Telling the Story: Perceptions of Hospice in Long-Term Care

American Journal of Hospice and Palliative Medicine

Volumn 29, Issue 3, 2012, Pages 201-209

  Munn, Jean Correll ^a  

^a FLORIDA STATE UNIVERSITY   (United States)

Author keywords

assisted living community; death; dying resident; end of life; nursing home; palliative care

Indexed keywords

ADULT; DEATH; FAMILY; FEMALE; HEALTH PERSONNEL ATTITUDE; HOSPICE CARE; HUMAN; INFORMATION PROCESSING; LONG TERM CARE; MALE; NURSE; PSYCHOLOGICAL ASPECT; QUALITATIVE RESEARCH; REVIEW; SOCIAL WORK;

ADULT; ATTITUDE OF HEALTH PERSONNEL; DEATH; FAMILY; FEMALE; FOCUS GROUPS; HOSPICE CARE; HUMANS; LONG-TERM CARE; MALE; NURSES; QUALITATIVE RESEARCH; SOCIAL WORK;

EID: 84860137338     PISSN: 10499091     EISSN: None     Source Type: Journal    
DOI: 10.1177/1049909111421340     Document Type: Review

References (51)

1. US Census Bureau. The 2010 Statistical Abstract: The National Data Book. http://www.census.gov/compendia/statab/cats/births_deaths_marriages_divorces.html. Accessed March 1, 2010.
2. Mitchell SL,Teno JM,Miller SC,Mor V.A national location of death for older persons with dementia.J Am Geriatr Soc. 2005;53 (2): 299-305.
3. Temkin-Greener H,Mukamel DB.Predicting the place of death in the program of all-inclusive care for the elderly (PACE): participant versus program characteristics.J Am Geriatr Soc. 2002;50 (1): 125-135.
4. Miller SC,Teno JM,Mor V.Hospice and palliative care in nursing homes.Clin Geriatr Med. 2004;20 (4): 717-734.
5. Munn J,Dobbs D,Meier A,Williams C,Biola H,Zimmerman S.The end-of-life experience in long-term care: five themes identified from focus groups with residents, family members, and staff.Gerontologist. 2008;48 (4): 485-494.
6. Munn J,Hanson L,Zimmerman S,Sloane PD,Mitchell CM.Do Hospice services enhance end-of-life care for residents of nursing homes and assisted living?.J Am Geriatr Soc. 2006;54 (3): 490-495.
7. Teno JM,Clarridge BR,Casey V, et al.Family perspectives of care in the last place of care.JAMA. 2004;291 (1): 88-93.
8. Kapo J,Morrison LJ,Liao S.Palliative care for the older adult.J Palliat Med. 2007;10 (1): 185-209.
9. Asch-GoodkinJ. The virtues of Hospice care. Patient Care. 2000;15:72-91.www.patientcareonline.com. Accessed December 6, 2002.
10. Munn J,Zimmerman S,Hanson L, et al.Measuring the quality of dying in long-term care.J Am Geriatr Soc. 2007;55 (9): 1371-1379.
11. Gozalo PL,Miller SC.Hospice enrollment and evaluation of its causal effect on hospitalization of dying nursing home patients.Health Serv Res. 2007;42 (2): 587-610.
12. Miller SC,Mor V,Wu N,Gozalo P,Lapane K.Does receipt of Hospice care in nursing homes improve the management of pain at the end of life?.J Am Geriatr Soc. 2002;50 (3): 507-515.
13. Lau DT,Masin-Peters J,Berdes C,Ong M.Perceived barriers that impede provider relations and medication delivery: Hospice providers' experiences in nursing homes and private homes.J Palliat Med. 2010;13 (3): 305-310.
14. Miller SC,Gozalo P,Mor V.Hospice enrollment and hospitalization of dying nursing home patients.Am J Med. 2001;111 (1): 38-44.
15. Shield RR,Wetle R,Teno J,Miller SC,Welch L.Physicians "missing in action": family perspectives on physician and staffing problems in the end-of-life care in the nursing home.J Am Geriatr Soc. 2005;53 (10): 1651-1657.
16. Teno J,Coppola KM.For every numerator, you need a denominator: a simple statement but key to measuring the quality of care in dying.J Pain Symptom Manage. 1999;17 (2): 109-113.
17. Patrick DL,Engelberg RA,Curtis JR.Evaluating the quality of death and dying.J Pain Symptom Manage. 2001;22 (3): 717-726.
18. Hickman SE,Tilden VP,Tolle SW.Family reports of dying patients' distress: the adaptation of a research tool to assess global symptom distress during the last week of life.J Pain Symptom Manage. 2001;22 (1): 565-574.
19. Fowler FJ,Coppola KM,Teno J.Methodological challenges for measuring quality of care at the end of life.J Pain Symptom Manage. 1999;17 (2): 114-119.
20. George L.Research design in end-of-life research.Gerontologist. 2002;42:86-103.
21. Grady PA.Introduction: papers from the National Institutes of Health state-of-the-science conference on improving end-of-life care.J Palliat Med. 2005;8 (suppl 1): S1-S3.
22. Schockett ER,Teno JM,Miller SC,Stuart B.Late referral to Hospice and bereaved family member perception of quality end-of-life care.J Pain Symptom Manage. 2005;30 (5): 400-407.
23. Padgett DKQualitative Methods in Social Work Research. Thousand Oaks, CA: SAGE; 2008:.
24. Krueger RA,Casey MAFocus Groups: A Practical Guide for Applied Research. Thousand Oaks, CA: SAGE; 2000:.
25. Glaser BGMore Grounded Theory Methodology. Mill Valley. CA: Sociology Press; 2004:.
26. Glaser BG,Strauss ALThe Discovery of Grounded Theory: Strategies for Qualitative Research. New York. NY: Aldine-Atherton; 1967:.
27. Strauss AL,Corbin JBasics of Qualitative Research: Techniques and Procedures for Developing Grounded Theory. Thousand Oaks, CA: SAGE; 1998:.
28. Miller SC,Mor V.The opportunity for collaborative care provision: the presence of nursing home/Hospice collaborations in the U.S. states.J Pain Symptom Manage. 2004;28 (6): 537-547.
29. Dobbs D,Hanson L,Zimmerman S,Williams C,Munn J.Hospice attitudes among assisted living and nursing home administrators and the long-term care Hospice attitudes scale.J Palliat Med. 2006;9 (6): 1388-1400.
30. Miller SC,Lima J,Gozalo PL,Mor V.The growth of Hospice care in U.S. nursing homes.J Am Geriatr Soc. 2010;58 (8): 1481-1488.
31. Miller SC,Han B.End-of-life care in U.S. nursing homes: nursing homes with special programs and trained staff for Hospice or palliative/end-of-life care.J Palliat Med. 2008;11 (6): 866-877.
32. Kwak J,Haley WE,Chiriboga DA.Racial differences in Hospice use and in-hospital death among medicare and medicaid dual-eligible nursing home residents.Gerontologist. 2008;48 (1): 32-41.
33. Volicer L,Hurley AC,Blasi ZV.Characteristics of dementia end-of-life care across care settings.Am J Hosp Palliat Care. 2003;20 (3): 191-200.
34. Zimmerman S,Sloane PD,Williams CS, et al.Residential care/assisted living staff may detect undiagnosed dementia using the minimum data set cognition scale (MDS-COGS).J Am Geriatr Soc. 2007;55 (9): 1349-1355.
35. Magaziner J,German P,Zimmerman SI, et al.The prevalence of dementia in a statewide sample of new nursing home admissions ages 65 and older: diagnosis by expert panel.Gerontologist. 2000;40 (6): 663-672.
36. Meier DE,Lim B,Carlson MD.Raising the standard: palliative care in nursing homes.Health Aff (Millwood). 2010;29 (1): 136-140.
37. Gozalo P,Miller SC,Intrator O,Barber JP,Mor V.Hospice effect on government expenditures among nursing home residents.Health Serv Res. 2008;43 (1): 134-153.
38. Christ GH,Sormanti M.Advancing social work practice in end-of-life care.Soc Work Health Care. 1999;30 (2): 81-99.
39. Miller SC,Gozalo P,Mor V.Hospice enrollment and hospitalization of dying nursing home patients.Am J Med. 2001;111 (11): 38-44.
40. Heyman J,Gutheil IA.Social work involvement in end-of-life planning.J Gerontol Soc Work. 2006;47 (3-4): 47-61.
41. Ford DW,Nietert PJ,Zapka J,Zoller JS,Silvestri GA.Barriers to Hospice enrollment among lung cancer patients: a survey of family members and physicians.Palliat Support Care. 2008;6 (4): 357-362.
42. Welch LC,Miller SC,Martin EW,Nanda A.Referral and timing of referral to Hospice care in nursing homes: the significant role of staff members.Gerontologist. 2008;48 (4): 477-484.
43. Munn J,Zimmerman S.Defining a good death for residents of long-term care: family members speak.J Soc Work End Life Palliat Care. 2006;2 (3): 45-59.
44. Bern-Klug M.The ambiguous dying syndrome.Health Soc Work. 2004;29 (1): 55-65.
45. Abramson JS,Mizrahi T.When social workers and physicians collaborate: positive and negative interdisciplinary experience.Soc Work. 1996;41 (3): 270-281.
46. Berzoff J,Lucas G,Deluca D, et al.Clinical social work education in palliative and end-of-life care: relational approaches for advanced practitioners.J Soc Work End Life Palliat Care. 2006;2 (1): 45-63.
47. Walsh-Burke K,Csikai EL.Professional social work education in end-of-life care: contributions of the project on death in America's social work leadership development program.J Soc Work End Life Palliat Care. 2005;1 (2): 11-26.
48. Kramer B.Family conflict at the end-of-life: lessons learned from a model program for vulnerable older adults.Gerontologist. 2003;43 (4): 280.
49. Lacey D.Nursing home social worker skills and end-of-life planning.Soc Work Health Care. 2005;40 (4): 19-40.
50. Miller SC.Hospice care in nursing homes: is site associated with visit volume?.J Am Geriatr Soc. 2004;52 (8): 1331-1336.
51. Code of Federal Regulations (CFR). Title 42. Chapter IV 418.112 Subpart D. ecfr.gpoaccess.gov. Accessed July 12, 2011.