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Volumn 3, Issue 3, 2012, Pages 30-39

Reproductive Decision Making and Genetic Predisposition to Sudden Cardiac Death

Author keywords

genetic responsibility; LQTS; parental responsibility; prenatal testing; reproductive decision making; sudden cardiac death

Indexed keywords


EID: 84862592663     PISSN: 21507716     EISSN: 21507724     Source Type: Journal    
DOI: 10.1080/21507716.2012.662573     Document Type: Article
Times cited : (6)

References (34)
  • 2
    • 0032706588 scopus 로고    scopus 로고
    • Prenatal diagnosis and selective abortion: A challenge to practice and policy
    • Asch, A. 1999. Prenatal diagnosis and selective abortion: A challenge to practice and policy. American Journal of Public Health, 89(11): 1649-1657.
    • (1999) American Journal of Public Health , vol.89 , Issue.11 , pp. 1649-1657
    • Asch, A.1
  • 3
    • 2942560378 scopus 로고    scopus 로고
    • Defining health and the goals of medicine: Disability equality and prenatal testing: Contradictory or compatible?
    • Asch, A. 2003. Defining health and the goals of medicine: Disability equality and prenatal testing: Contradictory or compatible?. Florida State University Law Review, 30(2): 315-342.
    • (2003) Florida State University Law Review , vol.30 , Issue.2 , pp. 315-342
    • Asch, A.1
  • 4
    • 84927034711 scopus 로고    scopus 로고
    • Where is the sin in synecdoche? Prenatal testing and the parent-child relationship
    • In: Wasserman D., Bickenbach J., Wachbroit R., editors New York, NY: Cambridge University Press
    • Asch, A. and Wasserman, D. 2005. "Where is the sin in synecdoche? Prenatal testing and the parent-child relationship". In Quality of life and human difference: Genetic testing, health care, and disability, Edited by: Wasserman, D., Bickenbach, J. and Wachbroit, R. 172-216. New York, NY: Cambridge University Press.
    • (2005) Quality of life and human difference: Genetic testing, health care, and disability , pp. 172-216
    • Asch, A.1    Wasserman, D.2
  • 6
    • 39049186967 scopus 로고    scopus 로고
    • The moral implications of prenatal genetic testing
    • Chipman, P. 2006. The moral implications of prenatal genetic testing. Penn Bioethics Journal, 2(2): 13-16.
    • (2006) Penn Bioethics Journal , vol.2 , Issue.2 , pp. 13-16
    • Chipman, P.1
  • 7
    • 10744221876 scopus 로고    scopus 로고
    • Predictive, pre-natal and diagnostic genetic testing for Huntington's disease: The experience in Canada from 1987 to 2000
    • Creighton, S., Almqvist, E. W.MacGregor, D. 2003. Predictive, pre-natal and diagnostic genetic testing for Huntington's disease: The experience in Canada from 1987 to 2000. Clinical Genetics, 63(6): 462-475.
    • (2003) Clinical Genetics , vol.63 , Issue.6 , pp. 462-475
    • Creighton, S.1    Almqvist, E.W.2    MacGregor, D.3
  • 8
    • 0026782467 scopus 로고
    • Reproductive choices in couples at risk for genetic disease: A qualitative and quantitative analysis
    • D'Amico, R., Jacopini, G., Vivona, G. and Frontali, M. 1992. Reproductive choices in couples at risk for genetic disease: A qualitative and quantitative analysis. Birth Defects: Original Article Series, 28(1): 41-46.
    • (1992) Birth Defects: Original Article Series , vol.28 , Issue.1 , pp. 41-46
    • D'Amico, R.1    Jacopini, G.2    Vivona, G.3    Frontali, M.4
  • 10
    • 21344461203 scopus 로고    scopus 로고
    • Negotiating responsibility: Case studies of reproductive decision-making and prenatal genetic testing in families facing Huntington disease
    • Downing, C. 2005. Negotiating responsibility: Case studies of reproductive decision-making and prenatal genetic testing in families facing Huntington disease. Journal of Genetic Counseling, 14(3): 219-234.
    • (2005) Journal of Genetic Counseling , vol.14 , Issue.3 , pp. 219-234
    • Downing, C.1
  • 11
    • 0029766883 scopus 로고    scopus 로고
    • Prediction of psychological functioning one year after the predictive test for Huntington's disease and impact of the test result on reproductive decision making
    • Ducruyenaere, M., Evers-Kiebooms, G.Boogaerts, A. 1996. Prediction of psychological functioning one year after the predictive test for Huntington's disease and impact of the test result on reproductive decision making. Journal of Medical Genetics, 33(9): 737-743.
    • (1996) Journal of Medical Genetics , vol.33 , Issue.9 , pp. 737-743
    • Ducruyenaere, M.1    Evers-Kiebooms, G.2    Boogaerts, A.3
  • 13
    • 85047696356 scopus 로고    scopus 로고
    • Predictive DNA-testing for Huntington's disease and reproductive decision making: A European collaborative study
    • Evers-Kiebooms, G., Nys, K.Harper, P. 2002. Predictive DNA-testing for Huntington's disease and reproductive decision making: A European collaborative study. European Journal of Human Genetics, 10(3): 167-176.
    • (2002) European Journal of Human Genetics , vol.10 , Issue.3 , pp. 167-176
    • Evers-Kiebooms, G.1    Nys, K.2    Harper, P.3
  • 14
    • 64949187252 scopus 로고    scopus 로고
    • Opinion about reproductive decision making among individuals undergoing BRCA1/2 genetic testing in a multicentre Spanish cohort
    • Fortuny, D., Balmana, J.Grana, B. 2009. Opinion about reproductive decision making among individuals undergoing BRCA1/2 genetic testing in a multicentre Spanish cohort. Human Reproduction, 24(4): 1000-1006.
    • (2009) Human Reproduction , vol.24 , Issue.4 , pp. 1000-1006
    • Fortuny, D.1    Balmana, J.2    Grana, B.3
  • 15
    • 79952009684 scopus 로고    scopus 로고
    • How personal experiences feature in women's account of use of information for decisions about antenatal diagnostic testing for foetal abnormality
    • France, E. F., Wyke, S., Ziebland, S., Entwistle, V. A. and Hunt, K. 2011. How personal experiences feature in women's account of use of information for decisions about antenatal diagnostic testing for foetal abnormality. Social Science and Medicine, 72(5): 755-762.
    • (2011) Social Science and Medicine , vol.72 , Issue.5 , pp. 755-762
    • France, E.F.1    Wyke, S.2    Ziebland, S.3    Entwistle, V.A.4    Hunt, K.5
  • 16
    • 79958738939 scopus 로고    scopus 로고
    • Making genetics not so important: Family work in dealing with familial hypertrophic cardiomyopathy
    • Geelen, E., Van Hoyweghen, I. and Horstman, K. 2011. Making genetics not so important: Family work in dealing with familial hypertrophic cardiomyopathy. Social Science and Medicine, 72(11)1752-1759.
    • (2011) Social Science and Medicine , vol.72 , Issue.11 , pp. 1752-1759
    • Geelen, E.1    van Hoyweghen, I.2    Horstman, K.3
  • 18
    • 0033181470 scopus 로고    scopus 로고
    • Doing the right thing: Genetic risk and responsibility
    • Hallowell, N. 1999. Doing the right thing: Genetic risk and responsibility. Sociology of Health and Illness, 21(5): 597-621.
    • (1999) Sociology of Health and Illness , vol.21 , Issue.5 , pp. 597-621
    • Hallowell, N.1
  • 19
    • 77956310148 scopus 로고    scopus 로고
    • Genetic risk perception and reproductive decision making among people with epilepsy
    • Helbig, K. L., Bernhardt, B. A., Conway, L. J., Valverde, K. D., Helbig, I. and Sperling, M. R. 2010. Genetic risk perception and reproductive decision making among people with epilepsy. Epilepsia, 51(9): 1874-1877.
    • (2010) Epilepsia , vol.51 , Issue.9 , pp. 1874-1877
    • Helbig, K.L.1    Bernhardt, B.A.2    Conway, L.J.3    Valverde, K.D.4    Helbig, I.5    Sperling, M.R.6
  • 20
    • 25644434379 scopus 로고    scopus 로고
    • Can parents adjust to the idea that their child is at risk for a sudden death?: Psychological impact of risk for long QT syndrome
    • Hendriks, K. S. W. H., Grosfeld, F. J. M.van Tintelen, J. P. 2005. Can parents adjust to the idea that their child is at risk for a sudden death?: Psychological impact of risk for long QT syndrome. American Journal of Medical Genetics, 138A: 107-112.
    • (2005) American Journal of Medical Genetics , vol.138 A , pp. 107-112
    • Hendriks, K.S.W.H.1    Grosfeld, F.J.M.2    van Tintelen, J.P.3
  • 21
    • 42649099942 scopus 로고    scopus 로고
    • Familial disease with a risk of sudden death: A longitudinal study of the psychological consequences of predictive testing for long QT syndrome
    • Hendriks, K. S. W. H., Hendriks, M. M. W. B.Birnie, E. 2008. Familial disease with a risk of sudden death: A longitudinal study of the psychological consequences of predictive testing for long QT syndrome. Heart Rhythm, 5(5): 719-724.
    • (2008) Heart Rhythm , vol.5 , Issue.5 , pp. 719-724
    • Hendriks, K.S.W.H.1    Hendriks, M.M.W.B.2    Birnie, E.3
  • 23
    • 58849153345 scopus 로고    scopus 로고
    • Choosing not to choose: Reproductive responses of parents of children with genetic conditions or impairments
    • Kelly, S. E. 2009. Choosing not to choose: Reproductive responses of parents of children with genetic conditions or impairments. Sociology of Health and Illness, 31(1): 81-97.
    • (2009) Sociology of Health and Illness , vol.31 , Issue.1 , pp. 81-97
    • Kelly, S.E.1
  • 24
    • 79960583646 scopus 로고    scopus 로고
    • Medical disparagement of the disability experience: Empirical evidence for the expressivist objection
    • Klein, D. A. 2011. Medical disparagement of the disability experience: Empirical evidence for the "expressivist objection.". AJOB Primary Research, 2(2): 8-20.
    • (2011) AJOB Primary Research , vol.2 , Issue.2 , pp. 8-20
    • Klein, D.A.1
  • 25
    • 34249950821 scopus 로고    scopus 로고
    • Decision-making about reproductive choices among individuals at-risk for Huntington's disease
    • Klitzman, R., Thorne, D., Williamson, J., Chung, W. and Marder, K. 2007. Decision-making about reproductive choices among individuals at-risk for Huntington's disease. Journal of Genetic Counseling, 16(3): 347-362.
    • (2007) Journal of Genetic Counseling , vol.16 , Issue.3 , pp. 347-362
    • Klitzman, R.1    Thorne, D.2    Williamson, J.3    Chung, W.4    Marder, K.5
  • 26
    • 79953101265 scopus 로고    scopus 로고
    • Negotiating desires and options: How mothers who carry the fragile X gene experience reproductive decisions
    • Raspberry, K. A. and Skinner, D. 2011. Negotiating desires and options: How mothers who carry the fragile X gene experience reproductive decisions. Social Science and Medicine, 72(6): 992-998.
    • (2011) Social Science and Medicine , vol.72 , Issue.6 , pp. 992-998
    • Raspberry, K.A.1    Skinner, D.2
  • 27
    • 52149099016 scopus 로고    scopus 로고
    • Disability and genetics in the era of genomic medicine
    • Scully, J. L. 2008. Disability and genetics in the era of genomic medicine. Nature Reviews Genetics, 9(10): 797-802.
    • (2008) Nature Reviews Genetics , vol.9 , Issue.10 , pp. 797-802
    • Scully, J.L.1
  • 29
    • 40449108169 scopus 로고    scopus 로고
    • Health-related quality of life of children with a positive carrier status for inherited cardiovascular diseases
    • Smets, E. M. A., Stam, M. M. H.Meulenkamp, T. M. 2008. Health-related quality of life of children with a positive carrier status for inherited cardiovascular diseases. American Journal of Medical Genetics Part A, 146A: 700-707.
    • (2008) American Journal of Medical Genetics Part A , vol.146 A , pp. 700-707
    • Smets, E.M.A.1    Stam, M.M.H.2    Meulenkamp, T.M.3
  • 31
    • 23844498764 scopus 로고    scopus 로고
    • Quantifying the federal minimal risk standard: Implications for pediatric research without a prospect of direct benefit
    • Wendler, D., Belsky, L., Thompson, K. M. and Emanuel, E. J. 2005. Quantifying the federal minimal risk standard: Implications for pediatric research without a prospect of direct benefit. Journal of the American Medical Association, 294(7): 826-832.
    • (2005) Journal of the American Medical Association , vol.294 , Issue.7 , pp. 826-832
    • Wendler, D.1    Belsky, L.2    Thompson, K.M.3    Emanuel, E.J.4
  • 32
    • 0242458946 scopus 로고    scopus 로고
    • Paralyzing discord: Workplace safety, paternalism, and the accommodation of biological variance in the Americans with Disabilities Act
    • White, A. G. 2003. Paralyzing discord: Workplace safety, paternalism, and the accommodation of biological variance in the Americans with Disabilities Act. Louisiana Law Review, 63(2): 509-588.
    • (2003) Louisiana Law Review , vol.63 , Issue.2 , pp. 509-588
    • White, A.G.1
  • 33
  • 34
    • 48349118715 scopus 로고    scopus 로고
    • Beyond the myths of coping with loss: Prevailing assumptions versus scientific evidence
    • In: Friedman H. S., Silver R. C., editors New York, NY: Oxford University Press
    • Wortman, C. B. and Boerner, K. 2007. "Beyond the myths of coping with loss: Prevailing assumptions versus scientific evidence". In Foundations of health psychology, Edited by: Friedman, H. S. and Silver, R. C. 285-324. New York, NY: Oxford University Press.
    • (2007) Foundations of health psychology , pp. 285-324
    • Wortman, C.B.1    Boerner, K.2


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.