-
3
-
-
84857208241
-
-
Brazil São Paulo, Brazil: Cortez. Retrieved from
-
Brazil. (1990). Statute of child and adolescent. São Paulo, Brazil: Cortez. Retrieved from http://www.dominiopublico.gov.br/download/texto/sf00009a.pdf.
-
(1990)
Statute of child and adolescent
-
-
-
4
-
-
34247201028
-
Family resiliency during childhood cancer: The father's perspective
-
Brody A.C.,Simmons L.A.Family resiliency during childhood cancer: The father's perspective.Journal of Pediatric Oncology Nursing. 2007;24:152-165.
-
(2007)
Journal of Pediatric Oncology Nursing
, vol.24
, pp. 152-165
-
-
Brody, A.C.1
Simmons, L.A.2
-
6
-
-
16644362648
-
Hospital staff and family perspectives regarding quality of pediatric palliative care
-
Contro N.A.,Larson J.,Scofield S.,Sourkes B.,Cohen H.J.Hospital staff and family perspectives regarding quality of pediatric palliative care.Pediatrics. 2004;114:1248-1252.
-
(2004)
Pediatrics
, vol.114
, pp. 1248-1252
-
-
Contro, N.A.1
Larson, J.2
Scofield, S.3
Sourkes, B.4
Cohen, H.J.5
-
8
-
-
32044458832
-
Family Management Style Framework: A new tool with potential to assess families who have children with brain tumors
-
Deatrick J.,Thibodeaux A.,Mooney K.,Schmus C.,Pollacki R.,Davey B.Family Management Style Framework: A new tool with potential to assess families who have children with brain tumors.Journal of Pediatric Oncology Nursing. 2006;23 (1): 19-27.
-
(2006)
Journal of Pediatric Oncology Nursing
, vol.23
, Issue.1
, pp. 19-27
-
-
Deatrick, J.1
Thibodeaux, A.2
Mooney, K.3
Schmus, C.4
Pollacki, R.5
Davey, B.6
-
9
-
-
33747888382
-
Caring for a loved one with advanced cancer: Determinants of psychological distress in family caregivers
-
Dumont S.,Turgeon J.,Allard P.,Gagnon P.,Charbonneau C.,Vezina L.Caring for a loved one with advanced cancer: Determinants of psychological distress in family caregivers.Journal of Palliative Medicine. 2006;9:912-921.
-
(2006)
Journal of Palliative Medicine
, vol.9
, pp. 912-921
-
-
Dumont, S.1
Turgeon, J.2
Allard, P.3
Gagnon, P.4
Charbonneau, C.5
Vezina, L.6
-
10
-
-
41649120558
-
Understanding of prognosis and goals of care among couples whose child died of cancer
-
Edwards K.E.,Neville B.,Cook E.F.,Aldridge S.H.,Dussel V.,Wolfe J.Understanding of prognosis and goals of care among couples whose child died of cancer.Journal of Clinical Oncology. 2008;26:1310-1315.
-
(2008)
Journal of Clinical Oncology
, vol.26
, pp. 1310-1315
-
-
Edwards, K.E.1
Neville, B.2
Cook, E.F.3
Aldridge, S.H.4
Dussel, V.5
Wolfe, J.6
-
11
-
-
0035511714
-
The needs of parents with chronically sick children: A literature review
-
Fisher H.R.The needs of parents with chronically sick children: A literature review.Journal of Advanced Nursing. 2001;36:600-607.
-
(2001)
Journal of Advanced Nursing
, vol.36
, pp. 600-607
-
-
Fisher, H.R.1
-
12
-
-
26244441578
-
Parents sharing information with their children about genetic conditions
-
Gallo A.M.,Angst D.,Knafl K.A.,Hadley E.,Smith C.Parents sharing information with their children about genetic conditions.Journal of Pediatric Health Care. 2005;19:267-275.
-
(2005)
Journal of Pediatric Health Care
, vol.19
, pp. 267-275
-
-
Gallo, A.M.1
Angst, D.2
Knafl, K.A.3
Hadley, E.4
Smith, C.5
-
13
-
-
37249093055
-
Parents' concerns about issues related to their children's genetic conditions
-
Gallo A.M.,Hadley E. K,Angst D.B.,Knafl K.A.,Smith C.A.Parents' concerns about issues related to their children's genetic conditions.Journal of Specialists in Pediatric Nursing. 2008;13 (1): 4-14.
-
(2008)
Journal of Specialists in Pediatric Nursing
, vol.13
, Issue.1
, pp. 4-14
-
-
Gallo, A.M.1
Hadley, E.K.2
Angst, D.B.3
Knafl, K.A.4
Smith, C.A.5
-
14
-
-
0032109682
-
Parents' reports of "tricks of the trade" for managing childhood chronic illness
-
Retrieved from
-
GalloA. M.KnaflK. A. (1998). Parents' reports of "tricks of the trade" for managing childhood chronic illness. Journal of the Society of Pediatric Nurses, 3(3), 93-100. Retrieved from http://go.galegroup.com/ps/i.do?&id=GALE%7CA21164026&v=2.1&u=capes77&it=r&p=AONE&sw=w.
-
(1998)
Journal of the Society of Pediatric Nurses
, vol.3
, Issue.3
, pp. 93-100
-
-
Gallo, A.M.1
Knafl, K.A.2
-
15
-
-
33745317984
-
The Seattle Pediatric Palliative Care Project: Effects on family satisfaction and health-related quality of life
-
Hays R.M.,Valentine J.,Haynes G.,Geyer J.R.,Villareale N.,McKinstry B.,Churchill S.S.The Seattle Pediatric Palliative Care Project: Effects on family satisfaction and health-related quality of life.Journal of Palliative Medicine. 2006;9:716-728.
-
(2006)
Journal of Palliative Medicine
, vol.9
, pp. 716-728
-
-
Hays, R.M.1
Valentine, J.2
Haynes, G.3
Geyer, J.R.4
Villareale, N.5
McKinstry, B.6
Churchill, S.S.7
-
16
-
-
24944557180
-
Continuity of care and caring: What matters to parents of children with life-threatening conditions
-
Heller K.S.,Solomon M.Z.Continuity of care and caring: What matters to parents of children with life-threatening conditions.Journal of Pediatric Nursing. 2005;20:335-346.
-
(2005)
Journal of Pediatric Nursing
, vol.20
, pp. 335-346
-
-
Heller, K.S.1
Solomon, M.Z.2
-
18
-
-
0025378403
-
Family management style: Concept analysis and development
-
Knafl K.A.,Deatrick J.A.Family management style: Concept analysis and development.Journal of Pediatric Nursing. 1990;5 (1): 4-14.
-
(1990)
Journal of Pediatric Nursing
, vol.5
, Issue.1
, pp. 4-14
-
-
Knafl, K.A.1
Deatrick, J.A.2
-
19
-
-
2442619670
-
Further refinement of the Family Management Style Framework
-
Knafl K.A.,Deatrick J.A.Further refinement of the Family Management Style Framework.Journal of Family Nursing. 2003;9:232-256.
-
(2003)
Journal of Family Nursing
, vol.9
, pp. 232-256
-
-
Knafl, K.A.1
Deatrick, J.A.2
-
20
-
-
32044470671
-
Family management style and the challenge of moving from conceptualization to measurement
-
Knafl K.A.,Deatrick J.A.Family management style and the challenge of moving from conceptualization to measurement.Journal of Pediatric Oncology Nursing. 2006;23 (1): 12-18.
-
(2006)
Journal of Pediatric Oncology Nursing
, vol.23
, Issue.1
, pp. 12-18
-
-
Knafl, K.A.1
Deatrick, J.A.2
-
21
-
-
58249145074
-
The interplay of concepts, data, and methods in the development of the Family Management Style Framework
-
Knafl K.A.,Deatrick J.A.,Gallo A.M.The interplay of concepts, data, and methods in the development of the Family Management Style Framework.Journal of Family Nursing. 2008;14:412-428.
-
(2008)
Journal of Family Nursing
, vol.14
, pp. 412-428
-
-
Knafl, K.A.1
Deatrick, J.A.2
Gallo, A.M.3
-
22
-
-
34247520538
-
Factor analysis model evaluation through likelihood cross-validation
-
Knafl G.J.,Grey M.Factor analysis model evaluation through likelihood cross-validation.Statistical Methods in Medical Research. 2007;16 (2): 77-102.
-
(2007)
Statistical Methods in Medical Research
, vol.16
, Issue.2
, pp. 77-102
-
-
Knafl, G.J.1
Grey, M.2
-
23
-
-
84857202755
-
-
In Regional Council of Medicine of São Paulo-CREMESP (Ed.), Palliative care São Paulo, Brazil: CREMESP. Retrieved from
-
MacielM. G. S. (2008). Definitions and principles. In Regional Council of Medicine of São Paulo-CREMESP (Ed.), Palliative care (pp. 16-32). São Paulo, Brazil: CREMESP. Retrieved from http://www.slideshare.net/Laryssasampaio/livro-cuidado-paliativocremesp.
-
(2008)
Definitions and principles
, pp. 16-32
-
-
Maciel, M.G.S.1
-
24
-
-
0040982295
-
Qualitative content analysis
-
Art. 20, Retrieved from
-
MayringP. (2000). Qualitative content analysis. Forum: Qualitative Social Research, 1(2), Art. 20, Retrieved from http://nbn-resolving.de/urn:nbn:de:0114-fqs0002204.
-
(2000)
Forum: Qualitative Social Research
, vol.1
, Issue.2
-
-
Mayring, P.1
-
25
-
-
65949105700
-
Not being able to live like before: The family dynamics during the experience of pediatric liver transplantation
-
Mendes A.M. C.,Bousso R.S.Not being able to live like before: The family dynamics during the experience of pediatric liver transplantation.Latin American Journal of Nursing. 2009;17 (1): 74-80.
-
(2009)
Latin American Journal of Nursing
, vol.17
, Issue.1
, pp. 74-80
-
-
Mendes A.M., C.1
Bousso, R.S.2
-
28
-
-
34047149482
-
Managing cancer and its intercurrences: The family deciding to seek emergency care for the child
-
Misko M.D.,Bousso R.S.Managing cancer and its intercurrences: The family deciding to seek emergency care for the child.Latin American Journal of Nursing. 2007;15 (1): 48-54.
-
(2007)
Latin American Journal of Nursing
, vol.15
, Issue.1
, pp. 48-54
-
-
Misko, M.D.1
Bousso, R.S.2
-
29
-
-
38549139985
-
Supportive and palliative care needs of families of children with life-threatening illness in Western Australia: Evidence to guide the development of a palliative care service
-
Monterosso L.,Aoun S.,Kristjanson L.K.,Philips M.Supportive and palliative care needs of families of children with life-threatening illness in Western Australia: Evidence to guide the development of a palliative care service.Palliative Medicine. 2007;21:689-696.
-
(2007)
Palliative Medicine
, vol.21
, pp. 689-696
-
-
Monterosso, L.1
Aoun, S.2
Kristjanson, L.K.3
Philips, M.4
-
30
-
-
68449101081
-
The supportive and palliative care needs of Australian families of children who die from cancer
-
Monterosso L.,Kristjanson L.J.,Phillips M.B.The supportive and palliative care needs of Australian families of children who die from cancer.Palliative Medicine. 2009;23:526-536.
-
(2009)
Palliative Medicine
, vol.23
, pp. 526-536
-
-
Monterosso, L.1
Kristjanson, L.J.2
Phillips, M.B.3
-
31
-
-
32044467114
-
Consensus statements: The Family Management Style Framework and its use with families of children with cancer
-
Nelson A.,Deatrick J.,Knafl K.,Alderfer M.,Ogle S.Consensus statements: The Family Management Style Framework and its use with families of children with cancer.Journal of Pediatric Oncology Nursing. 2006;23 (1): 36-37.
-
(2006)
Journal of Pediatric Oncology Nursing
, vol.23
, Issue.1
, pp. 36-37
-
-
Nelson, A.1
Deatrick, J.2
Knafl, K.3
Alderfer, M.4
Ogle, S.5
-
32
-
-
32044439312
-
Clinical application of family management styles to families of children with cancer
-
Ogle S.Clinical application of family management styles to families of children with cancer.Journal of Pediatric Oncology Nursing. 2006;23 (1): 28-31.
-
(2006)
Journal of Pediatric Oncology Nursing
, vol.23
, Issue.1
, pp. 28-31
-
-
Ogle, S.1
-
33
-
-
84928507539
-
Bereavement as a psychosocial transition: Processes of adaptation to change
-
Parkes C.M.Bereavement as a psychosocial transition: Processes of adaptation to change.Journal of Social Issues. 1988;44 (3): 53-65.
-
(1988)
Journal of Social Issues
, vol.44
, Issue.3
, pp. 53-65
-
-
Parkes, C.M.1
-
34
-
-
44849131911
-
A matter of definition-Key elements identified in a discourse analysis of definitions of palliative care
-
Pastrana T.,Jünger S.,Ostgathe C.,Elsner F.,Radbruch L.A matter of definition-Key elements identified in a discourse analysis of definitions of palliative care.Palliative Medicine. 2008;22:222-232.
-
(2008)
Palliative Medicine
, vol.22
, pp. 222-232
-
-
Pastrana, T.1
Jünger, S.2
Ostgathe, C.3
Elsner, F.4
Radbruch, L.5
-
35
-
-
0003743782
-
-
(3rd ed.). Thousand Oaks, CA: SAGE.;, Thousand Oaks, CA: SAGE
-
Patton M.Q.Qualitative research & evaluation methods. 2002). Qualitative research & evaluation methods (3rd ed.). Thousand Oaks, CA: SAGE.Thousand Oaks, CA: SAGE; 2002:.
-
(2002)
Qualitative Research & Evaluation Methods
-
-
Patton, M.Q.1
-
36
-
-
0027765090
-
Rigor or rigor mortis: The problem of rigor in qualitative research revisited
-
Retrieved from
-
SandelowskiM. (1993). Rigor or rigor mortis: The problem of rigor in qualitative research revisited. Advances in Nursing Science, 16(2), 1-8. Retrieved from http://journals.lww.com/advancesinnursingscience/Abstract/1993/12000/Rigor_or_rigor_mortis__The_problem_of_rigor_in.2.aspx.
-
(1993)
Advances in Nursing Science
, vol.16
, Issue.2
, pp. 1-8
-
-
Sandelowski, M.1
-
37
-
-
74349101245
-
What's in a name? Qualitative description revisited
-
Sandelowski M.What's in a name? Qualitative description revisited.Research in Nursing & Health. 2010;33 (1): 77-84.
-
(2010)
Research in Nursing & Health
, vol.33
, Issue.1
, pp. 77-84
-
-
Sandelowski, M.1
-
38
-
-
36549007003
-
Health outcomes of bereavement
-
Stroebe M.,Schut H.,Stroebe W.Health outcomes of bereavement.Lancet. 2007;370:1960-1973.
-
(2007)
Lancet
, vol.370
, pp. 1960-1973
-
-
Stroebe, M.1
Schut, H.2
Stroebe, W.3
-
40
-
-
46849122668
-
Assessment of parental psychological stress in pediatric cancer: A review
-
Vrijmoet-Wiersma J.,vanKlink J.M. M.,Kolk A.M.,Koopman H.M.,Ball L.M.,Egeler L.M.Assessment of parental psychological stress in pediatric cancer: A review.Journal of Pediatric Psychology. 2008;33:694-706.
-
(2008)
Journal of Pediatric Psychology
, vol.33
, pp. 694-706
-
-
Vrijmoet-Wiersma, J.1
van Klink, J.M.M.2
Kolk, A.M.3
Koopman, H.M.4
Ball, L.M.5
Egeler, L.M.6
-
42
-
-
43549098267
-
Family management styles related to withdrawal of life-sustaining therapy from adults who are acutely ill or injured
-
Wiegand D.L.,Deatrick J.A.,Knafl K.Family management styles related to withdrawal of life-sustaining therapy from adults who are acutely ill or injured.Journal of Family Nursing. 2008;14 (1): 16-32.
-
(2008)
Journal of Family Nursing
, vol.14
, Issue.1
, pp. 16-32
-
-
Wiegand, D.L.1
Deatrick, J.A.2
Knafl, K.3
-
43
-
-
0034598818
-
Symptoms and suffering at the end of life in children with cancer
-
Wolfe J.,Grier H.E.,Klar N.,Levin S.B.,Ellembogen J.M.,Salem-Schatz S., Weeks J.C.Symptoms and suffering at the end of life in children with cancer.New England Journal of Medicine. 2000;342:326-333.
-
(2000)
New England Journal of Medicine
, vol.342
, pp. 326-333
-
-
Wolfe, J.1
Grier, H.E.2
Klar, N.3
Levin, S.B.4
Ellembogen, J.M.5
Salem-Schatz, S.6
Weeks, J.C.7
-
44
-
-
0038777391
-
Expectations and beliefs about children's cancer symptoms: Perspectives of children with cancer and their families
-
Woodgate R.L.,Degner L.F.Expectations and beliefs about children's cancer symptoms: Perspectives of children with cancer and their families.Oncology Nursing Forum. 2003;30:479-491.
-
(2003)
Oncology Nursing Forum
, vol.30
, pp. 479-491
-
-
Woodgate, R.L.1
Degner, L.F.2
-
45
-
-
33745758952
-
-
World Health Organization Geneva, Switzerland: Author. Retrieved from
-
World Health Organization. (2009). Definition of palliative care. Geneva, Switzerland: Author. Retrieved from http://www.who.int/cancer/palliative/definition/en/.
-
(2009)
Definition of palliative care
-
-
-
46
-
-
33845792513
-
Getting out of the house: The challenges mothers face when their children have long-term care needs
-
Yantzi N.M.,Rosenberg M.W.,McKeever P.Getting out of the house: The challenges mothers face when their children have long-term care needs.Health and Social Care in the Community. 2007;15 (1): 45-55.
-
(2007)
Health and Social Care in the Community
, vol.15
, Issue.1
, pp. 45-55
-
-
Yantzi, N.M.1
Rosenberg, M.W.2
McKeever, P.3
|