메뉴 건너뛰기




Volumn 26, Issue 3, 2012, Pages 241-250

Other Voices, Other Rooms: Reflections on Talking to Young Men with Duchenne Muscular Dystrophy and Their Families About Transition to Adulthood

Author keywords

Co produced data; Duchenne muscular dystrophy; Family dynamics; Qualitative interviews

Indexed keywords


EID: 84859878709     PISSN: 09510605     EISSN: 10990860     Source Type: Journal    
DOI: 10.1111/j.1099-0860.2012.00437.x     Document Type: Article
Times cited : (24)

References (23)
  • 2
    • 0019784642 scopus 로고
    • Moral tales: parents' stories of encounters with the health profession
    • Baruch G. 1981. Moral tales: parents' stories of encounters with the health profession. Social Health and Illness 3: 275-296.
    • (1981) Social Health and Illness , vol.3 , pp. 275-296
    • Baruch, G.1
  • 3
    • 29144514382 scopus 로고    scopus 로고
    • Hegemonic masculinity: rethinking the concept
    • Connell R, Messerschmidt J. 2005. Hegemonic masculinity: rethinking the concept. Gender & Society 19: 829-859.
    • (2005) Gender & Society , vol.19 , pp. 829-859
    • Connell, R.1    Messerschmidt, J.2
  • 5
    • 0035596656 scopus 로고    scopus 로고
    • Where are the children's experiences? Analysing social and cultural exclusion in 'special' and 'mainstream' schools
    • Davis J, Watson N. 2001. Where are the children's experiences? Analysing social and cultural exclusion in 'special' and 'mainstream' schools. Disability & Society 16: 671-687.
    • (2001) Disability & Society , vol.16 , pp. 671-687
    • Davis, J.1    Watson, N.2
  • 6
    • 0036895043 scopus 로고    scopus 로고
    • Survival in Duchenne muscular dystrophy: improvements in life expectancy since 1967 and the impact of home nocturnal ventilation
    • Eagle M, Baudouin S, Chandler C, Giddings D, Bullock R, Bushby K. 2002. Survival in Duchenne muscular dystrophy: improvements in life expectancy since 1967 and the impact of home nocturnal ventilation. Neuromuscular Disorders 12: 926-929.
    • (2002) Neuromuscular Disorders , vol.12 , pp. 926-929
    • Eagle, M.1    Baudouin, S.2    Chandler, C.3    Giddings, D.4    Bullock, R.5    Bushby, K.6
  • 7
    • 34249099687 scopus 로고    scopus 로고
    • Managing Duchenne muscular dystrophy - the additive effect of spinal surgery and home nocturnal ventilation in improving survival
    • Eagle M, Bourke J, Bullock R, Gibson M, Mehta J, Giddings D, Straub V, Bushby K. 2007. Managing Duchenne muscular dystrophy - the additive effect of spinal surgery and home nocturnal ventilation in improving survival. Neuromuscular Disorders 17: 470-475.
    • (2007) Neuromuscular Disorders , vol.17 , pp. 470-475
    • Eagle, M.1    Bourke, J.2    Bullock, R.3    Gibson, M.4    Mehta, J.5    Giddings, D.6    Straub, V.7    Bushby, K.8
  • 8
    • 2642568379 scopus 로고    scopus 로고
    • Re-thinking of family-centred care across the continuum of children's healthcare
    • Franck L, Callery P. 2004. Re-thinking of family-centred care across the continuum of children's healthcare. Child: Care, Health and Development 30: 265-277.
    • (2004) Child: Care, Health and Development , vol.30 , pp. 265-277
    • Franck, L.1    Callery, P.2
  • 10
    • 34347325986 scopus 로고    scopus 로고
    • Men on the margin: a Bourdieusian examination of living into adulthood with muscular dystrophy
    • Gibson B, Young N, Upshur R, McKeever P. 2007. Men on the margin: a Bourdieusian examination of living into adulthood with muscular dystrophy. Social Science and Medicine 65: 505-517.
    • (2007) Social Science and Medicine , vol.65 , pp. 505-517
    • Gibson, B.1    Young, N.2    Upshur, R.3    McKeever, P.4
  • 11
    • 0024618979 scopus 로고
    • Families of chronically ill children: a systems and social-ecological model of adaptation and challenge
    • Kazak A. 1989. Families of chronically ill children: a systems and social-ecological model of adaptation and challenge. Journal of Consulting and Clinical Psychology 57: 25-30.
    • (1989) Journal of Consulting and Clinical Psychology , vol.57 , pp. 25-30
    • Kazak, A.1
  • 12
    • 8744252861 scopus 로고    scopus 로고
    • Feminist approaches
    • In Seale C, Gobo G, Gubrium J, Silverman D (eds.). SAGE: London;
    • Kitzinger C. 2004. Feminist approaches. In Qualitative Research Practice. Seale C, Gobo G, Gubrium J, Silverman D (eds.). SAGE: London; 125-140.
    • (2004) Qualitative Research Practice , pp. 125-140
    • Kitzinger, C.1
  • 13
    • 71749084419 scopus 로고    scopus 로고
    • Silence in the context of 'child voice'
    • Lewis A. 2010. Silence in the context of 'child voice'. Children & Society 24: 14-23.
    • (2010) Children & Society , vol.24 , pp. 14-23
    • Lewis, A.1
  • 15
    • 2342668076 scopus 로고    scopus 로고
    • Including all children: finding out about the experiences of children with communication and/or cognitive impairments
    • Morris J. 2003. Including all children: finding out about the experiences of children with communication and/or cognitive impairments. Children & Society 17: 337-348.
    • (2003) Children & Society , vol.17 , pp. 337-348
    • Morris, J.1
  • 22
    • 70449433077 scopus 로고    scopus 로고
    • Shifting horizons: reflections on qualitative methods
    • Smart C. 2009. Shifting horizons: reflections on qualitative methods. Feminist Theory 10: 1-14.
    • (2009) Feminist Theory , vol.10 , pp. 1-14
    • Smart, C.1
  • 23
    • 84859875849 scopus 로고    scopus 로고
    • The challenge and challenging of childhood studies? Learning from disability studies and research with disabled children. Children & Society :
    • Tisdall K. 2012. The challenge and challenging of childhood studies? Learning from disability studies and research with disabled children. Children & Society 26: 181-191.
    • (2012) , vol.26 , pp. 181-191
    • Tisdall, K.1


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.