Chronical illness and maternity: Life conditions, quality of life and coping in women with multiple sclerosis

Quality of Life Research

Volumn 16, Issue 10, 2007, Pages 1587-1594

  Twork, Sabine ^a   Wirtz, Markus ^b   Schipper, Sabine ^b   Klewer, Jörg ^c   Bergmann, Antje ^a   Kugler, Joachim ^a  

^a UNIVERSITY OF DRESDEN MEDICAL SCHOOL   (Germany)

^b German Multiple Sclerosis Association   (Germany)

^c UNIVERSITY OF APPLIED SCIENCES ZWICKAU   (Germany)

Author keywords

Children; Coping; Maternity; Multiple sclerosis; Pregnancy; Quality of life

Indexed keywords

ADULT; AGE; ARTICLE; CHRONIC DISEASE; CONTROLLED STUDY; COPING BEHAVIOR; DEMOGRAPHY; DISABILITY; DISEASE DURATION; DISEASE EXACERBATION; EMPLOYMENT; FEMALE; GERMANY; HUMAN; INCOME; LIFE; MAJOR CLINICAL STUDY; MOTHER; MULTIPLE SCLEROSIS; PARAMETER; PREGNANCY; PRIORITY JOURNAL; QUESTIONNAIRE; RELIGION; SCORING SYSTEM; SOCIAL ASPECT;

ADAPTATION, PSYCHOLOGICAL; ADULT; CHRONIC DISEASE; FEMALE; GERMANY; HUMANS; MALE; MIDDLE AGED; MOTHERS; MULTIPLE SCLEROSIS; QUALITY OF LIFE; QUESTIONNAIRES;

EID: 35848947552     PISSN: 09629343     EISSN: None     Source Type: Journal    
DOI: 10.1007/s11136-007-9268-3     Document Type: Article

References (60)

1. Kantarci, O., & Wingerchuk, D. (2006). Epidemiology and natural history of multiple sclerosis: New insights. Current Opinion in Neurology, 19, 248-254.
2. Flachenecker, P., Zettl, U. K., Gotze, U., Haas, J., Schimrigk, S., Elias, W., et al. (2005). MS registry in Germany - design and first results of the pilot phase. Nervenarzt, 76, 967-975.
3. Goodkin, D. E. (1992). The natural history of multiple sclerosis. In R. A. Rudick, & D. E. Goodkin (Eds.), Treatment of multiple sclerosis: Trial design, results and future perspectives (pp. 17-46). New York: Springer-Verlag.
4. Minden, S. L., Orav, J., & Reich, P. (1987). Depression in multiple sclerosis. General Hospital Psychiatry, 9, 426-434.
5. Lechtenberg, R. (1988). Multiple sclerosis fact book. Philadelphia: F.A. Davis.
6. Rao, S. M., Leo, G. J., Ellington, L., Nauertz, T., Bernardin, L., & Unverzagt, F. (1991). Cognitive dysfunction in multiple sclerosis. II. Impact on employment and social functioning. Neurology, 41, 692-696.
7. Rao, S. M., Leo, G. J., Bernardin, L., & Unverzagt, F. (1991). Cognitive dysfunction in multiple sclerosis. I. Frequency, patterns, and prediction. Neurology, 41, 685-691.
8. Maurelli, M., Marchioni, E., Cerretano, R., Bosone, D., Bergamaschi, R., Citterio, A., et al. (1992). Neuropsychological assessment in MS: Clinical, neurophysiological and neuroradiological relationships. Acta Neurologica Scandinavica, 86, 124-128.
9. Joffe, R. T., Lippert, G. P., Gray, T. A., Sawa, G., & Horvath, Z. (1987). Mood disorder and multiple sclerosis. Archives of Neurology, 44, 376-378.
10. Schwartz, C. E., & Fierston, S. (1995). The two sides of pseudobulbar disorder in multiple sclerosis: Comparing one patient's experience with a review of the neurologic literature. Neurorehabilitation, 5, 359-365.
11. Murphy, N., Confavreux, C., Haas, J., Konig, N., Roullet, E., Sailer, M., et al. (1998). Quality of life in multiple sclerosis in France, Germany, and the United Kingdom. Cost of Multiple Sclerosis Study Group. Journal of Neurology and Neurosurgery Psychiatry, 65, 460-466.
12. Rothwell, P. M., McDowell, Z., Wong, C. K., & Dorman, P. J. (1997). Doctors and patients don't agree: Cross sectional study of patients' and doctors' perceptions and assessments of disability in multiple sclerosis. BMJ, 314, 1580-1583.
13. Rothwell, P. M. (1998). Quality of life in multiple sclerosis. Journal of Neurology Neurosurgery Psychiatry, 65, 433.
14. Nortvedt, M. W., Riise, T., Myhr, K. M., & Nyland, H. I. (1999). Quality of life in multiple sclerosis: Measuring the disease effects more broadly. Neurology, 53, 1098-1103.
15. Rudick, R. A., Miller, D., Clough, J. D., Gragg, L. A., & Farmer, R. G. (1992). Quality of life in multiple sclerosis. Comparison with inflammatory bowel disease and rheumatoid arthritis. Archives of Neurology, 49, 1237-1242.
16. Damek, D. M., & Shuster, E. A. (1997). Pregnancy and multiple sclerosis. Mayo Clinical Proceedings, 72, 977-989.
17. Ebers, G. C., Sadovnick, A. D., & Risch, N. J. (1995). A genetic basis for familial aggregation in multiple sclerosis. Canadian Collaborative Study Group. Nature, 377, 150-151.
18. Robertson, N. P., Fraser, M., Deans, J., Clayton, D., Walker, N., & Compston, D. A. (1996). Age-adjusted recurrence risks for relatives of patients with multiple sclerosis. Brain, 119( Pt 2), 449-455.
19. Carton, H., Vlietinck, R., Debruyne, J., De, K. J., D'Hooghe, M. B., Loos, R., et al. (1997). Risks of multiple sclerosis in relatives of patients in Flanders, Belgium. Journal of Neurology and Neurosurgery Psychiatry, 62, 329-333.
20. Poser, S., Raun, N. E., Wikstrom, J., & Poser, W. (1979). Pregnancy, oral contraceptives and multiple sclerosis. Acta Neurologica Scandinavica, 59, 108-118.
21. Poser, S., & Poser, W. (1983). Multiple sclerosis and gestation. Neurology, 33, 1422-1427.
22. Roullet, E., Verdier-Taillefer, M. H., Amarenco, P., Gharbi, G., Alperovitch, A., & Marteau, R. (1993). Pregnancy and multiple sclerosis: A longitudinal study of 125 remittent patients. Journal of Neurology Neurosurgery Psychiatry, 56, 1062-1065.
23. Sadovnick, A. D., Eisen, K., Hashimoto, S. A., Farquhar, R., Yee, I. M., Hooge, J., et al. (1994). Pregnancy and multiple sclerosis. A prospective study. Archives of Neurology, 51, 1120-1124.
24. Tillman, A. J. (1950). The effect of pregnancy on multiple sclerosis and its management. Research publications - Association for Research in Nervous and Mental Disease, 28, 548-582.
25. Schapira, K., Poskanzer, D. C., Newell, D. J., & Miller, H. (1966). Marriage, pregnancy and multiple sclerosis. Brain, 89, 419-428.
26. Leibowitz, U., Antonovsky, A., Kats, R., & Alter, M. (1967). Does pregnancy increase the risk of multiple sclerosis? Journal of Neurology and Neurosurgery Psychiatry, 30, 354-357.
27. Birk, K., & Rudick, R. (1986). Pregnancy and multiple sclerosis. Archives of Neurology, 43, 719-726.
28. Birk, K., Ford, C., Smeltzer, S., Ryan, D., Miller, R., & Rudick, R. A. (1990). The clinical course of multiple sclerosis during pregnancy and the puerperium. Archives of Neurology, 47, 738-742.
29. Worthington, J., Jones, R., Crawford, & M., Forti, A. (1994). Pregnancy and multiple sclerosis - a 3-year prospective study. Journal of Neurology, 241, 228-233.
30. Dwosh, E., Guimond, C., & Sadovnick, A. D. (2003). Reproductive counselling for MS: A rationale. International MS Journal, 10, 52-59.
31. Davis, R. K., & Maslow, A. S. (1992). Multiple sclerosis in pregnancy: A review. Obstetrical & Gynecological Survey, 47, 290-296.
32. Confavreux, C., Hutchinson, M., Hours, M. M., Cortinovis-Tourniaire, P., & Moreau, T. (1998). Rate of pregnancy-related relapse in multiple sclerosis. Pregnancy in Multiple Sclerosis Group. New England Journal of Medicine, 339, 285-291.
33. Gilmore, J., Pennell, P. B., & Stern, B. J. (1998). Medication use during pregnancy for neurologic conditions. Neurologic Clinics, 16, 189-206.
34. Dahl, J., Myhr, K. M., Daltveit, A. K., & Gilhus, N. E. (2006). Planned vaginal births in women with multiple sclerosis: Delivery and birth outcome. Acta Neurologica Scandinavica. Supplementum, 183, 51-54.
35. Vukusic, S., Hutchinson, M., Hours, M., Moreau, T., Cortinovis- Tourniaire, P., Adeleine, P., et al. (2004). Pregnancy and multiple sclerosis (the PRIMS study): Clinical predictors of post-partum relapse. Brain, 127, 1353-1360.
36. Dwosh, E., Guimond, C., Duquette, P., & Sadovnick, A. D. (2003). The interaction of MS and pregnancy: A critical review. International MS Journal, 10, 38-42.
37. Landoni, M. G., Giordano, M. T., & Guidetti, G. P. (2000). Group psychotherapy experiences for people with multiple sclerosis and psychological support for families. Journal of Neurovirology, 6(Suppl 2), S168-S171.
38. Aronson, K. J. (1997). Quality of life among persons with multiple sclerosis and their caregivers. Neurology, 48, 74-80.
39. Pozzilli, C., Palmisano, L., Mainero, C., Tomassini, V., Marinelli, F., Ristori, G., et al. (2004). Relationship between emotional distress in caregivers and health status in persons with multiple sclerosis. Multiple Sclerosis, 10, 442-446.
40. Zeldow, P. B., & Pavlou, M. (1984). Physical disability, life stress, and psychosocial adjustment in multiple sclerosis. The Journal of Nervous and Mental Disease, 172, 80-84.
41. Foley, F. W., Dince, W. M., Bedell, J. R., LaRocca, N. G., Kalb, R., Caruso, L. S., et al. (1994). Psychoremedation of communication skills for cognitively impaired persons with multiple sclerosis. Journal of Neurologic Rehabilitation, 8, 165-176.
42. Stenager, E., Stenager, E. N., Knudsen, L., Jensen, K. Multiple sclerosis: The impact on family and social life. Acta Psychiatrica Belgica, 94, 165-174.
43. Lackey, N. R., & Gates, M. F. (2001). Adults' recollections of their experiences as young caregivers of family members with chronic physical illnesses. Journal of Advanced Nursing, 34, 320-328.
44. Steck, B., Amsler, F., Schwald, D. A., Grether, A., Kappos, L., & Burgin, D. (2005). Indication for psychotherapy in offspring of a parent affected by a chronic somatic disease (e.g., multiple sclerosis). Psychopathology, 38, 38-48.
45. Mutch, K. (2005). Information for young people when multiple sclerosis enters the family. British Journal of Nursing, 14, 758-767.
46. Kurtzke, J. F. (1983). Rating neurologic impairment in multiple sclerosis: An expanded disability status scale (EDSS). Neurology, 33, 1444-1452.
47. Muthny, F. A. (1989). FKV Freiburger Fragebogen zur Krankheitsverarbeitung. Weinheim: Beltz-Verlag.
48. Vickrey, B. G., Hays, R. D., Harooni, R., Myers, L. W., & Ellison, G. W. (1995). A health-related quality of life measure for multiple sclerosis. Quality of Life Research, 4, 187-206.
49. Büssing, A., Ostermann, T., & Matthiessen, P. F. (2005). Role of religion and spirituality in medical patients: Confirmatory results with the SpREUK questionnaire. Health Qual Life Outcomes, 3, 10.
50. Koenig, H. G. (2001). Religion and medicine IV: Religion, physical health and clinical implications. International Journal of Psychiatry Medicine, 31, 321-336.
51. Miller, A., & Dishon, S. (2006). Health-related quality of life in multiple sclerosis: The impact of disability, gender and employment status. Quality of Life Research, 15, 259-271.
52. Brunet, D. G., Hopman, W. M., Singer, M. A., Edgar, C. M., & MacKenzie, T. A. (1996). Meaurement of health-related quality of life in multiple sclerosis patients. Canadian Journal of Neurological Science, 23, 99-103.
53. Koropeckyj-Cox, T., Mehraban Pienta, A., & Brown, T. H. (2007). Women of the 1950s and the "Normative" life course: The implications of childlessness, fertility timing, and martial status for psychological well-being in late midlife. International Journal of Aging Human Development, 64, 299-330.
54. http://www.ns.umich.edu/htdocs/releases/story.php?id=5832 (July 4th, 2007).
55. Flachenecker, P., Zettl, U., Götze, U., Hennig, M., Bertram, J., & Daumer, M. et al. MS-Register in Deutschland - weitere Analysen und Ausweitung des Projektes. Acta Neurologica, 32, DOI 10.1055/s-2005-919585.
56. Kobelt, G. (2006). Costs and quality of life for patients with multiple sclerosis in Belgium. European Journal of Health Economics, 7(Suppl 2), 24-33.
57. Kobelt, G., Berg, J., & Lindgren, P. (2006). Costs and quality of life in multiple sclerosis in The Netherlands. European Journal of Health Econics, 7(Suppl 2), 55-64.
58. Kobelt, G., Berg, J., Lindgren, P., Kerrigan, J., Russell, N., & Nixon, R. (2006). Costs and quality of life of multiple sclerosis in the United Kingdom. European Journal of Health Economics, 7(Suppl 2), 96-104.
59. Kobelt, G., Berg, J., Lindgren, P., Elias, W. G., Flachenecker, P., & Freidel, M., et al. (2006). Costs and quality of life of multiple sclerosis in Germany. European Journal of Health Economics, 7(Suppl 2), 34-44.
60. Kobelt, G., Berg, J., Atherly, D., & Hadjimichael, O. (2006). Costs and quality of life in multiple sclerosis: A cross-sectional study in the United States. Neurology, 66, 1696-1702.