Information about prenatal screening for Down syndrome. Ethnic differences in knowledge

Patient Education and Counseling

Volumn 77, Issue 2, 2009, Pages 279-288

  Fransen, Mirjam P ^a   Hajo Wildschut, ^a   Vogel, Ineke ^a   Mackenbach, Johan ^a   Steegers, Eric ^a   Essink Bot, Marie Louise ^a,b  

^a ERASMUS MEDICAL CENTER   (Netherlands)

^b UNIVERSITY OF AMSTERDAM   (Netherlands)

Author keywords

Down syndrome; Ethnic differences; Information; Prenatal screening

Indexed keywords

ADULT; AMNIOCENTESIS; ARTICLE; DOWN SYNDROME; EDUCATION; ETHNIC DIFFERENCE; FEMALE; HUMAN; INTERVIEW; KNOWLEDGE; LANGUAGE ABILITY; MEDICAL INFORMATION; MIDWIFE; POPULATION RESEARCH; PRENATAL CARE; PRENATAL SCREENING; PRIORITY JOURNAL;

ADULT; ANALYSIS OF VARIANCE; CHI-SQUARE DISTRIBUTION; COMPREHENSION; DOWN SYNDROME; EDUCATIONAL STATUS; ETHNIC GROUPS; FEMALE; HUMANS; LANGUAGE; NETHERLANDS; PATIENT EDUCATION AS TOPIC; PREGNANCY; PRENATAL DIAGNOSIS; SURINAME; TURKEY;

EID: 70350064729     PISSN: 07383991     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.pec.2009.03.034     Document Type: Article

References (27)

1. Rowe R.E., Garcia J., and Davidson L.L. Social and ethnic inequalities in the offer and uptake of prenatal screening and diagnosis in the UK: a systematic review. Public Health 118 (2004) 177-189
2. Green J.M., Hewison J., Bekker H.L., Bryant L.D., and Cuckle H.S. Psychosocial aspects of genetic screening of pregnant women and newborns: a systematic review. Health Technol Assess 8 (2004) 1-109 p. iii, ix-x
3. Singer E., Antonucci T., and Van Hoewyk J. Racial and ethnic variations in knowledge and attitudes about genetic testing. Genet Test 8 (2004) 31-43
4. Dormandy E., Michie S., Hooper R., and Marteau T.M. Low uptake of prenatal screening for Down syndrome in minority ethnic groups and socially deprived groups: a reflection of women's attitudes or a failure to facilitate informed choices?. Int J Epidemiol 34 (2005) 346-352
5. Jaques A.M., Halliday J.L., and Bell R.J. Do women know that prenatal testing detects fetuses with Down syndrome?. J Obstet Gynaecol 24 (2004) 647-651
6. Fransen M.P., Essink-Bot M.L., Oenema A., Mackenbach J.P., Steegers E.A., and Wildschut H.I. Ethnic differences in determinants of participation and non-participation in prenatal screening for Down syndrome: a theoretical framework. Prenat Diagn 27 (2007) 938-950
7. Dahl K., Kesmodel U., Hvidman L., and Olesen F. Informed consent: providing information about prenatal examinations. Acta Obstet Gynecol Scand 85 (2006) 1420-1425
8. Jaques A.M., Sheffield L.J., and Halliday J.L. Informed choice in women attending private clinics to undergo first-trimester screening for Down syndrome. Prenat Diagn 25 (2005) 656-664
9. Municipality of Rotterdam. Inhabitants of Rotterdam according to ethnicity 1-1-2000-2008 (2008), Centre for Research and Statistics (COS), Rotterdam
10. Health Council of The Netherlands. Population screening act: inition of a national programme for prenatal screening: Down's syndrome and neural tube defects [Wet Bevolkingsonderzoek: aanzet voor een landelijk programma voor prentale screening] (2006), WBO, The Hague publication no 2006/03
11. Health Council of The Netherlands. Prenatal Screening (2); Down's syndrome, neural tube defects [Prenatale screening: Down syndroom, neuralebuisdefecten] (2004), WBO, The Hague publication no 2004/06
12. Heckerling P.S., and Verp M.S. Amniocentesis or chorionic villus sampling for prenatal genetic testing: a decision analysis. J Clin Epidemiol 44 (1991) 657-670
13. Erfocentre. Prenatal screening for Down's syndrome and physical abnormalities. General information [cited 28-5-2008]. Available from: www.rivm.nl/zwangerschapsscreening; 2008.
14. Van den Berg M., Timmermans D.R., Ten Kate L.P., van Vugt J.M., and van der Wal G. Are pregnant women making informed choices about prenatal screening?. Genet Med 7 (2005) 332-338
15. Marteau T.M., and Dormandy E. Facilitating informed choice in prenatal testing: how well are we doing?. Am J Med Genet 106 (2001) 185-190
16. Statistics Netherlands [cited 2008-05-21]. Available from: www.cbs.nl; 2008.
17. Stronks K., Glasgow I.K., and Klazinga N. The identification of ethnic groups in health research, additional to the country of birth classification (2004), Academic Medical Center University of Amsterdam, Amsterdam
18. Grewal G.K., Moss H.J., Aitken D.A., Bjornsson S., Cameron A.D., and Pell J.P. Factors affecting women's knowledge of antenatal serum screening. Scott Med J 42 (1997) 111-113
19. Schouten B.C., and Meeuwesen L. Cultural differences in medical communication: a review of the literature. Patient Educ Couns 64 (2006) 21-34
20. Mulvey S., and Wallace E.M. Levels of knowledge of Down syndrome and Down syndrome testing in Australian women. Aust N Z J Obstet Gynaecol 41 (2001) 167-169
21. Chilaka V.N., Konje J.C., Stewart C.R., Narayan H., and Taylor D.J. Knowledge of Down syndrome in pregnant women from different ethnic groups. Prenat Diagn 21 (2001) 159-164
22. Kuppermann M., Gates E., and Washington A.E. Racial-ethnic differences in prenatal diagnostic test use and outcomes: preferences, socioeconomics, or patient knowledge?. Obstet Gynecol 87 (1996) 675-682
23. Browner C.H., Preloran M., and Press N.A. The effects of ethnicity, education and an informational video on pregnant women's knowledge and decisions about a prenatal diagnostic screening test. Patient Educ Couns 27 (1996) 135-146
24. Gourounti K., and Sandall J. Do pregnant women in Greece make informed choices about antenatal screening for Down's syndrome? A questionnaire survey. Midwifery 24 (2008) 153-162
25. Suriadi C., Jovanovska M., and Quinlivan J.A. Factors affecting mothers' knowledge of genetic screening. Aust N Z J Obstet Gynaecol 44 (2004) 30-34
26. Alouini S., Moutel G., Venslauskaite G., Gaillard M., Truc J.B., and Herve C. Information for patients undergoing a prenatal diagnosis. Eur J Obstet Gynecol Reprod Biol 134 (2007) 9-14
27. Hewison J., Cuckle H., Baillie C., Sehmi I., Lindow S., Jackson F., and Batty J. Use of videotapes for viewing at home to inform choice in Down syndrome screening: a randomised controlled trial. Prenat Diagn 21 (2001) 146-149