An individualized rehabilitation program in patients with systemic sclerosis may improve quality of life and hand mobility

Clinical Rheumatology

Volumn 28, Issue 2, 2009, Pages 159-165

  Antonioli, Chiara M ^b   Bua, Giovanni ^b   Frigè, Anna ^a   Prandini, Katia ^b   Radici, Sara ^b   Scarsi, Mirko ^a   Danieli, Elisabetta ^a   Malvicini, Andrea ^b   Airo, Paolo ^a  

^a SPEDALI CIVILI   (Italy)

^b Rehabilitation Unit for Dementia   (Italy)

Author keywords

Rehabilitation; Saint George's respiratory questionnaire; SF 36; Systemic sclerosis

Indexed keywords

ADULT; AGED; ARTICLE; CLINICAL EFFECTIVENESS; CONTROLLED STUDY; DISABILITY; DYSPNEA; EXERCISE TEST; EXERCISE TOLERANCE; EXTRACORPOREAL LITHOTRIPSY; FEMALE; FUNCTIONAL ASSESSMENT; HAND JOINT; HEART RATE; HUMAN; LOW LEVEL LASER THERAPY; MAGNETOTHERAPY; MAJOR CLINICAL STUDY; MALE; OUTCOME ASSESSMENT; PHYSIOTHERAPY; PRIORITY JOURNAL; QUALITY OF LIFE; QUESTIONNAIRE; REHABILITATION CARE; REHABILITATION PATIENT; RESPIRATORY TRACT DISEASE; SCLERODERMA; SHORT FORM 36; SYSTEMIC SCLEROSIS; TRANSCUTANEOUS NERVE STIMULATION; VISUAL ANALOG SCALE;

AGED; CASE-CONTROL STUDIES; DISABILITY EVALUATION; EXERCISE TOLERANCE; FEMALE; HAND JOINTS; HEALTH SURVEYS; HEART RATE; HUMANS; ITALY; MALE; MIDDLE AGED; OUTCOME ASSESSMENT (HEALTH CARE); PAIN MEASUREMENT; QUALITY OF LIFE; RANGE OF MOTION, ARTICULAR; RESPIRATORY FUNCTION TESTS; SCLERODERMA, SYSTEMIC; WALKING;

EID: 58149194833     PISSN: 07703198     EISSN: None     Source Type: Journal    
DOI: 10.1007/s10067-008-1006-x     Document Type: Article

References (35)

1. Varga J, Abraham D (2007) Systemic sclerosis: A prototypic multisystem fibrotic disorder. J Clin Invest 117:557-567
2. Seibold JR (2005) Scleroderma. In: Harris ED Jr, Budd RC, Firestein GS et al (eds) Kelley's textbook of rheumatology. 7th edn. Elsevier, Philadelphia, pp 1279-1308
3. Khanna D, Ahmed M, Furst DE et al (2007) Health values of patients with systemic sclerosis. Arthritis Rheum 57:86-93
4. Casale R, Buonocore M, Matucci-Cerinic M (1997) Systemic Sclerosis (Sclerodermia): An integrated challenge in rehabilitation. Arch Phys Med Rehabil 78:767-773
5. Mouthon L, Berezné A, Poiraudeau S, Guillevin L (2006) Therapeutic management of systemic sclerosis. Presse Med 35:1975-1982, [French]
6. Khanna D, Lovell DJ, Giannini E et al (2008) Development of a provisional core set of response measures for clinical trials of systemic sclerosis. Ann Rheum Dis 67:703-709
7. Hays RD, Woolley JM (2000) The concept of clinically meaningful difference in health-related quality-of-life research. How meaningful is it? Pharmacoeconomics 18:419-423
8. LeRoy EC, Black C, Fleischmayer R et al (1988) Scleroderma (systemic sclerosis): Classification, subsets and pathogenesis. J Rheumatol 15:202-208
9. Airò P, Danieli E, Rossi M et al (2007) Intravenous cyclophosphamide for interstitial lung disease associated to systemic sclerosis: Results with an 18-month long protocol including a maintenance phase. Clin Exp Rheumatol 25:293-296
10. Airò P, Rossi M, Scarsi M, Danieli E, Grottolo A, Zambruni A (2007) Disease-modifying effects of long-term cyclic iloprost therapy in systemic sclerosis. A retrospective analysis and comparison with a control group. Clin Exp Rheumatol 25:722-727
11. Poole JL, Steen VD (1991) The use of the Health Assessment Questionnaire to determine physical disability in systemic sclerosis. Arthritis Care Res 4:27-31
12. Ranza R, Marchesoni A, Calori G et al (1993) The Italian version of the Functional Disability Index of the Health Assessment Questionnaire. A reliable instrument for multicenter studies on rheumatoid arthritis. Clin Exp Rheumatol 11:123-128
13. Khanna D, Furst DE, Hays RD et al (2006) Minimally important difference in diffuse systemic sclerosis: Results from the D-penicillamine study. Ann Rheum Dis 65:1325-1329
14. Ware JE, Sherbourne CD (1992) The MOS 36-item short-form health survey (SF-36) I. Conceptual framework and item selection. Med Care 30:473-483
15. Apolone G, Mosconi P (1998) The Italian SF-36 Health Survey: translation, validation and norming. J Clin Epidemiol 51:1025-1036
16. Cossutta R, Zeni S, Soldi A, Colombelli P, Belotti Masserini A, Fantini F (2002) Evaluation of quality of life in patients with systemic sclerosis by the SF-36 questionnaire. Reumatismo 54:122-127, [Italian]
17. Kosinski M, Zhao SZ, Dedhiya S, Osterhaus JT, Ware JE Jr (2000) Determining minimally important changes in generic and disease- specific health-related quality of life questionnaires in clinical trials of rheumatoid arthritis. Arthritis Rheum 7:1478-1487
18. Beretta L, Santaniello A, Lemos A, Masciocchi M, Scorza R (2007) Validity of the Saint George's Respiratory Questionnaire in the evaluation of the health-related quality of life in patients with interstitial lung disease secondary to Systemic Sclerosis. Rheumatology 46:296-301
19. Carone M, Bertolotti G, Anchisi F et al (1999) The St. George's Respiratory Questionnaire (SGRQ): Italian version. Rassegna di Patologia dell - Apparato Respiratorio 14:31-37
20. Jones PW, Quirk FH, Baveystock CM (1991) The St George's Respiratory Questionnaire. Respir Med 85:25-31
21. Sandqvist G, Eklund M (2000) Validity of HAMIS: A test of Hand Mobility in Scleroderma. Arthritis Care Res 13:382-387
22. American Thoracic Society (2002) Guidelines for the six-minute walk test. Am J Respir Crit Care Med 166:111-117
23. Redelmeier DA, Bayoumi AM, Goldstein RS et al (1997) Interpreting small differences in functional status: The six minute walk test in chronic lung disease patients. Am J Respir Crit Care Med 155:1278-1282
24. Mahler DA, Horowitz MB (1994) Perception of breathlessness during exercise in patients with respiratory disease. Med Sci Sports Exe 20:1078-1081
25. De Torres JP, Pinto-Plata V, Ingenito E et al (2002) Power of outcome measurements to detect clinically significant changes in pulmonary rehabilitation of patients with COPD. Chest 121:1092-1098
26. Mahler DA, Horowitz MB (1994) Clinical evaluation of exertional dyspnea. Clin Chest Med 15:259-269
27. Cotes JE, Chinn DJ, Roca J, Quanjer PH, Yernault JC (1993) Standardization of the measurement of transfer factor (diffusing capacity). Eur Respir J (suppl) 16:41-52
28. Quanjer PH, Tammerling GJ, Cotes JE, Pedersen OF, Peslin R, Yernault JC (1994) Lung volumes and forced ventilatory flows. Rev Mal Respir 11:5-40
29. Clements P, Lachenbruch P, Siebold J et al (1995) Inter and intraobserver variability of total skin thickness score (modified Rodnan TSS) in systemic sclerosis. J Rheumatol 22:1277-1280
30. Alexanderson H, Stenstrom CH, Jenner G, Lundberg I (2000) The safety of a resistive home exercise program in patients with recent onset active polymyositis or dermatomyositis. Scand J Rheumatol 29:295-301
31. de Carvalho MRP, Sato EI, Tebexfreni AS et al (2005) Effects of a supervised cardiovascular training program on exercise tolerance, aerobic capacity, and quality of life in patients with systemic lupus erythematosus. Arthritis Rheum 53:838-844
32. Sandqvist G, Akesson A, Eklund M (2004) Evaluation of paraffin bath treatment in patients with systemic sclerosis. Disabil Rehabil 26:981-987
33. Naylor PW, Douglass CW, Mix E (1984) The nonsurgical treatment of microstomia in scleroderma: A pilot study. Oral Surg Oral Med Oral Pathol 57:508-511
34. Danieli E, Airò P, Bettoni L et al (2005) Health-Related quality of life measured by the short form 36 (SF-36) in Systemic Sclerosis: Correlations With indexes of Disease Activity and severity, disability, and depressive symptoms. Clin Reumatol 24:48-54
35. Airo' P, Tabaglio E, Frassi M, Scarsi M, Danieli E, Rossi M (2007) Prevalence of systemic sclerosis in Valtrompia in northern Italy. A collaborative study of rheumatologists and general practitioners. Clin Exp Rheumatol 25:807-809