Physicians "missing in action": Family perspectives on physician and staffing problems in end-of-life care in the nursing home

Journal of the American Geriatrics Society

Volumn 53, Issue 10, 2005, Pages 1651-1657

  Shield, Renée R ^a   Wetle, Terrie ^a   Teno, Joan ^a   Miller, Susan C ^a   Welch, Lisa ^a  

^a BROWN UNIVERSITY   (United States)

Author keywords

End of life care in nursing homes; Family perceptions of nursing home care; Physicians in nursing homes

Indexed keywords

ARTICLE; DYING; FAMILY; FOLLOW UP; HEALTH SURVEY; HUMAN; INTERVIEW; NURSING HOME; PHYSICIAN ATTITUDE; QUALITATIVE ANALYSIS; RESIDENTIAL CARE; TELEPHONE; UNITED STATES;

AGED; AGED, 80 AND OVER; CONSUMER SATISFACTION; FEMALE; HEALTH SERVICES NEEDS AND DEMAND; HOMES FOR THE AGED; HUMANS; INTERVIEWS; MALE; NURSING CARE; NURSING HOMES; NURSING STAFF; PHYSICIANS; PROFESSIONAL-FAMILY RELATIONS; QUALITY ASSURANCE, HEALTH CARE; TERMINAL CARE; UNITED STATES;

EID: 30944445579     PISSN: 00028614     EISSN: 15325415     Source Type: Journal    
DOI: 10.1111/j.1532-5415.2005.53505.x     Document Type: Article

References (28)

1. Weitzen S, Teno JM, Fennell M et al. Factors associated with site of death: A national study of where people die. Med Care 2003;41:323-335.
2. Holtzman J, Lurie N. Causes of increasing mortality in a nursing home population. J Am Geriatr Soc 1996;44:258-264.
3. Engle VF. Care of the living, care of the dying: Reconceptualizing nursing home care. J Am Geriatr Soc 1998;46:1172-1174.
4. Tolle SW, Rosenfeld A, Tilden V et al. Oregon's low-in-hospital death rates: What determines where people die and satisfaction with decisions on place of death? Ann Intern Med 1999;130:681-685.
5. Bourbonniere M, Teno J, Roy J et al. Transitions at the end of life: Quality of care and information continuity. J Am Geriatr Soc 2003;51:S40.
6. Brock D, Foley D. Demography and epidemiology of dying in the U.S. with emphasis on deaths of older persons. Hospital J 1998;13:49-60.
7. Teno JM, Clarridge BR, Casey V et al. Family perspectives on end-of-life care at the last place of care. JAMA 2004;291:88-93.
8. Bernabei R, Gambassi G, Lapane K et al. Management of pain in elderly patients with cancer. SAGE Study Group. Systematic Assessment of Geriatric Drug Use via Epidemiology. JAMA 1998;279:1877-1882.
9. Won A, Lapane K, Gambassi G et al. Correlates and management of nonmalignant pain in the nursing home. SAGE Study Group. Systematic Assessment of Geriatric Drug Use via Epidemiology. J Am Geriatr Soc 1999;47:936-942.
10. Cohen-Mansfield J, Lipson S. Pain in cognitively impaired nursing home resident: How well are physicians diagnosing it? J Am Geriatr Soc. 2002;50:1039-1044.
11. Miller SC, Mor V, Wu N et al. Does receipt of hospice care in nursing homes improve the management of pain at the end-of-life? J Am Geriatr Soc. 2002;50:507-515.
12. Harrington C, Carrillo H, Wellin V. Nursing Facilities, Staffing, Residents, and Facility Deficiencies: 1994-2000. San Francisco: Department of Social and Behavioral Sciences, University of California, 2001.
13. Kayser-Jones J. The experience of dying: An ethnographic nursing home study. Gerontologist 2002;42(Special Issue III):11-19.
14. Hanson LC, Danis M, Garrett J. What is wrong with end-of-life life care? Opinions of bereaved family members. J Am Geriatr Soc 1997;45:1339-1344.
15. Ersek M, Wilson SA. The challenges and opportunities in providing end-of-life care in nursing homes. J Palliat Med 2003;6:45-57.
16. Farber SJ, Egnew TR, Herman-Bertsch JL et al. Issues in end-of-life care: Patient, caregiver, and clinician perceptions. J Palliat Med 2003;6:19-31.
17. Mehr DR, van der Steen JT, Kruse RL et al. Lower respiratory infections in nursing home residents with dementia: A tale of two countries. Gerontologist 2003;43(Special Issue II):85-93.
18. Hanson JC, Henderson M, Manon M. As individual as death itself: A focus group study of terminal care in nursing homes. J Palliat Med 2002;5:117-125.
19. Wetle T, Teno J, Shield R et al. End of Life in Nursing Homes: Experiences and Policy Recommendations. Washington, DC: AARP Public Policy Institute, 2004.
20. Wetle T, Shield R, Teno J et al. Family perspectives on end-of-life care experiences in nursing homes. Gerontologist, In press.
21. Curry L, Schwartz HI, Gruman C et al. Physicians' voices on physician-assisted suicide: Looking beyond the numbers. Ethics Behav 2000;10:337-361.
22. Teno JM, Clarridge B, Casey V et al. Validation of toolkit after-death bereaved family member interview. J Pain Symptom Manage 2001;22:752-758.
23. Teno JM, Casey VA, Welch LC et al. Patient-focused, family-centered end-of-life medical care: Views of the guidelines and bereaved family members. J Pain Symptom Manage 2001;22:738-751.
24. Center for Gerontology and Health Care Research [on-line]. Available at www.chcr.brown.edu Accessed May 26, 2005.
25. Atlas.ti [on-line]. Available at www.atlasti.de Accessed May 26, 2005.
26. Kane RA, Caplan AL, eds. Everyday Ethics: Resolving Dilemmas in Nursing Home Life. New York: Springer, 1990.
27. Kane RA. Factors affecting physician participation in nursing home care. J Am Geriatr Soc 1993;41:1000-1003.
28. American Geriatrics Society Position Statement. Regulation and quality of care standards in nursing facilities 2001. Ann Long Term Care 2001;9:31-32.