Quality of care, quality of life, and attitudes toward disabilities: Perspectives from a qualitative focus group study in Porto Alegre, Brazil

Revista Panamericana de Salud Publica/Pan American Journal of Public Health

Volumn 31, Issue 3, 2012, Pages 188-196

  Mattevi, Betina S ^a   Bredemeier, Juliana ^a   Fam, Cláudia ^a   Fleck, Marcelo P ^a  

^a HOSPITAL DE CLÍNICAS DE PORTO ALEGRE   (Brazil)

Author keywords

Attitude to health; Brazil; Disabled persons; Focus groups; Qualitative research; Quality of health care; Quality of life

Indexed keywords

DISABILITY; HEALTH EDUCATION; HEALTH SERVICES; PERCEPTION; QUALITATIVE ANALYSIS; QUALITY OF LIFE; QUESTIONNAIRE SURVEY; SPATIOTEMPORAL ANALYSIS;

BRAZIL;

EID: 84861354904     PISSN: 10204989     EISSN: 16805348     Source Type: Journal    
DOI: 10.1590/S1020-49892012000300002     Document Type: Review

References (42)

1. World Health Organization. International classification of functioning, disability, and health. Geneva: WHO; 2001.
2. World Health Organization. Disability, including prevention, management and rehabilitation. Proceedings of the Fifty-eight World Health Assembly, April 2005. Available from: http://www.who.int/gb/ebwha/pdf-files/WHA58/A58-17-en.pdf Accessed on 5 April 2011.
3. World Health Organization Quality of Life Assessment Group. WHOQOL: development and general psychometric properties. Soc Sci Med. 1998;46:1569-85.
4. Berlim MT, Fleck M P A. "Quality of life": a brand new concept for research and practice in psychiatry. Rev Bras Psiquiatr. 2003;25 (4):249-52. (Pubitemid 37376772)
5. Pan American Health Organization. The News - letter of the Pan American Health Organization. Available from: http://www.paho.org/English/DD/PIN/ ptoday17-aug06.htm Accessed on 5 April 2011.
6. Nolen-Hoeksema S. Fredrickson B, Loftus G, Wagenaar W. Atkinson and Hildegard's introduction to psychology. 15th edition. London: Cengage Learning; 2009.
7. Tervo RC, Azuma S, Palmer G, Redinius P. Medical students' attitudes toward persons with disability: a comparative study. Arch Phys Med Rehabil. 2002;83 (11):1537-42. (Pubitemid 35304129)
8. Ville I, Ravaud JF. Work values: a comparison of non-disabled persons with persons with paraplegia. Disabil Rehabil. 1998;20:127-37. (Pubitemid 28152081)
9. Ravaud JF, Madiot B, Ville I. Discrimination towards disabled people seeking employment. Soc Sci Med. 1992;35:951-8. (Pubitemid 23366420)
10. Antonak RF, Livneh H. Measurement of attitudes toward persons with disabilities. Disabil Rehabil. 2000;22:211-24. (Pubitemid 30201328)
11. Amosun SL, Volmink L, Rosin R. Perceived images of disability: the reflections of two undergraduate medical students in a university in South Africa on life in a wheelchair. Disabil Rehabil. 2005;27 (16):961-6. (Pubitemid 41052441)
12. McConkey R, Truesdale M. Reactions of nurses and therapists in mainstream health services to contact with people who have learning disabilities. J Adv Nurs. 2000;32 (1):158-63.
13. Aulagnier M, Verger P, Ravaud JF, Souville M, Lussault PY, Garnier JP. Paraponaris A. General practitioners' attitudes toward patients with disabilities: the need for training and support. Disabil Rehabil. 2005;27 (22):1343-52. (Pubitemid 41759383)
14. Arun MP, Bharath S, Pal PK, Singh G. Relationship of depression, disability, and quality of life in Parkinson's disease: a hospitalbased case-control study. Neurol India. 2011;59 (2):185-9.
15. Antonioli CM, Bua G, Frigè A, Prandini K, Radici S, Scarsi M, et al. An individualized rehabilitation program in patients with systemic sclerosis may improve quality of life and hand mobility. Clin Rheumatol. 2009;28 (2):159-65.
16. Jenkinson C, Fitzpatrick R, Peto V. Healthrelated quality-of-life measurement in patients with Parkinson's disease. Pharmacoeconomics. 1999;15 (2):157-65. (Pubitemid 29093258)
17. Cummins R. A. The Comprehensive Quality of Life Scale-Intellectual Disability: An initial report. Aust N Z J Dev Disabil. 1991;17:259-64.
18. Flachenecker P, Vogel U, Simeoni MC, Auquier P, Rieckmann P. MusiQol: international questionnaire investigating quality of life in multiple sclerosis: validation results for the German subpopulation in an international comparison. Nervenarzt. 2011;82 (10):1281-9.
19. Hiidenhovi H, Laippala P, Nojonen K. Development of a patient-orientated instrument to measure service quality in outpatient departments. J Adv Nurs. 2001;34 (5) 696-705. (Pubitemid 33659490)
20. Henry D, Keys C, Jopp D, Balcazar F. The Community Living Attitudes Scale, Mental Retardation Form: development and psychometric properties. Ment Retard. 1996;34 (3):149-58. (Pubitemid 26187617)
21. Power MJ, Green AM, WHOQOL-Dis Group. Development of the WHOQOL disabilities module. Qual Life Res. 2010;19 (4):571-84.
22. Lucas-Carrasco R, Eser E, Hao Y, McPherson KM, Green A, Kullmann L, WHOQOL-Dis Group. The Quality of Care and Support (QOCS) for people with disability scale: development and psychometric properties. Res Dev Disabil. 2011;32 (3):1212-25.
23. Power MJ, Green AM; WHOQOL-Dis Group. The Attitudes to Disability Scale (ADS): development and psychometric properties. J Intellect Disabil Res. 2010;54 (9):860-74.
24. Schmidt S, Power M, Green A, Lucas-Carrasco R, Eser E, Dragomirecka E, et al. Self and proxy rating of quality of life in adults with intellectual disabilities: results from the DISQOL study. Res Dev Disabil. 2010;31 (5):1015-26.
25. World Health Organization Quality of Life Group. WHOQOL assessment: position paper from the World Health Organization. Soc Sci Med. 1995;41:1403-9.
26. Fleck M P A, Louzada S, Xavier M, Chachamovich E, Vieira G, Santos L, et al. Application of the Portuguese version of the abbreviated instrument of quality of life WHOQOL-Bref. Rev Saude Publica. 2000;34 (2):178-83.
27. World Medical Association. Declaration of Helsinki: ethical principles for medical research involving human subjects. Available from: http://www.bioetica.ufrgs.br/helsin7.pdf Accessed on 23 Jan 2011.
28. Bardin L. Análise de conteúdo. 4 ed. Lisboa: Edições 70; 2008.
29. O'Donnell O. Access to health care in developing countries: breaking down demand side barriers. Cad Saude Publica. 2007;23 (12):2820-34.
30. Souza EC, Vilar RL, Rocha N S P D, Uchoa AC, Rocha PM. Acesso e acolhimento na atenção básica: uma análise da percepção dos usuários e profissionais de saúde. Cad Saude Publica. 2008;24(Suppl 1): S100-10.
31. Mendoza-Sassi R, Beria JU, Barros AJ. Outpatient health service utilization and associated factors: a population-based study. Rev Saude Publica. 2003;37 (3):372-8. (Pubitemid 36874747)
32. Fleck MP, Chachamovich E, Trentini CM. WHOQOL-OLD Project: method and focus group results in Brazil. Rev Saude Publica. 2003;37 (6):793-9. (Pubitemid 38088166)
33. Schalock RL. Reconsidering the conceptualization and measurement of quality of life. Em: Schalock RL, Siperstein GN. Quality of life. Volume 1. Conceptualization and measurement. Washington, DC: American Association on Mental Retardation; 1996.
34. Felce D, Perry J. Quality of life: its definition and measurement. Res Dev Disabil. 1995;16:51-74.
35. Martins LM, França A P D, Kimura M. Qualidade de vida de pessoas com doença crônica. Rev Latino-Am Enfermagem. 1996;4 (3):5-18.
36. Salgado P C B, Souza E A P. Impacto da epilepsia no trabalho: avaliação da qualidade de vida. Arq Neuro-Psiquiatr. 2002; (60) 2 B: 442-5.
37. Galvão M T G, Cerqueira A T A R, Marcondes-Machado J. Avaliação da qualidade de vida de mulheres com HIV/AIDS através do HATQOL. Cad Saude Publica. 2004; (20) 2:430-7.
38. Bredemeier J, Gomes WB. Percepção de qualidade de vida de pessoas com fibrose cística: um estudo sobre a adequação dos instrumentos de medida. Rev Psiquiatr Rio Gd Sul. 2007;29 (1):35-43. (Pubitemid 47395219)
39. Conill EM. Avaliação da integralidade: conferindo sentido para os pactos na programacao de metas dos sistemas municipais de saúde. Cad Saude Publica. 2004;20 (5):1417-23.
40. Godan A, Brajković L, Fortuna V, Godan L. Attitudes and sterotypes of supporting fields towards the persons with disabilities. Coll Antropol. 2008;32 (3):783-91.
41. Dantas FG, Gibran AC, Gustavo AC, Antônio R V R F. Knowledge and attitudes toward epilepsy among primary, secondary and tertiary level teachers. Arq. Neuro-Psiquiatr. 2001;59(3 B):712-6. (Pubitemid 33607225)
42. Mays N, Pope C. Rigour and qualitative research. BMJ. 1995;311 (6997):109-12.