Stigma scale of epilepsy: Conceptual issues

Journal of Epilepsy and Clinical Neurophysiology

Volumn 10, Issue 4, 2004, Pages 213-218

  Fernandes, Paula T ^a,b   Salgado, Priscila C B ^a,b   Noronha, Ana Lúcia A ^a,b   Barbosa, Fernanda D ^a   Souza, Elisabete A P ^a   Li, Li Min ^a,b  

^a UNIVERSITY OF CAMPINAS   (Brazil)

^b Assistência À Saúde de Pacientes Com Epilepsia ^*  (Brazil)

Author keywords

Epilepsy; Prejudice; Quality of life; Stigma; Stigma scale

Indexed keywords

ARTICLE; COMMUNITY CARE; CONTROLLED STUDY; CONVULSION; CULTURAL VALUE; DEMOGRAPHY; EPILEPSY; FEMALE; HEAD INJURY; HUMAN; MALE; MEDICAL EXAMINATION; NORMAL HUMAN; OUTPATIENT; QUESTIONNAIRE; SOCIAL ASPECT; SOUTH AND CENTRAL AMERICA; STIGMA;

EID: 21744437993     PISSN: 16762649     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Article

References (26)

1. Goffman E. Stigma: notes on the management of spoiled identity. New York: Touchstone; 1963.
2. Link BG. Stigma and its public health implications. Stigma and global health: developing a research agenda. 2001.
3. Sttaford MC, Scott RR. Stigma deviance and social control: some conceptual issues. 1986.
4. Reis R, Meinardi H. ILAE/WHO "Out of the Shadows Campaign" Stigma: does the flag identify the cargo? Epilepsy Behav 2002; 3:33-37.
5. Crocker J, Major B, Steele C. Social stigma. In: Gilbert DT, Fiske ST, eds. The Handbook of Social Psychology. Boston: Mc Graw Hill; 1998. p. 504-553.
6. Reingold AL. The study of stimatizing conditions: an epidemiologic perspective. Stigma and Global Health: developing a research agenda. 2001.
7. Baker GA. The psychosocial burden of epilepsy. Epilepsia 2002; 43(suppl 6):26-30.
8. Morrell MJ. Stigma and epilepsy. Epilepsy Behav 2002; 3:21-25.
9. McLin WM, de Boer HM. Public perceptions about epilepsy. Epilepsia 1995; 36:957-959.
10. Jacoby A. Epilepsy and the quality of everyday life. Findings from a study of people with well-controlled epilepsy. Soc Sci Med 1992; 34:657-666.
11. Collings JA. Epilepsy and well-being. Soc Sci Med 1990; 31:165-170.
12. Scambler G, Hopkins A. Generating a model of epileptic stigma: the role of qualitative analysis. Soc Sci Med 1990; 30:1187-1194.
13. Baker GA, Brooks J, Buck D, Jacoby A. The stigma of epilepsy: a European perspective. Epilepsia 2000; 41:98-104.
14. Baker G. The Psychosocial Burden of Epilepsy. Epilepsia 2002; 43:26-30.
15. Jacoby A. Felt versus enacted stigma: a concept revisited. Evidence from a study of people with epilepsy in remission. Soc Sci Med 1994; 38:269-274.
16. Austin JK, Dunn DW, Huster GA, Rose DF. Development of scales to measure psychosocial care needs of children with seizures and their parents. J Neurosci Nurs 1998; 30:155-60.
17. Jacoby A. Stigma, epilepsy, and quality of life. Epilepsy Behav 2002; 3:10-20.
18. Bunchaft G, Cavas CST. Sob medida: um guia de elaboração de medidas do comportamento e suas aplicações. 2002.
19. Dell JL. Social dimensions of epilepsy, stigma and response. In: Whitman S, Hermann BP, editors. Psychopatology in epilepsy: social dimensions. New York: Oxford University, 1986.
20. Austin JK, Dunn D, Huster GA, Rose DF. Development of scales to measure psychosocial care needs of chidren with seizures and their parents. J Neurosci Nurs 1998; 30:155-160.
21. Jorge MR. Adaptação transcultural de instrumentos de pesquisa em saúde mental. In: Gorestein C, Andrade LHSG, Zuardi AW, editors. Escalas de avaliação clínica em psiquiatria e psicofarmacologia. São Paulo: Lemos Editorial; 2000.
22. Abetz L, Jacoby A, Baker GA, McNulty P. Patient-based assessments of quality of life in newly diagnosed epilepsy patients: validation of the NEWQOL. Epilepsia 2000; 41:1119-28.
23. Hermann BP, Vickrey BG, Hays RD et al. A comparison of health-related quality of life in patients with epilepsy, diabetes and multiple sclerosis. Epilepsy Res 1996; 25:113-8.
24. Schneider JW, Conrad P. Having epilepsy: the experience and control of illness. Philadelphia: Temple University Press; 1983.
25. Ablon J. The nature of stigma and medical conditions. Epilepsy Behav 2002; 3:2-9.
26. Ryan R, Kempner K, Emlen AC. The stigma of epilepsy as a self-concept. Epilepsia 1980; 21:433-444.