their care in Africa. Qual Health Res 2008, 18:311-324.
12. Easterbrook P, Meadway J The changing epidemiology of HIV infection: new challenges for HIV palliative care. J R Soc Med 2001, 94:442-448.
13. Harding R, Molloy T, Easterbrook P, Frame K, Higginson IJ Is antiretroviral therapy associated with symptom prevalence and burden?. Int J STD AIDS 2006, 17:400-405.
14. Harding R, Molloy T Positive futures? The impact of HIV infection on achieving health, wealth and future planning. AIDS Care 2008, 20:565-570.
15. Bedimo RJ, McGinnis KA, Dunlap M, Rodriguez-Barradas MC, Justice AC Incidence of non-AIDS-defining malignancies in HIV-infected versus noninfected patients in the HAART era: impact of immunosuppression. J Acquir Immun Defic Syndr 2009, 52:203-208.
16. Collins K, Harding R Improving HIV management in sub-Saharan Africa: how much palliative care is needed?. AIDS Care 2007, 19:1304-1306.
17. Life expectancy of individuals on combination antiretroviral therapy in high-income countries: a collaborative analysis of 14 cohort studies. Lancet 2008, 372:293-299. The Antiretroviral Therapy Cohort Collaboration.
18. Marin B, Thiebaut R, Bucher HC, et al. Non-AIDS-defining deaths and immunodeficiency in the era of combination antiretroviral therapy. AIDS 2009, 23:1743-1753.
19. Harding R, Easterbrook P, Dinat N, Higginson IJ Pain and symptom control in HIV disease: under-researched and poorly managed. Clin Infect Dis 2005, 40:491-492.
20. Harding R, Krakauer EL, Sithole Z, De Lima L, Selman L The 'lost' HIV population: time to refocus our clinical and research efforts. AIDS 2009, 23:145-146.
21. Harding R, Gwyther L, Mwangi Powell F Treating HIV/AIDS patients until the end of life. J Acquir Immun Defic Syndr 2007, 44:364.
22. Harding R, Simms V, Krakauer E, et al. Quality HIV care to the end of life. Clin Infect Dis 2011, 52:553-554.
23. Moss V Palliative care in advanced HIV disease: presentation, problems, and palliation. AIDS 1990, 4(suppl 1):S235-S242.
24. Kaldjian LC, Jekel JF, Friedland G End-of-life decisions in HIV-positive patients: the role of spiritual beliefs. AIDS 1998, 12:103-107.
25. Curtis JR, Patrick DL, Caldwell E, Greenlee H, Collier AC The quality of patient-doctor communication about end-of-life care: a study of patients with advanced AIDS and their primary care clinicians. AIDS 1999, 13:1123-1131.
26. Rabow MW, McPhee SJ End-of-life care. AIDS 2001, 15:1587.
27. Eramova I, Matic S, Munz M HIV/AIDS treatment and care: clinical protocols for the WHO European Region (accessed April 17, 2012). http://www.euro.who.int/__data/assets/pdf_file/0004/78106/E90840.pdf.
28. AIDS: palliative care UNAIDS, (accessed May 1, 2012). http://www.unaids.org/en/media/unaids/contentassets/dataimport/publications/irc-pub05/jc453-pallicare-tu_en.pdf.
29. National cancer control programmes: policies and managerial guidelines WHO, (accessed May 1, 2012). http://www.who.int/cancer/publications/nccp2002/en/index.html.
30. Harding R, Karus D, Easterbrook P, Raveis VH, Higginson IJ, Marconi K Does palliative care improve outcomes for patients with HIV/AIDS? A systematic review of the evidence. Sex Transm Infect 2005, 81:5-14.
31. Palliative care: symptom management and end of life care-integrated management of adolescent and adult illness WHO, (accessed April 17, 2012). http://www.who.int/3by5/publications/documents/en/genericpalliativecare082004.pdf.
32. Wright M, Wood J, Lynch T, Clark D Mapping levels of palliative care development: a global view (accessed May 1, 2012). http://www.hospicecare.com/resources/pdf-docs/world_map_report.pdf.
33. Saunders C Hospice for AIDS patients: new teams should be developed for AIDS care. Am J Hospice Care 1987, 4:7-8.
34. Clark D From margins to centre: a review of the history of palliative care in cancer. Lancet Oncol 2007, 8:430-438.
35. Sepulveda C, Marlin A, Yoshida T, Ullrich A Palliative care: the World Health Organization's global perspective. J Pain Sympt Manage 2002, 24:91-96.
36. Kelley AS, Meier DE Palliative care: a shifting paradigm. N Engl J Med 2010, 363:781-782.
37. Dixon P The truth about AIDS 2002, Kingsway, London.
38. Butters E, Higginson I, George R, Smits A, McCarthy M Assessing the symptoms, anxiety and practical needs of HIV/AIDS patients receiving palliative care. Qual Life Res 1992, 1:47-51.
39. Marcetti A, Lunn S A place of growth: counselling and pastoral care of people with AIDS 1993, Darton, Longman and Todd, London.
40. Galazka M Hospice for AIDS patients: interesting times ahead. Am J Hospice Care 1987, 4:11-14.
41. Gibbs LME, Ellershaw JE, Williams MD Caring for patients with HIV disease: the experience of a generic hospice. AIDS Care 1997, 9:601-607.
42. Butters E, Higginson I Two HIV/AIDS community support teams: patient characteristics, problems at referral and during the last 6 weeks of life. AIDS Care 1995, 7:593-603.
43. Gatter PN Anthropology, HIV and contingent identities. Soc Sci Med 1995, 41:1523-1533.
44. Miller D, Weber J, Green J The management of AIDS patients 1986, Macmillan, London.
45. Meyer M Palliative care and AIDS: 1-pain. Int J STD AIDS 1999, 10:80-86.
46. Armes PJ, Higginson IJ What constitutes high-quality HIV/AIDS palliative care?. J Palliat Care 1999, 15:5-12.
47. Grothe TM, Brody RV Palliative care for HIV disease. J Palliat Care 1995, 11:48-49.
48. Foley FJ, Flannery J, Graydon D, Flintoft G, Cook D AIDS palliative care: challenging the palliative care paradigm. J Palliat Care 1995, 11:19-22.
49. Roy DJ Is there nothing between us?. J Palliat Care 1995, 11:3-4.
50. Goldstone I Palliative care for HIV disease: the desirable vs the possible. J Palliat Care 1995, 11:54-57.
51. Robb V Working on the edge: palliative care for substance users with AIDS. J Palliat Care 1995, 11:50-53.
52. Irvine M Closing of Chicago hospice points to changing face of epidemic. The Dispatch 1999, Sect 6A, (accessed May 1, 2012). http://news.google.com/newspapers?nid=1734&dat=19990309&id=Ve0bAAAAIBAJ&sjid=31IEAAAAIBAJ&pg=2683,838512.
53. Selwyn PA Palliative care and social justice. J Pain Sympt Manage 2008, 36:513-515.
54. Selwyn PA, Arnold R From fate to tragedy: the changing meanings of life, death, and AIDS. Ann Intern Med 1998, 129:899-902.
55. Selwyn PA, Rivard M Palliative care for AIDS: challenges and opportunities in the era of highly active anti-retroviral therapy. J Palliat Med 2003, 6:475-487.
56. Clark D, Wright M, Hunt J, Lynch T Hospice and palliative care development in Africa: a multi-method review of services and experiences. J Pain Sympt Manage 2007, 33:698-710.
57. Grant L, Downing J, Namukwaya E, Leng M, Murray S Palliative care in Africa since 2005: good progress but much further to go. BMJ Support Palliat Care 2011, 1:118-122.
58. Harding R, Higginson IJ Palliative care in sub-Saharan Africa. Lancet 2005, 365:1971-1977.
59. Bond C, Lavy V, Wooldridge R Palliative care toolkit: improving care from the roots up in resource-limited settings (accessed May 1, 2012). http://www.helpthehospices.org.uk/our-services/international/what-we-do-internationally/education-and-training/palliative-care-toolkit.
60. Harding R, Stewart K, Marconi K, O'Neill JF, Higginson IJ Current HIV/AIDS end-of-life care in sub-Saharan Africa: a survey of models, services, challenges and priorities. BMC Public Health 2003, 3:33.
61. Larson BA, Brennan A, McNamara L, et al. Early loss to followup after enrolment in pre-ART care at a large public clinic in Johannesburg, South Africa. Trop Med Int Health 2010, 15(suppl 1):43-47.
62. Fox MP, Rosen S Patient retention in antiretroviral therapy programs up to three years on treatment in sub-Saharan Africa, 2007-2009: systematic review. Trop Med Int Health 2010, 15(suppl 1):1-15.
63. Hardon AP, Akurut D, Comoro C, et al. Hunger, waiting time and transport costs: time to confront challenges to ART adherence in Africa. AIDS Care 2007, 19:658-665.
64. Ammassari A, Murri R, Pezzotti P, et al. Self-reported symptoms and medication side effects influence adherence to highly active antiretroviral therapy in persons with HIV infection. J Acquir Immun Defic Syndr 2001, 28:445-449.
65. Roura M, Busza J, Wringe A, Mbata D, Urassa M, Zaba B Barriers to sustaining antiretroviral treatment in Kisesa, Tanzania: a follow-up study to understand attrition from the antiretroviral program. AIDS Patient Care STDs 2009, 23:203-210.
66. Temel JS, Greer JA, Muzikansky A, et al. Early palliative care for patients with metastatic non-small-cell lung cancer. N Engl J Med 2010, 363:733-742.
67. Harding R, Brits H, Penfold S Paediatric antiretroviral therapy outcomes under HIV hospice care in South Africa. Int J Palliat Nurs 2009, 15:142-145.
68. Jagwe J, Merriman A Uganda: delivering analgesia in rural Africa: opioid availability and nurse prescribing. J Pain Sympt Manage 2007, 33:547-551.
69. I was sick and you cared for me: a church-based response to palliative care in Tanzania Tearfund, (accessed April 11, 2012). http://tilz.tearfund.org/webdocs/Tilz/HIV/Palliative%20care%20case%20study%20-%20final.pdf?palliative%20care%20in%20Tanzania.
70. Justice AC, Rabeneck L, Hays RD, Wu AW, Bozzette SA Sensitivity, specificity, reliability, and clinical validity of provider-reported symptoms: a comparison with self-reported symptoms. J Acquir Immun Defic Syndr 1999, 21:126-133. Outcomes Committee of the AIDS Clinical Trials Group.
71. Fontaine A, LaRue F, Lassauniere JM Physicians' recognition of the symptoms experienced by HIV patients: how reliable?. J Pain Sympt Manage 1999, 18:263-270.
72. Davis S Clinical sequelae affecting quality of life in the HIV-infected patient. J Assoc Nurs AIDS Care 2004, 15(5 suppl):28S-33S.
73. WHO's pain ladder WHO, (accessed May 1, 2012). http://www.who.int/cancer/palliative/painladder/en/.
74. Logie DE, Harding R An evaluation of a morphine public health programme for cancer and AIDS pain relief in Sub-Saharan Africa. BMC Public Health 2005, 5:82.
75. Harding R, Powell RA, Kiyange F, Downing J, Mwangi-Powell F Provision of pain- and symptom-relieving drugs for HIV/AIDS in sub-Saharan Africa. J Pain Sympt Manage 2010, 40:405-415.