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Volumn 10, Issue 1, 2012, Pages 12-21

Managing the introduction of biobanks to potential participants: Lessons from a deliberative public forum

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; CANADA; GENERAL PRACTITIONER; GENETICS; HEALTH CARE FACILITY; HEALTH CARE POLICY; HUMAN; MANAGEMENT; MEDICAL PROFESSION; PRIORITY JOURNAL;

EID: 84856859316     PISSN: 19475535     EISSN: 19475543     Source Type: Journal    
DOI: 10.1089/bio.2011.0029     Document Type: Article
Times cited : (10)

References (31)
  • 1
    • 7644232196 scopus 로고    scopus 로고
    • The social and ethical issues of post-genomic human biobanks
    • DOI 10.1038/nrg1473
    • Cambon-Thomsen A. The social and ethical issues of postgenomic human biobanks. Nat Genet 2004;5:866-873. (Pubitemid 39457502)
    • (2004) Nature Reviews Genetics , vol.5 , Issue.11 , pp. 866-873
    • Cambon-Thomsen, A.1
  • 2
    • 33845354052 scopus 로고    scopus 로고
    • Trends in ethical and legal frameworks for the use of human biobanks
    • DOI 10.1183/09031936.00165006
    • Cambon-Thomsen A, Rial-Sebbag E, Knoppers B. Trends in ethical and legal frameworks for the use of human biobanks. Eur Respir J 2007;30:373-382. (Pubitemid 47194191)
    • (2007) European Respiratory Journal , vol.30 , Issue.2 , pp. 373-382
    • Cambon-Thomsen, A.1    Rial-Sebbag, E.2    Knoppers, B.M.3
  • 4
    • 1342282436 scopus 로고    scopus 로고
    • Data storage and DNA banking for biomedical research: Informed consent, confidentiality, quality issues, ownership, return of benefits. A professional perspective
    • DOI 10.1038/sj.ejhg.5201114
    • Godard B, Schmidtke J, Cassiman JJ, Aymé S. Data storage and DNA banking for biomedical research: informed consent, confidentiality, quality issues, ownership, return of benefits. A professional perspective. Eur J Hum Genet 2003;11 Suppl 2:S88-122. (Pubitemid 38263570)
    • (2003) European Journal of Human Genetics , vol.11 , Issue.SUPPL. 2
    • Godard, B.1    Schmidtke, J.2    Cassiman, J.-J.3    Ayme, S.4
  • 5
    • 33344475590 scopus 로고    scopus 로고
    • Should donors be allowed to give broad consent to future biobank research?
    • DOI 10.1016/S1470-2045(06)70618-0, PII S1470204506706180
    • Hansson MG, Dillner J, Bartram CR, Carlson JA, Helgesson G. Should donors be allowed to give broad consent to future biobank research? Lancet Oncol 2006;7:266-269. (Pubitemid 43286456)
    • (2006) Lancet Oncology , vol.7 , Issue.3 , pp. 266-269
    • Hansson, M.G.1    Dillner, J.2    Bartram, C.R.3    Carlson, J.A.4    Helgesson, G.5
  • 6
    • 3543141747 scopus 로고    scopus 로고
    • Informed consent and biobanks: A population-based study of attitudes towards tissue donation for genetic research
    • Hoeyer K, Olofsson BO, Mjorndal T, Lynoe N. Informed consent and biobanks: a population-based study of attitudes towards tissue donation for genetic research. Scand J Public Health 2004;32:224-229.
    • (2004) Scand. J. Public Health , vol.32 , pp. 224-229
    • Hoeyer, K.1    Olofsson, B.O.2    Mjorndal, T.3    Lynoe, N.4
  • 7
    • 0037826936 scopus 로고    scopus 로고
    • Learning from experience: Privacy and the secondary use of data in health research
    • DOI 10.1258/135581903766468800
    • Lowrance W. Learning from experience: privacy and the secondary use of data in health research. J Health Serv Res Policy 2003;8(Supplement 1):2-7. (Pubitemid 36850979)
    • (2003) Journal of Health Services Research and Policy , vol.8 , Issue.SUPPL. 1 , pp. 2-7
    • Lowrance, W.W.1
  • 9
    • 38549099198 scopus 로고    scopus 로고
    • Biobanks and blanket consent: The proper place of the public good and public perception rationales
    • Caulfield T. Biobanks and blanket consent: the proper place of the public good and public perception rationales. King's Law J 2007;18:209-226.
    • (2007) Kings Law J. , vol.18 , pp. 209-226
    • Caulfield, T.1
  • 10
    • 50849101381 scopus 로고    scopus 로고
    • Resolving individuals contributing trace amounts of DNA to highly complex mixtures using high-density SNP genotyping microarrays
    • Homer N, Szelinger S, Redman M, Duggan D, Tembe W, Muehling J, et al. Resolving individuals contributing trace amounts of DNA to highly complex mixtures using high-density SNP genotyping microarrays. PLoS Genet 2008;4:e1000167.
    • (2008) PLoS Genet. , vol.4
    • Homer, N.1    Szelinger, S.2    Redman, M.3    Duggan, D.4    Tembe, W.5    Muehling, J.6
  • 12
    • 34249679282 scopus 로고    scopus 로고
    • Governance in the twenty-first century
    • Sinclair T, ed. Londn and New York: Routledge;
    • Rousenau J. Governance in the twenty-first century. In Sinclair T, ed. Global Governance: Critical Concepts in Political Science. Londn and New York: Routledge;2003:179-226.
    • (2003) Global Governance: Critical Concepts in Political Science , pp. 179-226
    • Rousenau, J.1
  • 13
    • 0141679157 scopus 로고    scopus 로고
    • The charitable trust as a model for genomic biobanks
    • DOI 10.1056/NEJMsb030036
    • Winickoff D, Winickoff R. The charitable trust as a model for genomic biobanks. N Engl J Med 2003;12:1180-1184. (Pubitemid 37122332)
    • (2003) New England Journal of Medicine , vol.349 , Issue.12 , pp. 1180-1184
    • Winickoff, D.E.1    Winickoff, R.N.2
  • 15
    • 33644829844 scopus 로고    scopus 로고
    • A well placed trust?: Public perceptions of the governance of DNA databases
    • DOI 10.1080/09581590500523186, PII G1222873613275
    • Levitt M, Weldon S. A well placed trust?: public perceptions of the governance of DNA databases. Crit Public Health 2005;15:311-321. (Pubitemid 43354868)
    • (2005) Critical Public Health , vol.15 , Issue.4 , pp. 311-321
    • Levitt, M.1    Weldon, S.2
  • 16
    • 53149117252 scopus 로고    scopus 로고
    • Biobanks engagements: Engendering trust or engineering consent
    • Petersen A. 'Biobanks' "engagements": engendering trust or engineering consent?'. Genomics Soc Policy 2007;3:31-43.
    • (2007) Genomics Soc. Policy , vol.3 , pp. 31-43
    • Petersen, A.1
  • 17
    • 2442506800 scopus 로고    scopus 로고
    • Governing UK Biobank: The importance of ensuring public trust
    • Tutton R, Kaye J, Hoeyer K. Governing UK Biobank: the importance of ensuring public trust. Trends Biotechnol 2004;22: 284-285.
    • (2004) Trends. Biotechnol. , vol.22 , pp. 284-285
    • Tutton, R.1    Kaye, J.2    Hoeyer, K.3
  • 20
    • 77954830967 scopus 로고    scopus 로고
    • Biobanking public consultation and the discursive logics of deliberation: Five lessons from british columbia
    • Walmsley H. Biobanking, public consultation, and the discursive logics of deliberation: five lessons from British Columbia. Public Understanding Sci 2010;19:452-468.
    • (2010) Public Understanding. Sci. , vol.19 , pp. 452-468
    • Walmsley, H.1
  • 21
    • 80052789592 scopus 로고    scopus 로고
    • Blueprint for a deliberative public forum on biobanking policy: Were theoretical principles achievable in practice
    • in press.
    • Molster C, Maxwell S, Youngs L, Kyne G, Hope F, Dawkins H, et al. Blueprint for a deliberative public forum on biobanking policy: were theoretical principles achievable in practice? Health Expectations 2011, in press.
    • (2011) Health Expectations
    • Molster, C.1    Maxwell, S.2    Youngs, L.3    Kyne, G.4    Hope, F.5    Dawkins, H.6
  • 22
    • 77951473507 scopus 로고    scopus 로고
    • Structuring public engagement for effective input in policy development on human tissue biobanking
    • O'Doherty K, Hawkins A. Structuring public engagement for effective input in policy development on human tissue biobanking. Public Health Genomics 2010;13:197-206.
    • (2010) Public Health Genomics , vol.13 , pp. 197-206
    • O'doherty, K.1    Hawkins, A.2
  • 24
    • 45149084128 scopus 로고    scopus 로고
    • Biobanking in British Columbia: Discussions of the future of personalized medicine through deliberative public engagement
    • DOI 10.2217/17410541.5.3.285
    • Burgess M, O'Doherty K, Secko D. Biobanking in British Columbia: discussions of the future of personalized medicine through deliberative public engagement. Personalized Med 2008;5:285-296. (Pubitemid 351824567)
    • (2008) Personalized Medicine , vol.5 , Issue.3 , pp. 285-296
    • Burgess, M.1    O'Doherty, K.2    Secko, D.3
  • 25
    • 67449097690 scopus 로고    scopus 로고
    • Engaging the public on biobanks: Outcomes of the BC biobank deliberation
    • O'Doherty K, Burgess M. Engaging the public on biobanks: outcomes of the BC biobank deliberation. Public Health Genomics 2009;12:203-215.
    • (2009) Public Health Genomics , vol.12 , pp. 203-215
    • O'doherty, K.1    Burgess, M.2
  • 26
    • 77956925163 scopus 로고    scopus 로고
    • Biobank governance: A lesson in trust
    • Hawkins A, O Doherty K. Biobank governance: a lesson in trust. New Genet Soc 2010;29:311-327.
    • (2010) New. Genet. Soc. , vol.29 , pp. 311-327
    • Hawkins, A.1    Doherty, K.O.2
  • 28
    • 77749283114 scopus 로고    scopus 로고
    • Recruiting for representation in public deliberation on the ethics of biobanks
    • Longstaff H, Burgess M. Recruiting for representation in public deliberation on the ethics of biobanks. Public Understanding Sci 2010;19:212.
    • (2010) Public Understanding. Sci. , vol.19 , pp. 212
    • Longstaff, H.1    Burgess, M.2
  • 29
    • 33646682159 scopus 로고    scopus 로고
    • Deliberative impacts: The macro-political uptake of mini-publics
    • Goodin RE, Dryzek JS. Deliberative impacts: the macro-political uptake of mini-publics. Polit Soc 2006;34:219.
    • (2006) Polit. Soc. , vol.34 , pp. 219
    • Goodin, R.E.1    Dryzek, J.S.2
  • 30
    • 84856917094 scopus 로고    scopus 로고
    • Ethical and social challenges of biobanks; Using structured public deliberation to inform policy
    • Singapore
    • Hawkins A, O'Doherty K. Ethical and social challenges of biobanks; using structured public deliberation to inform policy. 10th World Congress of Bioethics, Singapore, 2010.
    • (2010) 10th World Congress of Bioethics
    • Hawkins, A.1    O'doherty, K.2
  • 31
    • 0026738552 scopus 로고
    • Decision making during serious illness: What role do patients really want to play
    • Degner LF, Sloan JA. Decision making during serious illness: what role do patients really want to play? J Clin Epidemiol 1992; 45:941-950.
    • (1992) J. Clin. Epidemiol. , vol.45 , pp. 941-950
    • Degner, L.F.1    Sloan, J.A.2


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.