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Volumn 72, Issue 11, 2011, Pages 1752-1759

Making genetics not so important: Family work in dealing with familial hypertrophic cardiomyopathy

Author keywords

Communication; Familial hypertrophic cardiomyopathy; Family work; Genetic testing; New genetics; The Netherlands

Indexed keywords

CARDIOVASCULAR DISEASE; FAMILY STRUCTURE; GENETIC ANALYSIS; GENETICS; QUALITATIVE ANALYSIS; TESTING METHOD;

EID: 79958738939     PISSN: 02779536     EISSN: 18735347     Source Type: Journal    
DOI: 10.1016/j.socscimed.2010.06.012     Document Type: Article
Times cited : (26)

References (28)
  • 2
    • 0031991614 scopus 로고    scopus 로고
    • Professional disclosure of familial genetic information. The American Society of Human Genetics Social Issues Subcommittee on Familial Disclosure
    • ASHG Statement
    • ASHG Statement Professional disclosure of familial genetic information. The American Society of Human Genetics Social Issues Subcommittee on Familial Disclosure. American Journal of Human Genetics 1998, 62:474-483.
    • (1998) American Journal of Human Genetics , vol.62 , pp. 474-483
  • 3
    • 77949655168 scopus 로고    scopus 로고
    • Genetic diagnostics for hereditary breast cancer. Displacement of uncertainty and responsibility
    • Palgrave Macmillan, Hampshire, G. de Vries, K. Horstman (Eds.)
    • Boenink M. Genetic diagnostics for hereditary breast cancer. Displacement of uncertainty and responsibility. Genetics from the laboratory to society: Societal learning as an alternative to regulation 2008, 37-63. Palgrave Macmillan, Hampshire. G. de Vries, K. Horstman (Eds.).
    • (2008) Genetics from the laboratory to society: Societal learning as an alternative to regulation , pp. 37-63
    • Boenink, M.1
  • 4
    • 79958762779 scopus 로고    scopus 로고
    • Unambiguous test results or individual independence? The role of clients and families in predictive BRCA-testing in the Netherlands compared to the USA
    • in this issue, doi:10.1016/j.socscimed.2010.06.011
    • Boenink, M. Unambiguous test results or individual independence? The role of clients and families in predictive BRCA-testing in the Netherlands compared to the USA. Social Science & Medicine, in this issue., doi:10.1016/j.socscimed.2010.06.011.
    • Social Science & Medicine
    • Boenink, M.1
  • 5
    • 0037216727 scopus 로고    scopus 로고
    • Communication with close and distant relatives in the context of genetic testing for hereditary breast and ovarian cancer in cancer patients
    • A
    • Claes E., Evers-Kiebooms G., Boogaerts A., Decruyenaere M., Denayer L., Legius E. Communication with close and distant relatives in the context of genetic testing for hereditary breast and ovarian cancer in cancer patients. American Journal of Medical Genetics 2003, 116A:1-19.
    • (2003) American Journal of Medical Genetics , vol.116 , pp. 1-19
    • Claes, E.1    Evers-Kiebooms, G.2    Boogaerts, A.3    Decruyenaere, M.4    Denayer, L.5    Legius, E.6
  • 6
    • 0037648454 scopus 로고    scopus 로고
    • Risk versus risk: decision-making dilemmas of drug regulation in the United States and Germany
    • Daemmrich A., Krücken G. Risk versus risk: decision-making dilemmas of drug regulation in the United States and Germany. Science as Culture 2000, 9:505-534.
    • (2000) Science as Culture , vol.9 , pp. 505-534
    • Daemmrich, A.1    Krücken, G.2
  • 8
    • 0141921347 scopus 로고    scopus 로고
    • To tell or not to tell: barriers and facilitators in family communication about genetic risk
    • Forrest K., Simpson S., Wilson B., van Teijlingen E., McKee L., Haites N., et al. To tell or not to tell: barriers and facilitators in family communication about genetic risk. Clinical Genetics 2003, 64:317-326.
    • (2003) Clinical Genetics , vol.64 , pp. 317-326
    • Forrest, K.1    Simpson, S.2    Wilson, B.3    van Teijlingen, E.4    McKee, L.5    Haites, N.6
  • 10
    • 79958752746 scopus 로고    scopus 로고
    • Charity, breast cancer activism and the iconic figure of the BRCA carrier
    • Routeledge, London/New York, S. Gibbon, C. Novas (Eds.)
    • Gibbon S. Charity, breast cancer activism and the iconic figure of the BRCA carrier. Biosocialities, genetics and the social sciences. Making biologies and identities 2008, 19-37. Routeledge, London/New York. S. Gibbon, C. Novas (Eds.).
    • (2008) Biosocialities, genetics and the social sciences. Making biologies and identities , pp. 19-37
    • Gibbon, S.1
  • 11
    • 21144433170 scopus 로고    scopus 로고
    • Living with chronic illness in the family setting
    • Gregory S. Living with chronic illness in the family setting. Sociology of Health & Illness 2005, 27:372-392.
    • (2005) Sociology of Health & Illness , vol.27 , pp. 372-392
    • Gregory, S.1
  • 12
    • 0033181470 scopus 로고    scopus 로고
    • Doing the right thing: genetic risk and responsibility
    • Hallowel N. Doing the right thing: genetic risk and responsibility. Sociology of Health & Illness 1999, 21:597-621.
    • (1999) Sociology of Health & Illness , vol.21 , pp. 597-621
    • Hallowel, N.1
  • 14
    • 37749034024 scopus 로고    scopus 로고
    • Orchestrating time in the genomic era: timescape perspective on the changing practice of hereditary breast cancer prevention
    • Huijer M. Orchestrating time in the genomic era: timescape perspective on the changing practice of hereditary breast cancer prevention. Configurations 2005, 13:421-434.
    • (2005) Configurations , vol.13 , pp. 421-434
    • Huijer, M.1
  • 15
    • 18244374810 scopus 로고    scopus 로고
    • All in the family: evaluation of the process and content of sister's communication about BRCA1 and BRCA2 genetic test results
    • Hughus C., Lerman C., Schwartz M., Peshkin B., Wenzel L., Narod S., et al. All in the family: evaluation of the process and content of sister's communication about BRCA1 and BRCA2 genetic test results. American Journal of Medical Genetics 2002, 107:143-150.
    • (2002) American Journal of Medical Genetics , vol.107 , pp. 143-150
    • Hughus, C.1    Lerman, C.2    Schwartz, M.3    Peshkin, B.4    Wenzel, L.5    Narod, S.6
  • 16
    • 0842276374 scopus 로고    scopus 로고
    • Huntington's disease in everyday life. Knowledge, ignorance and genetic risk
    • PhD dissertation, Centre for Health, Humanity and Culture, Aarhus University
    • Huniche, L. (2002). Huntington's disease in everyday life. Knowledge, ignorance and genetic risk. PhD dissertation, Centre for Health, Humanity and Culture, Aarhus University.
    • (2002)
    • Huniche, L.1
  • 17
    • 27144469270 scopus 로고    scopus 로고
    • In the democracies of DNA: ontological uncertainty and political order in three states
    • Jasanoff S. In the democracies of DNA: ontological uncertainty and political order in three states. New Genetics and Society 2005, 24:139-155.
    • (2005) New Genetics and Society , vol.24 , pp. 139-155
    • Jasanoff, S.1
  • 20
    • 79958727062 scopus 로고    scopus 로고
    • Biosociality and susceptibility genes. A cautionary tale
    • Routeledge, London/New York, S. Gibbon, C. Novas (Eds.)
    • Lock M. Biosociality and susceptibility genes. A cautionary tale. Biosocialities, genetics and the social sciences. Making biologies and identities 2008, 56-78. Routeledge, London/New York. S. Gibbon, C. Novas (Eds.).
    • (2008) Biosocialities, genetics and the social sciences. Making biologies and identities , pp. 56-78
    • Lock, M.1
  • 21
    • 1842562948 scopus 로고    scopus 로고
    • The experiences of close living with a person with serious chronic illness
    • Öhman M., Söderberg S. The experiences of close living with a person with serious chronic illness. Qualitative Health Research 2004, 14:396-410.
    • (2004) Qualitative Health Research , vol.14 , pp. 396-410
    • Öhman, M.1    Söderberg, S.2
  • 22
    • 15844409188 scopus 로고    scopus 로고
    • Architecture of genetic medicine. Comparing genetic testing for breast cancer in the USA and the UK
    • Parthasarathy S. Architecture of genetic medicine. Comparing genetic testing for breast cancer in the USA and the UK. Social Studies of Science 2005, 35:5-40.
    • (2005) Social Studies of Science , vol.35 , pp. 5-40
    • Parthasarathy, S.1
  • 25
    • 0033989352 scopus 로고    scopus 로고
    • Impact of genetic testing for Huntington disease on the family system
    • Sobel K., Cowan D. Impact of genetic testing for Huntington disease on the family system. American Journal of Medical Genetics 2000, 90:49-59.
    • (2000) American Journal of Medical Genetics , vol.90 , pp. 49-59
    • Sobel, K.1    Cowan, D.2
  • 26
    • 33744971423 scopus 로고    scopus 로고
    • Management of hypertrophic cardiomyopathy
    • Spirito P., Autore C. Management of hypertrophic cardiomyopathy. British Medical Journal 2006, 332:1251-1255.
    • (2006) British Medical Journal , vol.332 , pp. 1251-1255
    • Spirito, P.1    Autore, C.2
  • 27
    • 33646552689 scopus 로고    scopus 로고
    • The social life of genetic knowledge: a case-study of choices and dilemmas in cancer genetic counselling in Denmark
    • Svendson M. The social life of genetic knowledge: a case-study of choices and dilemmas in cancer genetic counselling in Denmark. Medical Anthropology 2006, 25:139-170.
    • (2006) Medical Anthropology , vol.25 , pp. 139-170
    • Svendson, M.1


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.