메뉴 건너뛰기




Volumn 57, Issue 1, 2012, Pages 52-60

Parenting difficulties and resources: The perspectives of parents with multiple sclerosis and their partners

Author keywords

Multiple sclerosis; Parental illness; Parenting stress

Indexed keywords

ADULT; ARTICLE; AUSTRALIA; CAR DRIVING; CHILD PARENT RELATION; CONTROLLED STUDY; DAILY LIFE ACTIVITY; DAUGHTER; DESCRIPTIVE RESEARCH; DISEASE ASSOCIATION; EXPLORATORY RESEARCH; FAMILY; FATIGUE; FEMALE; FRIEND; HEALTH CARE NEED; HUMAN; MAJOR CLINICAL STUDY; MALE; MOOD; MULTIPLE SCLEROSIS; PHYSICAL ACTIVITY; QUESTIONNAIRE; SCHOOL; SON; SPOUSE; TIME; HEALTH SERVICE; HUMAN RELATION; INFORMATION PROCESSING; MIDDLE AGED; PATHOPHYSIOLOGY;

EID: 84861740916     PISSN: 00905550     EISSN: 19391544     Source Type: Journal    
DOI: 10.1037/a0026995     Document Type: Article
Times cited : (37)

References (40)
  • 1
    • 0033466675 scopus 로고    scopus 로고
    • A child's growing up with a parent who has multiple sclerosis: Theories and experiences
    • doi:10.1080/09687599926019
    • Blackford, K. A. (1999). A child's growing up with a parent who has multiple sclerosis: Theories and experiences. Disability and Society, 14, 673-685. doi:10.1080/09687599926019
    • (1999) Disability and Society , vol.14 , pp. 673-685
    • Blackford, K.A.1
  • 2
    • 77956254260 scopus 로고    scopus 로고
    • Psychosocial adjustment in children and adolescents with a parent with multiple sclerosis: A systematic review
    • doi:10.1177/ 0269215510367982
    • Bogosian, A., Moss-Morris, R., & Hadwin, J. (2010). Psychosocial adjustment in children and adolescents with a parent with multiple sclerosis: A systematic review. Clinical Rehabilitation, 24, 789-801. doi:10.1177/ 0269215510367982
    • (2010) Clinical Rehabilitation , vol.24 , pp. 789-801
    • Bogosian, A.1    Moss-Morris, R.2    Hadwin, J.3
  • 3
    • 0016716853 scopus 로고
    • Evaluation of the social needs of non-hospitalized chronically ill persons: 1. Study of 47 patients with multiple sclerosis
    • doi:10.1016/0021-9681(75)90036-3
    • Braham, S., Houser, H. B., Cline, A., & Posner, M. (1975). Evaluation of the social needs of non-hospitalized chronically ill persons: 1. Study of 47 patients with multiple sclerosis. Journal of Chronic Diseases, 28, 401-419. doi:10.1016/0021-9681(75)90036-3
    • (1975) Journal of Chronic Diseases , vol.28 , pp. 401-419
    • Braham, S.1    Houser, H.B.2    Cline, A.3    Posner, M.4
  • 4
    • 72149095153 scopus 로고    scopus 로고
    • Family routines and rituals when a parent has cancer
    • doi:10.1037/a0017005
    • Buchbinder, M., Longhofer, J., & McCue, K. (2009). Family routines and rituals when a parent has cancer. Families, Systems, & Health, 27, 213-227. doi:10.1037/a0017005
    • (2009) Families, Systems, & Health , vol.27 , pp. 213-227
    • Buchbinder, M.1    Longhofer, J.2    McCue, K.3
  • 5
    • 0032112792 scopus 로고    scopus 로고
    • Mothers with multiple sclerosis and their children: Effects of fatigue and exacerbations on maternal support
    • doi:10.1097/ 00006199-199807000-00005
    • Deatrick, J. A., Brennan, D., & Cameron, M. E. (1998). Mothers with multiple sclerosis and their children: Effects of fatigue and exacerbations on maternal support. Nursing Research, 47, 205-210. doi:10.1097/ 00006199-199807000-00005
    • (1998) Nursing Research , vol.47 , pp. 205-210
    • Deatrick, J.A.1    Brennan, D.2    Cameron, M.E.3
  • 6
    • 12344288648 scopus 로고    scopus 로고
    • The impact of parental multiple sclerosis on the adjustment of children and adolescents
    • De Judicibus, M. A., & McCabe, M. P. (2004). The impact of parental multiple sclerosis on the adjustment of children and adolescents. Adolescence, 39, 551-569.
    • (2004) Adolescence , vol.39 , pp. 551-569
    • De Judicibus, M.A.1    McCabe, M.P.2
  • 9
    • 57649201559 scopus 로고    scopus 로고
    • Fatigue characteristics in multiple sclerosis: The North American Research Committee on Multiple Sclerosis (NARCOMS) Survey
    • doi:10.1186/1477-7525-6-100
    • Hadjimichael, O., Vollmer, T., & Oleen-Burkey, M. (2008). Fatigue characteristics in multiple sclerosis: The North American Research Committee on Multiple Sclerosis (NARCOMS) Survey. Health and Quality of Life Outcomes, 14, 100-110. doi:10.1186/1477-7525-6-100
    • (2008) Health and Quality of Life Outcomes , vol.14 , pp. 100-110
    • Hadjimichael, O.1    Vollmer, T.2    Oleen-Burkey, M.3
  • 10
    • 0028817189 scopus 로고
    • Disease steps in multiple sclerosis: A simple approach to evaluation disease progression
    • Hohol, M. J., Orav, E. J., & Weiner, H. L. (1995). Disease steps in multiple sclerosis: A simple approach to evaluation disease progression. Neurology, 45, 251-255.
    • (1995) Neurology , vol.45 , pp. 251-255
    • Hohol, M.J.1    Orav, E.J.2    Weiner, H.L.3
  • 11
    • 0345982903 scopus 로고
    • The reported quality of life of children and adolescents of parents with multiple sclerosis
    • Kikuchi, J. F. (1987). The reported quality of life of children and adolescents of parents with multiple sclerosis. Recent Advances in Nursing, 16, 163-191.
    • (1987) Recent Advances in Nursing , vol.16 , pp. 163-191
    • Kikuchi, J.F.1
  • 12
    • 0242505658 scopus 로고    scopus 로고
    • Parents with physical, systemic, or visual disabilities
    • doi:10.1023/A: 1015286421368
    • Kirshbaum, M., & Olkin, R. (2002). Parents with physical, systemic, or visual disabilities. Sexuality and Disability, 20, 65-80. doi:10.1023/A: 1015286421368
    • (2002) Sexuality and Disability , vol.20 , pp. 65-80
    • Kirshbaum, M.1    Olkin, R.2
  • 13
    • 0028566878 scopus 로고
    • Relationship of the Mayo- Portland Adaptability Inventory to functional outcome and cognitive performance measures
    • doi:10.1097/00001199-199412000-00003
    • Malec, J. F., & Thompson, J. M. (1994). Relationship of the Mayo- Portland Adaptability Inventory to functional outcome and cognitive performance measures. Journal of Head Trauma Rehabilitation, 9, 1-15. doi:10.1097/00001199-199412000-00003
    • (1994) Journal of Head Trauma Rehabilitation , vol.9 , pp. 1-15
    • Malec, J.F.1    Thompson, J.M.2
  • 14
    • 45349098345 scopus 로고    scopus 로고
    • Negative and positive disability-related events and adjustment of parents with acquired physical disabilities and their adolescent children
    • doi:10.1007/s10826-007-9171-0
    • Mazur, E. (2008). Negative and positive disability-related events and adjustment of parents with acquired physical disabilities and their adolescent children. Journal of Child and Family Studies, 17, 517-537. doi:10.1007/s10826-007-9171-0
    • (2008) Journal of Child and Family Studies , vol.17 , pp. 517-537
    • Mazur, E.1
  • 15
    • 0034287297 scopus 로고    scopus 로고
    • Gender and generativity issues in parenting: Do fathers benefit more than mothers from involvement in child care activities?
    • doi:10.1023/A: 1007115415819
    • McKeering, H., & Pakenham, K. I. (2000). Gender and generativity issues in parenting: Do fathers benefit more than mothers from involvement in child care activities? Sex Roles, 43, 459-480. doi:10.1023/A: 1007115415819
    • (2000) Sex Roles , vol.43 , pp. 459-480
    • McKeering, H.1    Pakenham, K.I.2
  • 17
    • 0038011902 scopus 로고    scopus 로고
    • Costs and rewards of children: The effects of becoming a parent on adults' lives
    • doi:10.1111/j.1741-3737.2003.00356.x
    • Nomaguchi, K., & Milkie, M. A. (2003). Costs and rewards of children: The effects of becoming a parent on adults' lives. Journal of Marriage and the Family, 65, 356-374. doi:10.1111/j.1741-3737.2003.00356.x
    • (2003) Journal of Marriage and the Family , vol.65 , pp. 356-374
    • Nomaguchi, K.1    Milkie, M.A.2
  • 18
    • 33646518554 scopus 로고    scopus 로고
    • Comparison of parents with and without disabilities raising teens: Information from the NHIS and two national surveys
    • doi:10.1037/0090-5550.51.1.43
    • Olkin, R., Abrams, K., Preston, P., & Kirshbaum, M. (2006). Comparison of parents with and without disabilities raising teens: Information from the NHIS and two national surveys. Rehabilitation Psychology, 51, 43-49. doi:10.1037/0090-5550.51.1.43
    • (2006) Rehabilitation Psychology , vol.51 , pp. 43-49
    • Olkin, R.1    Abrams, K.2    Preston, P.3    Kirshbaum, M.4
  • 20
    • 0040156238 scopus 로고    scopus 로고
    • Coping with multiple sclerosis: Development of a measure
    • Pakenham, K. I. (2001). Coping with multiple sclerosis: Development of a measure. Psychology, Health and Medicine, 6, 411-428.
    • (2001) Psychology, Health and Medicine , vol.6 , pp. 411-428
    • Pakenham, K.I.1
  • 21
    • 70449123089 scopus 로고    scopus 로고
    • Children who care for their parents: The impact of disability on young lives
    • C. A. Marshall, E. Kendall, M. Banks, & R. M. S. Gover (Eds.), Westport, CT: Praeger Press.
    • Pakenham, K. I. (2009). Children who care for their parents: The impact of disability on young lives. In C. A. Marshall, E. Kendall, M. Banks, & R. M. S. Gover (Eds.), Disability: insights from across fields and around the world (Vol. 2, pp. 39-60). Westport, CT: Praeger Press.
    • (2009) Disability: insights from across fields and around the world , vol.2 , pp. 39-60
    • Pakenham, K.I.1
  • 22
    • 33845302051 scopus 로고    scopus 로고
    • Relations between social support, appraisal and coping and both positive and negative outcomes in young carers
    • doi:10.1177/1359105307071743
    • Pakenham, K. I., Chiu, J., Bursnall, S., & Cannon, T. (2007). Relations between social support, appraisal and coping and both positive and negative outcomes in young carers. Journal of Health Psychology, 12, 89-102. doi:10.1177/1359105307071743
    • (2007) Journal of Health Psychology , vol.12 , pp. 89-102
    • Pakenham, K.I.1    Chiu, J.2    Bursnall, S.3    Cannon, T.4
  • 23
    • 84874565223 scopus 로고    scopus 로고
    • The nature of caregiving in children of a parent with multiple sclerosis from multiple sources and the associations between caregiving activities and youth adjustment overtime
    • in press a
    • Pakenham K I., & Cox, S. (in press a). The nature of caregiving in children of a parent with multiple sclerosis from multiple sources and the associations between caregiving activities and youth adjustment overtime. Psychology and Health.
    • Psychology and Health
    • Pakenham, K.I.1    Cox, S.2
  • 24
    • 84874570333 scopus 로고    scopus 로고
    • Test of a model of the effects of parental illness on youth and family functioning
    • in press b
    • Pakenham K I., & Cox, S. (in press b). Test of a model of the effects of parental illness on youth and family functioning. Health Psychology.
    • Health Psychology
    • Pakenham, K.I.1    Cox, S.2
  • 25
    • 0030692628 scopus 로고    scopus 로고
    • The role of coping in adjustment to multiple sclerosis-related adaptive demands
    • doi:10.1080/ 13548509708400578
    • Pakenham, K. I., Stewart, C. A., & Rogers, A. (1997). The role of coping in adjustment to multiple sclerosis-related adaptive demands. Psychology, Health and Medicine, 2, 197-211. doi:10.1080/ 13548509708400578
    • (1997) Psychology, Health and Medicine , vol.2 , pp. 197-211
    • Pakenham, K.I.1    Stewart, C.A.2    Rogers, A.3
  • 26
    • 62249192080 scopus 로고    scopus 로고
    • Chronically ill mother experiencing pain: Relational coping strategies used while parenting young children
    • doi:10.1177/ 1742395309102820
    • Parker White, C., Mendoza, J., White, M. B., & Bond, C. (2009). Chronically ill mother experiencing pain: Relational coping strategies used while parenting young children. Chronic Illness, 5, 33-45. doi:10.1177/ 1742395309102820
    • (2009) Chronic Illness , vol.5 , pp. 33-45
    • Parker White, C.1    Mendoza, J.2    White, M.B.3    Bond, C.4
  • 27
    • 77951251171 scopus 로고    scopus 로고
    • Maternal fatigue and its relationship to the caregiving environment
    • doi:10.1037/a0018284
    • Parker White, C., White, M. B., & Fox, M. A. (2009). Maternal fatigue and its relationship to the caregiving environment. Families, Systems, and Health, 27, 325-345. doi:10.1037/a0018284
    • (2009) Families, Systems, and Health , vol.27 , pp. 325-345
    • Parker White, C.1    White, M.B.2    Fox, M.A.3
  • 28
    • 77749264864 scopus 로고    scopus 로고
    • Becoming mothers. Multiple sclerosis and motherhood: A qualitative study
    • doi:10.3109/09638280903204708
    • Payne, D., & McPherson, K. M. (2010). Becoming mothers. Multiple sclerosis and motherhood: A qualitative study. Disability and Rehabilitation, 32, 629-638. doi:10.3109/09638280903204708
    • (2010) Disability and Rehabilitation , vol.32 , pp. 629-638
    • Payne, D.1    McPherson, K.M.2
  • 29
    • 0021811858 scopus 로고
    • Family environment as perceived by children with a chronically ill parent
    • doi:10.1016/0021-9681(85)90076-1
    • Peters, L. C., & Esses, L. M. (1985). Family environment as perceived by children with a chronically ill parent. Journal of Chronic Diseases, 38, 301-308. doi:10.1016/0021-9681(85)90076-1
    • (1985) Journal of Chronic Diseases , vol.38 , pp. 301-308
    • Peters, L.C.1    Esses, L.M.2
  • 30
    • 0022032845 scopus 로고
    • Family coping behaviors in chronic illness: A rehabilitation approach
    • Power, P. W. (1985). Family coping behaviors in chronic illness: A rehabilitation approach. Rehabilitation Literature, 46, 78-83.
    • (1985) Rehabilitation Literature , vol.46 , pp. 78-83
    • Power, P.W.1
  • 31
    • 3042523728 scopus 로고    scopus 로고
    • My child is not my carer: Mothers with physical disabilities and the well-being of children
    • doi:10.1080/0968759042000204185
    • Prilleltensky, O. (2004). My child is not my carer: Mothers with physical disabilities and the well-being of children. Disability and Society, 19, 209-223. doi:10.1080/0968759042000204185
    • (2004) Disability and Society , vol.19 , pp. 209-223
    • Prilleltensky, O.1
  • 32
    • 77957107794 scopus 로고    scopus 로고
    • Beyond the depleting model of parenting: Narratives of childrearing and change
    • doi:10.1111/j.1475-682X.2010.00353.x
    • Silva, J. M., & Pugh, A. J. (2010). Beyond the depleting model of parenting: Narratives of childrearing and change. Sociological Inquiry, 80, 605-627. doi:10.1111/j.1475-682X.2010.00353.x
    • (2010) Sociological Inquiry , vol.80 , pp. 605-627
    • Silva, J.M.1    Pugh, A.J.2
  • 33
    • 77954424604 scopus 로고    scopus 로고
    • Living with multiple sclerosis: Longitudinal changes in employment and the importance of symptom management
    • doi:10.1007/s00415-009-5441-7
    • Simmons, R. D., Tribe, K. L., & McDonald, E. A. (2010). Living with multiple sclerosis: Longitudinal changes in employment and the importance of symptom management. Journal of Neurology, 257, 926-936. doi:10.1007/s00415-009-5441-7
    • (2010) Journal of Neurology , vol.257 , pp. 926-936
    • Simmons, R.D.1    Tribe, K.L.2    McDonald, E.A.3
  • 34
    • 84874566696 scopus 로고    scopus 로고
    • May. . Paper presented at the HLT-NAACL 2003 Human Language Technology Conference of the North American Chapter of the Association for Computational Linguistics Edmonton Alberta Canada.
    • Smith, A. E. (2003, May). Automatic extraction of semantic networks from text using Leximancer. Paper presented at the HLT-NAACL 2003 Human Language Technology Conference of the North American Chapter of the Association for Computational Linguistics, Edmonton, Alberta, Canada.
    • (2003) Automatic extraction of semantic networks from text using Leximancer
    • Smith, A.E.1
  • 35
    • 33748991451 scopus 로고    scopus 로고
    • Evaluation of unsupervised semantic mapping of natural language with Leximancer concept mapping
    • doi:10.3758/ BF03192778
    • Smith, A. E., & Humphreys, M. S. (2006). Evaluation of unsupervised semantic mapping of natural language with Leximancer concept mapping. Behavior Research Methods, 38, 262-279. doi:10.3758/ BF03192778
    • (2006) Behavior Research Methods , vol.38 , pp. 262-279
    • Smith, A.E.1    Humphreys, M.S.2
  • 36
    • 0035694839 scopus 로고    scopus 로고
    • Gender-specific differences in the process of coping in families with a parent affected by a chronic somatic disease (e.g. multiple sclerosis)
    • doi:10.1159/000049316
    • Steck, B., Amsler, F., Kappos, L., & Burgin, D. (2001). Gender-specific differences in the process of coping in families with a parent affected by a chronic somatic disease (e.g. multiple sclerosis). Psychopathology, 34, 236-244. doi:10.1159/000049316
    • (2001) Psychopathology , vol.34 , pp. 236-244
    • Steck, B.1    Amsler, F.2    Kappos, L.3    Burgin, D.4
  • 37
    • 0001514561 scopus 로고
    • Family coping strategies and chronic illness in the mother
    • doi:10.2307/584512
    • Stetz, K. M., Lewis, F. M., & Primomo, J. (1986). Family coping strategies and chronic illness in the mother. Family Relations, 35, 515-522. doi:10.2307/584512
    • (1986) Family Relations , vol.35 , pp. 515-522
    • Stetz, K.M.1    Lewis, F.M.2    Primomo, J.3
  • 38
    • 69249222522 scopus 로고    scopus 로고
    • Pain language and gender differences when describing a past pain event
    • doi:10.1016/j.pain.2009.05.018
    • Strong, J., Matthews, T., Sussex, R., New, F., Hoey, S., & Mitchell, G. (2009). Pain language and gender differences when describing a past pain event. Pain, 145, 86-95. doi:10.1016/j.pain.2009.05.018
    • (2009) Pain , vol.145 , pp. 86-95
    • Strong, J.1    Matthews, T.2    Sussex, R.3    New, F.4    Hoey, S.5    Mitchell, G.6
  • 39
    • 35848947552 scopus 로고    scopus 로고
    • Chronical illness and maternity: Life conditions, quality of life and coping in women with multiple sclerosis
    • doi:10.1007/s11136-007-9268-3
    • Twork, S., Wirtz, M., Schipper, S., Klewer, J., Bergmann, A., & Kugler, J. (2007). Chronical illness and maternity: Life conditions, quality of life and coping in women with multiple sclerosis. Quality of Life Research, 16, 1587-1594. doi:10.1007/s11136-007-9268-3
    • (2007) Quality of Life Research , vol.16 , pp. 1587-1594
    • Twork, S.1    Wirtz, M.2    Schipper, S.3    Klewer, J.4    Bergmann, A.5    Kugler, J.6
  • 40
    • 22144456384 scopus 로고    scopus 로고
    • Emotional responses of children and adolescents to parents with multiple sclerosis
    • doi:10.1191/1352458505ms1183oa
    • Yahav, R., Vosburgh, J., & Miller, A. (2005). Emotional responses of children and adolescents to parents with multiple sclerosis. Multiple Sclerosis, 11, 464-468. doi:10.1191/1352458505ms1183oa
    • (2005) Multiple Sclerosis , vol.11 , pp. 464-468
    • Yahav, R.1    Vosburgh, J.2    Miller, A.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.