Where is the sin in synecdoche? Prenatal testing and the parent-child relationship

Quality of Life and Human Difference: Genetic Testing, Health Care, and Disability

Volumn , Issue , 2005, Pages 172-216

  Asch, Adrienne ^a   Wasserman, David ^b  

^a WELLESLEY COLLEGE   (United States)

^b UNIVERSITY OF MARYLAND   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 84927034711     PISSN: None     EISSN: None     Source Type: Book    
DOI: 10.1017/CBO9780511614590.008     Document Type: Chapter

References (46)

1. Alexander, L. 1992. “What MakesWrongful DiscriminationWrong? Biases, Preferences, Stereotypes, and Proxies.” University of Pennsylvania Law Review 141: 149-219.
2. Asch, A. 1989. Reproductive Technology and Disability. In S. Cohen and N. Taub (eds.), Reproductive Laws for the 1990s. Clifton, NJ: Humana Press, pp. 69-124.
3. Asch, A. 1999. “Prenatal Diagnosis and Selective Abortion:AChallenge to Practice and Policy.” American Journal of Public Health 89(11): 1649-57.
4. Asch, A. 2000. “Why I Haven’t Changed My Mind about Prenatal Diagnosis: Reflections and Refinements. In E. Parens and A. Asch (eds.), Prenatal Testing and Disability Rights. Washington, DC: Georgetown University Press, pp. 234-50.
5. Asch, A. 2003. “Disability Equality and Prenatal Testing: Contradictory or Compatible?” (Symposium, Genes and Disability: Defining Health and the Goals of Medicine) Florida State University Law Review 30: 315-341.
6. Asch, A., and Geller, G. 1996. “Feminism, Bioethics, and Genetics.” In Susan Wolf (ed.), Feminism and Bioethics: Beyond Reproduction. New York: Oxford University Press, pp. 318-50.
7. Baily, M. A. 2000. “Why I Had Amniocentesis.” In E. Parens and A. Asch (eds.), Prenatal Testing and Disability Rights.Washington, DC: Georgetown University Press, pp. 64-7.
8. Baxter, C, Poonia, K, Ward, L., and Nadirshaw, Z. 1995. “A Longitudinal Study of Parental Stress and Support: From Diagnosis of Disability to Leaving School.” International Journal of Disability, Development, and Education 42: 125-36.
9. Botkin, J. 2000. “Line Drawing: Developing Professional Standards for Prenatal Diagnostic Services.” In E. Parens and A. Asch (eds.), Prenatal Testing and Disability Rights. Washington, DC: Georgetown University Press, pp. 288-307.
10. Botkin, J. 2003. “Prenatal Diagnosis and the Selection of Children.” (Symposium, Genes and Disability: Defining Health and the Goals of Medicine) Florida State University Law Review 30: 265-293.
11. Cahill, B. M., and Gidden, L. M. 1996. “Influence of Child Diagnosis on Family and Parental Functioning: Down Syndrome versus Other Disabilities.” American Journal of Mental Retardation 101: 149-60.
12. Clarke, A. 1991. “Is Non-directive Genetic Counseling Possible?” Lancet 338: 998-1001.
13. Davidio, J. F., Major, B., and Crocker, J. 2000. “Stigma: Introduction and Overview.” In T. F., Heatherton, R. Kleck, M. R. Hebl, and J. Hull (eds.), The Social Psychology of Stigma. New York: Guilford Press.
14. Duster, T. 1990. Backdoor to Eugenics. New York: Routledge.
15. Dworkin, R. 1977. Taking Rights Seriously. London: Duckworth.
16. Dworkin, R. 1993. Life’s Dominion: An Argument about Abortion and Euthanasia. London: HarperCollins.
17. Feinberg, J. 1982. “Wrongful Life and the Counterfactual Element in Harming.” Social Philosophy & Policy 4(1): 145-78.
18. Ferguson, P. M. 2001. “Mapping the Family: Disability Studies and the Exploration of Parental Response to Disability.” In G. L. Albrecht, K. D. Seelman, and M. Bury (eds.), Handbook of Disability Studies. Thousand Oaks, CA: Sage, pp. 373-95.
19. Ferguson, P. M., Gartner, A., and Lipsky, D. K. 2000. “The Experience of Disability in Families: A Synthesis of Research and Parent Narratives.” In E. Parens and A. Asch (eds.), Prenatal Testing and Disability Rights. Washington, DC: Georgetown University Press, pp. 72-94.
20. Floyd, S. L., and Pomerantz, D. 1999. “Is There a Natural Right to Raise Children?” In L. D. Houlgate (eds.), Morals, Marriage, and Parenthood: An Introduction to Family Ethics. Belmont, CA:Wadsworth, pp. 198-205.
21. Gallimore, R., Weisner, T. S., Kaufman, S. Z., and Bernheimer, L. P. 1989. “The Social Construction of Ecocultural Niches: Family Accommodation of Developmentally Delayed Children.” American Journal of Mental Retardation 94: 216-30.
22. Gillam, l. 1999. “Prenatal Diagnosis and Discrimination against the Disabled.” Journal of Medical Ethics 25: 163-71.
23. Goffman, E. 1963. Stigma: Notes on the Management of Spoiled Identity. Englewood Cliffs, NJ: Prentice-Hall.
24. Kent, D. 2000. “Somewhere a Mockingbird.” In E. Parens and A. Asch (eds.), Prenatal Testing and Disability Rights.Washington, DC: Georgetown University Press, pp. 57-63.
25. Kittay, E., and Kittay, L. 2000. “On the Expressivity and Ethics of Selective Abortion for Disability: Conversations with My Son.” In E. Parens and A. Asch (eds.), Prenatal Testing and Disability Rights. Washington, DC: Georgetown University Press, pp. 165-95.
26. Krauss, M.W. 1993. “Child-Related and Parenting Stress: Similarities and Differences between Mothers and Fathers of Children with Disabilities.” American Journal of Mental Retardation 97: 393-404.
27. Lane, H., and Grodin, M. 1997. “Ethical Issues in Cochlear Implant Surgery: An Exploration into Disease, Disability, and the Best Interests of the Child.” Kennedy Institute of Ethics Journal 7: 231-51.
28. Mawer, S. 1998. Mendel’s Dwarf. New York: Harmony Books.
29. Mundy, L. 2002. “A World of Their Own.” The Washington Post Magazine, March 31, pp.W22, 24.
30. National Digitial Archives of Datasets (NDAD). 1996. Data for Health Authorities Boundaries at April 1996 (PHO-A4.1B). Down’s Syndrome: Diagnoses and Outcomes in the Period 1994 to 1996.” (Data from the National Down Syndrome Cytogenic Register.)
31. Neuberg, S. L., Smith, D. M., and Ascher, T. 2000. “Why People Stigmatize: Toward a Biocultural Framework.” In T. F. Heatherton, R. Kleck, M. R. Hebl, and J. Hull (eds.), The Social Psychology of Stigma. New York: Guilford Press, pp. 31-61.
32. Parens, E. and Asch, A. 2000. “The Disability Rights Critique of Prenatal Genetic Testing: Reflections and Recommendations.” In E. Parens and A. Asch (eds.), Prenatal Testing and Disability Rights. Washington, DC: Georgetown University Press, pp. 3-43.
33. Press, N. 2000. “Assessing the Expressive Character of Prenatal Testing: The Choices Made or the Choices Made Available?” In E. Parens and A. Asch (eds.), Prenatal Testing and Disability Rights. Washington, DC: Georgetown University Press, pp. 214-33.
34. Purdy, L. M. 1996. “Loving Future People.” In his Reproducing Persons: Issues in Feminist Bioethics. Ithaca, NY and London: Cornell University Press, pp. 50-74.
35. Raymer, G. 2003. “Multiple Birth Mothers Have Their ‘Spare’ Babies Aborted.” Daily Mail (London), March 10, p. 19.
36. Ruddick, Sara. 1989. Maternal Thinking: Towards a Politics of Peace. Boston: Beacon Press.
37. Ruddick, W. 1999. “Parenthood: Three Concepts and a Principal.” In L. D. Houlgate (ed.), Morals, Marriage, and Parenthood: An Introduction to Family Ethics. Belmont, CA:Wadsworth, pp. 242-251.
38. Ruddick, W. 2000. “Ways to Limit Prenatal Testing.” In E. Parens and A. Asch (eds.), Prenatal Testing and Disability Rights. Washington, DC: Georgetown University Press, pp. 95-107.
39. Sandel, M. 2004. “The Case against Perfection: What’s Wrong with Designer Children, Bionic Athletes, and Genetic Engineering.” Atlantic Monthly 293(13).
40. Satz, A. 1999. “Prenatal GeneticTesting and Discrimination against the Disabled: A Conceptual Analysis.” Monash Bioethics Review 18(14): 11-22.
41. SeeAbility (Seeing beyond Disability). 2004. “Overview. Juvenile Batten’s Disease. Symptoms.” .
42. Wachbroit, R., and Wasserman, D. 1995. “Patient Autonomy and Value-Neutrality in Nondirective Genetic Counseling.” Stanford Law & Policy Review 6: 103-11.
43. Wasserman, D. 1998. “Response: Wasserman on Mahowald.” In A. Silvers, D.
44. Wasserman, D. and M. Mahowald, 1998. Disability, Difference, Discrimination: Perspective on Justice in Bioethics and Public Policy. Lanham, MD: Rowman and Littlefield, pp. 277-83.
45. Wasserman, D. 2003.“AChoice of Evils in PrenatalTesting.” (Symposium, Genes and Disability: Defining Health and the Goals of Medicine) Florida State University Law Review 30: 295-313.
46. Weiss, M. 1996. “Conditional Love: Parents’ Attitudes towards Handicapped Children.” Westport, CT: Bergin and Garvey.