Young adults' (16-25 years) suggestions for providing developmentally appropriate diabetes services: A qualitative study

Health and Social Care in the Community

Volumn 13, Issue 5, 2005, Pages 409-419

  Dovey Pearce, Gail ^a,e   Hurrell, Ruth ^b   May, Carl ^c   Walker, Caron ^d   Doherty, Yvonne ^a  

^a NORTHUMBRIA HEALTHCARE NHS FOUNDATION TRUST   (United Kingdom)

^b NHS GREATER GLASGOW AND CLYDE   (United Kingdom)

^c NEWCASTLE UNIVERSITY   (United Kingdom)

^d Sunderland Teaching Primary Care Trust   (United Kingdom)

^e NORTH TYNESIDE GENERAL HOSPITAL   (United Kingdom)

Author keywords

Adolescence; Diabetes; Service provision; Transition; User involvement; Young adult

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CHILD; COMMUNITY CARE; DIABETES MELLITUS; EVALUATION; HEALTH CARE PERSONNEL; HUMAN; HUMAN RELATION; MALE; ORGANIZATION AND MANAGEMENT; PATIENT CARE; PSYCHOLOGICAL ASPECT; UNITED KINGDOM; UTILIZATION REVIEW;

ADOLESCENT; ADULT; CHILD; COMMUNITY HEALTH SERVICES; DIABETES MELLITUS; ENGLAND; EVALUATION STUDIES; HEALTH PERSONNEL; HUMANS; MALE; PATIENT-CENTERED CARE; PROFESSIONAL-PATIENT RELATIONS;

EID: 23744434470     PISSN: 09660410     EISSN: None     Source Type: Journal    
DOI: 10.1111/j.1365-2524.2005.00577.x     Document Type: Article

References (36)

1. American Academy of Pediatrics, American Academy of Family Physicians & American College of Physicians (2002) A consensus statement on health care transitions for young adults with special health care needs. Pediatrics 110 (6), 1304-1306.
2. Arnett J.J. (2000) Emerging adulthood: a theory of development from the late teens through the twenties. American Psychologist 55, 469-480.
3. Brumfield K. & Lansbury G. (2004) Experiencwes of adolescents with cystic fibrosis during their transition from paediatric to adult health care: a qualitative study of young Australian adults. Disability and Rehabilitation 26 (4), 223-234.
4. Bryon M. & Madge S. (2001) Transition from paediatric to adult care: psychological principles. Journal of the Royal Society of Medicine 40 (94), 5-7.
5. Callahan ST., Feinstein Winitzer R. & Keenan P. (2001) Transition from pediatric to adult-oriented health care: a challenge for patients with chronic disease. Current Opinion in Pediatrics 13, 310-316.
6. Cappelli M., MacDonald N.E. & McGrath P.J. (1989) Assessment of readiness to transfer to adult care for adolescents with cystic fibrosis. Children's Health Care 18 (4), 218-219.
7. Court J. (1991) Outpatient-based transition services for youth. Pediatrician 18, 150-156.
8. Cowlard J. (2003) Cystic fibrosis: transition from paediatric to adult care. Nursing Standard 18 (4), 39-41.
9. Datta J. (2003) Moving Up with Diabetes: The Transition from Paediatric to Adult Care. National Children's Bureau, London.
10. David T.J. (2001) Transition from the paediatric clinic to the adult service. Journal of the Royal Society of Medicine 94 (8), 373-375.
11. Department of Health (1999) Caldicott Guardians. (Health Service Circular: HSC 1999/012.) Department of Health, London.
12. Department of Health (2004). National Service Framework for Children, Young People and Maternity Services. Department of Health, London.
13. Department of Health & Medical Research Council (2002) Current and Future Research in Diabetes. The Stationery Office, London.
14. Dolan P., Cookson R. & Ferguson B. (1999) Effect of discussion and deliberation on the public's views of priority setting in health care: focus group study. British Medical Journal 318, 916-919.
15. Eiser C., Flynn M., Green E., Havermans T., Kirby R., Sandeman D. & Tooke J.E. (1990) Coming of age with diabetes: patients' view of a clinic for under-25-year-olds. Diabetic Medicine 10, 285-289.
16. Erikson E.H. (1968) Identity: Youth and Crisis. Norton, New York, NY.
17. Fleming E., Carter B. & Gillibrand W. (2002) The transition of adolescents with diabetes from the children's health care service into the adult health care service: a review of the literature. Journal of Clinical Nursing 11, 560-567.
18. Jairiath N. & Weinstein J. (1994a) The Delphi methodology (part one): a useful administrative approach. Canadian Journal of Nursing Administration 7 (3), 29-42.
19. Jairiath N. & Weinstein J. (1994b) The Delphi methodology (part two): a useful administrative approach. Canadian Journal of Nursing Administration 7 (4), 7-20.
20. Kurtz Z., Mawer C. & Hopkins A. (1996) Guidelines for the transfer of young people with chronic physical disorders from paediatric to adult services. In: Z. Kurtz & A. Hopkins (Eds) Services for Young People with Chronic Disorders in Their Transition from Childhood to Adult Life, pp. 141-153. Royal College of Physicians of London, London.
21. Kyngas H., Hentinen M. & Barlow J. (1998) Adolescents' perceptions of physicians, nurses, parents and friends: help or hindrance in compliance with diabetes self-care? Journal of Advanced Nursing 27 (4), 760-769.
22. La Greca A.M. (1990) Social consequences of pediatric conditions: a fertile area for future investigation and intervention. Journal of Pediatric Psychology 15 (3), 285-307.
23. Lewis-Gary M.D. (2001) Transitioning to adult health care facilities for young adults with a chronic condition. Pediatric Nursing 27 (5), 521-524.
24. Morgan D. (1993) Successful Focus Groups: Advancing the State of the Art. Sage Publications, Thousand Oaks, CA.
25. Rasmussen B., Wellard S. & Nankervis A. (2001) Consumer issues in navigating health care services for type 1 diabetes. Journal of Clinical Nursing 10, 628-634.
26. Ritchie J. & Spencer L. (1994) Qualitative data analysis for applied policy research. In: A. Bryman & R. G. Burgess (Eds) Analyzing Qualitative Data, pp. 173-194. Routledge, London.
27. Roisman G., Masten A.S., Coatsworth J.D. & Tellegen A. (2004) Salient and emerging developmental tasks in the transition to adulthood. Child Development 75 (1), 123-133.
28. Royal College of Paediatrics and Child Health, Royal College of Physicians of Edinburgh, Royal College of General Practitioners & Royal Society Royal College of Nursing (2003) Bridging the Gaps: Health Care for Adolescents. Royal College of Paediatrics and Child Health, London.
29. Royal College of Physicians of London (1996) Services for Young People with Chronic Disorders in their Transition from Childhood to Adult Life. Royal College of Physicians of London, London.
30. Salmi J., Huupponen T., Oksa H., Oksala H., Koivula T. & Raita P. (1986) Metabolic control in adolescent insulin-dependent diabetics referred from pediatric to adult clinic. Annals of Clinical Research 18, 84-87.
31. Sawin K.J., Cox A.W., Metzger S.G., Horsley J.W., Harrigan M.P., Deaton A. & Thompson E.C. (1999) Transition planning for youth with chronic conditions: an interdisciplinary approach. National Academies of Practice Forum 1 (3), 183-196.
32. Shaw K.L., Southwood T.R. & McDonagh J.E. (2004) User perspectives of transitional care for adolescents with juvenile idiopathic arthritis. Rheumatology 43, 770-778.
33. Thompson C.J. & Greene S.A. (1997) Diabetes in the older teenager and young adult. In: S. Court & B. Lamb (Eds) Childhood and Adolescent Diabetes, pp. 67-85. John Wiley & Sons, Chichester.
34. Viner R. (2001) Barriers to good practice in transition from paediatric to adult care. Journal of the Royal Society of Medicine 40 (94), 2-4.
35. Walters E. & Sroufe L.A. (1983) Social competence as a developmental construct. Developmental Review 3, 79-97.
36. While A., Forbes A., Ullman R., Lewis S., Mathes L. & Griffiths P. (2004) Good practices that address continuity during transition from child to adult care: synthesis of the evidence. Child: Care, Health and Development 30 (5), 439-452.