A scoping exercise of favourable characteristics of professionals working in teenage and young adult cancer care: 'Thinking outside of the box'

European Journal of Cancer Care

Volumn 21, Issue 3, 2012, Pages 330-339

  Gibson, F ^a   Fern, L ^b   Whelan, J ^b   Pearce, S ^b   Lewis, I J ^c   Hobin, D ^d   Taylor, R M ^a  

^a LONDON SOUTH BANK UNIVERSITY   (United Kingdom)

^b UNIVERSITY COLLEGE LONDON HOSPITALS   (United Kingdom)

^c ALDER HEY CHILDREN'S NHS FOUNDATION TRUST   (United Kingdom)

^d BIRMINGHAM CHILDREN S HOSPITAL NHS FOUNDATION TRUST   (United Kingdom)

Author keywords

Adolescent; Competency; Teenager; Young adult

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; ATTITUDE TO HEALTH; CLINICAL COMPETENCE; DOCTOR PATIENT RELATION; FEMALE; HEALTH CARE PERSONNEL; HUMAN; MALE; NEOPLASM; PERSONALITY; PROFESSIONAL STANDARD; PSYCHOLOGICAL ASPECT; STANDARD; UNITED KINGDOM;

ADOLESCENT; CLINICAL COMPETENCE; ENGLAND; FEMALE; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HEALTH PERSONNEL; HUMANS; MALE; NEOPLASMS; PERSONALITY; PHYSICIAN-PATIENT RELATIONS; PROFESSIONAL ROLE; YOUNG ADULT;

EID: 84859767639     PISSN: 09615423     EISSN: 13652354     Source Type: Journal    
DOI: 10.1111/j.1365-2354.2011.01322.x     Document Type: Article

References (35)

1. Arnett J.A. (2000) Emerging adulthood: a theory of development from the late teens through the twenties. American Psychologist 55, 469-480.
2. Baldwin K.M., Clark A.P., Fulton J. & Mayo A. (2009) National validation of the NACNS clinical nurse specialist core competencies. Journal of Nursing Scholarship 41, 193-201.
3. Benner P. (2001) From Novice to Expert: Excellence and Power in Clinical Nursing Practice, Commemorative Edition Edn. Prentice Hall Health, Upper Saddle River, NJ, USA.
4. Bradshaw A. (1998) Defining 'competency' in nursing (Part II): an analytical review. Journal of Clinical Nursing 7, 103-111.
5. Bradshaw A. (2000) Competence and British nursing: a view from history. Journal of Clinical Nursing 9, 321-329.
6. Bylund C.L., Brown R., Gueguen J.A., Diamond C., Bianculli J. & Kissane D.W. (2010) The implementation and assessment of a comprehensive communication skills training curriculum for oncologists. Psycho-Oncology 19, 583-593.
7. Denver K. (2006) A comparative study design in two different hospital environments. BSc Thesis. University College London, Lodon, UK.
8. Eraut M. (1994) Developing Professional Knowledge and Competence. The Falmer Press, London, UK.
9. Fallon S., Smith J., Morgan S., Stoner M. & Austin C. (2008) 'Pizza, patients and points of view': involving young people in the design of a post registration module entitled the adolescent with cancer. Nurse Education in Practice 8, 140-147.
10. Ford S., Fallowfield L. & Lewis S. (1996) Doctor-patient interactions in oncology. Social Science and Medicine 42, 1511-1519.
11. Gensichen J., Vollmar H.C., Sonnichsen A., Waldmann U. & Sandars J. (2009) E-learning for education in primary healthcare - turning the hype into reality: a Delphi study. European Journal of General Practice 15, 11-14.
12. Gibson F., Fletcher M. & Casey A. (2003) Classifying general and specialist children's nursing competencies. Journal of Advanced Nursing 44, 591-602.
13. Gibson F., Aldiss S., Horstman M., Kumpunen S. & Richardson A. (2010) Children and young people's experiences of cancer care: a qualitative research study using participatory methods. International Journal of Nursing Studies 47, 1397-1407.
14. Hall J.L. (1999) Developing meaningful age-appropriate competencies for clinical services. Journal for Nurses in Staff Development 15, 243-250.
15. Hammond M. & McLean E. (2009) What parents and carers think medical students should be learning about communication with children and families. Patient Education and Counseling 76, 368-375.
16. Hayes-Lattin B., Mathews-Bradshaw B. & Siegel S. (2010) Adolescent and young adult oncology training for health professionals: a position statement. Journal of Clinical Oncology 28, 4858-4861.
17. Hoffman M., Ferri J., Sison C., Roter D., Schapira L. & Baile W. (2004) Teaching communication skills: an AACE survey of oncology training programs. Journal of Cancer Education 19, 220-224.
18. Kane M. & Trochim W.M.K. (2007) Concept Mapping for Planning and Evaluation. Sage, Thousand Oak, CA, USA.
19. Kelly D., Pearce S. & Mulhall A. (2004) 'Being in the same boat': ethnographic insights into an adolescent cancer unit. International Journal of Nursing Studies 41, 847-857.
20. Lenzi R., Baile W.F., Costantini A., Grassi L. & Parker P.A. (2011) Communication training in oncology: results of intensive communication workshops for Italian oncologists. European Journal of Cancer Care 20, 196-203.
21. Lewis I.J. (2005) Patterns of care for teenage and young adults with cancer: is there a single blueprint of care? In: Cancer and the Adolescent, 2nd edn (eds Eden T.O.B., Barr R.D., Bleyer A. & Whiteson M.), pp. 241-258. Blackwell Publishers, Malden, MA, USA.
22. Liu L. & Yuan C. (2009) Construction of palliative care training contents in China: a Delphi study. Cancer Nursing 32, 446-455.
23. Loge J.H., Kaasa S. & Hytten K. (1997) Disclosing the cancer diagnosis: the patients' experiences. European Journal of Cancer 33, 878-882.
24. Meretoja R. & Koponen L. (2011) A systematic model to compare nurses' optimal and actual competencies in the clinical setting. Journal of Advanced Nursing [Epub ahead of print] doi: 10.111/j.1365-2648.2011.05754.x.
25. Morgan S. (2006) Developing adolescent services - crossing the divide. Archives de Pediatrie 13, 709-710.
26. National Institute for Health and Clinical Excellence (2005) Guidance on Cancer Services: Improving Outcomes in Children and Young People with Cancer. NICE, London, UK.
27. Pearce S., Gibson F., Fern L., O'Hara C., Taylor R.M. & Whelan J. (2010) The 'Essence of Care' for Teenagers and Young Adults with Cancer: A National Longitudinal Study to Assess the Benefits of Specialist Care. Phase 1 Feasibility and Scoping Study. Final Report. University College London Hospitals NHS Foundation Trust, London, UK. (available from jeremy.whelan@uclh.nhs.uk)
28. Reynolds B.C., Windebank K.P., Leonard R.C. & Wallace W.H. (2005) A comparison of self-reported satisfaction between adolescents treated in a 'teenage' unit with those treated in adult or paediatric units. Pediatric Blood and Cancer 44, 259-263.
29. Schofield N.G., Green C. & Creed F. (2008) Communication skills of health-care professionals working in oncology - can they be improved? European Journal of Oncology Nursing 12, 4-13.
30. Shephard C. & Treseder P. (2002) Participation: Spice It Up! Dynamix, Swansea, UK.
31. Stiefel F., Barth J., Bensing J., Fallowfield L., Jost L., Razavi D., Kiss A. & Participants (2010) Communication skills training in oncology: a position paper based on a consensus meeting among European experts in 2009. Annals of Oncology 21, 204-207.
32. The Futures Company Report for Teenage Cancer Trust (2010) Exploring the Impact of the Built Environment. The Futures Company, London, UK.
33. Thomas D., Albritton K.H. & Ferrari A. (2010) Adolescent and young adult oncology: an emerging field. Journal of Clinical Oncology 28, 4781-4782.
34. Whelan J., Dolbear C., Mak V., Moller H. & Davies E. (2007) Where do teenagers and young adults receive treatment for cancer? Journal of Public Health 29, 178-182.
35. Zebrack B., Bleyer A., Albritton K., Medearis S. & Tang J. (2006) Assessing the health care needs of adolescent and young adult cancer patients and survivors. Cancer 107, 2915-2923.