메뉴 건너뛰기




Volumn 24, Issue 1, 2012, Pages 81-85

Development and validation of the Kilifi Stigma Scale for Epilepsy in Kenya

Author keywords

Epilepsy; Kenya; Stigma scale; Tool development; Validation

Indexed keywords

ABUSE; ADOLESCENT; ADULT; AGE; ARTICLE; CHILD; CROSS-SECTIONAL STUDY; CULTURAL ANTHROPOLOGY; EPILEPSY; FEMALE; HUMAN; INTERNAL CONSISTENCY; KENYA; KILIFI STIGMA SCALE; MAJOR CLINICAL STUDY; MALE; PRESCHOOL CHILD; PSYCHOLOGICAL RATING SCALE; PSYCHOMETRY; QUALITATIVE RESEARCH; SCHOOL CHILD; SEX DIFFERENCE; STIGMA; TEST RETEST RELIABILITY; VALIDATION STUDY;

EID: 84860664726     PISSN: 15255050     EISSN: 15255069     Source Type: Journal    
DOI: 10.1016/j.yebeh.2012.02.019     Document Type: Article
Times cited : (61)

References (40)
  • 1
    • 13944282652 scopus 로고    scopus 로고
    • Epilepsy and social identity: the stigma of a chronic neurological disorder
    • Jacoby A., Snape D., Baker G.A. Epilepsy and social identity: the stigma of a chronic neurological disorder. Lancet Neurol 2005, 4(3):171-178.
    • (2005) Lancet Neurol , vol.4 , Issue.3 , pp. 171-178
    • Jacoby, A.1    Snape, D.2    Baker, G.A.3
  • 2
    • 0036038060 scopus 로고    scopus 로고
    • The psychosocial burden of epilepsy
    • Baker G.A. The psychosocial burden of epilepsy. Epilepsia 2002, 43(Suppl. 6):26-30.
    • (2002) Epilepsia , vol.43 , Issue.SUPPL. 6 , pp. 26-30
    • Baker, G.A.1
  • 3
    • 3242719470 scopus 로고    scopus 로고
    • Stigma and epilepsy
    • Morrel M.J. Stigma and epilepsy. Epilepsy Behav 2002, 3:21-25.
    • (2002) Epilepsy Behav , vol.3 , pp. 21-25
    • Morrel, M.J.1
  • 4
    • 0029394049 scopus 로고
    • Public perceptions about epilepsy
    • Mclin W.M., de Boer H.M. Public perceptions about epilepsy. Epilepsia 1995, 36:957-959.
    • (1995) Epilepsia , vol.36 , pp. 957-959
    • Mclin, W.M.1    de Boer, H.M.2
  • 5
    • 0026600758 scopus 로고
    • Epilepsy and the quality of everyday life. Findings from a study of people with well-controlled epilepsy
    • Jacoby A. Epilepsy and the quality of everyday life. Findings from a study of people with well-controlled epilepsy. Soc Sci Med 1992, 34:657-666.
    • (1992) Soc Sci Med , vol.34 , pp. 657-666
    • Jacoby, A.1
  • 6
    • 0025153359 scopus 로고
    • Epilepsy and well-being
    • Collings J.A. Epilepsy and well-being. Soc Sci Med 1990, 31:165-170.
    • (1990) Soc Sci Med , vol.31 , pp. 165-170
    • Collings, J.A.1
  • 7
    • 0027519824 scopus 로고
    • Measuring the impact of epilepsy: the development of a novel scale
    • Jacoby A., Baker G., Smith D., Michael D., Chadwick D. Measuring the impact of epilepsy: the development of a novel scale. Epilepsy Res 1993, 16:83-88.
    • (1993) Epilepsy Res , vol.16 , pp. 83-88
    • Jacoby, A.1    Baker, G.2    Smith, D.3    Michael, D.4    Chadwick, D.5
  • 8
    • 0036669659 scopus 로고    scopus 로고
    • Epilepsy familiarity, knowledge, and perceptions of stigma: report from a survey of adolescents in the general population
    • Austin J.K., Shafer P.O., Deering J.B. Epilepsy familiarity, knowledge, and perceptions of stigma: report from a survey of adolescents in the general population. Epilepsy Behav 2002, 3(4):368-375.
    • (2002) Epilepsy Behav , vol.3 , Issue.4 , pp. 368-375
    • Austin, J.K.1    Shafer, P.O.2    Deering, J.B.3
  • 9
    • 0035433957 scopus 로고    scopus 로고
    • ILAE/IBE/WHO global campaign "out of the shadows": global and regional developments
    • Reynolds E.H. ILAE/IBE/WHO global campaign "out of the shadows": global and regional developments. Epilepsia 2001, 42(8):1094-1100.
    • (2001) Epilepsia , vol.42 , Issue.8 , pp. 1094-1100
    • Reynolds, E.H.1
  • 10
    • 32144463826 scopus 로고    scopus 로고
    • Stigma interventions and research for international health
    • Weiss M.G., Ramakrishna J. Stigma interventions and research for international health. Lancet 2006, 367(9509):536-538.
    • (2006) Lancet , vol.367 , Issue.9509 , pp. 536-538
    • Weiss, M.G.1    Ramakrishna, J.2
  • 11
    • 10844248667 scopus 로고    scopus 로고
    • ILAE/WHO "out of the shadows campaign" stigma: does the flag identify the cargo?
    • Reis R., Meinardi H. ILAE/WHO "out of the shadows campaign" stigma: does the flag identify the cargo?. Epilepsy Behav 2002, 3(6S2):33-37.
    • (2002) Epilepsy Behav , vol.3 , Issue.6 S2 , pp. 33-37
    • Reis, R.1    Meinardi, H.2
  • 12
    • 0028095992 scopus 로고
    • Felt versus enacted stigma: a concept revisited. Evidence from a study of people with epilepsy in remission
    • Jacoby A. Felt versus enacted stigma: a concept revisited. Evidence from a study of people with epilepsy in remission. Soc Sci Med 1982, 38(2):269-274.
    • (1982) Soc Sci Med , vol.38 , Issue.2 , pp. 269-274
    • Jacoby, A.1
  • 13
    • 84982747249 scopus 로고
    • Becoming epileptic: coming to terms with stigma
    • Scambler G., Hopkins A. Becoming epileptic: coming to terms with stigma. Sociol Health Illn 1986, 8:26-43.
    • (1986) Sociol Health Illn , vol.8 , pp. 26-43
    • Scambler, G.1    Hopkins, A.2
  • 14
    • 4043172875 scopus 로고    scopus 로고
    • Measuring stigma in children with epilepsy and their parents: instrument development and testing
    • Austin J., MacLeod J., Dunn D.W., Shen J., Perkins S.M. Measuring stigma in children with epilepsy and their parents: instrument development and testing. Epilepsy Behav 2004, 5:472-482.
    • (2004) Epilepsy Behav , vol.5 , pp. 472-482
    • Austin, J.1    MacLeod, J.2    Dunn, D.W.3    Shen, J.4    Perkins, S.M.5
  • 15
    • 0027324018 scopus 로고
    • Development of the child attitude toward illness scale
    • Austin J.K., Huberty T.J. Development of the child attitude toward illness scale. J Pediatr Psychol 1993, 18(4):467-480.
    • (1993) J Pediatr Psychol , vol.18 , Issue.4 , pp. 467-480
    • Austin, J.K.1    Huberty, T.J.2
  • 16
    • 0026468537 scopus 로고
    • Applying stigma theory to epilepsy: a test of a conceptual model
    • Westbrook L.E., Bauman L.J., Shinnar S. Applying stigma theory to epilepsy: a test of a conceptual model. J Pediatr Psychol 1992, 17:633-649.
    • (1992) J Pediatr Psychol , vol.17 , pp. 633-649
    • Westbrook, L.E.1    Bauman, L.J.2    Shinnar, S.3
  • 17
    • 0018897286 scopus 로고
    • The stigma of epilepsy as a self concept
    • Ryan R., Kempner K., Emlen A.C. The stigma of epilepsy as a self concept. Epilepsia 1980, 21:433-444.
    • (1980) Epilepsia , vol.21 , pp. 433-444
    • Ryan, R.1    Kempner, K.2    Emlen, A.C.3
  • 18
    • 0032780456 scopus 로고    scopus 로고
    • Development of the quality of life in epilepsy inventory for adolescents: the QOLIE-AD-48
    • Cramer J.A., Westbrook L.E., Devinsky O., Perrine K., Glassman M.B., Camfield C. Development of the quality of life in epilepsy inventory for adolescents: the QOLIE-AD-48. Epilepsia 1999, 40(8):1114-1121.
    • (1999) Epilepsia , vol.40 , Issue.8 , pp. 1114-1121
    • Cramer, J.A.1    Westbrook, L.E.2    Devinsky, O.3    Perrine, K.4    Glassman, M.B.5    Camfield, C.6
  • 21
    • 52949102175 scopus 로고    scopus 로고
    • Stigma scale of epilepsy: the perception of epilepsy stigma in different cities in Brazil
    • Fernandes P.T., Noronha A.L., Sander J.W., Li L.M. Stigma scale of epilepsy: the perception of epilepsy stigma in different cities in Brazil. Arq Neuropsiquiatr 2008, 66(3A):471-476.
    • (2008) Arq Neuropsiquiatr , vol.66 , Issue.3 A , pp. 471-476
    • Fernandes, P.T.1    Noronha, A.L.2    Sander, J.W.3    Li, L.M.4
  • 22
    • 0030775649 scopus 로고    scopus 로고
    • Epilepsy in Pakistan: stigma and psychosocial problems. A population-based epidemiologic study
    • Aziz H., Akhtar S.W., Hasan K.Z. Epilepsy in Pakistan: stigma and psychosocial problems. A population-based epidemiologic study. Epilepsia 1997, 38(10):1069-1073.
    • (1997) Epilepsia , vol.38 , Issue.10 , pp. 1069-1073
    • Aziz, H.1    Akhtar, S.W.2    Hasan, K.Z.3
  • 23
    • 0033989535 scopus 로고    scopus 로고
    • The stigma of epilepsy: a European perspective
    • Baker G.A., Brooks J., Buck D., Jacoby A. The stigma of epilepsy: a European perspective. Epilepsia 1999, 41:98-104.
    • (1999) Epilepsia , vol.41 , pp. 98-104
    • Baker, G.A.1    Brooks, J.2    Buck, D.3    Jacoby, A.4
  • 24
    • 13144250118 scopus 로고    scopus 로고
    • Quality of life of people with epilepsy in Iran, the Gulf, and Near East
    • Baker G.A., Jacoby A., Gorry J., Doughty J., Ellina V. Quality of life of people with epilepsy in Iran, the Gulf, and Near East. Epilepsia 2005, 46(1):132-140.
    • (2005) Epilepsia , vol.46 , Issue.1 , pp. 132-140
    • Baker, G.A.1    Jacoby, A.2    Gorry, J.3    Doughty, J.4    Ellina, V.5
  • 25
    • 77954654217 scopus 로고    scopus 로고
    • Sociocultural and psychological features of perceived stigma reported by people with epilepsy in Benin
    • Rafael F., Houinato D., Nubukpo P., et al. Sociocultural and psychological features of perceived stigma reported by people with epilepsy in Benin. Epilepsia 2010, 1-8.
    • (2010) Epilepsia , pp. 1-8
    • Rafael, F.1    Houinato, D.2    Nubukpo, P.3
  • 26
    • 20144370816 scopus 로고    scopus 로고
    • Factors contributing to the stigma of epilepsy
    • Lee S.A., Yoo H.J., Lee B.I. Factors contributing to the stigma of epilepsy. Seizure 2005, 14(3):157-163.
    • (2005) Seizure , vol.14 , Issue.3 , pp. 157-163
    • Lee, S.A.1    Yoo, H.J.2    Lee, B.I.3
  • 27
    • 33845338794 scopus 로고    scopus 로고
    • The social and economic impact of epilepsy in Zambia: a cross-sectional study
    • Birbeck G., Chomba E., Atadzhanov M., Mbewe E., Haworth A. The social and economic impact of epilepsy in Zambia: a cross-sectional study. Lancet Neurol 2007, 6(1):39-44.
    • (2007) Lancet Neurol , vol.6 , Issue.1 , pp. 39-44
    • Birbeck, G.1    Chomba, E.2    Atadzhanov, M.3    Mbewe, E.4    Haworth, A.5
  • 28
    • 33845945922 scopus 로고
    • Coefficient alpha and the internal structure of test
    • Cronbach L. Coefficient alpha and the internal structure of test. Psychometrika 1951, 16:297-334.
    • (1951) Psychometrika , vol.16 , pp. 297-334
    • Cronbach, L.1
  • 30
    • 37049030840 scopus 로고    scopus 로고
    • Active convulsive epilepsy in a rural district of Kenya: a study of prevalence and possible risk factors
    • Edwards T., Scott A.G., Munyoki G., et al. Active convulsive epilepsy in a rural district of Kenya: a study of prevalence and possible risk factors. Lancet Neurol 2008, 7(1):50-56.
    • (2008) Lancet Neurol , vol.7 , Issue.1 , pp. 50-56
    • Edwards, T.1    Scott, A.G.2    Munyoki, G.3
  • 31
    • 30844452899 scopus 로고    scopus 로고
    • Attitudes and practices of families and health care personnel toward children with epilepsy in Kilifi, Kenya
    • El Sharkawy G., Newton C., Hartley S. Attitudes and practices of families and health care personnel toward children with epilepsy in Kilifi, Kenya. Epilepsy Behav 2006, 8(1):201-212.
    • (2006) Epilepsy Behav , vol.8 , Issue.1 , pp. 201-212
    • El Sharkawy, G.1    Newton, C.2    Hartley, S.3
  • 32
    • 73449088424 scopus 로고    scopus 로고
    • Comparing characteristics of epilepsy treatment providers on the Kenyan coast: implications for treatment-seeking and intervention
    • Kendall-Taylor N.H., Kathomi C., Rimba K., Newton C.R. Comparing characteristics of epilepsy treatment providers on the Kenyan coast: implications for treatment-seeking and intervention. Rural Remote Health 2009, 9(4):1253.
    • (2009) Rural Remote Health , vol.9 , Issue.4 , pp. 1253
    • Kendall-Taylor, N.H.1    Kathomi, C.2    Rimba, K.3    Newton, C.R.4
  • 33
    • 0001457476 scopus 로고
    • Qualitative data analysis for applied policy research
    • Routledge, London, A. Bryman, R.G. Burgess (Eds.)
    • Ritchie J., Spencer E. Qualitative data analysis for applied policy research. Analyzing qualitative data 1994, 172-194. Routledge, London. A. Bryman, R.G. Burgess (Eds.).
    • (1994) Analyzing qualitative data , pp. 172-194
    • Ritchie, J.1    Spencer, E.2
  • 34
    • 78649905691 scopus 로고    scopus 로고
    • Epilepsy-associated stigma in Zambia: what factors predict greater felt stigma in a highly stigmatized population?
    • Atadzhanov M., Haworth A., Chomba E.N., Mbewe E.K., Birbeck G.L. Epilepsy-associated stigma in Zambia: what factors predict greater felt stigma in a highly stigmatized population?. Epilepsy Behav 2010 Nov, 19(3):414-418.
    • (2010) Epilepsy Behav , vol.19 , Issue.3 , pp. 414-418
    • Atadzhanov, M.1    Haworth, A.2    Chomba, E.N.3    Mbewe, E.K.4    Birbeck, G.L.5
  • 35
    • 10844219802 scopus 로고    scopus 로고
    • Developing a measure to assess attitudes toward epilepsy in the US population
    • Dilorio C.A., Kobau R., Holden E.W., et al. Developing a measure to assess attitudes toward epilepsy in the US population. Epilepsy Behav 2004, 5(6):965-975.
    • (2004) Epilepsy Behav , vol.5 , Issue.6 , pp. 965-975
    • Dilorio, C.A.1    Kobau, R.2    Holden, E.W.3
  • 37
    • 54349116755 scopus 로고    scopus 로고
    • Monitoring psychometric development in a resource-limited setting: an evaluation of the Kilifi Developmental Inventory
    • Abubakar A., Holding P., Van Baar A., Newton C.R.J.C., VanDe Vijver F.J.R. Monitoring psychometric development in a resource-limited setting: an evaluation of the Kilifi Developmental Inventory. Ann Trop Paediatr 2008, 28:217-226.
    • (2008) Ann Trop Paediatr , vol.28 , pp. 217-226
    • Abubakar, A.1    Holding, P.2    Van Baar, A.3    Newton, C.R.J.C.4    VanDe Vijver, F.J.R.5
  • 38
    • 34047250822 scopus 로고    scopus 로고
    • Assessing developmental outcomes in children from Kilifi, Kenya, following prophylaxis for seizures in cerebral malaria
    • Abubakar A., Fons J.R., De Vijver V., et al. Assessing developmental outcomes in children from Kilifi, Kenya, following prophylaxis for seizures in cerebral malaria. J Health Psychol 2007, 12:417.
    • (2007) J Health Psychol , vol.12 , pp. 417
    • Abubakar, A.1    Fons, J.R.2    De Vijver, V.3
  • 39
    • 1842486155 scopus 로고    scopus 로고
    • Assessing cognitive outcomes in a rural African population: development of a neuropsychological battery in Kilifi District, Kenya
    • Holding P.A., Taylor H.G., Kazungu S.D., et al. Assessing cognitive outcomes in a rural African population: development of a neuropsychological battery in Kilifi District, Kenya. J Int Neuropsychol Soc 2004, 10(2):246-260.
    • (2004) J Int Neuropsychol Soc , vol.10 , Issue.2 , pp. 246-260
    • Holding, P.A.1    Taylor, H.G.2    Kazungu, S.D.3
  • 40
    • 0028600665 scopus 로고
    • Guidelines, criteria, and rules of thumb for evaluating normed and standardized assessment instruments in psychology
    • Cicchetti D. Guidelines, criteria, and rules of thumb for evaluating normed and standardized assessment instruments in psychology. Psychol Assess 1994, 6:284-290.
    • (1994) Psychol Assess , vol.6 , pp. 284-290
    • Cicchetti, D.1


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.